ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted

I've been a stranger, and I can say in my case, this is a good thing.  My husband has had a great summer - no issues since his mini stroke in March 2013.  So anyway, I'm just checking in, and Bob & Kathy are doing well.  I hope to be checking in a little more just to see how folks are.  I was so happy to read posts from so many familiar folks, though - it is a wonderful thing!

HAWVET said:

Although I have not been

Although I have not been visiting as often, am committed to updating this roll call in January 2014.  A brief update.  During this absence, my health has further declined.  Am probably the oldest person in this forum so that also contributed to the decline.  Moreso, it was the due to NPC and the radiation therapy in 1998.  

My dry mouth condition has worsened so am relying more on the liquid/soft food diet.  I am just fortunate to have complete medical coverage due to my career in the Army followed with a few more years with the postal service.  The VA does give me up to 3 cases of Boost each month plus all prescriptions at no cost.  I say this so veterans with disabilities can go to the VA for assistance.

If you have not checked in during year 2013, please do so.  This is a voluntarily enrollment program.  Appreciate all of you checking in and hope you will continue to do so when the updated list is published sometime in January. 

Aloha and at this time of the year, Mele Kalikimaka to all of you.

 

 

To you also bruddah....

You've been on the island so long now that you are probably considered a local...

John

HAWVET said:

Happy Holidays

John, had a chuckle when you mentioned that I would probably be considered a local. I was borned/raised in the islands and was away only during that 30 years with the Army. I know you do like fishing, but that was not my like J . When growing up, I remember spending many nights with my close friends at the beach doing shore line fishing. Guess who was the first one to hit the rack?

Tim, I would consider my problems to be minimum as compared to what you have been faced with. I am just happy to be here more than 15 years after completion of treatment.  My problem is compounded with a COPD problem I had probably in my final year in the Army.  That too has gotten worse.

Like you, I have lost many close friends due to cancer. The most recent was a close friend who left us less than six months after being diagnosed.

But, back to the good things.  I thank the Lord that we three, plus the others on the forum are still around.   Enjoy the holidays.

Jim and I live in Ormond Beach Florida. Results of last PET scan show cancer now in bones of chest and left jaw. Increased pain meds. Jim still fishing and catching! Appointment with oncologist on  Jan 12, 2014 to review PET more in depth.

Debbie

Kevin,  Waterford, MI diagnosed 9/2013 stage IV right tonsil 2 lymph nodes undergoing 35 RADS 8 weeks Chem ( carboplatin & taxol)

For Pat  Diagnosed August 2013. Stage IV, left tonsil, one lymph node involved. Complete tonsilectomy and neck dissection (29 nodes removed) Sept. 6th 2013. Margins were clear. Completed 30 rads on Nov. 20th 2013. Going to see Med Oncologist on 12/19. hoping to hear NED.

Jamie

j4mie said:

Enrolling...

For Pat  Diagnosed August 2013. Stage IV, left tonsil, one lymph node involved. Complete tonsilectomy and neck dissection (29 nodes removed) Sept. 6th 2013. Margins were clear. Completed 30 rads on Nov. 20th 2013. Going to see Med Oncologist on 12/19. hoping to hear NED.

Jamie

Today, Dec.18 2013.  Wilmington NC.  Diagnosed Aug 1, 2013.  BOT SCC, one contralateral lymph node positive.  Stage III T1N1M0, HPV 16 +.  Non smoker Non drinker of alcohol, health and exercise nut.  Had TORS surgery to BOT and neck dissection (22 nodes) Sept 6th 2013 at Vanderbilt.   Margins clear no perineural or vascular invasion.  The one lymph node had slight extracapsular extension, therefore radiation/chemo was recommended as the standard of care. Declined chemo.   Still in Radiation treatment til day after Christmas with TOMO/IMRT rad. tx.  Treatment delayed due to complications after 2 feeding tube surgeries and hyper sensitivity to the radiation.  

PJ

Still Here

2-99 stage 3 SSC

11-08 fibula flap 

12-13 tube free eating soft foods

2-14= 15 years 

luv4lacrosse said:

THE **** STILL CANNOT KILL ME!!!!!

I may now be living in a warmer climate, but the battle is not easier. You have tried to kill me 3 times since 6-2010. Me 3, you ****, ZERO.

Kiss my white **** cancer!!

MIKE

I'll leave that to the cancer ~lol~

Congrats! keep kickin' white ****!

"T"

Hello - enrolling. Diagnosed Jan  2013. SCC  stage 4 right   tonsil and hypopharynx. Active lymph nodes on both sides of neck. Sugery for all at Mayo in Phoenix. Then 39 Rads no chemo.   had 15 teeth pulled before rads - ones more likely to have problesm in years ahead. Finished treetmetn end of July. Taste buds came back by mid October. Not same as before but livable. Rad oncologist was good at shielding saliva glands so they are maybe 85%  or so as good as normal.