What do we have in common - revised questions

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  • Fire34
    Fire34 Member Posts: 365
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    Keep them coming - great responses
    I will either do a spreadsheet or I am trying to find a Free online Survey we can send the link and people can then anonymously fill in information but even this data here is interesting. If everyone on our board can fill in the above, that would be great and we can send results to our Doctors. Can the next person add another few items & if folks can 'edit' and add these in:

    Suffered from L'hermittes Syndrome ( ) Mild /Severe & How long.
    Dry Mouth - Severity (Short term / Long Term)
    Loss of Taste - Y/N ? Short term/long term ?

    & in Johns suggestion - maybe optional but :

    Participated in Oral Sex ?


    Tx Jen + all who have posted.
    Scam

    Suffered from L'hermittes Syndrome ( N) Mild /Severe & How long.
    Dry Mouth - Severity - Currently 8 Months out not bad during the day drinking less water than I used too, but terrible at night.
    Loss of Taste - Y/N ? Yes, after 8 months finally getting it back, about 70%
    Participated in Oral Sex ? - Whenever I could and she would want to, but not anymore :-(
    Dave
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
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    SURVEY REPLY
    How old at diagnosis (46)
    Sex (M )
    Smoker (N )NEVER
    HPV + ( Y)
    Type Of Cancer (SCC OF R TONSIL, SOME SOFT PALLATE AND 21 TUMORS TO R NECK 19 TESTED POSITIVE )
    Cannabis User (Y )IN MY TWENTIES
    Drinker (Y MORE WHEN REALLY STRESSED OUT )
    Ever been serevley sunburned (Y )
    Eye Color (BR )
    Skin complexion (FAIR )
    Ever had Skin Cancer ? (N )DID HAVE TWO SUSPICIOUS LOOKING MOLES BIOPSIED AND NEGATIVE
    Ever been Stressed for a long period of time ( years) (5 )MAJOR STRESS WITH ONE OF MY SONS AND RUN A CONSTRUCTION CO. IN A CRAPPY ECONOMY.
    Were you tired before diagnosis (Y)THOUGHT I HAD MONO OT LYME DISEASE
    Have you had Chronic Fatigue (N )
    Ever subconsciously worried about getting cancer (N )NO FAMILY HISTORY
    Obese (Y/N)NO, 5'9 235 LBS BUT A LIFELONG POWERLIFTER. THE MEDICAL CHARTS WOULD SAY I AM OVER WEIGHT.
    Fingernail biter ? (Y)CHRONIC. WHY???
    General health prior to Dx. Poor Fair Good ? (GOOD, HAVE HIGH BP )
    Suffer from Gastric Reflux/ Stomach ulcers ? (Y)TAKE PRILOSEC EVERY DAY
    Diet (Vegetarian >> Carnivore)THE BIGGER THE STEAK THE BETTER HIGH PROTIEN.
    Heritage (ADOPTED, ENGLISH AND ITALIAN. LAST NAME KRAUS EXPLAINS THE ADOPTION. )
    ‹ Hospital Stay - Suggestions? Trach Removed ›
    I HAD NO SIGNS OR SYMPTOMS. WHILE BRUSHING MY TEETH ONE MORNING I NOTICED THE LUMP IN MY NECK. LITERALLY POPPED UP OVER NIGHT.
  • RushFan
    RushFan Member Posts: 224
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    SURVEY REPLY
    How old at diagnosis (46)
    Sex (M )
    Smoker (N )NEVER
    HPV + ( Y)
    Type Of Cancer (SCC OF R TONSIL, SOME SOFT PALLATE AND 21 TUMORS TO R NECK 19 TESTED POSITIVE )
    Cannabis User (Y )IN MY TWENTIES
    Drinker (Y MORE WHEN REALLY STRESSED OUT )
    Ever been serevley sunburned (Y )
    Eye Color (BR )
    Skin complexion (FAIR )
    Ever had Skin Cancer ? (N )DID HAVE TWO SUSPICIOUS LOOKING MOLES BIOPSIED AND NEGATIVE
    Ever been Stressed for a long period of time ( years) (5 )MAJOR STRESS WITH ONE OF MY SONS AND RUN A CONSTRUCTION CO. IN A CRAPPY ECONOMY.
    Were you tired before diagnosis (Y)THOUGHT I HAD MONO OT LYME DISEASE
    Have you had Chronic Fatigue (N )
    Ever subconsciously worried about getting cancer (N )NO FAMILY HISTORY
    Obese (Y/N)NO, 5'9 235 LBS BUT A LIFELONG POWERLIFTER. THE MEDICAL CHARTS WOULD SAY I AM OVER WEIGHT.
    Fingernail biter ? (Y)CHRONIC. WHY???
    General health prior to Dx. Poor Fair Good ? (GOOD, HAVE HIGH BP )
    Suffer from Gastric Reflux/ Stomach ulcers ? (Y)TAKE PRILOSEC EVERY DAY
    Diet (Vegetarian >> Carnivore)THE BIGGER THE STEAK THE BETTER HIGH PROTIEN.
    Heritage (ADOPTED, ENGLISH AND ITALIAN. LAST NAME KRAUS EXPLAINS THE ADOPTION. )
    ‹ Hospital Stay - Suggestions? Trach Removed ›
    I HAD NO SIGNS OR SYMPTOMS. WHILE BRUSHING MY TEETH ONE MORNING I NOTICED THE LUMP IN MY NECK. LITERALLY POPPED UP OVER NIGHT.

