It's go time! Update in pictures
Comments
-
Dear Alexandra
Praying for the best results for you. I believe it is vital to stay upbeat in order to deal with this disease. That is not always easy as we all know. Your humor is deliciously wicked. You certainly add liveliness to this board.
By the way, I wish Val would send a couple of players my way!
Love you,
Karen
0 -
SOL
I am not Irish but I easily could be, seeing how things are progressing.
Last Tuesday I had the core needle biopsy. I followed instructions, kept the area clean, didn't wash it for 24 hrs, blah-blah-blah. For over a week I was watching the swelling at the biopsy site get bigger, harder and more painful. I figured that it was normal and kept an ice pack on it. This afternoon I finally lost patience and paged the nurse. She told me to come in immediately.
Mad dash to see the doctor through downtown Toronto traffic.
Doctor was not there. Instead there was a female resident from France who was about 24 but looked 14, probably thanks to French meaningful anti-aging melons made famous by Cindy Crawdord's annoying informercials.
Drawing 7" x 14" outline of the swelling on my belly with a magic marker, 3 photographs, taking vital signs, an ultrasound and a blood test later I was told that I have an giant internal hematoma and it is infected.
I started on antibiotics 3 times a day x 10 days.
Active infection disqualifies me from the PARP trial. I am not a happy camper.
0 -
Oh AlexandraAlexandra said:SOL
I am not Irish but I easily could be, seeing how things are progressing.
Last Tuesday I had the core needle biopsy. I followed instructions, kept the area clean, didn't wash it for 24 hrs, blah-blah-blah. For over a week I was watching the swelling at the biopsy site get bigger, harder and more painful. I figured that it was normal and kept an ice pack on it. This afternoon I finally lost patience and paged the nurse. She told me to come in immediately.
Mad dash to see the doctor through downtown Toronto traffic.
Doctor was not there. Instead there was a female resident from France who was about 24 but looked 14, probably thanks to French meaningful anti-aging melons made famous by Cindy Crawdord's annoying informercials.
Drawing 7" x 14" outline of the swelling on my belly with a magic marker, 3 photographs, taking vital signs, an ultrasound and a blood test later I was told that I have an giant internal hematoma and it is infected.
I started on antibiotics 3 times a day x 10 days.
Active infection disqualifies me from the PARP trial. I am not a happy camper.
I am so bummed out for you. Does this mean that you'll never qualify for the PARP trial or just not qualify for now? What is next on the game plan for you?
Kelly
0 -
Thank you Kelly!lovesanimals said:Oh Alexandra
I am so bummed out for you. Does this mean that you'll never qualify for the PARP trial or just not qualify for now? What is next on the game plan for you?
Kelly
In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.
Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.
0 -
Wow, ala Vito Corleone!Alexandra said:Thank you Kelly!
In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.
Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.
Sending you lots of positive thoughts that the antibiotic does its job!
Hugs,
Kelly
0 -
PARPAlexandra said:Thank you Kelly!
In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.
Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.
Lots of water!!!! Flush that infection outta there!! You have PARP waiting! "Life truely does just happen," doesnt it? Happy Passover and will double the prayers, good thots.
From others comments, this isn't just your admission into the trial--we all want it for you:) Now would be nice.
Sue
0 -
Infections SuckAlexandra said:Thank you Kelly!
In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.
Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.
I'm sorry to hear about all that and having some strange jerk yell at you probably didn't help Hopefully these anti-biotics will do the trick and you'll be accepted into the Trial. I'm sending positive thoughts your way.
0 -
Hope you make itAlexandra said:Thank you Kelly!
In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.
Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.
Alexandra, great to hear from you always.
0 -
What next?Alexandra said:Thank you Kelly!
In 10 days they will re-evaluate me. If antibiotic kills the infection I will be back on track. By then hopefully results of the biopsy will be ready.
Road rage, multicultural edition. On my way back from the Cancer Clinic an angry old Italian man driving in the next lane in his black Cadillac yelled at me for smoking out of my car window. All I could understand was "a-puttana dis cancer-eh stick will-eh kill ya!" and "vaffanculo". For some reason “I’ll make him an offer he can’t refuse” popped into my head and I quickly got out of there. True story.
So sorry to hear about the infection. "Infected hematoma"? Never heard of such a thing. It's a direct result of the biopsy, right? Hope the antibiotics do their thing & you are soon on your way to the PARP trial. I'd wish you good luck, but I don't want to jinx it.
Carole
0 -
I got in!
Drum roll Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.
I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening).
Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.
0 -
Congrats on your enrollmentAlexandra said:I got in!
Drum roll Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.
I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening).
Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.
Alexandra, Congrats on your enrollment!!
Kathy
P S. Sorry to hear about your post-biopsy abscess, but I am glad to hear its taken care of.
0 -
Yeah!Alexandra said:I got in!
Drum roll Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.
I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening).
Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.
I am so happy your perseverance paid off! It is that "Never say die!" spirit that will see you through this trial with 100% success! (No pun intended!)
0 -
Alexandrawholfmeister said:Yeah!
I am so happy your perseverance paid off! It is that "Never say die!" spirit that will see you through this trial with 100% success! (No pun intended!)
This is such wonderful news! I have tears in my eyes and a big grin on my face. You go girl!
0 -
Congrats!!!!!!!Alexandra said:I got in!
Drum roll Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.
I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening).
Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.
Congrats!!!!!!!
0 -
Great News.
We have all benefited from your unique way of offering us support,
information and humour, now we all celebrate your wonderful news.
You are certainly an inspiration to us all with your tenacious spirit in
achieving your wish to be included in this trial. I am sending a huge,
heartfelt hug across the sea!
0 -
Alex will soon be glowing inRosamond M said:Great News.
We have all benefited from your unique way of offering us support,
information and humour, now we all celebrate your wonderful news.
You are certainly an inspiration to us all with your tenacious spirit in
achieving your wish to be included in this trial. I am sending a huge,
heartfelt hug across the sea!
Alex will soon be glowing in the dark... Hope the new treatment, kicks Cancer's butt... Ooops there I go again..
Ron
0 -
Good luck on the trial...Alexandra said:I got in!
Drum roll Paperwork came back today from Clovis Oncology and they approved my enrollment into ARIEL2 trial.
I still have to finish antibiotics for the post-biopsy abscess and I will start taking PARP inhibitor Rucaparib a week from today, on April 23rd (5 x 120mg pills every morning and 5 x 120mg pills every evening).
Most likely side effects are nausea, fatigue, low blood counts and elevated liver enzymes, but who cares! It's all good.
Good luck on the trial... I've heard good things about PARP and ovca.... keep us updated!!! Kim
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards