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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Multiple primary melanomas
Hello! I write to hear others stories, because I don't know anyone who's had melanoma. In the last 2.5 years, I have had 3 melanomas (2 insitu and one 1a). I've also had one basal cell. In an effort not to devastate myself, I didn't goggle anything. But thought to seek the experience of others. Anyone else traveling a…
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New to this group.
Hi. I first got melanoma in 2016. Surgically removed from my lower leg and 3 more surgeries for new spots that popped up. Been on immunotherapy for 12 months. Combo now of OPDIVO and Yervoy. Side effects are not too bad. Had big problems with pills prescribed before. My last surgery was in October 2021. I ask myself if I…
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Basal Cell Nasal Reconstructive
I just got the word in 2 weeks i see my Dr to make a plane for my basal cell removal across my nose and then right into reconstructive surgery!!! Iv never been so happy and scared to death at the same time. Do you guys think the flap surgery is the way to go, or get the skin graft surgery. I am so nervous for the process,…
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Multiple skin cancer removals at once
I was recently diagnosed with 3 basal cell skin cancers. I’m feeling really anxious about the surgery as previous Mohs surgeries have been really painful. I was hoping to get all 3 taken care of at the same time, but most places around me only do one at a time. I did find one location that would do 2 at a time . I’m just…
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Daughter
My daughter was just 2 days in diagnosed with superficial spreading melanoma. Her initial biopsy came back as melanoma, non invasive with clear margins. 0.26mm. Need less to say we are at a loss as this was completely in expected.
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dfsp -- should I be talking to onco?
Hello. I'm 21 (F) and I was diagnosed with DFSP in August 2023. I had a growth just under my left breast for about 2.5 years. It was not until it drastically grew in size that I was referred to general surgery. In gen surgery, they tried to biopsy me thinking it was a cyst, only to find out it was a tumor. I then had the…
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In 1 week, I’m having scalp surgery
There is a tumor, a rare type of skin cancer close to the crown of my head. I believe they’re removing about 3” of my scalp. Has anyone had similar surgery? I don’t know what to do … how to prepare … I’m afraid … of the unknown. I just know my head will be shaved. That’s it.
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MOHS Surgery Shock
I am hoping to hear from anyone having had MOHS surgery and is willing to share your recovery and healing process, including products and/or procedures used. I had MOHS surgery two days ago to remove a cancerous spot in the area between my upper lip and my nose. The spot is about the size of a pencil eraser…but I ended up…
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Absolutely TERRIFIED
HHi folks, I must say, it really hurts to have to join this forum. MMy situation looks bad because what I THOUGHT was an ingrown whisker is obviously cancer. My nurse yesterday knew as soon as she saw it. She said unfortunately, the waiting line to see the dermatology doctor is around 2 months. PProblem is, I assumed this…
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MOHS on ear?
I have a persistent SCC on my ear that was treated by the low dose radiation method last summer, but it has returned. My next option is to cut it out (MOHS). This is my concern. I don't have much "meat" on my ears and this lesion is on one of those areas. It seems to me that the distance between the skin and the cartilage…
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Spot that won’t heal
After showing a friend these spots on my knee and one below knee, she ask me to get it checked. I have appointment in a few weeks. Any thoughts from the photos? The raised spot on my knee came up months ago. I thought I’d bumped it and made a blood blister. But it got bigger and darker. Another spot started below but not…
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Yervoy as a preventative? Killing her instead.
My sister was diagnosed for the second time in a few years with Melanoma. They again removed the melanoma from her leg, but her Oncologist suggested she complete 4 treatements every three weeks of Yervoy as a prevantitive. She completed two treatments and has been hospitalized every since. She has had 5 surgeries in 9…
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Mastastic Melanoma stage IIC
HI, i was diagnosed on the 6th of June 2023. Had the "mole" removed, then they extended the margins for which they had cut it out. Now I have a 7 inch scar across my left shoulder blade. I've done all the tests, I think, PET scan came back with something in a lymph node. Have had the sentinel lymph node biopsy done the…
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Lymphadenopathy
Lymphadenopathy
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Skin cancer support
Today I had my 13th surgery to remove a basal cell and have had melanomas in the past cancer road of 20 years (I am 39). I am so blessed with my history of finding them early and an amazing dermatologist. I have finally put my finger to why I have been mentally struggling, and I believe it is the lack of support of people…
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Basal Cell Carcinoma and Niacinamide (vitamin B3)
I am looking for others who have experience with taking Niacinamide for skin cancers. I have had skin cancer surgeries of all manner since 1987, with increasing frequency as the years moved on. Almost all were basal cell (couple squamous, and two melanoma insitu). In 2020 a radiation oncology doctor told me to use…
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Basal cell carcinoma on face
So I 3 weeks ago did biopsy and last Saturday I had emergency surgery to remove the cancer I had a Mhos done . It was nerve wrecking . What precautions do I need do for prevention
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Just diagnosed with melanoma in lymph nodes
I was just diagnosed with melanoma cancer in my left lymph nodes and to be honest I am a nervous wreck right now. I can't believe this is happening and I was hoping for any info and what kind of support groups are out there near Riverside, CA. thank you very much for any help anyone can offer.
