ROLL CALL 2013---CLOSED AS OF 01/12/2014. New list to be posted

245678

Comments

  • wild willy
    wild willy Member Posts: 63 Member
    #22
    my location is harmony nc. i

    my location is harmony nc. i am 3 years out next mo. right tonsil cancer

  • wild willy
    wild willy Member Posts: 63 Member
    #23
    my location is harmony nc. i

    my location is harmony nc. i am 3 years out next mo. right tonsil cancer

  • peggylulu
    peggylulu Member Posts: 375
    #24
    Please Enroll me

     I am new here as of January 2013 . I live in Texas . Was dx in 2011 with SCC on my scalp. Had mohs surgery in Dec 2011 with clear Margins. Then in april 2012 I found a lump on the side of my neck. Dx as SCC and had 3 lymph Nodes removed in July 2012. The Biopsy report showed no cancer ???? Anyway the docs wanted me to have Raditation tx to make sure there were no cells left so I had 33 tx.The last one was the 26th of Oct. 2012 . As you can see that is the only exact date I remember !!!! I am still dealing with a lot of the side effects that I have seen on here , but feeling good now.

  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #25
    Checking-In

    Still alive and well. Neck spasms are my only little gripe, and soon to be 4-years out from the end of tx.

    kcass

  • zinniemay
    zinniemay Member Posts: 522
    #26
    roll call

    Hubby still here but back to Chemo every other went, Head and Neck that went to lungs.

    Jennie

     

  • Pam M
    Pam M Member Posts: 2,196
    #27
    Checking In - Pam M

    Northern KY - still doing VERY well, even with minor post-treatment issues

  • Pam M
    Pam M Member Posts: 2,196
    #28
    Update - Silver_Foxette

    Roxanne (Silver Foxette) is in the fight again - chemo to start again first week in Feb, 2013.

  • Landranger25
    Landranger25 Member Posts: 210 Member
    #29
    Pam M said:

    Update - Silver_Foxette

    Roxanne (Silver Foxette) is in the fight again - chemo to start again first week in Feb, 2013.

    Checking In

    Mike (Landranger25, Michigan) checking in and doing well. 39 months post treatment now with no issues. Diagnosed May 2009 SCC BOT stage III with one lympnode, treatment completed October 2009. 10 weeks chemo and rads, no surgery.

     

    Regards, Mike

  • LeoS2323
    LeoS2323 Member Posts: 160
    #30
    Landranger25 said:

    Checking In

    Mike (Landranger25, Michigan) checking in and doing well. 39 months post treatment now with no issues. Diagnosed May 2009 SCC BOT stage III with one lympnode, treatment completed October 2009. 10 weeks chemo and rads, no surgery.

     

    Regards, Mike

    Checking In

    LeoS2323, Liverpool, England, enrolled on April 2, 2012. DX’d MEC stage 4 intermediate grade, unknown primary, met to single lymph node. Checking in 4th February 2013; had left sided neck dissection, tonsilectomy and BOT biopsy on April 23rd 2012. All came back clear of cancer, no treatment required so far and currently having 4 monthly MRI / ultrasound scans which have found no evidence of a primary to date. Original Stage amost certainly lower than 4 in hindsight, neck lump may have actually have been the primary. Happy and healthy, loving life.

  • meinken
    meinken Member Posts: 38
    #31
    My Return

    Been away for awhile.  I was diagnosed with Nasopharengel cancer in the beginning of 2010 and had the usual run of chemo and radiation.  I was declared NED in June of 2010.

    In the beginning of 2012 a scan showed a new growth of Maxillary Sinus cancer.   Went with surgery this time.   Required a reconstruction of the eye orbit and basicly they opened up my cheek and removed everything(inluding my upper gum on the right side and all the upper teeth on the right side) and took tissue and bone from my shoulder blade to rebuild. 

    Unfortunatly, they found another growth behind the right eye 3 months later during a scan.  Went through concurrent chemo and radiation or 7 weeks/35 treatments.   I may or may not lose the use of my right eye but for now it is patched and when I take off the patch I have some vision but bluriness.  Will have to see how that goes over time.

    Finally, some good news, I had a Pet last Fri 2/1 and saw the doctor today.  The Pet showed No Evidence of Disease.  Hoping this is the last time, but, already have my follow up CT set for 3 months.   Keeping fingers crossed that I get past 2 years this time.

    The first time through, y'all were a god-send of information and support.  Thank y'all, and If I can help anyone else or offer comfort/information, I am here again and will be checking in often.

     

     

     

  • meinken
    meinken Member Posts: 38
    #32
    Whoops, duplicate, If you can please delete

    Whoops duplicate please delete

  • ditto1
    ditto1 Member Posts: 660
    #33
    meinken said:

    Whoops, duplicate, If you can please delete

    Whoops duplicate please delete

    ALMOST ONE YEAR

    SINCE DX, NED FOR NOW HOPEFULLY FOR MANY YEARS TO COME.

