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Mixed Message Today...
Hi Everyone, Well, today my mom (stage 4) had her 9th Avastin treatment. She was originally scheduled for 12, but is headed for surgery to remove the tumor on her left adrenal gland. She must be off the Avastin 6 weeks before they will do the surgery. Therefore, that is why she is will not be continuing with the Avastin.…
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I am ready to change my diet
But I need some help :) I have Quillen's book and Frahms but I am just overwhelmed with all the info. What should I do first? Can you share juicing recipe's and supplement info? I feel like I need someone to take my hand and guide me through this. I have been fighting stage 4 CC for over two years now with just some little…
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update on lung surgery
I had my lung surgery on Friday. The good news is that they were able to do a wedge resection using VATS. My recovery is going SO much smoother than when I had a lobectomy using traditional surgery about 19 months ago. The bad news is that it is another metastasis. I'm feeling fairly calm. I just want to focus on a swift,…
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Anyone w/Stable liver mets??
My dad has been on FOLFIRI + Avastin for 16 months with his Aug 2005 dx of stage IV Colon cancer w/inoperable liver mets (many of them on both lobes of liver) . He had a little bit (20%) of shrinkage in March 2006 cat scan but since then it has been "no change..."no change"..."no change"..."no change" He has gradually been…
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Brain Cancer - PRAYERS NEEDED
A good friend of mine mother's was DX with a primary brain tumor and had surgery on 14 Dec 06 and went home on 16 Dec 06. She had an MRI switch indicated that is was very bad and that shey may only have 18 weeks to live, but when the Doctor performed surgery he told the family that it did not look as bas as he thought, now…
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Show you love them...MAKE A WILL!!!!!
I have not been posting lately, because a phone call last Thursday afternoon turned everything upside down! My EX-husband (daughter's dad) was found dead in his room where he was contracted for a computer job. He left without a will, or any other advance directive. My daughter being of limited processing capacity, guess…
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Primary Tumour removal
Your advice please... It is now 9 months after diagnosis of StageIV colon cancer. I have had 6 months of Folfox & Avastin, and with 3 months rest, not bad blood test results, I am off for a colonoscopy to assess me for removal of the Primary tumour in the caecum.... in January. Who has had this done? What would you…
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CAT scan results...
Hi everyone, I just want to let you know that my dad (diagnosed a year ago with stage III and then two months later stage IV with liver mets)is still NED. We got the good news today. His colonoscopy was clean also. For those who don't know, he finished his chemo treatments three months ago. We were very nervous about this…
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GOT THRU THE PETSCAN
Hi everyone. I managed to get thru the petscan yseterday. I was at the hospital for 4 hours. I was totally wiped out. Those compression fractures of the spine are grueling. Not being able to get around is horrible. I will have this kyphoplasty done on tuesday. It is supposed to be most effective but does have its…
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Has anyone taken Xelox instead of FOLFOX
Hi All, Question. My husband starts chemo on the 3rd of January. Was researching and found an article of a phase III trail that says Xelox is as effective in delaying disease progression as FLOXFOX-4. Do you think this could be an option for my husband (dx stage II perforated the wall of colon). It just seems it would be…
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Chat
Well gang I have been trying to get in on some chats but am having some problems with my java stuff. LOL this old puter is like its owner. (Got some issues). I guess I will get there sooner or latter. hehehe maybe later. But I shall keep trying. Anyway I wanted to wish all of you Happy Holidays. Hugs and well wishes to you…
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Hyperthermia shrinks tumors
There are numerous studies in this country proving that hyperthermia decreased tumors and pain in cancer patients. I am intrigued by this especially after a recent visit to Mexico to see the clinics there. This treatment is used in several of them. It was alarming to me - the body temperature is raised to 107 + but after…
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Mark back in hospital
Well, Mark has landed himself back in the hospital. The c. diff has created so much diarrhea for so long that the dehydration was starting to up his heart rate and BP. So, we're back. I suppose the 'good news' is that we are way past his deductible for the year, so it's 'free', he has an enormous room with a view of 10…
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Cancer Survivor Comedy Stand Up
here's my first performance of my "after death experience" comedy bit. http://www.youtube.com/watch?v=QU3dK_arNGY
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CEA question??? Does this mean anything????
