It's go time! Update in pictures

2

Comments

  • kikz
    kikz Member Posts: 1,345 Member
    Dear Alexandra

    Praying for the best results for you.  I believe it is vital to stay upbeat in order to deal with this disease.  That is not always easy as we all know.  Your humor is deliciously wicked.  You certainly add liveliness to this board.

    By the way, I wish Val would send a couple of players my way!

     

    Love you,

    Karen

  • Alexandra
    Alexandra Member Posts: 1,308
    SOL

    I am not Irish but I easily could be, seeing how things are progressing. image

    Last Tuesday I had the core needle biopsy. I followed instructions, kept the area clean, didn't wash it for 24 hrs, blah-blah-blah. For over a week I was watching the swelling at the biopsy site get bigger, harder and more painful. I figured that it was normal and kept an ice pack on it. This afternoon I finally lost patience and paged the nurse. She told me to come in immediately.

    image    Mad dash to see the doctor through downtown Toronto traffic.

    Doctor was not there. Instead there was a female resident from France who was about 24 but looked 14, probably thanks to French meaningful anti-aging melons made famous by Cindy Crawdord's annoying informercials.

    Drawing 7" x 14" outline of the swelling on my belly with a magic marker, 3 photographs, taking vital signs, an ultrasound and a blood test later I was told that I have an giant internal hematoma and it is infected.

    image

    I started on antibiotics 3 times a day x 10 days. image 

    Active infection disqualifies me from the PARP trial.  I am not a happy camper. image

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    Alexandra said:

    SOL

    I am not Irish but I easily could be, seeing how things are progressing. image

    Last Tuesday I had the core needle biopsy. I followed instructions, kept the area clean, didn't wash it for 24 hrs, blah-blah-blah. For over a week I was watching the swelling at the biopsy site get bigger, harder and more painful. I figured that it was normal and kept an ice pack on it. This afternoon I finally lost patience and paged the nurse. She told me to come in immediately.

    image    Mad dash to see the doctor through downtown Toronto traffic.

    Doctor was not there. Instead there was a female resident from France who was about 24 but looked 14, probably thanks to French meaningful anti-aging melons made famous by Cindy Crawdord's annoying informercials.

    Drawing 7" x 14" outline of the swelling on my belly with a magic marker, 3 photographs, taking vital signs, an ultrasound and a blood test later I was told that I have an giant internal hematoma and it is infected.

    image

    I started on antibiotics 3 times a day x 10 days. image 

    Active infection disqualifies me from the PARP trial.  I am not a happy camper. image

    Oh Alexandra

    I am so bummed out for you.  Does this mean that you'll never qualify for the PARP trial or just not qualify for now?  What is next on the game plan for you?

    Kelly

  • Alexandra
    Alexandra Member Posts: 1,308

    Oh Alexandra

    I am so bummed out for you.  Does this mean that you'll never qualify for the PARP trial or just not qualify for now?  What is next on the game plan for you?

    Kelly

    Thank you Kelly!

    In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.

    Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.

    image

     

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    Alexandra said:

    Thank you Kelly!

    In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.

    Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.

    image

     

    Wow, ala Vito Corleone!

    Sending you lots of positive thoughts that the antibiotic does its job!

    Hugs,

    Kelly

  • sk_Nebraska
    sk_Nebraska Member Posts: 26
    Alexandra said:

    Thank you Kelly!

    In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.

    Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.

    image

     

    PARP

    Lots of water!!!! Flush that infection outta there!! You have PARP waiting! "Life truely does just happen," doesnt it? Happy Passover and will double the prayers, good thots.

    From others comments, this isn't just your admission into the trial--we all want it for you:) Now would be nice.

    Sue

  • ovarian_support
    ovarian_support Member Posts: 44
    Alexandra said:

    Thank you Kelly!

    In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.

    Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.

    image

     

    Infections Suck

    I'm sorry to hear about all that and having some strange jerk yell at you probably didn't help :( Hopefully these anti-biotics will do the trick and you'll be accepted into the Trial.  I'm sending positive thoughts your way.