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #34
    meinken said:

    My Return

    Been away for awhile.  I was diagnosed with Nasopharengel cancer in the beginning of 2010 and had the usual run of chemo and radiation.  I was declared NED in June of 2010.

    In the beginning of 2012 a scan showed a new growth of Maxillary Sinus cancer.   Went with surgery this time.   Required a reconstruction of the eye orbit and basicly they opened up my cheek and removed everything(inluding my upper gum on the right side and all the upper teeth on the right side) and took tissue and bone from my shoulder blade to rebuild. 

    Unfortunatly, they found another growth behind the right eye 3 months later during a scan.  Went through concurrent chemo and radiation or 7 weeks/35 treatments.   I may or may not lose the use of my right eye but for now it is patched and when I take off the patch I have some vision but bluriness.  Will have to see how that goes over time.

    Finally, some good news, I had a Pet last Fri 2/1 and saw the doctor today.  The Pet showed No Evidence of Disease.  Hoping this is the last time, but, already have my follow up CT set for 3 months.   Keeping fingers crossed that I get past 2 years this time.

    The first time through, y'all were a god-send of information and support.  Thank y'all, and If I can help anyone else or offer comfort/information, I am here again and will be checking in often.

     

     

     

    Awesome News...

    You should share that on a post...totally awesome news, congrats...

    John

  • seenanN
    seenanN Member Posts: 24
    #35
    ROLL CALL 2013

    SeenanN, Maryland, NPC met to lung with dozen of swollen brain nodules. Back to work fulltime 4 months after Tx ended Dec 2004 with side effects including dry mouth, dry eyes, jaw pain, loss of hearing, nerve damage, foggy brain and then shingles and sinus surgery. On the bright side walking daughter down the aisle, seeing my children complete school, living and looking at the smiling face of the lady that I admire the most, my wife.

     

    Thank Hawlet,

     

    Seenan        

     

  • arndog64
    arndog64 Member Posts: 537
    #36
    seenanN said:

    ROLL CALL 2013

    SeenanN, Maryland, NPC met to lung with dozen of swollen brain nodules. Back to work fulltime 4 months after Tx ended Dec 2004 with side effects including dry mouth, dry eyes, jaw pain, loss of hearing, nerve damage, foggy brain and then shingles and sinus surgery. On the bright side walking daughter down the aisle, seeing my children complete school, living and looking at the smiling face of the lady that I admire the most, my wife.

     

    Thank Hawlet,

     

    Seenan        

     

    Checking in

    Arndog64 checking in... My husband is doing well still has the throat pain and his teeth are starting to detoirate. Other than that, he is a trooper..

  • Sooner79
    Sooner79 Member Posts: 29
    #37
    arndog64 said:

    Checking in

    Arndog64 checking in... My husband is doing well still has the throat pain and his teeth are starting to detoirate. Other than that, he is a trooper..

    Still Around

    Diagnosed 3/22/11 and joined forum on 1/28/12. Created an "about me" page when I joined but I didn't make it on to either list. Maybe I didn't post enough although I check the forums every few days. I am NED as far as I know but have my second post treatment PET scan on 2/11/13.

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #38
    Sooner79 said:

    Still Around

    Diagnosed 3/22/11 and joined forum on 1/28/12. Created an "about me" page when I joined but I didn't make it on to either list. Maybe I didn't post enough although I check the forums every few days. I am NED as far as I know but have my second post treatment PET scan on 2/11/13.

    Better...

    Sooner, than later right...welcome to the list.... actually to make it on this list, you have to reply just as you have...

    Best ~ John

  • Goalie
    Goalie Member Posts: 184
    #39
    Checking in

    (Actually, checking is not allowed in amateur hockey though banging around is)

    Just stopped by and realized that it is two years this month since the last stage which was just a clean-up neck dissection. Already past two years for nine weeks of rads and chemo and two and a half since the opening tonsilectomy. Life is wonderful and recovery nearly complete. Have been playing about four hockey games a week and working all over the world. If it weren't for needing water to eat or talk long, no one would know what we went through. Really, only other aggravation is an increasingly stiff neck.

    Yes, it can get a little depressing to have to consider whether one can eat things; it has been two and a half years since I could just get a plate and eat anything I wanted any time any where. I wish I could go back and tell myself that that would be the end of it but, on the whole, this is not a major issue. My angel wife, DrMary - who is out doing Tae Kwon Do right now - still makes practically every meal from scratch to accommodate me and still massages the neck scar nearly every day with Vit E oil to make it disappear.

    But it is good to stop by here and see friends who meant so much. You "graduate" from school and move on but you never quite move on from here. Big hugs to all from us. If you are ever in the Wash, DC/Maryland area, please let us know. Doug and Mary

  • pattyanny
    pattyanny Member Posts: 544
    #40
    I am here!

    Here! Please keep me in prayer.  Love & Prayers to you all! 

     

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #41
    pattyanny said:

    I am here!

    Here! Please keep me in prayer.  Love & Prayers to you all! 

     

    Patty Girl

    You are always in my prayers..., you are an original sista ~ JG

Discussion Boards