It's baaaaack.... and it's in my brain.

Mama G
Mama G Member Posts: 762
edited March 2014 in Breast Cancer #1
DAMN!!!!!!!!!!! They have me scheduled for Cyper knife with (get this!) DR. RAVI SHANKAR.
Let's hope he doesn't bring that stupid musical instrument with him!
Anyone been through this? I know your prayers and thoughts are with me, no need to post that, I can feel them! Just advice, please. I luve you ALL! Hope and pray no one has to go through this! I hope I'm taking it away from one of you younger women who haven't had a chance raise 4 wonderful kids yet....
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Comments

  • pattimc
    pattimc Member Posts: 431
    #2
    DAMN is right!!
    So, so, sorry Mama G! What rotten news! I love your spirit and sense of humor. You will be in my daily prayers, sweet warrior!

    Love you, too

    Patti
  • Rague
    Rague Member Posts: 3,653 Member
    #3
    Well if yours is as good
    Well if yours is as good with a cyber knife as the other is with the sitar (or is it sittar) you're in good hands. Personally I'm not really into the music/instrument but he is good.

    Prayers and hugs!

    Susan
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    #4
    This just sucks!!
    That's all. Love you!
  • Hubby
    Hubby Member Posts: 325
    #5
    This royally s*cks!! I am
    This royally s*cks!! I am so sorry you have to go through this. You're in my prayers.

    Hugs

    Bob
  • creampuff91344
    creampuff91344 Member Posts: 988
    #6
    Hubby said:

    This royally s*cks!! I am
    This royally s*cks!! I am so sorry you have to go through this. You're in my prayers.

    Hugs

    Bob

    So Sorry, Mama G
    We are in the same boat, although I am still in the "wait to hear from the neurosurgeon" stage. This too shall pass, and then on to bigger and better things. You are in my thoughts and prayers, and will wait to hear how things are going for you. Remember, the journey brings to the next venture, and we just have to be patient and let the docs do their job. Hugs, my friend. Judy
  • heidijez
    heidijez Member Posts: 441
    #7
    Bummer Bummer Bummer!
    number 1 on the list of things i don't want to hear is that it's in my brain! what a wonderful sentiment you expressed - just goes to show what an exceptional woman you are!

    love the doctor's name - old enough to get the connection!

    p.s. my brain mri is at 11:15 on monday ;(
  • mwallace1325
    mwallace1325 Member Posts: 806
    #8
    This sucks
    but your attitude is still great and that counts for so much. Does your center do a demo (obviously not on someone) that you could see. If they do you could go down there and see if there's someone around you could REALLY talk to, not just the "party line". I know my cancer center has one and it's supposed to be awesomelly effective.
    The usual - thoughts, prayers, hugs, angels are with you now and thru this whole horrible awful sucky thing.

    marge
  • Different Ballgame
    Different Ballgame Member Posts: 868
    #9
    DAMN!!!!! DAMN!!!!!! DAMN!!!!!!
    If he brings that stupid musical instrument with him, get off that table and run. When is the surgery?

    Feel my strongest bear hug and draw from its strength.

    Lots of Love and Hugs,
    Janelle
  • canjuncutie
    canjuncutie Member Posts: 131
    #10
    I be saying some prayers for you Mama
    I be saying some prays for and your family
  • cookie97
    cookie97 Member Posts: 200
    #11
    I don't know
    I don't know anyone that has been through the Cyber Knife experience, but I they do at my onc. office. This is what I have learned.
    The CyberKnife® Robotic Radiosurgery System is the world’s first and only commercially available radiosurgery system designed to treat tumors anywhere in the body with sub-millimeter accuracy. Using image guidance technology and computer controlled robotics, the CyberKnife System is designed to continuously track, detect and correct for tumor and patient movement throughout the treatment. Because of its extreme precision, the CyberKnife System does not require invasive head or body frames to stabilize patient movement, vastly increasing the system’s flexibility.
    Unlike traditional radiosurgery systems that can only treat tumors in the head and neck, the CyberKnife System can treat both intracranial and extracranial tumors. In fact, extracranial treatments currently represent more than 50 percent of CyberKnife System procedures in the United States, including those of the spine, lung, prostate, liver and pancreas. The CyberKnife System provides an additional option to many patients diagnosed with previously inoperable or surgically complex tumors.