    luv4lacrosse Powerlifting
    I powerlifted on and off for several years. Great sport. Once was at a meet in San Luis Obispo CA. and Ed Coan was there to support a friend lifting at the meet in my weight class. I got my doors blown off that day.

    Cheers, and stay strong.
    Best to you and all here...
    Chuck.
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
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    RushFan said:

    luv4lacrosse Powerlifting
    I powerlifted on and off for several years. Great sport. Once was at a meet in San Luis Obispo CA. and Ed Coan was there to support a friend lifting at the meet in my weight class. I got my doors blown off that day.

    Cheers, and stay strong.
    Best to you and all here...
    Chuck.

    LIFTING
    HAD TO STOP COMPETING AFTER MAJOR LUMBAR SPINE SURGERY IN 99.

    CANNOT WAIT TO GET BACK INTO THE GYM BUT FEAR GOING TO THE GYM IS MY IMMUNE SYSTEM IS WEAKENED FROM THE CHEMO / RADIATION. I HAVE NOT LIFTED IN 34 DAYS.
  • zinniemay
    zinniemay Member Posts: 522
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    Hondo said:

    Hi Jan

    Hope this helps
    How old at diagnosis (54)
    Sex (male)
    Smoker (yes 25 years ago)
    Drinker (No)
    Ever been serevley sunburned (No)
    Eye Colour (Dark)
    Skin complexion (medium)
    Ever been Stressed for a long period of time (yes) Work, Home, Church
    Was you tired before diagnosis (No) Workaholic
    Ever subconciously worried about getting cancer (No)

    Hi Jan
    Hope this helps
    How old at diagnosis (55)
    T4 N1 MO Larynx squamous cell cancer, metastic to both lungs
    Sex (male)
    Smoker (never)
    Cannabis User ( one time only)
    Drinker (No)younger days many a beer or two once a week
    Ever been serevley sunburned (No)
    Eye Colour (Dark Brown)
    Skin complexion (medium)
    Ever been Stressed for a long period of time (yes)
    Was you tired before diagnosis (No)perfectionist
    Ever subconciously worried about getting cancer (NOPE)
    Polish -Croatia decendent
    very good health, despite being obese
    HPV have not asked but wll
    MOTHER died of Ovarian cancer age 46
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    Pre-Diagnosis Symptoms
    One thing that I did have after I thought about it and had been diagnosed.

    Over a year or so previous to being diagnosed. I would wake up with a swollen soft pallet. It felt like I had a big wad of cotton stuck back in my mouth or throat. After a cup or warm or hot coffee it would return to normal. I dismissed it to snoring at night and dryness in the air. Once I noticed a small dark spot like a blood blister, but it went away that same day, and again I blew it off.

    I'm not sure if those symptoms were related or not, but looking back. I feel that they were probably early warnings. At the time I was diagnosed and I was already STG III, I probably already had SCC in the very early stage during those pre-diagnosed symptoms.