Help, I am a little confused on the meaning of my CEA results. I am 32 and was diagnosed on September 18th. My first CEA result 11.85. I started radiation and chemo on October 23. The Dr. drew another CEA on November 15 and it was 6.85. I finished treatments on December 1 and that CEA came back as a 2.1. I am having…
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Not always chemo
Hi all -- Mark had his fourth chemo on Monday, but had started having diarrhea on Sunday. We figured it wasn't chemo related, but always the suspect! When immodium, lomotil and tincture of opium did nothing to stem the tide, and he was getting daily fluids via his port, they did a stool sample. He has c. diff -- they…
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Scary back pain, vague answer from Dr.
Mark has been experiencing some ferocious back pain lately. He has a bad back, has for years, so this episode may actually be caused by his back going out. I emailed his doctor nevertheless and he informed me to take Mark to the emergency room if he had 1) weak and/or numbness in legs 2) incontinence and/or 3) worsening…
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How long can one have an iliostomy?
Sorry to hog the board but I've got a lot on my mind and I think they are important questions. Mark had a temporary iliostomy when he had rectal surgery in Feb.'06. At the time the goal was to reverse it but since he has developed mets in the liver and lungs (and he is inoperable), I don' t know if he'll ever be able to…
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What to do for Tender and Dry Mouth During Chemotherapy
My husband finished his second chemotherapy treatment on Monday (Avastin and Camptosar). Previously (for four months) he took Xeloda. He is experiencing dry mouth and, while he doesn't seem to have a lot of sores in his mouth, his mouth is tender. I'm watching spicy foods and acidic foods in his diet now. From your…
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xmas message
Hiya all. I am only home for the weekend and wanted to take this moment to wish you all the very best for XMAS before I travel away again to work.Jen and I both hope that XMAS is a happy time for you all.We sincerely want you all to have a safe and healthy new year.There are so many of you that are still fighting the demon…
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NOT TO STEAL YING'S THUNDER
But seeing as it's past noon and no Friday Funnies have appeared, I figured I would share this little holiday anecdote: Three men died on Christmas Eve and were met by Saint Peter at the pearly gates. " In honour of this season" Saint Peter said "You must each possess something that symbolizes Christmas to get into…
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Symptoms b4 diagnosis?
Looking for info about symptoms anyone had before diagnosis. I've been having problems for a while. Gyn is suggesting colonoscopy while primary doc is suggesting fiber & antispasmodics(sp?) for a few weeks to see if that doesnt't help. I've had a few relatives w/ colon cancer, and also several other types. Thanks for any…
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hip pain
Hi, Anyone have lower back pain (ie top of buttocks) and hip pain, and have that be a symptom of colorectal cancer? My doctors are stymied...been in pain for 3 years. Had breast cancer 4 years' ago...
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to Ginny 5 or Vinny1??
Thanks for the info on the enlarged lymph nodes. The multiple large lymphnodes were at 2 cm. That is pretty big. I have to wait and see what they are going to do next. your friend Fran
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my english keeps on getting worst...
ooppss... what I meant before was that the Dr. said that "stable" doesn't mean that they are not dying....and I just had the blood test result today..went down again to 3.4....I'm verrryyy happy.....2 weeks ago was 4.5 and 1 months ago was 7.9..wwwweeeeeee God bless..
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reply to emily's post
been trying to reply for 15 minutes..hope they improve this site soon... yepper, what we think about we bring about..
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Need good doctor in Los Angeles
I'm trying to find the best doctor I can for Mark, someone who specializes in rectal cancer stage IV patients. I've spoken with Cancer of Hope. They want $1050 (NOT including labs or scans) and have a long waiting list. UCLA never called me back - they had an answering machine at their "new patient hotline." I'm looking…
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COOKIES!!!!!
Following this natural approach. I've been successful in cutting sugar in my diet and hadn't felt overly deprived (giving up cheese and potato chips is a whole 'nother story). However, with this holiday season, I'm feeling very deprived. Candy, cookies, goodies all over the place (except my house). I've done the whole "my…
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Hatshepsut
Yes, you should eliminate (or seriously limit) the amount of ALL processed foods: ie, white sugar, white flour, etc. The less processed it is, the better it is for you. Luckily, (and I wish I utilized it fully it at the time) my treating oncologist was in a very nutrition focused center. I learnded some there, but wish I…
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Answer to chemo and the common cold
Well, I spent the last year petrified that I was going to catch a cold and therefore chemo would have to be suspended. Meanwhile, I have now found out that as long as it is a viral infection (with low fever) and the blood count is okay, then chemo will go on as planned. The real negative piece of it is that you cannot take…