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blood clots
Does anyone have any info. on if they ever had a blood clot do to cancer? The Doc's are telling us its common for cancer patients to have bllod clots. Mom just got admitted, put on levonx (bloodthinner) and will have a ct scan with contrast in the A.M What is the treatment for this and what is entailed? She has no pain…
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Burzynski Clinic?
So a friend of ours recently recommended that we try to to get some information about this institute for treatment. However, the website seems kind of vague and I don't even know if they treat small cell lung cancer outside of trials or not... Upon further research I noticed that they have been doing the antineoplastins…
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Can someone help me understand.....
Ok, my Mom's Large Cell Lung CA, post PET scan, shows mets to the mandible (2/3 eroded away)and a couple "spots" in her back/spine. She has tested EGFR positive and Alk-1 negative. What does this mean????? I go to every doctor appointment with my Mom, but there are some questions I don't want to ask him in front of my Mom.…
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Side effects from Tarceva - or is this it?
My lovely friend has lung cancer with various mets. Shes in her 30's and has been pysically very weel until this last week. She is unable to eat much very tired and has the shakes. She has refused to see the dr but will in 'a couple of days' if she still feels this way. Could this all be side effects from tarceva (6 months…
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Is it back?
My husband was diagnosed with stage 3A lung cancer in September 2007. Because the cancer was in his lymph nodes and some surrounding tissue they would not do a resection. They gave him 15-18 months, he then went into remission. Fast forward to September 2011 and he is now experiencing the same type of problems he had in…
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"All we are is dust in the wind"
(Kansas reference) I chose this reference because my friend, my dear friend, stayingcalm (Deb) was an affirmed agnostic and would have probably preferred this to the title of my initial entry in the forums, Donne's rather religious "Death be not proud". Yes, CSN lost a wonderful personality this past weekend, and I lost,…
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My husband
My husband was diagnosed with stage 3B non operable lung cancer on June 24, 2011. He is 50. He quit smoking 10 years ago. He has had 6 chemo treatments and will finish up his 8 weeks of radiation next Tuesday. I'm not ignorant about lung cancer - my Dad died from it about 25 years ago about a year after his diagnosis - I'm…
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Sleepless is sleepless again help please
I dont understand if all the Doc's are saying its the cancer thats filling up in her lungs (has multiple tumors both lungs) are hoping the chemo gets rid of those monsters than tell me when they sent out the fluid that was drained from LT Lung on 8/29 how does report say NEG. for cancer cells??? We dont see the Onc til…
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The new miracle drug for cancer (no sarcasm!)
I know you've all heard of Crizotinib by now - also known as PF1066, and now known as Xalkori as it is released by Pfizer for use in the general population, yayy! I'll be reminding my doc that he said I could do well on this drug despite not having the ALK mutation, since Tarceva worked so well for me (even though I didn't…
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Lung cancer questions for friend ...
My friends. I'm very aware of all the wonderful resources you represent for knowledge on cancer. I know this from my journey w/head/neck cancer. I've just got done meeting with a good friend of mine who has been battling lung cancer for two years. I am *very* under qualified to ask detailed questions about his cancer. As…
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Gemcitabine/Taxotere comments from anyone?
I'm just starting this new treatment and wondering if anyone has any experiences they would like to share? Thanks for you help
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Doctors say unusual cancer, maybe you can help me
I have had three Carbo/Alimta treatments and the cancer on my lungs has show much improvement. Three weeks with radiation on the spine and the cancer is gone. But I have new spots on muscles on my upper right back and upper arm. There is a mass on my right tib fib muscle on my leg and a spot shows behind the knee.…
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Scuba diving with one lung
So far everything is going exceptionally well. It's been a year since chemo and almost 6 months since the removal of the second and hopefully, last tumor. so far all follow scans have been clear and the surgeon says he is really, really happy on how it all looks. We are going to Mexico and my husband would like to go…
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Neuropathy
Has anyone ever taken a drug called Gabapendtin for pain in the feet and hands from Nuropathy? I startd taking it today and hoping it wil work.