    Best,
    John
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    D Lewis said:

    Interesting variation in the results
    How old at diagnosis (54)
    Sex (F)
    Smoker (Never)
    HPV + (HPV-16+. Tested at my request. Local ENT had no idea what I was talking about.)
    Type Of Cancer (T1N2cM0 base of tongue with mets to submandibular lymph nodes on both sides. Primary tumor was less than 2 cm. One lymph node was 3 cm. One was 1.5 cm. Several sub-cm nodes were also hypermetabolic.)
    Cannabis User (No)
    Drinker (Occasonal beer and wine. Not a heavy drinker.)
    Ever been severely sunburned (Probably. I was a kid before SPF sunblocks and I spent summers on the beaches in Maine.)
    Eye Color (Blue)
    Skin complexion (Medium - I tan.)
    Ever had Skin Cancer ? (Nope)
    Ever been Stressed for a long period of time ( years) (Not really.)
    Were you tired before diagnosis (Nope. Didn't notice any symtoms except an enlarged lymph node.)
    Have you had Chronic Fatigue (Never)
    Ever subconsciously worried about getting cancer (No. I have a lot of relatives who smoke, and they are all in their eighties and nineties. No cancer in the family. Everyone died of old age.)
    Obese (No. Slender most of my life.)
    Fingernail biter ? (No)
    General health prior to Dx. Poor Fair Good ? (Excellent, actually. Spend a lot of time in the high country.)
    Suffer from Gastric Reflux/ Stomach ulcers ? (Never. Eat like a horse. Eat anything.)
    Diet (Opportunistic Carnivore. Love fruits and veggies. Hell, I'd eat carrion. Oh, wait, I do. I love jerky.)
    Heritage (English Scotch/Irish. Part workhorse. Hail from New England originally. Ancestors were all farm laborers or sea captains. Loved those cold winters.)

    There are similarities, but no real commonalities here. Reinforces the importance of HPV+ status in the absence of smoking, drinking and heredity. Environmental causes don't seem to be playing a part here.

    Deb

    Last Box
    I don't think it's that uncommon within our age group.

    It is a commonality that the medical community recognizes. The scary part is that like cancer cells, HPV cells can lie dormant within our bodies. Something triggers them to become active. Thoughts of stress, over-weight, nutritional imbalances, all come into play I'm sure.

    I know that my wife has her annual exams and HPV is one thing that was tested for, especially considering that I had HPV derived throat cancer. Mainly asking the same questions, could she get it, did she also have it, etc....no to all of those.

    So that being said, we have been together for over 20 years. So it would have had to lay dormant more years than that. Unless I contracted it via some other mean. There's just too many unknowns ad present. Cancer is much older and they haven't fully figured that out. HPV is a relatively new kid on the block.

    JG
  • Bigfuzzydoug
    Bigfuzzydoug Member Posts: 154
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    When they made me, they broke the mold.
    How old at diagnosis (41)
    Sex (M)
    Smoker (no)
    HPV + (still awaiting results, but probably positive)
    Type Of Cancer (laryngeal scc)
    Cannabis User (no)
    Drinker (no)
    Ever been serevley sunburned (no)
    Eye Color (hazel)
    Skin complexion (fair)
    Ever had Skin Cancer ? (no)
    Ever been Stressed for a long period of time (years) (no)
    Were you tired before diagnosis (no)
    Have you had Chronic Fatigue (no)
    Ever subconsciously worried about getting cancer (no)
    Obese (no)
    Fingernail biter ? (no)
    General health prior to Dx. Poor Fair Good ? (good - triathlete, weightlifter)
    Suffer from Gastric Reflux/ Stomach ulcers ? (no)
    Diet (healthy, low fat carnivore)
    Heritage (German-Russian)
  • rmkbrad
    rmkbrad Member Posts: 176
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    How old at diagnosis
    How old at diagnosis (44)
    Sex (Somtimes)
    Smoker (NO )
    HPV + (?)
    Type Of Cancer (Left tonsil and esophagus)
    Cannabis User (Was)
    Drinker (No)
    Ever been serevley sunburned (Yes)
    Eye Color (Blue)
    Skin complexion (Fair)
    Ever had Skin Cancer ? (Yes)
    Ever been Stressed for a long period of time ( years) (No, hence the cannabis)
    Were you tired before diagnosis (No)
    Have you had Chronic Fatigue (no)
    Ever subconsciously worried about getting cancer (yes)
    Obese (Y)
    Fingernail biter ? (no)
    General health prior to Dx. Poor Fair Good ? (good)
    Suffer from Gastric Reflux/ Stomach ulcers ? (yes)
    Diet (Carnivore)
    Heritage (Honkey)
  • pascotty
    pascotty Member Posts: 174 Member
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    Skiffin16 said:

    Pre-Diagnosis Symptoms
    One thing that I did have after I thought about it and had been diagnosed.

    Over a year or so previous to being diagnosed. I would wake up with a swollen soft pallet. It felt like I had a big wad of cotton stuck back in my mouth or throat. After a cup or warm or hot coffee it would return to normal. I dismissed it to snoring at night and dryness in the air. Once I noticed a small dark spot like a blood blister, but it went away that same day, and again I blew it off.

    I'm not sure if those symptoms were related or not, but looking back. I feel that they were probably early warnings. At the time I was diagnosed and I was already STG III, I probably already had SCC in the very early stage during those pre-diagnosed symptoms.

    Best,
    John

    Pre diagnosis
    I too can look back and see a few signs. I used to get a feeling like I still needed to swallow something and it just wouldn't go down. Sometimes I would wake up like I was choking on something. I just passed these of like nothing. I would also get tired to my bones but just keepgoing cause I own my own business , well you just keep going and I thought I was just over worked. I don't have any of these symptons now. My body was definately trying to tell me something was happening
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
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    husband's background responses
    I think this is important information to gather, whether the medical community does or not.

    How old at diagnosis (52 )
    Sex (M)
    Smoker (Y)
    HPV + (unknown)
    Type Of Cancer (hypopharyngeal )
    Cannabis User (no )
    Drinker (Y)
    Ever been severely sunburned (N )
    Eye Color (B )
    Skin complexion (Fair )
    Ever had Skin Cancer ? (No )
    Ever been Stressed for a long period of time (15 years) (Yes )
    Were you tired before diagnosis (No )
    Have you had Chronic Fatigue (No )
    Ever subconsciously worried about getting cancer (No )
    Obese (No)
    Fingernail biter ? (No )
    General health prior to Dx. Poor Fair Good ? (Fair )
    Suffer from Gastric Reflux/ Stomach ulcers ? (Reflux)
    Diet (Vegetarian >> Carnivore)(Omnivore
    Heritage (English )
  • timreichhart
    timreichhart Member Posts: 194
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    husband's background responses
    I think this is important information to gather, whether the medical community does or not.

    How old at diagnosis (52 )
    Sex (M)
    Smoker (Y)
    HPV + (unknown)
    Type Of Cancer (hypopharyngeal )
    Cannabis User (no )
    Drinker (Y)
    Ever been severely sunburned (N )
    Eye Color (B )
    Skin complexion (Fair )
    Ever had Skin Cancer ? (No )
    Ever been Stressed for a long period of time (15 years) (Yes )
    Were you tired before diagnosis (No )
    Have you had Chronic Fatigue (No )
    Ever subconsciously worried about getting cancer (No )
    Obese (No)
    Fingernail biter ? (No )
    General health prior to Dx. Poor Fair Good ? (Fair )
    Suffer from Gastric Reflux/ Stomach ulcers ? (Reflux)
    Diet (Vegetarian >> Carnivore)(Omnivore
    Heritage (English )

