Roll call for Endometrial Adenocarcinoma any stage

Unknown

Hi Becca

I'm a mixed endo/serous also.  I asked my doctor if that made a difference and he told me once diagnosed with serous, they treat it as serous.  I'm also same stage, grade as you.  I'm 2 months post chemo, not going to worry about what if's, just going to be positive.  Yes, thinking about the cancer cells dying when getting chemo was great for my mind.  Hugs Nancy

Moped7946

Stage lllc/path report

Found out there was lymph node involvement so I will be getting a port tomorrow. Will be getting carboplatin and taxol for 18 weeks starting next Tuesday. Not much else to say. I have a lot of hats now.

beccabtown

Day 1 post-chemo, round 1

I just want to thank everyone who sent notes of support on this and other threads. My first treatment went fine yesterday. Port worked well. Only effects so far have been restless legs (pretty bad), some pain on the soles of my feet (but not really tingling or numbness), and slight nausea this morning. I'm taking my Zofran religiously as a preventive measure. I know this isn't the thread for this kind of comment, so thanks for bearing with me this time. 

beccabtown

EZLiving66 said:

There are a lot of women

There are a lot of women doing just fine with "advanced cancer" and some are on this board.  It becomes a chronic disease instead of a curable one, just like diabetes or lupus.  We're here for you (((Jacjac2)))!

Love,

Eldri

I like the way you phrased that

I like the way you phrased that--thinking of the possibility of recurrence, etc., as living with a chronic disease. I don't think I'm close to that point now, but it gives me hope to think of it that way. Thanks!

Rebecca

Beachrose

IV B adenocarcinoma with papillary serous features uterine

 

Hi I just joined this board although I have been reading it for awhile. Had surgery in June of 2015 which could not be done robotically as surgeon hoped due to the size of my tumor which was determined to be a grade 3. Completed six rounds of chemotherapy and four brachytherapy treatments on Dec. 19, 2015. Gratefully had a scan in March and lung and thyroid nodes were not enlarged from previous scans nor had anything new appeared! In the mid 80's had most of my thyroid removed due to a malignant tumor but did not need further treatment after that. Small piece of right thyroid was left and that is where the thyroid nodule is, but had that biopsied in Dec. 2015 and it was not malignant so the doc's are just watching it for now. So grateful that I found this board because there is so much information here about the disease and treatments. Also since my doctors seem reluctant to show any encouragement (told me this type of cancer reacts similar to ovarian and very likely will reoccur) and that my treatment is not considered to be "curative" I am relieved to read some of your stories. Will be having my six month scan in a few weeks and am working on not becoming anxious. If I let myself go there I tend to think of avery ache or pain as a bad sign. Thank you all for your encouragement and information that is on this board!!

 

TeddyandBears_Mom

Beachrose said:

IV B adenocarcinoma with papillary serous features uterine

 

Hi I just joined this board although I have been reading it for awhile. Had surgery in June of 2015 which could not be done robotically as surgeon hoped due to the size of my tumor which was determined to be a grade 3. Completed six rounds of chemotherapy and four brachytherapy treatments on Dec. 19, 2015. Gratefully had a scan in March and lung and thyroid nodes were not enlarged from previous scans nor had anything new appeared! In the mid 80's had most of my thyroid removed due to a malignant tumor but did not need further treatment after that. Small piece of right thyroid was left and that is where the thyroid nodule is, but had that biopsied in Dec. 2015 and it was not malignant so the doc's are just watching it for now. So grateful that I found this board because there is so much information here about the disease and treatments. Also since my doctors seem reluctant to show any encouragement (told me this type of cancer reacts similar to ovarian and very likely will reoccur) and that my treatment is not considered to be "curative" I am relieved to read some of your stories. Will be having my six month scan in a few weeks and am working on not becoming anxious. If I let myself go there I tend to think of avery ache or pain as a bad sign. Thank you all for your encouragement and information that is on this board!!

