Roll call for Endometrial Adenocarcinoma any stage

Lou Ann M said:

I am serous papillary

I am serous papillary endrometrial adenocarcinoma stage 4 high grade  diagnosed Oct. 2012'  Lou Ann

stage 3a, grade 3. I had UPSC diagnosed 10/14/13 and after surgery and 6 rounds of chemo, I am still NED. UPSC is ALWAYS adenocarcinoma.

My mother was diagnosed with endometrial adenocarcinoma in March 2009, Stage 1b,Grade 1. Had a hysterectomy with no radiation or chemo recommended. She was in the "lucky" high percentile for low chance of recurrence. In Feb 2015 she was diagnosed with colon cancer that upon pathology turned out to be endometrial adenocarcinoma Grade 2. The oncologist said they can't stage it, too rare an occurence. It hasn't shown up anywhere else yet. One oncologist considers it a new primary and other oncologist a recurrence. One omentum node positive this time. She's on Megace and oral Cytoxan. We've had different opinions as to which treatment course to take. She's going to Cleveland Clinic as soon as she recovers from a hip injury to get a tie breaking opinion on treatment.

Double Whammy said:

Stage 1b, Grade 1

Or maybe it was Stage 1a.   I've been kicked to the curb by my gynecologic oncologist (over 5 years).  I believe I am absolutely fine.   So shocked and saddened to read of your mom's recurrence, Pam.  In my mind, if it was indeed endometriod adenocarcinoma found in the colon, well, it's gotta be a recurrence because it originated in her endometrium which she no longer has.  So how can it possibly be a new primary?  But then, what do I know?   I hope she does well (of course).

Was this  found on routine colonoscopy or did she have symptoms? (I'm having an overdue colonoscopy end of January). 

Suzanne

Thank you Suzanne. Your thoughts on the recurrence versus primary is exactly the same as mine and her new oncologist. I'm a nurse and the new primary didn't make sense to me. The original oncologist was trying to say she must have had undiagnosed endometriosis. Took her for a second opinion and the oncologist said "No way is that a primary. Same cells, same type; so it travelled via the lymphovascular system." She had been having symptoms she thought were related to post gallbladder removal, but took it upon herself to have a colonoscopy before she was due for one based on a family history of colon cancer on her mother's side. Apparently this type of recurrence is so rare it is a 2% chance of it happening. I literally have found no info on treatment protocols, because there isn't one. That's also why they won't stage it. I'm so glad you are doing well and are going for your colonoscopy. - Pam

Thanks, Cucu.  There is an older thread out there and when it gets too long I have a heck of a time finding new posts.

Diagnosed April 2012 with Uterine Papillary Serous Carcinoma (UPSC) Stage 1A Grade 3 (UPSC is always Grade 3).  6 chemo (taxol/carboplatin) radiation (25 external/3 internal).

God bless all the warriors with any cancer and I pray everyday that they find a cure for this evil disease.

I was diagnosed Sept 15, 2010. Hysti in October. Stage 2 grade 2. No chemo or radiation. Have had a couple of scares for recurrence but so far I am sleeping with NED.

I keep reading here, learning from you great ladies and some of your hubbies and children. God bless us all.

Happy Thanksgiving to my American friends!

Jan

Cucu me said:

Thank you

all my sisters

wish the best of luck to us.

Disease  - UPSC  - discovered at routine exam August 2010.

Surgery in Sept. '10  revealed UPSC stage 4B grade 3   with  cancer

found everywhere in pelvic area and in all 40 lymph nodes tested -

horrible.    Chemo (no radiation) ended in Feb. 2011 and have been

NED since then. BRCA 2  positive. CA125 stands at one. Have been

eating a black raspberry smoothie every single day for four and

a half years -  berries preground 5 minutes in Vitamix so that the tiny

seeds are pulverized. Smoothie   also includes - half a lemon,

flaxseed,  kuzu root, avocado, cinammon, stevia, cranberries.

I don't know if this is helping but I'm afraid to stop as you can imagine.

Sometimes other berries.  I started adding a carrot last week.

The rest of my diet is only anticancer foods.  Good luck to all.

After a routine hysterectomy in Seot 2005 I was found to hzvr cancer in my uterus, cervix and left ovary.   Unable to determine where it originated.  Thought MMT but went with endometrial and treated it as ovarian

Oct 2005 - staging surgery.  alsi removed appendix omentum and 25 lymph nodes.  Nothing else found.   Started taxol and carbo but allergic to taxol so used gemzar and carbo 

Aug 2006 - 3 treatments of HDR brachytherapy

Aug 2009 - after a CT scan my substitute doctor said I had a recurrence.  Wanted to start me on chemo and said I would probably end up with a colostomy 

Nov 2008 - went to another doctor who did a biopsy.  It came back positive but he sent me back to previous doctor

Feb 2010  - went to a completely different facility 3 hours from my home     The doctor said he believed I had clear margins   He did surgery    The tumor ended up negative    However did find one lymph node with microscopic cells   Went on a wait and see approach

2014 - had another soft tissue mass which was growing   Kept an eye on it   Developed many other symptoms which the OA said was not infinitive of recurrence    Found out I had hydroureternophrosis caused by the Brachytherapy     Ended up getting stent in August of 2014  stent replaced every 3-4 months

2015 - keeping eye on mass    Surgery to have my ureter re implanted to not have to go for stent replacement surgery for the rest of my life and to get a good biopsy of soft tissue mass scheduled for Dec 14th.

I was diagnosed Stage IIIC in April 2013  three other opinions have me as Stage IVB due to a difference in opinion about the furthest malignant met found at up my surgery.  Either way course of treatments would ve been the same.  Six rounds of carbo/taxol, 28 radiation and 3 brachytherapy.  New mets, all spread out and inoperable were found within 30 days of finishing treatment.  Then four Doxil, 12 Avastin (new growth was found after number 11) and I am now in a clinical trial for aldoxorubicin and gemzar  tested across a variety of cancers.  I just finished cycle six (each cycle has two treatments).  I had a biopsy on a new lesion last Friday and am so waiting for the results.  Hopefully it isn't malignant in which case I will not be removed from the study.  Here is hoping!

I have endometrial MMMT that includes adenocarcinoma as an element in the mixture of cell types. Diagnosed as Stage 3B, Grade 3 in April, 2013. I had a high-penetration of my myometrium - they estimated more than 90% - and it was in my pelvic fluid. Not found in any of the vast number of lymph nodes removed. I had the customary 6 rounds of carbo/platin. I did not have radiation.

Through a pap test.  Hysterectomy July, 2013 and found out it was UPSC.  I started Carboplatin/taxol in Aug. 2013.  Finished Jan. 2, 2014 and have been NED ever since.  No symptoms except bleeding or spotting from Feb. 2013 to May, 2013.   Two different types of abnormal cells were found on pap test and cancer was diagnosed as result of colposcopy.

Was told UPSC is a sub-type of Endometrial Cancer.  UPSC is rare.

Jeanette