why cant I just be a miracle case?!?!?!?! :(

pinkflutterby
pinkflutterby Member Posts: 615 Member
in Breast Cancer #1
My markers went up again highest ever, now 182!!! My oncologist still seems optomistic, always does. She said "honestly she is surprised I am still here that there is not much study on cases with cancer cells in the CF fluid because patients dont usually last more than a couple of months" Her words!!!! Kinda set me back in a good and bad way.... good because I am here bad because makes me wonder how long I will be! It will be a year in May since they found it my my CF Fluid. CF fluid cancer is what got Mama G. I am having my pet scan on 3/8 get the results on 3/15...... fingers, toes and eyes crossed!!!!!!!!!!!!
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Comments

  • Kat11
    Kat11 Member Posts: 1,931 Member
    #2
    Were with ya, everything is
    Were with ya, everything is crossed.
    Kathy
  • Marsha Mulvey
    Marsha Mulvey Member Posts: 597 Member
    #3
    will keep
    Will keep every possible body part crossed for you too Libby! My thoughts and prayers are with you too.
    Marsha
  • carkris
    carkris Member Posts: 4,553 Member
    #4
    Libby every case is
    Libby every case is individual, someone has to be on the good side of the stats, and it might as well be you. I know its hard with losing Mama G. cant help thinking about it. We love you
  • aisling8
    aisling8 Member Posts: 1,627 Member
    #5
    Marsha Mulvey said:

    will keep
    Will keep every possible body part crossed for you too Libby! My thoughts and prayers are with you too.
    Marsha

    Everything xrossed
    for you. And heck yeah, why can't you just be a miracle case?? Somebody needs to be, so let's say it will be you!!

    xoxo
    Victoria
  • MAJW
    MAJW Member Posts: 2,510 Member
    #6
    Crossing everything!
    And for what it's worth...my oncologist told me that the tumor marker test isn't as reliable as they'd like...it has a high incidence of giving false positives..
    Sending prayers...
    Nancy
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    #7
    MAJW said:

    Crossing everything!
    And for what it's worth...my oncologist told me that the tumor marker test isn't as reliable as they'd like...it has a high incidence of giving false positives..
    Sending prayers...
    Nancy

    thanks everyone, love you
    thanks everyone, love you all too, more than words can ever express. My onc agrees Nancy about the tumor markers but she says and it seems to be true in my case and emphasises (sp??) that the markers have followed so well with MY tumors growing and shrinking and they have. She ended the meeting saying I have only had 2 treatments of the Gemzar, missing one week due to low counts, so she is still very optomistic. Just set me back a little....
  • RE
    RE Member Posts: 4,591 Member
    #8
    XXXXXXXXXX+XXXXXXXXXX+XXXXXXXXXX
    I'm crossing it all and praying as well! You are more than a number, you are an individual and each on of us are unique your situation could be the miracle one why not right! I am glad your onco is optomistic I just wish she had been a bit more gentle about what and how she shares stats with you.

    BIg Hugs,

    RE
  • missrenee
    missrenee Member Posts: 2,136 Member
    #9
    RE said:

    XXXXXXXXXX+XXXXXXXXXX+XXXXXXXXXX
    I'm crossing it all and praying as well! You are more than a number, you are an individual and each on of us are unique your situation could be the miracle one why not right! I am glad your onco is optomistic I just wish she had been a bit more gentle about what and how she shares stats with you.

    BIg Hugs,

    RE

    You are definitely more than a number, darling!
    We are all in this fight believing in ourselves and believing in the positive energy that keeps us going every day. I refuse to be negative--and I believe in you! You hang in there, stay strong as you can and fight the good fight. I'll be right there with you as I know a lot of the other Kindred Spirits will.

    Hugs and Much Positive Energy directed to you,
    Renee
  • Kylez
    Kylez Member Posts: 3,761 Member
    #10
    aisling8 said:

    Everything xrossed
    for you. And heck yeah, why can't you just be a miracle case?? Somebody needs to be, so let's say it will be you!!

    xoxo
    Victoria

    Crossing everything too and
    Crossing everything too and saying prayers for you Libby.


    Hugs, Kylez
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    #11
    Here's hoping
    Libby,that you are going to be okay!
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #12
    outdoorgirl said:

    Here's hoping
    Libby,that you are going to be okay!

    Crossing my eyes, toes,
    Crossing my eyes, toes, fingers and praying for you!



    Hugs, Jan
  • fauxma
    fauxma Member Posts: 3,577 Member
    #13
    survivorbc09 said:

    Crossing my eyes, toes,
    Crossing my eyes, toes, fingers and praying for you!



    Hugs, Jan

    Crossing everything I can
    Crossing everything I can cross and praying hard as I can for you. Big hugs coming your way.
    Stef
  • Hippiechick58
    Hippiechick58 Member Posts: 320
    #14
    fauxma said:

    Crossing everything I can
    Crossing everything I can cross and praying hard as I can for you. Big hugs coming your way.
    Stef

    You have so many wonderful
    You have so many wonderful people praying for you. Now you can include me. There is strength in numbers, I believe. All of us pink ladies (and gents) are with you in your time of need. You will never walk alone again.

    Be Well,
    Dianne
  • natly15
    natly15 Member Posts: 1,941
    #15
    Libby I'm praying for you--
    Libby I'm praying for you-- like it was mentioned there is power in numbers and prayers and many are praying for you
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #16
    natly15 said:

    Libby I'm praying for you--
    Libby I'm praying for you-- like it was mentioned there is power in numbers and prayers and many are praying for you

    Libby .. praying and hoping that your markers
    go down ... As stated above, you are more than an number - your case is different from MamaG. Now with that being said, you are a strong women, focus on remission and living --Your doctor sounds like she has a game plan - so we are here to hold your hand, offer support, love and admiration.

    Strength, Courage and Hope along with prayers, I offer you.

    Vicki Sam
  • Cinkal
    Cinkal Member Posts: 161
    #17
    Praying and crossing fingers
    Praying and crossing fingers for you. Keeping a positive attitude and having faith helps!
  • tgf
    tgf Member Posts: 950 Member
    #18
    Cinkal said:

    Praying and crossing fingers
    Praying and crossing fingers for you. Keeping a positive attitude and having faith helps!

    Miracles
    We've all got everything crossed and re-crossed ... and probably tied ourselves in knots ... but we'll do anything we can to help a member of our wonderful "family" ...

    We're all in this together!


    Big hugs ...

    teena
  • joannstar
    joannstar Member Posts: 403 Member
    #19
    Keeping everything
    crossed for you and in my prayers.
    I just wish there was more we could all do!
    Hugs,
    JoAnn
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #20
    Maybe you're not getting the
    Maybe you're not getting the exact miracle you want, but you are certainly admirable and inspiring. Hang in there, and yes I'm crossing everything too!

    Hugs,

    Linda
  • Jennifer1961
    Jennifer1961 Member Posts: 137
    #21
    There are always miracle
    There are always miracle cases. I knew a woman who lived 20 years past what they thought she would with a rare cancer in her sacrum. They would tell her the same thing - surprised she was still with us. Be strong!

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