    my background
    How old at diagnosis (24)
    Sex (M)
    Smoker (I used to smoke when I was younger )
    HPV + (N/A)
    Type Of Cancer (Nasopharyngeal Carcinoma)
    Cannabis User (never tried )
    Drinker (used to drink alot but now I dont )
    Ever been serevley sunburned (yes)
    Eye Color (blue )
    Skin complexion (light tan)
    Ever had Skin Cancer ? (Yes now I have it)
    Ever been Stressed for a long period of time (7 years)
    Were you tired before diagnosis (No)
    Have you had Chronic Fatigue (No)
    Ever subconsciously worried about getting cancer (Yes)
    Obese (Y/N) (no)
    Fingernail biter ? (no )
    General health prior to Dx. Poor Fair Good ? (Good)
    Suffer from Gastric Reflux/ Stomach ulcers ? ( )
    Diet (Vegetarian >> Carnivore) (Carnivore)
    Heritage (German )
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    SURVEY REPLY
    How old at diagnosis (46)
    Sex (M )
    Smoker (N )NEVER
    HPV + ( Y)
    Type Of Cancer (SCC OF R TONSIL, SOME SOFT PALLATE AND 21 TUMORS TO R NECK 19 TESTED POSITIVE )
    Cannabis User (Y )IN MY TWENTIES
    Drinker (Y MORE WHEN REALLY STRESSED OUT )
    Ever been serevley sunburned (Y )
    Eye Color (BR )
    Skin complexion (FAIR )
    Ever had Skin Cancer ? (N )DID HAVE TWO SUSPICIOUS LOOKING MOLES BIOPSIED AND NEGATIVE
    Ever been Stressed for a long period of time ( years) (5 )MAJOR STRESS WITH ONE OF MY SONS AND RUN A CONSTRUCTION CO. IN A CRAPPY ECONOMY.
    Were you tired before diagnosis (Y)THOUGHT I HAD MONO OT LYME DISEASE
    Have you had Chronic Fatigue (N )
    Ever subconsciously worried about getting cancer (N )NO FAMILY HISTORY
    Obese (Y/N)NO, 5'9 235 LBS BUT A LIFELONG POWERLIFTER. THE MEDICAL CHARTS WOULD SAY I AM OVER WEIGHT.
    Fingernail biter ? (Y)CHRONIC. WHY???
    General health prior to Dx. Poor Fair Good ? (GOOD, HAVE HIGH BP )
    Suffer from Gastric Reflux/ Stomach ulcers ? (Y)TAKE PRILOSEC EVERY DAY
    Diet (Vegetarian >> Carnivore)THE BIGGER THE STEAK THE BETTER HIGH PROTIEN.
    Heritage (ADOPTED, ENGLISH AND ITALIAN. LAST NAME KRAUS EXPLAINS THE ADOPTION. )
    ‹ Hospital Stay - Suggestions? Trach Removed ›
    I HAD NO SIGNS OR SYMPTOMS. WHILE BRUSHING MY TEETH ONE MORNING I NOTICED THE LUMP IN MY NECK. LITERALLY POPPED UP OVER NIGHT.

    POWERLIFTER
    By your quote, "LIFELONG POWERLIFTER. THE MEDICAL CHARTS WOULD SAY I AM OVER WEIGHT".

    I'm a POWERLIFTER and didn't realize it until today... :)

    Best,
    John
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
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    Skiffin16 said:

    POWERLIFTER
    By your quote, "LIFELONG POWERLIFTER. THE MEDICAL CHARTS WOULD SAY I AM OVER WEIGHT".

    I'm a POWERLIFTER and didn't realize it until today... :)

    Best,
    John

    OVER WEIGHT
    The last time I applied for some Life Insurance I was rated higher as they said I did not fit into what is considered to be "not over weight" for someone who is 5'9" Their charts had a guy at 5'9" with a "normal weight" between 155 and 175 lbs. They could care less about what medical condition and or shape I was actually in. I have not been under 200 lbs. since College when I played Hockey.

