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The kinder, gentler message board
I thoroughly enjoyed our frivolous discussion about movie stars, Andreae. We all need a little rest from wrangling with our disease. I joined the Literary Fiction Lovers group over at yahoo because I like to lose myself in a book to forget about...you know. Well, didn't a cat fight break out there? Secret e-mails and all…
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Feeling Alive
Hi everyone, I hope everyone had a great Thanksgiving! I was initially confused because us Canadians celebrate Thanksgiving in October, so I thought maybe you were all suffering from chemo brain or that I was losing it but then I remembered the American Thanksgiving! He, he, I'm so lost sometimes! Anyways, I hope you all…
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WELCOME MARGO!!!!!!!!
Hi Margo, Welcome to the SEMI COLON CLUB I hope you enjoy your membership here . My name is Lisa and yes I am a stage 3 like yourself . However I had 10 positive lymph nodes , and that took me a long time to accept . Yes , I had a portacath and it was great when it worked even though I had some trouble with mine I would…
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When will I start to feel like I'm not on chemo anymore
Hello again everyone. As I said recently I just finished my last chemo treatment. Only problem is I still have some problems with diahrea and this troubling gurgling in my abdomen. To top it all off, my appetite isn't too good. Maybe it is because of the accumulation of all the chemo medication that it will take a while to…
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Ablation of Liver and Lung
My Mom was diagnosed with colon cancer in January 2002. After surgery to remove the tumor and surrounding lympnodes, she began treatment with 5FU/Lycoveren combination. She became extremely ill with the typical dose so her dose was adjusted to 70% of the typical dose. She completed treatment in October 2002 and ended up in…
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Constant Hiccups???
My father in law (stage 4 colon with mets to liver and stomach) can't seem to stop having the hiccups. Does anyone know what this is caused from? He had these constantly after his colostomy and so we attributed it to that. He battled them off and on for about a month then, he quit having them. Well all of a sudden, they've…
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Xeloda - A love/hate relationship
Hi everyone, So I received my oxaliplatin and fistful of Xeloda on Monday. I was prescribed 6600mg of Xeloda daily. I took one dose on Monday (3300mg), two on Tuesday (6600mg) and I woke up in the wee hours of Wednesday morning in horrible pain and nauseous. I went to the ER knowing something was awry. The oncologist on…
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Looking for Advise for Mom
Here's the shorten version....My mother was diagnosed w/ colon cancer back in February. Part of her colon was removed and fortunately the cancer had not spread to any of the surrounding organs. After 6 weeks of chemo/radiation, she started, and is now in the 5th month of a weekly preventive chemo program at a local…
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chemo and diarrhoea.
Anyone getting or going to get chemo may be interested in this site. There is a lot of good info here. They are recommending Sandostatin for the diarrhoea ( as well as the usual medications)but this stuff does seem to help.(I'm not selling it !!) The site has a lot of info and will , I hope , be of help to some of us, even…
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Gymatecan
Does anyone have info on the experimental oral chemotherapy drug "gymatecan" ?
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Want to Thank the Semi-Colons
Wednesday is my last chemotherapy treatment. I had 5FU/Leucovorin (sp) for 24 treatments. I want to take this opportunity to thank all the people on this website who answered my questions and gave me the support I needed to get through my treatments. You were all so helpful to me and to all the other survivors who had…
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parenting
My name is Jose, I was born in San Francisco and I've been living in Mexico for 23 years. I'm 37 years old. Two years ago I had surgery of the colon. I went through chemo with 5FLU and oxi for six months with 12 sessions. I've been feeling great. I have two kids (5 and 3), and now I'm expecting another. My question is how…
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chemo and diarrhoea.
I think I'm losing my marbles ! Here is the site re. the last message. http://healthology.com/nl/redir_nl.asp?id=12356 Blessings, V.C.
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Xeloda???