    Hope this helps and all goes well

    Peace and Love,
    Edie
  • New Flower
    New Flower Member Posts: 4,294 Member
    #12
    cookie97 said:

    I don't know
    I don't know anyone that has been through the Cyber Knife experience, but I they do at my onc. office. This is what I have learned.
    The CyberKnife® Robotic Radiosurgery System is the world’s first and only commercially available radiosurgery system designed to treat tumors anywhere in the body with sub-millimeter accuracy. Using image guidance technology and computer controlled robotics, the CyberKnife System is designed to continuously track, detect and correct for tumor and patient movement throughout the treatment. Because of its extreme precision, the CyberKnife System does not require invasive head or body frames to stabilize patient movement, vastly increasing the system’s flexibility.
    Unlike traditional radiosurgery systems that can only treat tumors in the head and neck, the CyberKnife System can treat both intracranial and extracranial tumors. In fact, extracranial treatments currently represent more than 50 percent of CyberKnife System procedures in the United States, including those of the spine, lung, prostate, liver and pancreas. The CyberKnife System provides an additional option to many patients diagnosed with previously inoperable or surgically complex tumors.

    Hope this helps and all goes well

    Peace and Love,
    Edie

    I am sorry to hear that you have to go through procedure
    MamaG,
    I am sorry and very impressed by your spirit and positive attituted. Please do to the website
    http://www.accuray.com/ a company which makes these instruments and see what info they provide. i also read that The CyberKnife system is used for treating benign tumors, malignant tumors and other medical condition. I hope it is not nessasary there.
    Sending you a big hug,
    New Flower
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #13
    New Flower said:

    I am sorry to hear that you have to go through procedure
    MamaG,
    I am sorry and very impressed by your spirit and positive attituted. Please do to the website
    http://www.accuray.com/ a company which makes these instruments and see what info they provide. i also read that The CyberKnife system is used for treating benign tumors, malignant tumors and other medical condition. I hope it is not nessasary there.
    Sending you a big hug,
    New Flower

    I am so sorry to read this.
    I am so sorry to read this. Sending you hugs and prayers.

    Jan
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #14
    New Flower said:

    I am sorry to hear that you have to go through procedure
    MamaG,
    I am sorry and very impressed by your spirit and positive attituted. Please do to the website
    http://www.accuray.com/ a company which makes these instruments and see what info they provide. i also read that The CyberKnife system is used for treating benign tumors, malignant tumors and other medical condition. I hope it is not nessasary there.
    Sending you a big hug,
    New Flower

    MamaG,
    First of all I am so
    MamaG,
    First of all I am so sorry. I just recently realized about the brain, do you know that I was tested in my chest wall, liver and bones..but never the brain. Here's how naive I am, I thought it was lung cancer that could spread to the brain. This is my worst fear.
    I know you already know we're all praying for you but I need to say it out loud, while I type...I AM PRAYING FOR YOU.

    Just this morning I was talking about this Cyberknife and had never heard of it before. Weird huh? Well this lady is in remission from lymphoma, but her Dad just had the cyberknife for his prostate cancer is doing great!

    I feel that means something don't you? I believe in miracles and what are the chances that I just met this woman today ( in the bank )
    God Bless,
    HUGS'
    Wanda
  • RE
    RE Member Posts: 4,591 Member
    #15
    •♥•♥•♥•♥ SENDING CYBER HUGS ♥•♥•♥•♥•♥•
    Mama G I am sooo bummed that this has happened, Damn is right, double no triple Damn! I don't know anything about that procedure but I know I will be thinking of you and sending my love your way. What is the date for the surgery yet? We do not know what tomorrow holds, we only know today this could all turn out well he may well be a wizard with that laser! Lets keep that glass half full, take care my friend!

    (¯`v´¯)
    .`•.¸.•´
    ¸.•´¸.•´¨) ¸.•*¨)
    (¸.•´ (¸.•´ .•´ ¸¸.•¨¯`•.•..•¨*RE
  • marines911
    marines911 Member Posts: 68
    #16
    Same boat
    Just got the same results, but my wife is so weak and far gone that the ONC recommended hospice and that treatment would only make things worse.