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Hyperbolic activity in left upper lobe
Had a PET scan on 6/4 that indicated activity in the left upper lobe measuring up to 2.6 cm with a SUV max of 7.4. I’m wondering if I need to wait for a biopsy before discussing changing my treatment plan? my concern is the SUV max of 7.4 is highly hyperbolic. my biopsy is scheduled for two weeks 6/18/2024
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Side effects of Aldara/Imiquimod for skin cancer
Hi everyone, I have a large patch of basal cell carcinoma on my back that is too big for surgery. My dermatologist has recommended either Aldara cream or superficial radiotherapy. I am somewhat concerned using Aldara, since I've heard from a couple of people that it makes them feel low or get brain fog. Does anyone have…
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SCC ON THE LOWER LIP
My husband has a place on his lower lip. A little more than two months ago he went to Derm. and had it frozen, did not work. Went back and she took out some, did not work. Went 3 & 4th time for more. First biposy showed a "wart" - last biopsy showed squamous cell carcinoma. Our worry is it is not healing well, he is having…
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New member, diagnosed today with squamous cell carcinoma, upper lip
Hello, I had a large squamous cell carcinoma excised from my lower leg in October 2014. I saw my Dermatologist again last week regarding some suspicious lesions/spots. Two biopsies were taken, and two other lesions were frozen. I received the biopsy results today and the lesion on my lip is squamous cancer which will be…
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Squamous Cell Skin Cancer
I was diagnosed with squamous cell skin cancer on the back of my left thigh in April, 2021. It was cut out and the margins were clear. I have gone every 6 months for a whole body check. My last check-up was in March 2024 and my Dermatologist said everything looks good and I don’t have to come back for one year. However, I…
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Metastatic squamous cell skin cancer after Moh's Surgery
Hello, I am a 64 year old otherwise healthy retired RN. I was recently diagnosed with metastatic cutaneous (skin) squamous cell cancer. History: I had had Mohs surgery to remove a lesion on my left arm in 2019. Just this past November, I had an MRI for a sore arm/shoulder (unrelated) and they noticed an enlarged lymph node…
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Squamos Cell Carcinoma
Has anyone ever experienced squamos cell carcinoma? If so, where was it located. My boyfriend has just been diagonsed. Age 48.
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LAG3-PD-1 Combo melanoma treatment
Any lovely souls out there have experience with this comb checkpoint inhibitors for immunotherapy ? Recently diagnose with melanoma stage IIIb. Had a incision on my arm where a 3.1mm tumor was taken out. Also lymph removale of 2 nodes, 1 showed no traces, other had .12mm cancer cell/growth in it. Lots of decisions to make…
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MAC is not a computer!
Microcystic Adnexal Carcinoma -- Is there anyone else out there who's been affected by this? Would love to chat!! My husband had major surgery to remove this from his face in 8/16. Followed by radiation, ultrasound mist, & now hyperbaric oxygen (due to exposed skull base bone not healing over yet.) Should we be concerned…
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Recurrent Squamous Cell Skin Cancer
Hi all, Happy to have found this forum. I had my first squamous cell lesion removed (with margins) in May 2015. I discovered it after some of the ink didn't take in a tattoo I got over a sore that had been there for over 2 years. Funny enough, the ink didn't take in part of the letter P of Pain. My tattoo was: HOPE - Hang…
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Should I listen to the doctor or my fear
I saw all the oncologists today.. He said to relax Surgeries in 3 weeks.. But it is nodular melanoma.. At least 1 mm.. He would take me on the 10th but I'm gonna wait till the 24th because I need a cardiologist To sign off on surgery.. But. If I can get a cardiologist They'll take me on the temp.. Going from local to…
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Just diagnosed with melanoma
Hi - New to this site and board. Just had wide excision surgery and sentinel lymph node biopsy on my forearm. Now I wait 10 days for the results. My surgeon said it's either stage 1B or 3. This is all new to me, I'm looking forward to communicating with others in the same boat.