First, I wanted to thank everyone for the support, amazing advice and humour. I think the best thing about cancer is the fabulous, inspirational ppl. I had the privilege to meet. On another note, I was wondering if anyone had the scoop on Xeloda and why I am on that as opposed to 5FU/leucovorin. Does the oxaliplatin and…
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Finally
Hi everyone! So I finally got a second opinion. Overall, I did like the doctor - he is a specialist in young adult's with cancer. He will try to get me onto a clinical trial, but if they are all closed he's going to start me on Xeloda and oxaliplatin on Monday. Oh, and the PET scan indicated that I do have mets. in my…
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Met. to lungs -need info
Hi, I am new to the group. My husband has rectal cancer - had successful surgery in May 2002 and a clean colonoscopy in June 2003. He was on Xeloda for about seven months and stopped in July 2003. We found out in October 2003 that the cancer spread to his lungs. The oncologist said that chemo may only slow down the growths…
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Thank you
Thank you all for your responses to my concernes...through your kind words and sharing your stories with me...I have gotten my ship...one that was sailing aimlessly in the rough seas of this jouney...back on a calmer one...I am eternally greatful...God Bless and watch over each and every one of you...His Angels!! Deb
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I hate this feeling!!!
My husband Gary has just completed his first round of treatment for T3N1 colon cancer...he started both radiation and chemo therapy on Sept. 30th...he had 28 treatments of radiation and took 3000 mg. of oral Xeloda daily...this journey went very well...the only apparent side effects Gary experienced were minor...he tired…
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Side Effects of Radiation
I just had surgery for rectal cancer, which was found to be stage III. I've been told I need to have both radiation and chemotherapy but haven't met the radiologist or oncologist yet. I'm really worried about side-effects, especially involving the reproductive system (I'm female)--I opted not to have my ovaries taken out…
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Advice needed
And the battle continues. Appointments are lined up, I have undergone a PET scan, John Hopkins is reviewing my case, and I continue to research. Unfortunately, this turn of events has impacted everyone aroud me - ESPECIALLY my mom. She is crying all the time and I'm REALLY concerned. To further understand the situation, I…
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Celebrex/celecoxib
I think that many of us will be interested in some new info. This relates to Celebrex, an anti-rheumatic/anti-inflammatory/painkilling drug which is already being used by very many people for arthritis etc. It is known to help prevent the development of Polyps in those with a family history of polyposis. It is now being…
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Intimacy
I need some advice regarding intimacy with my boyfriend. I have tried to broach the subject with my doctors but they deflect and avoid my questions. I don't really know if it's because they are not used to dealing with ppl. my age (I'm 21) or if they are simply insensitive. Anyways, in my experience cancer survivors are…
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Thank you
I wanted to thank Spongebob, Stacey, Lisa Rose, Emily and EFW. As you all know, advice and support is everything when you are going through a tough time. I have been pouring over the research on colorectal cancer for the last five days. I am making some calls, setting up a PET scan, getting in touch with doctors for second…
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Camptosar vs. Oxaliplatin
Can anyone provide feedback on the pros/cons of the following triplet regimens? 1) leuk/5FU/Camptosar 2) leuk/5FU/Oxaliplatin My mom just started the FULFIRI treatment (Camptasar, Leukavorin and 5FU), but received a second opinion where another doctor recommended the FOLFOX treatment (Oxaliplatin, Leukavorin and 5FU).…
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Thank you - rashes + cracked skins
Dear all, Thanks for the helpful tips. I'm from Malaysia/Southeast Asia. May not have accessed to the products that were mentioned but may have some luck with Boots product. If not, will try out butter cream/moisturiser with vit A&E. I'm concerned that she may not be able to complete the entire chemo course if the…
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Need advice on managing rashes, cracked skin and falling nail
My mum is about to start 4/8 chemo cycle for colon CA. Since the last cycle, the rashes on her feet have worsen & the nails are in pretty bad condition. Does anybody has a suggestion on how to relieve the pain/side effect? Thank you in advance.
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Chuckle of the day
http://www.colon-cancer.net/humor.htm Funny stuff!
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we need help
i have an aunt who is dealin wit cander recently diagnosed.she has had an operation 2 remove a tumor recently but yet has no recieved any treatment.we need sum kind of doctor or hospital where she can be traeted. her docotrs are very irresponcible.they tell her one day and then it turns out that he was on vacation so…
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Stage IV Questions-Do Doctors Know What They're Doing?
Another newbie to this list. I just started reading through this threaded discussion list this evening and this is exactly the type of forum I have been looking for on the web. My mom was diagnosed with colon cancer in the summer of 2002 at age 58. Surgery was performed, part of her colon removed, 18 lymph nodes were…
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A Couple Of Questions About Appetite and Colostomy.
Hi Everyone! I'm happy to say that my Father in law is finally home after colostomy surgery. As a reminder, he is stage IV with mets to liver and stomach. He has no appetite due to not being able to taste food. He says that everything tastes like saw dust. His stomach is feeling more able to handle solids but he doesn't…