Roll call for Endometrial Adenocarcinoma any stage

I was diagnosed through a D&C done by my gyn after several episodes of vaginal bleeding. The results came back with UPSC  in both my uterus and cervix. These finding were confirmed after my radical hysterectomy on Dec 5 2013. It's been 18 months since I completed treatment and I am still NED. Sandy

HellieC said:

Adenocarcinoma

Hysterectomy for atypical hyperplasia in 2001 - no cancer found!
"Recurrence" in 2008 - Grade 1, treated with pelvic radiotherapy
Second recurrence in 2010 - Grade 2 (it's getting more agressive!) major pelvic debulking surgery, colostomy, and 6 rounds carbo/taxol completed January 2011
Third recurrence in July 2012 - Letrozole (aromatase inhibitor) gave partial response for 18 months
Fourth recurrence in March 2014 - Provera (progesterone, which didn't work) swapped to tamoxifen and had Cyberknife radiotherapy in Oct 14. Currently responding.

I was supposed to be "cured" after the hysterectomy because the pathology didn't show any cancer.  I must be one of the very few women who find a recurrence 7 years later!

Do I get a prize for being the longest surviving member with recurrence (it's 14 years if you count from the hysterecomy!)

How about 14 prizes?!!!! What a journey. And, I'm so glad you are still celebrating life. Here's to all of us continuing to celebrate together for many many many more years to come!

I had endometrial adenocarcinoma which was UPSC, stage IVb, five and a half years ago.  I'm currently NED.

I'm Endometrial Adenocarcinoma Stage 4.  Possible diagnosis on  Dec. 2015, confirmed 1/25/16 when an entire tumor was taken out.  Will see doctor Thursday before my Chemo.

im stage 3C clear cell. 1 more internal radiation. I've had the surgery and chemo will be coming soon.

Soup52 said:

Abbreviations

Since I am newer to this site, I don't know what all the abbreviations stand for. Can someone enlighten me ? Things like US... Etc. sorry I can't remember all of them

I've been here for quite a while and I still need to ask sometimes! UPSC is uterine papillary serous carcinoma, a particularly agressive form of uterine cancer. NED means No Evidence of Disease. Your doctor will probably be reluctant to use the word "cured" and instead says he sees no evidence of cancer( disease). CA125 is not an abreviation but rather the name of a blood test for a cancer indicator. It is not always a good indicator for uterine cancer, but generally 0-<35 is normal, anything higher would be an indication for the presence of cancer.

You will find answers to so many of your questions in threads on this board, but always ask about anything you are unsure of. We all enjoy sharing our knowledge.  In hope and caring, Sandy

Sandy3185 said:

abbreviations

I've been here for quite a while and I still need to ask sometimes! UPSC is uterine papillary serous carcinoma, a particularly agressive form of uterine cancer. NED means No Evidence of Disease. Your doctor will probably be reluctant to use the word "cured" and instead says he sees no evidence of cancer( disease). CA125 is not an abreviation but rather the name of a blood test for a cancer indicator. It is not always a good indicator for uterine cancer, but generally 0-<35 is normal, anything higher would be an indication for the presence of cancer.

You will find answers to so many of your questions in threads on this board, but always ask about anything you are unsure of. We all enjoy sharing our knowledge.  In hope and caring, Sandy

Thanks so much for the info. I'm sure i will be asking many more questions.

TartanToes said:

Roll Call - Endometrial Adenocarcinoma

As I posted earlier, I was diagnosed in November, 2013 after a total hysterectomy and lymph node removal on October 29, 2013. Early testing had my cancer at Stage I. The path report came back as Stage IIIc. My tumor while very widespread and even included the top of my cervix was thankfully a grade 1.

Hi Tartan Toes!  Welcome to the group nobody wants to belong to!!  But....if you have uterine cancer this is the place to be.  I'm Eldri, 63, in Green Bay, WI, married for almost 45 years with four kids.

Love,

Eldri

TartanToes said:

Hi Everyone!

I just wanted to share some good news. I saw my GYN oncologist yesterday for my 3-month check up. I happily have no evidence of disease. My next check up in May will mark the 2 year point in my remission. I got a tattoo to celebrate my first year and had it centered over one of my radiation targeting tattoos. What should I do to celebrate year 2??

Hugs!

First of all, congratulations!!!  After each three month extension of NED, a celebration is in order and after a two year mark, an even bigger celebration!  I'm not a tattoo person so I would get a piece of jewelry to commerate this milestone.

Love,

Eldri

TartanToes said:

Hi Everyone!

I just wanted to share some good news. I saw my GYN oncologist yesterday for my 3-month check up. I happily have no evidence of disease. My next check up in May will mark the 2 year point in my remission. I got a tattoo to celebrate my first year and had it centered over one of my radiation targeting tattoos. What should I do to celebrate year 2??

Hugs!

What a wonderful milestone to hit. Perhaps consider a trip to celebrate this most awesome milestone? Personally,  I like to travel,  so that is often my go to when wanting to commemorate a life event. Sometimes just a short road trip w my favorite music playing, heading for a bit of adventure is the best gift I can give myself.  I'm really happy for you and appreciate you posting your good news. It's uplifting and encouraging,  and however you choose to celebrate,  I hope it's joyous!