    Mike
  • stevenl
    stevenl Member Posts: 587
    Options
    Survey Response
    How old at diagnosis (52)
    Sex (M)
    Smoker (Y-40 Years)
    HPV + (Y)
    Type Of Cancer (SCC Right Tonsil, Right neck dissection, 33 rads, 6 weekly Carboplatin and 5FU)
    Cannabis User (yes, still rarely)
    Drinker (Y)
    Ever been severely sunburned (Y)
    Eye Color (Br)
    Skin complexion (Med)
    Ever had Skin Cancer ? (Y)
    Ever been Stressed for a long period of time ( years) (No. only paranoid from smoking pot)
    Were you tired before diagnosis (No, constantly active)
    Have you had Chronic Fatigue (No)
    Ever subconsciously worried about getting cancer (No)
    Obese (N)
    Fingernail biter ? (No)
    General health prior to Dx. Poor Fair Good ? (Excellent)
    Suffer from Gastric Reflux/ Stomach ulcers ? (Hiatal Hernia)
    Diet (Carnivore)
    Heritage (Anglo Saxon)
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
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    my background
    How old at diagnosis (24)
    Sex (M)
    Smoker (I used to smoke when I was younger )
    HPV + (N/A)
    Type Of Cancer (Nasopharyngeal Carcinoma)
    Cannabis User (never tried )
    Drinker (used to drink alot but now I dont )
    Ever been serevley sunburned (yes)
    Eye Color (blue )
    Skin complexion (light tan)
    Ever had Skin Cancer ? (Yes now I have it)
    Ever been Stressed for a long period of time (7 years)
    Were you tired before diagnosis (No)
    Have you had Chronic Fatigue (No)
    Ever subconsciously worried about getting cancer (Yes)
    Obese (Y/N) (no)
    Fingernail biter ? (no )
    General health prior to Dx. Poor Fair Good ? (Good)
    Suffer from Gastric Reflux/ Stomach ulcers ? ( )
    Diet (Vegetarian >> Carnivore) (Carnivore)
    Heritage (German )

    SYMPTOMS
    Does any one know why a "nail biter" is relevant to cancer? Is it like the urban legend that if you pluck or pull hairs from your nostril you could get brain cancer or clots??

    Do the Docs weight more heavily on Smoking VS Drinking or the same % applies??

    Mike
  • SIRENAF42
    SIRENAF42 Member Posts: 202
    Options
    Answers
    How old at diagnosis ( 42)
    Sex (f )
    Smoker ( n)
    HPV + ( n)
    Type Of Cancer (Esthesionueroblastoma )
    Cannabis User ( n)
    Drinker (rare )
    Ever been serevley sunburned ( n)
    Eye Color ( green)
    Skin complexion ( fair)
    Ever had Skin Cancer ? ( n)
    Ever been Stressed for a long period of time ( years) (yes )
    Were you tired before diagnosis (yes )
    Have you had Chronic Fatigue (yes )
    Ever subconsciously worried about getting cancer (n )
    Obese (N)
    Fingernail biter ? (n )
    General health prior to Dx. Poor Fair Good ? (good )
    Suffer from Gastric Reflux/ Stomach ulcers ? (no)
    Diet (Carnivore)
    Heritage (Caucasion )

  • staceya
    staceya Member Posts: 720
    Options
    SIRENAF42 said:

    Answers
    How old at diagnosis ( 42)
    Sex (f )
    Smoker ( n)
    HPV + ( n)
    Type Of Cancer (Esthesionueroblastoma )
    Cannabis User ( n)
    Drinker (rare )
    Ever been serevley sunburned ( n)
    Eye Color ( green)
    Skin complexion ( fair)
    Ever had Skin Cancer ? ( n)
    Ever been Stressed for a long period of time ( years) (yes )
    Were you tired before diagnosis (yes )
    Have you had Chronic Fatigue (yes )
    Ever subconsciously worried about getting cancer (n )
    Obese (N)
    Fingernail biter ? (n )
    General health prior to Dx. Poor Fair Good ? (good )
    Suffer from Gastric Reflux/ Stomach ulcers ? (no)
    Diet (Carnivore)
    Heritage (Caucasion )

    Interesting Idea. Thanks for
    Interesting Idea. Thanks for posting!

    How old at diagnosis (49 )
    Sex (F )
    Smoker ( Never)
    HPV + ( +)
    Type Of Cancer (SCC NPC stage 1 )
    Cannabis User (barely a million years ago )
    Drinker (rare )
    Ever been serevley sunburned ( N)
    Eye Color (B )
    Skin complexion (Med olive )
    Ever had Skin Cancer ? (N )
    Ever been Stressed for a long period of time ( years) ( Sort of )
    Were you tired before diagnosis ( N)
    Have you had Chronic Fatigue (N )
    Ever subconsciously worried about getting cancer ( sometimes )
    Obese (N)
    Fingernail biter ? (sometimes )
    General health prior to Dx. Poor Fair Good ? ( Good)
    Suffer from Gastric Reflux/ Stomach ulcers ? (N )
    Diet (Vegetarian >> Carnivore) whatever did not run away. Reasonably healthy
    Heritage ( Russian)

