not the news anyone wants to hear

124

Comments

  • Kylez
    Kylez Member Posts: 3,761 Member

    Dear Heidi
    I'm so sorry to hear your news, and of course I am sending hugs, healing thoughts and prayers your way.

    As Sally said, try not to get too discouraged by predictions of time. Nothing is decided, and many women have beaten the odds, and we all hope and pray that you will be in that number. You certainly deserve to be, brave sister.

    Love, Stregth, and Hugs,
    Cindy

    The right words to say
    The right words to say escape me too Heidi. Just know that you will be in my prayers.


    Hugs and love,

    Kylez
  • roseann4
    roseann4 Member Posts: 992 Member
    Moopy23 said:

    Still Hoping
    Heidi, you have been in my thoughts all day today. I am so sorry. Your oncologist and Meena's, and any other IBC experts can surely find a treatment plan that will work for you and do some blasting on the d____d cancer. MD Anderson also has an IBC center, and I'm sure your onc. is talking to specialists there. So, please keep hoping as I am for you to have better days. I am also praying that you have received medicine that is controlling your pain better.

    What a shoke for you.
    Heidi,

    I'm so sorry to hear what you are going through. Hang onto hope and expect a miracle. No one can predict what the future holds for any of us. We are not a statistic. Hugs.

    Roseann
  • Alexis F
    Alexis F Member Posts: 3,598

    Heidi I am so sorry to hear
    Heidi I am so sorry to hear the news. This is such a wicked disease. I will pray for a miracle and for the doctors do something for the pain. Bear Hugs and cheek peck to you dear Sister.
    BL

    Praying for a miracle for
    Praying for a miracle for you too Heidi!


    Hugs, Lex
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    roseann4 said:

    What a shoke for you.
    Heidi,

    I'm so sorry to hear what you are going through. Hang onto hope and expect a miracle. No one can predict what the future holds for any of us. We are not a statistic. Hugs.

    Roseann

    Miss Heidi -- Cyber hugs to you .. prayers
    coming your way, and may our Lord above provide a miracle, comfort and new round of treatment.

    The best and most beautiful things in the world cannot be seen or even touched, they must be felt with the heart -- I am in awe of you and your courage.


    Vicki Sam
  • Ritzy
    Ritzy Member Posts: 4,381 Member

    Jeeez Heidi...I wish I knew
    Jeeez Heidi...I wish I knew what to say, and how to help. I do hope you won't have to travel to see Dr. C., and that he'll have some ideas that will help.

    Know that I think about you and pray for you every day.

    Huge hugs,

    Linda

    Just wanting to let you know
    Just wanting to let you know Heidi that we went to church last night and I lit a candle for you.

    Still praying for you,

    Sue :)
  • kya911
    kya911 Member Posts: 157
    VickiSam said:

    Miss Heidi -- Cyber hugs to you .. prayers
    coming your way, and may our Lord above provide a miracle, comfort and new round of treatment.

    The best and most beautiful things in the world cannot be seen or even touched, they must be felt with the heart -- I am in awe of you and your courage.


    Vicki Sam

    Heidi
    I am so sorry to hear this news.
    Sending huge hugs.
    Praying dr's find the right treatment for you hon.
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    sal314 said:

    So, So Sorry...
    it truly sucks! My thoughts and prayers are with you.

    Have you looked into "Therasphere" radiation therapy for your liver mets? It's somewhat new and not available everywhere, but they are finding it to be very promising for liver cancer and liver mets. If you google "Therasphere Therapy" you should find a link to their webesite.

    They place little glass beads directly into the liver through an artery in the leg. The radiation from the beads kills the liver mets without killing other healthy surrounding tissue. It's done on an outpatient bases and the side effects are minimal.

    I know that they will only do it if the cancer hasn't spread too far. But you could still be a canadate even with a few mets elsewhere. It may be worth looking into as it could give you more time. As for the doctor's prognosis, remember they are only doctor's and are giving you their best guess! I have several friends that had liver mets and mets to other areas that were told they only had months, but lived for quite a bit longer!

    I know it's not what anyone want to hear, but you have to keep fighting and make the most of everyday. Oh...and the doctor's should be able to control your pain! You may want to look into seeing a pain specialist. There is no reason cancer patiences have to be in pain these days.

    Blessings,

    Sally

    I know from what Meena has
    I know from what Meena has said that her doctor is great, so, I am happy to know that your doctor is conferring with him.

    I really don't know what to say Heidi, except how very, very sorry I am. I pray that some treatment will help you.


    Hugs, Debby
  • pbrndm5
    pbrndm5 Member Posts: 83
    kya911 said:

    Heidi
    I am so sorry to hear this news.
    Sending huge hugs.
    Praying dr's find the right treatment for you hon.