 

Welcome Beachrose. Please

Welcome Beachrose. Please continue to reach out for support. We are here for each other!

I just had my 6 month scan. I'll get the results on 7/5. While it is easier to say than do... I try not to worry about the results. It just isn't worth it to speculate. I think we all tend to pay attention to all of our aches and pains and have to talk ourselves down from time to time. So, my mindset is that I am and will continue to be disease free and won't dwell on any other thoughts unless I'm told otherwise.

I'm glad you officially joined us!

Love and Hugs,

Cindi

Kvdyson

Beachrose said:

IV B adenocarcinoma with papillary serous features uterine

 

Hi I just joined this board although I have been reading it for awhile. Had surgery in June of 2015 which could not be done robotically as surgeon hoped due to the size of my tumor which was determined to be a grade 3. Completed six rounds of chemotherapy and four brachytherapy treatments on Dec. 19, 2015. Gratefully had a scan in March and lung and thyroid nodes were not enlarged from previous scans nor had anything new appeared! In the mid 80's had most of my thyroid removed due to a malignant tumor but did not need further treatment after that. Small piece of right thyroid was left and that is where the thyroid nodule is, but had that biopsied in Dec. 2015 and it was not malignant so the doc's are just watching it for now. So grateful that I found this board because there is so much information here about the disease and treatments. Also since my doctors seem reluctant to show any encouragement (told me this type of cancer reacts similar to ovarian and very likely will reoccur) and that my treatment is not considered to be "curative" I am relieved to read some of your stories. Will be having my six month scan in a few weeks and am working on not becoming anxious. If I let myself go there I tend to think of avery ache or pain as a bad sign. Thank you all for your encouragement and information that is on this board!!

 

Beachrose - you are in good company here

Beachrose - you are in good company here. Seems that we all suffer from some level of scanxiety but it all comes down to how we react once we feel it creeping in. Fighting it doesn't seem to work for me. I just try to accept that my body is reacting to this thought I am having then calmly try to breathe deeply 10 times, smile gently and relax. It doesn't always work but when it does, it really makes a difference. I hope you give it a try. Good luck to you and please don't ever give up hope! Kim

Unknown

My Dr doesn't do scans

So no scanxiety for me!  Of course, I sometimes think that is probably bad that I don't know what (or doesn't) lurk in my body, but I'm happy for now not knowing.  Beachrose, welcome, my doctor said pretty much the same about this type, it pretty much recurs, but after I finished chemo he said we will watch for symptoms, and that he has other treatments available IF it should come back.  He told me to take the summer off and see him in August.  Hugs Nancy

Beachrose

TeddyandBears_Mom said:

Welcome Beachrose. Please

Welcome Beachrose. Please continue to reach out for support. We are here for each other!

I just had my 6 month scan. I'll get the results on 7/5. While it is easier to say than do... I try not to worry about the results. It just isn't worth it to speculate. I think we all tend to pay attention to all of our aches and pains and have to talk ourselves down from time to time. So, my mindset is that I am and will continue to be disease free and won't dwell on any other thoughts unless I'm told otherwise.

I'm glad you officially joined us!

Love and Hugs,

Cindi

Thank you Cindi for your

Thank you Cindi for your encouraging and welcoming words! I really like your mindset and will work on developing my own mindset (somedays it is good others not so much). I am very greateful that I have progressed to this point without any new occurances. I will be thinking about you when you get your results on the 5th and praying for good news for you.  So many strong women on this board.  Hope you enjoy the holiday weekend.