  • Goldheart
    Goldheart Member Posts: 36
    Alexandra said:

    Thank you Kelly!

    In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.

    Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.

    image

     

    Hope you make it

    Alexandra, great to hear from you always.

  • seatown
    seatown Member Posts: 261 Member
    Alexandra said:

    Thank you Kelly!

    In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.

    Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.

    image

     

    What next?

    So sorry to hear about the infection. "Infected hematoma"? Never heard of such a thing. It's a direct result of the biopsy, right? Hope the antibiotics do their thing & you are soon on your way to the PARP trial. I'd wish you good luck, but I don't want to jinx it.

    Carole

  • Alexandra
    Alexandra Member Posts: 1,308
    I got in!

    Drum roll  image   Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.

    I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening). 

    Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.

    image

     

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    Alexandra said:

    I got in!

    Drum roll  image   Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.

    I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening). 

    Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.

    image

     

    Congrats on your enrollment

     

    Alexandra, Congrats on your enrollment!!

    snoopy-happy-dance.jpg

    Kathy

    P S.  Sorry to hear about your post-biopsy abscess, but I am glad to hear its taken care of.

  • wholfmeister
    wholfmeister Member Posts: 315
    Alexandra said:

    I got in!

    Drum roll  image   Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.

    I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening). 

    Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.

    image

     

    Yeah!

    I am so happy your perseverance paid off!  It is that "Never say die!" spirit that will see you through this trial with 100% success! (No pun intended!)

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member

    Yeah!

    I am so happy your perseverance paid off!  It is that "Never say die!" spirit that will see you through this trial with 100% success! (No pun intended!)

    Alexandra

    This is such wonderful news!  I have tears in my eyes and a big grin on my face.  You go girl!

  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    Alexandra said:

    I got in!

    Drum roll  image   Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.

    I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening). 

    Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.

    image

     

    Congrats!!!!!!!

    Congrats!!!!!!!

  • Rosamond M
    Rosamond M Member Posts: 86 Member
    Great News.

    We have all benefited from your unique way of offering us support,

    information and humour, now we all celebrate your wonderful news.

    You are  certainly an inspiration to us all with your tenacious spirit in

    achieving your wish to be included in this trial.  I am sending a huge,

    heartfelt hug across the sea!

     

  • GSRon
    GSRon Member Posts: 1,303 Member

    Great News.

    We have all benefited from your unique way of offering us support,

    information and humour, now we all celebrate your wonderful news.

    You are  certainly an inspiration to us all with your tenacious spirit in

    achieving your wish to be included in this trial.  I am sending a huge,

    heartfelt hug across the sea!

     

    Alex will soon be glowing in

    Alex will soon be glowing in the dark...  Hope the new treatment, kicks Cancer's butt...  Ooops there I go again.. Cool

    Ron

  • Alexandra
    Alexandra Member Posts: 1,308
    Thank you so much for your support dear sisters and brother Ron

    I am going to wrap this colorful thread up and start a new one with trial experiences.

    image

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    Alexandra said:

    I got in!

    Drum roll  image   Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.

    I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening). 

    Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.

    image

     

    Good luck on the trial...

    Good luck on the trial... I've heard good things about PARP and ovca.... keep us updated!!!  Kim

     

  • JoWin615
    JoWin615 Member Posts: 150 Member
    Alexandra said:

    Thank you so much for your support dear sisters and brother Ron

    I am going to wrap this colorful thread up and start a new one with trial experiences.

    image

    YEE-HAW!

    Ahhh, that felt good. Now you can wrap up this thread (!). 

  • GSRon
    GSRon Member Posts: 1,303 Member
    JoWin615 said:

    YEE-HAW!

    Ahhh, that felt good. Now you can wrap up this thread (!). 

    I always liked to do the

    I always liked to do the un-wrapping...  Tongue Out

     

    Ron - running for cover after that one... not..!