Roll call for Endometrial Adenocarcinoma any stage

Hi Wendy,

I have the same question as Becca. What are your doctors recommending?

Not sure where you are reading about a 2% cure rate for chemo. There are loads of studies showing a large reduction in recurrence rates when chemo is used in addition to the surgery. I am stage 1A grade 3 and I did go the chemo / brachy therapy route. I'm glad I did! I am 6 months out from my treatments and feeling really good. I still have a bit of neuropothy left in my feet but it is getting better every day. I can now push myself to do some pretty intense exercise and I feel like I'm about 90% back to normal. For me, just like Soup52, it was well worth it!  And, I would do it again if needed.

Only you can make a decision that works for you. I hope you find the information needed to be comfortable in whatever that decision will be.

Love and Hugs,

Cindi

Yesterday had my oncologist appointment and the dreaded CT scan. It was a very a long day since it is a 2.5 hour drive to my cancer center and the day started with a 9:30 AM appointment, followed by the CT scan and then a 3:30 PM appointment with my oncologist. Definitely was practicing Kim's breathing technique to reduce "scanxiety" and it was good that I was able to get the results on the same day. So no new issues and the two things they were watching have not changed.  Blood work looked good also, so my doctor is now recommending three month follow ups and not scheduling any future CT scans unless the blood work does not look good or symptoms appear. In her words she said that a reoccurrence could happen next week, in 10 years, or never so just live your life and enjoy each day. At the end of December I will have reached my one year anniversary! So grateful and thankful!!

Beachrose said:

Good news!

Yesterday had my oncologist appointment and the dreaded CT scan. It was a very a long day since it is a 2.5 hour drive to my cancer center and the day started with a 9:30 AM appointment, followed by the CT scan and then a 3:30 PM appointment with my oncologist. Definitely was practicing Kim's breathing technique to reduce "scanxiety" and it was good that I was able to get the results on the same day. So no new issues and the two things they were watching have not changed.  Blood work looked good also, so my doctor is now recommending three month follow ups and not scheduling any future CT scans unless the blood work does not look good or symptoms appear. In her words she said that a reoccurrence could happen next week, in 10 years, or never so just live your life and enjoy each day. At the end of December I will have reached my one year anniversary! So grateful and thankful!!

 

It's so good for those of us currently undergoing treatment to hear how things are going for those past it. So many good people here to learn and draw strength and hope from!  Thank you and congratulations.

Beachrose said:

Good news!

Yesterday had my oncologist appointment and the dreaded CT scan. It was a very a long day since it is a 2.5 hour drive to my cancer center and the day started with a 9:30 AM appointment, followed by the CT scan and then a 3:30 PM appointment with my oncologist. Definitely was practicing Kim's breathing technique to reduce "scanxiety" and it was good that I was able to get the results on the same day. So no new issues and the two things they were watching have not changed.  Blood work looked good also, so my doctor is now recommending three month follow ups and not scheduling any future CT scans unless the blood work does not look good or symptoms appear. In her words she said that a reoccurrence could happen next week, in 10 years, or never so just live your life and enjoy each day. At the end of December I will have reached my one year anniversary! So grateful and thankful!!

 

Beach, congrats on those results! I agree with the doctor - go live your long, happy life and don't ever look back! Kim

New here my name is Cindy. I am a young 75 year old although right now I don’t feel that way because I am extremely drained and very depressed. I was diagnosed recently with Adenocarcinoma endometrium lining of the uterus grade one according to the tissue biopsy ultrasound indicated no masses in my uterus. I have never had an Anesthesia. . I have never had anesthesia or major surgery in my life.

I will see an oncologist gyn in a few days. I actually feel more afraid of the anesthesia than the surgery. I’m terrified I’m afraid I will wake up and I know that’s horrible to even say but I have such a fear. I have been on 1 mg of estradiol for many many years without progesterone, my doctor self at such a low-dose I did not need progesterone. Now I am 10 mg a day in Provera since May 2023. I have had no vaginal bleeding for 30 days now but I know that there’s still cancer on the lining of my uterus, and even though it’s slow growing , I’m afraid to not do anything and to see if the hormone therapy will eradicate anything but it’s such a gamble. I don’t know how to get a grip on this fear I have of anesthesia. Maybe someone could help me with this. Bless all of you as well .

I am also "supposed to go on our yearly vacations" which have been planned for over a year. July 16th Montana and August 30 Vegas. I don't think Montana will happen. Robotic surgery for a hysterectomy is supposed to be less invasive (God knows how :( and better healing time. I am wondering how long in reality is usually takes to get back to "normal" where you can enjoy your activities and life again? I have been dealing with this since May 1st because the first tissue bio came back as nothing wrong. Thank God my GYN did another recently and that is when it came back as GRADE 1....Adenocarcinoma Endometrium . I have had so many scares in my life and they always thank God turned out to worry about nothing. BUT this, I am a nervous wreck and wish I wasn't like this. The thought to going under is so terrifying to me. I read that some go on Hormone therapy when low grade, however I will always wonder if it is spreading or not????