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Another bad visit
I am having to use my onscreen keyboard and it is very hideous to do. So,I hope everyone don’t mind me using texting language…lol Whn we arvd for visit tday we were greetd by the nurse tllng us he was waitng on us & he was even sittng oup on the side of the bed. She also staed that he ate good at lunch. We were very exctd…
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Thoughts to StayingCalm
Dear Deb, You will be missed by many. Thank you for your support and kind words everytime I needed a friend here. Whatever it is that gives you the most happiness, I hope you are surrounded by that now. Love, Hope4Marge
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Another bad visit
I am having to use my onscreen keyboard and it is very hideous to do. So,I hope everyone don’t mind me using texting language…lol Whn we arvd for visit tday we were greetd by the nurse tllng us he was waitng on us & he was even sittng oup on the side of the bed. She also staed that he ate good at lunch. We were very exctd…
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Burzynski Clinic
Did any one knows about the Burzynski Clinic in Houston, TX?
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lost. dont know what to do or how to think
My mothers best friend who I grew up calling my "other mother", was just told yesterday that she has a form of cancer which is on her left lung as well as both sides of the brain. It was thought that this past Friday she had a stroke because she lost control of her left eye and is unable to stand/walk by herself, after…
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Update on my husband.
It has been a while since I have posted on this board. Thought that I would update my husbands progress. On June 27th he was admitted to the hospital they thought that he had pneumonia. He was running fever and extremely tired. His fever broke on a Friday and then he couldn't breathe. He was tested for PCP Pnuemonia and…
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NO chemo again due to low WBC
again due to low blood, dad is not able to have his chemo done today. its the 2nd time throughout the whole treatment.. sad :(
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staying calm question for you re: pleurodesis
Hello~ Did you have both lungs done and if so what was the time frame between both? Mom is so scared to go back and get the other one done. It will not be sched. til it fills with fluid again. Poor Mom like she hasn't been through enough like I have informed you, they discharged her on sat. morn. with no pain meds just…
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Brand-spanking new to all this. Lots more questions right now than answers, for sure.
Hi, Everyone: Because I work for a radiology clinic, I sort of came in through the back door three weeks ago. Had a chest x-ray and then a CT -- showing malignant-appearing tumor left upper lobe, smack dab between the aorta and pulmonary artery (therefore, probably non-surgical, and definitely not able to be needle…
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Mom and Alimta
My mom has had her first Alimta treatment last Thursday and the side effects are horrible for her. Extreme diarrhea and weakness. I talked to her last night and she sounds awful. Is this something that should be reported to her onco? I have read the side effects for Alimta and it did say to talk to the doc if a patient…
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Turn for the worse
I received a phone call from the prison hospital today telling me I could come and visit as soon as I could get there. The reason for the "special visit" was that my husband wasn't do as good today as yesterday. When I arrived, no one seemed able to tell me what was going on, but my husband is now on oxygen and his…
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If there is multiple Lung tumors why cant rads or cyberknife be done?
If the lungs lately keep filling up with fluid and now just had pleurodesis done on 1 lung so far why cant rads be done or at least to the mother board? I know there is no stupid quest. but ya feel stupid sometimes asking some questions when they just look at ya? Mom is stage 4 with mets is that the reason, is it b/c there…
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Scary call from the doctor
I really don't know what is going on. The doctor called today asking me for a decision or if my husband has a living will. I informed him my husband has an Advance Medical Directive and he wants everything medically possible to keep him alive. He then started asking if I knew how ill he was and what is my decision as next…
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Tumor shrinkage, woooooohooooooo!!
Ok here it is. Good news for ONCE!!! Brain tumor gone, check! Lung tumor half the size it was, check! And now we wait for the latest staph infection to GO AWAY so that my mom can get the bone tumor out of her shoulder! AAAGGGGHHHHH!! She is doing very good at the moment. The antibiotics they gave her are finally doing…
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Pet Scan reports
Dear all, My Mother -In- law was diagnosed by Breast Cancer 5 years back she went through Six Kemo's at that time last year in October she was again diagnosed by mutation in lungs after six Kemo's now her latest PET Scan reports scan reports I think something is seriously wrong Please help me understand and give me some…
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Different news today
After being told yesterday that it may not be cancer at all, I have been told today they were only talking about the mets on the brain. Additionally, this is something they THINK, not proven. The lung cancer diagnosis still stands. However, I am being told they can't tell me staging or prognosis until it is re-evaluated…