Love and gratitude,

Barbara

Beachrose

Kvdyson said:

Beachrose - you are in good company here

Beachrose - you are in good company here. Seems that we all suffer from some level of scanxiety but it all comes down to how we react once we feel it creeping in. Fighting it doesn't seem to work for me. I just try to accept that my body is reacting to this thought I am having then calmly try to breathe deeply 10 times, smile gently and relax. It doesn't always work but when it does, it really makes a difference. I hope you give it a try. Good luck to you and please don't ever give up hope! Kim

Kim, love your term scanxiety

Kim, love your term scanxiety! Helps to think of it that way and makes me laugh. Actuallty tried the breathing technique yesterday and it did help to make me feel more relaxed. You are right because for me fighting it does not help me at all, except to make me feel like a failure when it doesn't work. I have been trying to use meditation as a way to deal with things also and that is a wortk in progress. Honestly it helps so much reading the many stories on this board and realizing that we are not alone in this journey. Thank you Kim!! Barbara

Beachrose

unknown said:

My Dr doesn't do scans

So no scanxiety for me!  Of course, I sometimes think that is probably bad that I don't know what (or doesn't) lurk in my body, but I'm happy for now not knowing.  Beachrose, welcome, my doctor said pretty much the same about this type, it pretty much recurs, but after I finished chemo he said we will watch for symptoms, and that he has other treatments available IF it should come back.  He told me to take the summer off and see him in August.  Hugs Nancy

Thank you Nancy for the

Thank you Nancy for the welome and glad no scanxiety for you this summer! It is confusing regarding the scans my doctors have different opinions on them also regardig how often to do them so it is hard to know which way to go. Did you have any scans after your treatment was completed? My surgeon has told me to watch for any symptons that are not normal or usual for me but honestly after the surgery, chemo, and radiation nothing in my body feels normal or as it was before.  Hoping this post does not appear multiple times as I have posted it a few times but it did not seem to work.

Again thank you Nancy, Barbara

Unknown

Beachrose said:

Thank you Nancy for the

Thank you Nancy for the welome and glad no scanxiety for you this summer! It is confusing regarding the scans my doctors have different opinions on them also regardig how often to do them so it is hard to know which way to go. Did you have any scans after your treatment was completed? My surgeon has told me to watch for any symptons that are not normal or usual for me but honestly after the surgery, chemo, and radiation nothing in my body feels normal or as it was before.  Hoping this post does not appear multiple times as I have posted it a few times but it did not seem to work.

Again thank you Nancy, Barbara

I've not had any scans

I was diagnosed by an in office biopsy, sent to a gyno/oncologist who reviewed the path report and said cancer, and he did Da Vinci surgery.  I didn't have a scan priior to the surgery, nor have I had one since.  I've only had one CA125 blood test, taken after my 2nd chemo, and he said he doesn't do those either for follow up.  I'm also just on the watching for symptoms (& probably waiting) schedule of seeing him every three months.  Hugs Nancy

Loquitur

unknown said:

I've not had any scans

I was diagnosed by an in office biopsy, sent to a gyno/oncologist who reviewed the path report and said cancer, and he did Da Vinci surgery.  I didn't have a scan priior to the surgery, nor have I had one since.  I've only had one CA125 blood test, taken after my 2nd chemo, and he said he doesn't do those either for follow up.  I'm also just on the watching for symptoms (& probably waiting) schedule of seeing him every three months.  Hugs Nancy

I've Not Had Any Scans

My gyn/onc has the same philosophy - go for a pelvic exam every 3 months and watch out for symptons without scans. This has been somewhat distressing to me since I've felt like all preventative measures to discover a recurrence are not being taken. However, I read on a group somewhere, wish I coud remember where, that a member commented that scans were not of much value to her with her type of cancer since  she had CT and PET scans which did not show anything while her gyn/onc found the recurrence on her vaginal cuff with his speculum. At my next 3 month pelvic I will ask my gyn/onc if he can see things with his speculum that the scans can not. I'm new to this and its very interesting and making me feel better about his approach.     Susan 

wendybru

janh_in_ontario said:

NED 5 years

I was diagnosed Sept 15, 2010. Hysti in October. Stage 2 grade 2. No chemo or radiation. Have had a couple of scares for recurrence but so far I am sleeping with NED.

I keep reading here, learning from you great ladies and some of your hubbies and children. God bless us all.

Happy Thanksgiving to my American friends!