    Current status ( 6 months post rads)
    Taste (really started improving at 4 months out)
    Saliva (improved about 1 month out)
    Some studies I have read indicated that most new H&N cancers are HPV+ and 80% of people are HPV +..indicates a need for more oral screening to catch these before lymph node involvement, which seems to be the way most of these cases are found. My dentist is taking my case to a conference to emphasize the need to do a more thorough oral cancer exam. I had been telling my DDS of swallowing difficulty for quite some time. The mass was not seen until gag reflex evoked and then it was visible.

    Stacey
  • Kimba1505
    Kimba1505 Member Posts: 557
    Options
    staceya said:

    Interesting Idea. Thanks for
    Interesting Idea. Thanks for posting!

    How old at diagnosis (49 )
    Sex (F )
    Smoker ( Never)
    HPV + ( +)
    Type Of Cancer (SCC NPC stage 1 )
    Cannabis User (barely a million years ago )
    Drinker (rare )
    Ever been serevley sunburned ( N)
    Eye Color (B )
    Skin complexion (Med olive )
    Ever had Skin Cancer ? (N )
    Ever been Stressed for a long period of time ( years) ( Sort of )
    Were you tired before diagnosis ( N)
    Have you had Chronic Fatigue (N )
    Ever subconsciously worried about getting cancer ( sometimes )
    Obese (N)
    Fingernail biter ? (sometimes )
    General health prior to Dx. Poor Fair Good ? ( Good)
    Suffer from Gastric Reflux/ Stomach ulcers ? (N )
    Diet (Vegetarian >> Carnivore) whatever did not run away. Reasonably healthy
    Heritage ( Russian)

    Current status ( 6 months post rads)
    Taste (really started improving at 4 months out)
    Saliva (improved about 1 month out)
    Some studies I have read indicated that most new H&N cancers are HPV+ and 80% of people are HPV +..indicates a need for more oral screening to catch these before lymph node involvement, which seems to be the way most of these cases are found. My dentist is taking my case to a conference to emphasize the need to do a more thorough oral cancer exam. I had been telling my DDS of swallowing difficulty for quite some time. The mass was not seen until gag reflex evoked and then it was visible.

    Stacey

    What will you do with the compiled data?
    How old at diagnosis (53)
    Sex (M)
    Smoker (N)
    HPV + (Y)
    Type Of Cancer (SCC)
    Cannabis User (many years ago)
    Drinker (moderate)
    Ever been serevley sunburned (Y)
    Eye Color (Brown)
    Skin complexion (medium)
    Ever had Skin Cancer ? (N)
    Ever been Stressed for a long period of time ( years) (Y)
    Were you tired before diagnosis (N)
    Have you had Chronic Fatigue (N)
    Ever subconsciously worried about getting cancer (getting "sick")
    Obese (N)
    Fingernail biter ? (N)
    General health prior to Dx. Poor Fair Good ? (Excellent)
    Suffer from Gastric Reflux/ Stomach ulcers ? (N)
    Diet (Vegetarian >> Carnivore) Definite carnivore, no processed foods, lots of fruits and veggies.
    Heritage (Jewish/Russian decent)
  • Pumakitty
    Pumakitty Member Posts: 652
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    This information is for my dad
    How old at diagnosis 70
    Sex male
    Smoker light smoker
    HPV + don't know
    Type Of Cancer base of tongue
    Cannabis User no
    Drinker (very light )
    Ever been serevley sunburned (not really )
    Eye Color (green )
    Skin complexion (medium )
    Ever had Skin Cancer ? (yes, cell )
    Ever been Stressed for a long period of time (No years) ( )
    Were you tired before diagnosis (yes )
    Have you had Chronic Fatigue (no)
    Ever subconsciously worried about getting cancer (no )
    Obese (Y/N)no
    Fingernail biter ? (no )
    General health prior to Dx. Poor Fair Good ? (Good )
    Suffer from Gastric Reflux/ Stomach ulcers ? (No )
    Diet (Vegetarian >> Carnivore)Carnivore
    Heritage (Irish )

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