    Hope you have better luck and cyberknife is great, my wife had it used on her T-9 and that was much better than traditional radiation.

    Thomas
  • chenheart
    chenheart Member Posts: 5,159 Member
    #17
    Oh MamaG~ my heart is so
    Oh MamaG~ my heart is so with you. Of course you have all of the hugs, prayers and positive vibes and then some from every one of your CSN family.

    I think you're safe on the hole Ravi Shankar thing...I do believe That Ravi Shankar was born in 1920~I don't think he would be the one wielding a knife over anyone's skull! The only instrument Your Dr Shankar will have will most definitely be the one to get rid of the beast tying to invade your brain!
    I admit freely, though I was not such a fan of Ravi during the Beatles hey-day~ I do love his daughter's music~ Grammy award winning singer Norah Jones.

    Which reminds me~ I wonder if the name Ravi Shankar is as common in India as say, Bill Smith, or Jones is here in the USA!

    All blessings to you sweet sister...we love you dearly.
    Hugs,
    Chen♥
  • chenheart
    chenheart Member Posts: 5,159 Member
    #18
    marines911 said:

    Same boat
    Just got the same results, but my wife is so weak and far gone that the ONC recommended hospice and that treatment would only make things worse.

    Hope you have better luck and cyberknife is great, my wife had it used on her T-9 and that was much better than traditional radiation.

    Thomas

    ((((((((hugs)))))) to you,
    ((((((((hugs)))))) to you, Thomas....words fail me, and I can only begin to imagine your pain and grief. You have become such an integral part of the family here; we all truly feel connected to both you and your wife, and I am so sorry that hospice has been suggested. I know it isn't much of a consolation, but hospice care is like being tended to by angels. They are a special breed, and I feel certain they will treat you both with the loving care and dignity you so richly deserve.

    Blessings to you both,
    Claudia
  • jnl
    jnl Member Posts: 3,869 Member
    #19
    chenheart said:

    Oh MamaG~ my heart is so
    Oh MamaG~ my heart is so with you. Of course you have all of the hugs, prayers and positive vibes and then some from every one of your CSN family.

    I think you're safe on the hole Ravi Shankar thing...I do believe That Ravi Shankar was born in 1920~I don't think he would be the one wielding a knife over anyone's skull! The only instrument Your Dr Shankar will have will most definitely be the one to get rid of the beast tying to invade your brain!
    I admit freely, though I was not such a fan of Ravi during the Beatles hey-day~ I do love his daughter's music~ Grammy award winning singer Norah Jones.

    Which reminds me~ I wonder if the name Ravi Shankar is as common in India as say, Bill Smith, or Jones is here in the USA!

    All blessings to you sweet sister...we love you dearly.
    Hugs,
    Chen♥

    So very sorry
    So sorry Mama G to come on and to read this about you. I remember your writing on here about having trouble before. Was what you were going through a sign that it was in your brain?


    I, as the others, am sending you hugs and will put you in my prayers.



    There are so many new treatments out there now, that I really hope and pray that your doctor, whatever his name is, can help you.


    Please keep us updated on how you are doing.


    Hugs, Leeza
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #20
    jnl said:

    So very sorry
    So sorry Mama G to come on and to read this about you. I remember your writing on here about having trouble before. Was what you were going through a sign that it was in your brain?


    I, as the others, am sending you hugs and will put you in my prayers.



    There are so many new treatments out there now, that I really hope and pray that your doctor, whatever his name is, can help you.


    Please keep us updated on how you are doing.


    Hugs, Leeza

    :(
    I have never been through this or know of anyone that has. Just know that I will be praying for you.


    Hugs, Diane
  • missrenee
    missrenee Member Posts: 2,136 Member
    #21
    DianeBC said:

    :(
    I have never been through this or know of anyone that has. Just know that I will be praying for you.


    Hugs, Diane

    Mama G--this news sucks!
    I don't know anything about the cyberknife, but I do know you have many, many angels here who are praying their hardest and sending out the most positive vibes to you.

    A great big bear hug,
    Renee

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