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CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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Melanoma -Treatments?
Just had my 1st Oncology appointment yesterday and received the news. I have no knowledge of Melanoma Spitzoid Type and have never met anyone that has been at stage 3 or 4. MELANOMA has spread to at least the sentinel node, microscopic amount less than .5mm Still waiting for the Insurance to give prior authorization for my…
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Stage IV melanoma
Dear All, it is nice that there is a network where we can read some gudilines but still have to ask if someone has opinion regarding melanoma, my brother Rok was diagnosed 12/18/2013. Just to describe his case. He was born in 1977 in Celje, Slovenia. In beging of december he sneezed and he felt a very intenese pain at the…
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Zelboraf
Has anyone used Zelboraf, and if so, how have you done with it? Judy
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Stage IV melanoma survivor, still here 8+ years and counting
Stage IV now 7+years cancer free. Sharing my story and offering hope to those of you newly diagnosed and or currently battling, or even new to becoming cancer free. Over 8 years ago I was told to" get my affairs in order", that I was looking at 6-9 months to live. My melanoma began on my knee as stage 0 in 2004. Less then…
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fired for taking time off to fight cancer
having a hard time dealing with losing my job for taking six weeks of unpaid time off to battle melanoma.
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Can anyone provide information on side effects of low dose interferon treatments?
My Dad is currently in the 3rd week of his schedule 4 weeks of high dose interferon (treatment is every day, Monday through Friday). When the 4 weeks of high dose interferon treatments are completed he will have daily self-injected low dose interferon injections for about 48 weeks. He is 77 years old and has never been…
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Suqamous Cell
Anybody ever heard of squamous cell in the ear? I had Mohs last year on my nose. Now I have the same scaly patch in my ear. It started out like a pimple about 2 months ago, now it's getting bigger. Am going to make an appointment but it just seems odd to have it in the ear.
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Possible merkel cell skin cancer
I have a history of both basil and squamous cell cancer that I have battled. Recently I developed a rapid growing lesion on my stomach that has grown large with smaller harder lesions around the area. The large lesion crusts over and bleeds easily. I am waiting for the biopsy result and I am scared this my be merkel cell??…
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Slightly Lobular Lesion on my Liver
Hello all, I am new to this site and have been searching for answers on a recent MRI Scan. The report stated - In the posterior lateral subcostal aspect of the right lobe in sgement 7, there is a 2.1cm slightly lobular T2 hyperintense T1 hypointense lesion. The lesion reveals slight peripheral enhancement starting at 5…
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perineural invasion of face due to squamous cell carcinoma advanced case
My dad's was finally diagnosed with squamous cell carcinonoma that has infiltrated his facial nerves. He went undiagnosed by doctors for five months with terrible ear pain and now some paraysis of right side of face. No excision being done, only radiation recommended. Have read that chemo with radiation may be better,…
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Decadron Questions
I'm new to the site but have been reading quite a few of the posts for a few days. My 51 year old wife was diagnosed with Stage III Melanoma on the upper part of her back just under 6 years ago. The doctor had found a few cancer cells in an "in transit" lymph node on her back but after consultations with our oncologist and…
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Squamous Carcinoma of Left Posterior - mandibular segment
I'm new here, so happy to have this outlet and place for information! My almost 70-year old father has just been disgnosed with the above subject cancer. We met with his Specialist in Austin, TX (Dr. Scholl) last week and was told her will have 1/2 of his jaw removed and replaced with his fibula leg bone; with follow-up…
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New Stage IV Metastasizing Melanoma Husband
I'm confused and angry today at our oncologist and need advice as to what I should do about it. My wife, Cheryl, was diagnosed with Stage IV Melanoma Cancer on 11/30/2009. It appears to have started in her lung, and matastasized to a lymph node in her lung and then her liver. We live in Virginia. The first consultation…
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Melanoma
I have just completed my 5th week of radiation therapy after 4 surgeries this year. Yesterday I began losing my voice and having difficulty talking. No pain or difficulity eating, when I feel like eating. Mt radiation /Oncologist is off for the weekend so I cannt ask about this. The treatment area is on my left chest area…
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Rapidly growing Stage IV squamous cell cancer
I've been reading a lot of posts on this board and I do believe my husband's situation is not normal at all. I understand why all of these doctor's are flabergasted. Basically, my husband had a cyst removed from his upper buttock May 2012. They originally felt this was a benign growth and they removed it because it was…
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new here
I was diagnosed with melonoma stage 3 this week. looking for all encouragement I can get
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they want to do a complete lymph node dissection CLND
Hi just diagnosed with nodule melanoma. 1.9mm after a SLND found 2 of the 3 lymph nodes with cancer the doctor is setting up a complete lymph node removal under my arm. I've read this really doesn't help. So has anyone done this or not and what was your results. I have 3 young children so some of the meds I just can't see…
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in fear of loosing hope
I was 19, It all started when I found out I was pregnant, March 2011they found a skin tag on my neck stage 4 Malignant Melanoma, I had surgery when I was three months pregnant and then at eight months pregnant they told me to have an early delivery for another surgery, this time they removed six lymph nodes from the same…
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"rare" squamous cell carcinoma ???