    Heidi
    So sorry to hear about you.Never stop beleiving in miracles.Your fight makes mine seem like a walk in the park.
    All sorts of hugs going out to you
    Dee
  • Noel
    Noel Member Posts: 3,095 Member
    Katz77 said:

    Praying
    I so pray for you and your family. Praying the two doctors can put their brains together and come up with a healing plan for you.
    I absolutly hate the cancer that trys to steal our lives. Again praying so hard for you. Hugs and love to you,Katz

    Praying for you Heidi!
    Praying for you Heidi! Please keep us updated as we are worried!


    Hugs and prayers,



    Noel
  • sausageroll
    sausageroll Member Posts: 415
    pbrndm5 said:

    Heidi
    So sorry to hear about you.Never stop beleiving in miracles.Your fight makes mine seem like a walk in the park.
    All sorts of hugs going out to you
    Dee

    Heidi
    Yes, our arms are all around you. Don't give up..my OH was given 30 months to live. that was 12 years ago and he is hiking and climbing. Doctors don't always know. However, i don't want to diminish how you are feeling...we are feeling it with you. Take care Pat
  • elm3544
    elm3544 Member Posts: 748
    Sending love
    Everyone has already expressed everything I could possibly say, but I would like to repeat what Cat said :
    NEVER lose heart...
    NEVER lose hope...
    NEVER lose faith...
    NEVER ever give up...
    we love you
  • Angie2U
    Angie2U Member Posts: 2,991

    Dear Heidi
    I'm so sorry to hear your news, and of course I am sending hugs, healing thoughts and prayers your way.

    As Sally said, try not to get too discouraged by predictions of time. Nothing is decided, and many women have beaten the odds, and we all hope and pray that you will be in that number. You certainly deserve to be, brave sister.

    Love, Stregth, and Hugs,
    Cindy

    I am praying for you and
    I am praying for you and sending you love, strength and cyber hugs.


    Angie
  • Megan M
    Megan M Member Posts: 3,000

    Heidi I am so sorry to hear
    Heidi I am so sorry to hear the news. This is such a wicked disease. I will pray for a miracle and for the doctors do something for the pain. Bear Hugs and cheek peck to you dear Sister.
    BL

    I am so sorry that you got
    I am so sorry that you got this news. This just isn't fair Heidi. I will also pray for you and pray for a miracle.

    Huge hugs,


    Megan
  • Wolfi
    Wolfi Member Posts: 425
    Sorry
    Heidi,

    I am sorry to hear of this news you have received but am confident that you will do whatever it takes to keep fighting.

    I have two words to say about this news: IT SUCKS!

    Being overwhelmed is understandable and I truly wish that there was something I could do to make your pain go away. Know that I will be praying for you and that my thoughts are with you.

    Take care.

    Wolfi
  • Megan M
    Megan M Member Posts: 3,000

    Heidi,
    No words....just lots of prayers and thoughts coming your way. Your post was one none of us wanted to read, but please know that there are lots of us out here who are keeping you in our thoughts and sending hugs your way. Don't lose hope, and keep fighting the brave fight you have been fighting...we love you. Hugs, Judy

    I wanted to add that I hope
    I wanted to add that I hope you will keep us updated Heidi. You know we love you and want to know what is going on. Hugs and prayers to you!


    Megan
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    Jean 0609 said:

    Dea Heidi,
    As I told you on facebook, you are one strong lady and I pray that you can beat this ugly beast. Sending positive thoughts, prayers and hugs to you, my friend. Hugs, Jean

    When we went to church on
    When we went to church on Christmas Eve Heidi, my husband and I both said a prayer for you and lit a candle for you also.

    Just wanted you to know..


    Sue :)
  • MAJW
    MAJW Member Posts: 2,510 Member
    ASK ABOUT AVASTIN!!!!!!!!!!!
    Heidi......ask your oncologist about Avastin.......It's normally used for lung, colon and brain cancer...the FDA just said it's not effective but other studies have shown it is for bc...My best friend is fighting terminal brain cancer....she has lived 15 months longer than they originally said.......she has Avastin and Carboplatin every two weeks.........it is keeping her cancer at bay......wouldn't hurt to ask your oncologist about it....

    Peace, prayers and hugs to you........
    Nancy
  • DianeBC
    DianeBC Member Posts: 3,881 Member

    Heidi
    I am so soryy for the news you received. My prayers and thoughts are with you. God Bless
    (((Hugs))) Janice

    I thought of you over
    I thought of you over Christmas Heidi and prayed that a miracle would happen for you.


    With hugs,


    Diane
  • Eil4186
    Eil4186 Member Posts: 949
    Heidi, I am so sorry about
    Heidi, I am so sorry about your news. There just has to be something to help you. I will pray that Meena's doc can help. You will be in my prayers and heart.
  • tjohnson2310
    tjohnson2310 Member Posts: 168 Member
    Praying
    I am praying for you. God Bless you.