ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted

debbiejeanne

debbiejeanne:  cincinnati,

debbiejeanne:  cincinnati, ohio  dx 8/2009 with cancer of the voice box.  35 rad trmnts.  recurrence feb. 2012.  neck disection and complete larngectomy.  still have a hard time swallowing food, thx to rads.  get my throat dialated regularly.  had ned scan oct. 2012.

MICH4EL

MICH4EL.  DX SCC STAGE IV.  BOT. lymph nodes affected both sides of neck.   Cancer discovered 3/7/13. transoral robotic surgery 4/29/13, including Rt tonsilectomy, BOT disection, selective neck dissection both sides.  Radiation completed 6/9/13.  No chemo.  Took Amifostene to protect saliva glands.

m 

RushFan

Checking in

Chuck 'Rushfan' Byee checking in. Sorry, very rarely drop by anymore...I'm very blessed to be doing so well. 

Weight holding steady at 200lbs., saliva at about 80-90% though still get pretty darn dry at night. Have some stiffness in my jaw and have started to have more frequent neck cramping. Synthroid has been bumped from 75 to 100 mcg. Teeth are okay. Taste back to 99%...even sweets are good...which is not so good. Gotta watch it. 

Best to all, 

Chuck.

w6nnh

RushFan said:

Checking in

Chuck 'Rushfan' Byee checking in. Sorry, very rarely drop by anymore...I'm very blessed to be doing so well. 

Weight holding steady at 200lbs., saliva at about 80-90% though still get pretty darn dry at night. Have some stiffness in my jaw and have started to have more frequent neck cramping. Synthroid has been bumped from 75 to 100 mcg. Teeth are okay. Taste back to 99%...even sweets are good...which is not so good. Gotta watch it. 

Best to all, 

Chuck.

Checking In

Joined July 2012

Oklahoma City, Ok

Still Kicking.

Sam999

w6nnh said:

Checking In

Joined July 2012

Oklahoma City, Ok

Still Kicking.

Enrolling

 

Sam999, nj,  stage 1 squamous cell carcinoma of tongue, HPV-. toungue surgery to remove tumor followed by 30 rads finished june 27th 2012. 

Christmas

Checking In

Sorry to have missed the roll call, but life has been good.  Very busy at work.  Dealing with problems, but all are manageable.

Wow - I was diagnosed ten year ago.

Christmas -

shoeloy

Still Here

Two years and counting with NED. God is Good.

MICH4EL

Enrolling

MICH4EL, Minneapolis, MN, joined March 15,2013.   SCC BOT metastatic to lymph nodes both sides..  Surgery 3-29-13:  biopsy tongue, tonsillectomy, and bilateral selective neck dissection .  Radiation x 30 completed 6-10-13.

catfish_58

new comer

Enrolled 1-17-2013,age 55,Waco,Texas,SCC left tonsil,HPV+,stage III,33rads and 7 weekly chemo's of Cisplatin,Started treatment in 2-25-2013,finished treatment 4-29-2013,go in tommorow for results of pet scan,Newbie but now hopefully enrolled

debbiejeanne

catfish_58 said:

new comer

Enrolled 1-17-2013,age 55,Waco,Texas,SCC left tonsil,HPV+,stage III,33rads and 7 weekly chemo's of Cisplatin,Started treatment in 2-25-2013,finished treatment 4-29-2013,go in tommorow for results of pet scan,Newbie but now hopefully enrolled

welcome, catfish!  good luck

welcome, catfish!  good luck w/the scan results.  b sure 2 let us know.

dj

wild willy

enroll

location is harmony, nc   3.5 yrs out, cancer free. right tonsil stage 4.  no taste , 70 to 80% saliva . pain in neck and ear other than that doing well.

LaughingGirl

Roll call 2013

I don't post often, but lurk nearly daily (a bit of survivor guilt here as my treatment was blessedly easy compared to most, I believe)

Stg IV Right Tonsil with intrusion to soft palate, SCC HPV-.   DX Jan 2013, Treatment (Rads and Cisplatin) started March 2013, ended April 19, 2013.

sunshine_65

roll call 2013 checking in

T1N3, mets to both sides of lymph glands; enrolled March 2013, treatment 33 rads & erbitux, NED September 2012;

working full time, Stanford CA. Glad to have you all here on roll call and on this website. You've all helped me

tremendously.

KTeacher

Checking in

KTeacher, now retired.  I've been fighting since Aug. 2010.  From Central Valley, California.  Receive Surgeries at Stanford.  Looks like I'm getting ready for fight #4.  Trying to build up strength and immune system.

Bev Olaver

scottied

Scottied, Virginia, SCC base

Scottied, Virginia, SCC base of tongue ending treatment in December 2009, enrolled, December 28, 2010. Checked in August 10, 2011. All things good, 99% back to normal Life is Good!

nick770

enrollingColumbus, OhioMay

enrolling

Columbus, Ohio

May 2012 DX tonsil cancer satge IIIb 36 rounds of Rads, 2 cycles of cisplatin.  Peg-tube

Sept 2012 New DX of lung metasis (both lungs)

Oct 2012  Surgery/lobectomy of R lower lung. 

June 2013 Statrted taxetol & 5FU (got radiation recall), new peg tube placed. The chemo had zero effect on new tumors.

Currently  no treatmnets, however there is a possible new clinical trial(s) fall 2013

(Loving life & fighting daily) Using alternative solutions 

donfoo

nick770 said:

enrollingColumbus, OhioMay

enrolling

Columbus, Ohio

May 2012 DX tonsil cancer satge IIIb 36 rounds of Rads, 2 cycles of cisplatin.  Peg-tube

Sept 2012 New DX of lung metasis (both lungs)

Oct 2012  Surgery/lobectomy of R lower lung. 

June 2013 Statrted taxetol & 5FU (got radiation recall), new peg tube placed. The chemo had zero effect on new tumors.

Currently  no treatmnets, however there is a possible new clinical trial(s) fall 2013

(Loving life & fighting daily) Using alternative solutions 

hoping only the best for you

I am really sorry to hear the holding pattern you are in. I think mets to the lungs is the greatest fear we all try to keep under control as HNC survivors. Have you researched and tried any alternative therapies such as different diets and such? It seems you can complement  the science based therapies with others with no ill effect. As you have read here, others have had their cancers just stop after being given palliative prognosis. Best to you, don

wifeforlife

Here and Strong!

Kansas City MO, Husband Stage IV SCC with primary at base of tongue with metastasis to lymph nodes and tonsil confined to left side November 6, 2009. Surgery, Chemo, and radiation. Completed treatments. We are still NED...he ran a 5k on his last birthday!

debbiejeanne

wifeforlife said:

Here and Strong!

Kansas City MO, Husband Stage IV SCC with primary at base of tongue with metastasis to lymph nodes and tonsil confined to left side November 6, 2009. Surgery, Chemo, and radiation. Completed treatments. We are still NED...he ran a 5k on his last birthday!

way to go!!!
dj

way to go!!!

dj

ratface

here here

Mark me down for 2013, getting ready to totally enjoy another cold cold Chicago winter!