 

Jan

 

 

 

 

NED 5 years

Congratulations!  How'd you do that?  Why do some recover fully, and others get plagued by recurrances?

wendybru

GoodLuck15 said:

Yesterday I had my 1st

Yesterday I had my 1st anniversary CTScan and am still NED!

 

I was diagnosed in January 2015 with Stage III Grade 3, mixed type with metastasis to the right ovary. After open-abdominal surgery the next month, nothing was found in 31 lymph notes or in the pelvic wash. Presurgery CA-125 was 33.

 

For a number of reasons I declined chemotherapy and started working with a holistic doctor in changing my diet/lifestyle, adding mistletoe and weekly IV vitamin C. My CA-125 has dropped to 5 (getting tested every 2-3 months) and my scans have been clean so far. Best of all, I feel terrific.I totally get that my choice is not for everyone and so I am in no way recommending that others do this. It is a deeply personal decision that has involved numerous factors.

 

I held all of you in mind and heart last night when I attended an event at the local Tibetan monastery. The program focused on, among other things, blessings to help all of us remove obstacles -- and extend our lives. It felt like such a fitting end to a joyful day. My best to you all this year! 

 

yesterday I had my 1st

GoodLuck5

Wow, that is great news. I was diagnosed stage III, grade 2, on May 9, 2016 after a total hysterectomy. Am contemplating chemo, but my gut says no, try the holistic road. I wonder if chemo leaves behind cells that develop a resistance to it, and come back stronger?  No one can say for sure, and there are no truly reliable tests to run for evidence of a real cure. Thanks for sharing, I find your story very hopeful.    Wendy

retiredfromstate

Serous uterine cancer

Hi I am stage 1a serous uterine cancer. Diagnosed in May 2016. Will be starting chemo soon.

NoTimeForCancer

wendybru said:

yesterday I had my 1st

GoodLuck5

Wow, that is great news. I was diagnosed stage III, grade 2, on May 9, 2016 after a total hysterectomy. Am contemplating chemo, but my gut says no, try the holistic road. I wonder if chemo leaves behind cells that develop a resistance to it, and come back stronger?  No one can say for sure, and there are no truly reliable tests to run for evidence of a real cure. Thanks for sharing, I find your story very hopeful.    Wendy

Hello, Wendy.  I saw your

Hello, Wendy.  I saw your other post wondering why some people have recurrences and others to fine - I think that is one of the eternal questions we just don't know the answer to.

Everyone has to do what they think is best for themselves when it comes down to treatment.  A lot of women have worked with naturopaths with current treatment regimens.  If you choose holistic I would just recommend you do your research.  Sadly there are plenty of people happy to take advantage of individuals who feel desparate for a cure, and their only motive is money.  

Personally I wanted to do everything I could do to beat off the beast and whle I try to eat well, I also chose the conventional chemo/radiation routine.  

wendybru

new member, roll call

Hi, Wendy here.  Stage IIIa, grade 2, total hystie May 9, 2016, trying to decide next steps.  Really do not want chemo/radiation.  Pelvic wash negative for cancer, recent scan clean, ca-125 is 26, no other test out there that I know of. Am scouring websites, chrisbeatcancer.org is very informative and inspiring.  I'm considering doing nothing, has anyone out there tried that?  I keep reading chemo only has a 2% cure rate, is that possible? Has anyone seen Peg Harvey's utube video?  She cured stage IV through diet and mind/body.  This is a great resource, thanks to all of you.

beccabtown

Wendy, have your doctors left

Wendy, have your doctors left the decision up to you, or what are they recommending?

P.S. My TAH was the same day as yours. 

Soup52

I am endometrial clear cell

I am endometrial clear cell 3c. I've had external and brachytherapy radiation as well as 6 chemos of carbo and taxol. After my recent ct, I am currently NED. For me it was worth it. My oncologist will be on the watch with me where I will meet with him again in 3 months and have another scan in 6 months. For me it was all worth it. I also had the devinci surgery first with a scan before that. My ca 125 is 15 which is in the normal level.