My father recently had a "cyst" removed from his jaw that had been there for years. You could see nothing on the skin...just a small "cyst" under the skin that his doctor kept telling him was "nothing". He was finally referred to a surgeon who removed the "cyst" only to find it was a tumor that had invaded the coratid…
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new here...and need advise
Hi All...My BF husband dx in 11/2012 with stage IV melanomaa. It was in the lungs,arm,knee,shin and foot. he had surgery to remove 3 tumors on the arm and surgery to remove the sausage size tumor on the foot. He tried the IL-2 @ Roswell (in Buffalo NY) and was only able to receive 4 doses due to heart issues and a fatty…
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Zelboraf
Has anyone used Zelboraf, and if so, how have you done with it? Judy
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Yervoy treatments - 4 doses recommended but why more?
My Mother's oncologist is having her have additional Yervoy every 3 months. My Mom has a hard time right after the treatments and we don't even know if she has melanoma any longer after taking 6 doses of Yervoy. Does anyone have any experience of over 4 doses of this drug? I am trying to find where something says the…
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Skin friction that I could not explain the red spot.
Please let me start off my saying that I'm not looking for a diagnosis over the Internet and understand that you're not doctors, however I feel this is the best place to get an opioin on what it looks like.// I recently developed some skin friction on the sole of my foot after playing basketball 5 times last week. It's the…
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I'm new here. Feeling alone and afraid.
I was first diagnosed with stage 3 Melanoma back in 2008. I just recently found out that it is back. Metastatic lessions have been found in my liver, the base of my left lung, one node in my thoracic cavity, another one under my right arm, and also my brain. It has been spreading very quickly. In early December there were…
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Melanoma, remission milestone
I just want to share some good news on this discussion board. My wife had melanoma in the form of a mole on her forehead April 1991. The mole was excised and lymphs nodes in area removed. She was pronounced cancer free and continued annual checkups through 2009. She was diagnosed with stage 4 melanoma, 3 tumors on her…
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Melanoma - My Battle Rages On
MELANOMA – Do You REALLY Know What It Is?? Melanoma. If you have even heard the word before, the first thing you probably think of is skin cancer. No big deal right? WRONG!!! It doesn't take Melanoma long to become deadly. It is one of the most aggressive cancers there is. There is NO CURE. The only sure treatment is…
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So hoping to find another like me, SCC three months after chemo for IDC
Hi, I am new here, about a week. I posted on both the breast cancer and head and neck forums. Great people on both, so much appreciated support:) but still searching for someone who can relate to exactly what I am going through. I will try to be brief, I was diagnosed with bilateral IDC in August 2012, had a bilateral…
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My Daddy!
Hi there, I am new to this forum and I was hoping someone could help me! My Daddy (84) was told today that the cancer he had removed 10 days ago was marginal. My Mama is so worried and asked me what it meant and sadly I had no idea. She was in to much shock from hearing the word cancer to take in what the doctor was saying…
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recurring melanoma in left side of face and sinus
Hi yes Im scared , second time first was melanoma stu on left nostril had a flap done ,they thought it was gone came back worse, recurring melanoma, now another surgery on my face then radiation . anybody out their going through the same thing??