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named my damn bag
I did get out of the hospital today. A good friend picked my up at the hospital and drove me home. Dropped me off then drove back to STL. Now that is a true friend. He did not want Susie to make the long drive. I named my damn bag “the shart bucket”. I am going to have a lot of fun with noise that thing makes. The only…
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port replacement done
I had my port replaced yesterday & it didn't hurt terribly like my first experience 3 years ago. I made sure they gave me plenty of "happy medicine", as they called it! When I first had the port put in when I was diagnosed 3 yrs ago, it felt like someone was hitting me with a sledgehammer & I had pain for weeks in my…
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ColonPalooza 8
Don and Joann, our ColonPalooza hosts this year, have sent out the following details regarding this year's Palooza. Hope to see many newbies AND most "veterans" there! ~Stacy P.S. I must say that I am a tad bit disappointed regarding the discussion boards....we "veterans" have prided ourselves in having more posts than the…
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Treatments for Metastatic Rectal Cancer
Hi my name is Liz. I am a 3 year survivor of metastatic rectal cancer. I was diagnosed stage 4 at 44 years old with no family history. I went through chemo and radiation prior to a rectal resection and have been on Folfiri every other week for the better part of the last 2-1/2 years. My last scan showed my liver mets are…
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Surgical Radiation to the Liver
When I went in for my post op check for my liver resection, my surgeon said that there were microscopic crc cancer cells found in what was left behind of the right lobe. One of the lesions was close to the blood supply for the left lobe, so he could only get so close. Anyway, Duke has recommended surgical radiation (not…
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OFF Cancer let's speak about something interesting! Does any body like Soccer?
Yestarday : Spain (current World champion) 1-Argentina 4, What a mess! AGHH!
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Someone asking for money
Hi everyone. I'm not sure if anyone else received an email like this today or not. Someone saying he is from Poland and needing me to send him 5000 euros. It was in a private message. It was really disturbing. My Mom received an email the other day from a friend who said she was stuck over in Europe and needed money to get…
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Just came back from the oncologist - bad news
I came back from the doc today who told me I had a 20 - 25 chance that that the xoloda he was putting me on would work and and that if it didn't work I would not live longer than a few weeks to a few months. Right now that is the end of my story. The only thing to do is to pray that the xeloda works and that a good trial…
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****'s antinausea tea
Hi, **** wanted me to share that he has found a drink that really helps him during chemo week. We make him a black ice tea - lemonade. During chemo week he has a horrible taste in his mouth and excess saliva. He finds the combination 1/3 lemonade to 2/3 black tea really settles his stomach and gets rid of the bad taste in…
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Swollen feet (an indication of liver troubles?)
Anyone have swollen feet/ankles? Folfox for 6 months, CPT-11, Erbutix for 3 months, currently radiation for bone mets. Waiting for SIR Spheres, possible clinical trials.
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Nutrition (Nana b or anyone else) help!
My mother's diet is gone to the pits since she started chemo. She has gained 14 pounds since May. Should we be pushing her to have a better diet, since that and excercise are the key in fighting cancer or should we just back the heck off until after her treatment? I don't expect that she can run marathon's, but she is…
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Appointment tomorrow (for port)
I Have an appointment tomorrow to set up a date to put my port in.
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CSN staff: spam alert
Dear CSN staff, Spam alert. Someone called "municate" posted a spam message in the chain titled "Neutropenia" on Sept 9 2010, 11:40am. Is it possible to block this person/poster? Tara ps grrr - makes me so mad
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more surgery FRIDAY
I am getting surgery again on friday to remove ca from lung now. I had colon surgery 6 years ago and hysterectomy 7 weeks ago is it more serious on the lung also someone told me lungs grow back is that true thanks Sheri22
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Chemo ?
start chemo in october. (5 Fluorouracil,oxaliplatin,leucovorin)I was really woundering in anyone is one this type and If they lost their hair or not. I am just woundering if I need to go get a wig now or if I should just wait.
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Buzz
Just wanted to let you know that you were in our prayers today during your surgery. Ktz
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I got the answer to the question I never wanted to know the answer to
Well, I have the probable answer to the question I really never wanted to know the answer for. What lit up on my liver and the lymph nodes that were enlarged and lit up on last fall's PET scan were most likely cancer. I have 3 nodes now enlarged and active, The biopsy was positive, I am stage IV. The plan is FOLFIRI with…
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NED for three years - how about those of you who are NED for longer
I noticed when I was a newbie that there were not a lot of people posting who were NED for more than 1 or two years. There were some notable exceptions. I am now apparently someone who is also not posting much anymore. I think it might be helpful for those of us who are 2, 3 , 4 and more out of treatment to check in from…
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Update...
My dad went back for a treatment yesterday.. His CEA is now 9 (increased from 2 in march).. Even though his last CT showed some shrinking, they are thinking there are new tumors or growing tumors... I am at a loss of what to do.. I dont want this to bring my dads spirit down and him give up.. He must continue to fight.. He…
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Fishing
Hi Friends, A bit off topic but I guess it's part of living with cancer. **** unhooked from chemo (#30) on Thursday and this morning was up at 2:30 to go fishing with our neighbors. They went out 17 miles and he hooked a 20 lb Mahi Mahi. Tonight was our neighborhood fishing tournament party and he won for largest fish! Now…
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Alternative treatment for stage 4 colorectal cancer -
Is anyone having success with something other than chemo/radiation/surgery? I've got 18 mets to one lung (all lobes invovled) and 10 mets to the other lung, all lobes involved. From what I understand, I'm not gong to beat this, so I'm exploring other possibilities rather than pumping poison chemicals into my body. I went…
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Multivitamin Use Doesn't Impact Colon Cancer Outcomes, Study Finds
ScienceDaily (Sep. 7, 2010) — Patients with colon cancer who used multivitamins during and after being treated with post-surgical chemotherapy did not reduce the risk of the cancer returning or their dying from it, according to researchers at Dana-Farber Cancer Institute. See Also: Health & Medicine * Colon Cancer * Lung…
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Recipe: Cancer Fighting Dish, side dish.....
In a good size pan with a bit of garlic oil, Saute fresh diced onion and garlic about 1/4 onion/ 3 garlic cloves - to taste, if you love onion and garlic by all means add more. Dice three medium size red potatoes, add to pan cook on medium heat for about 7 minutes, stir and cook up potatoes a bit, sprinkle turmeric…
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sub-total colonostomy
In February 2010, my 21 y/o son underwent a "sub-total" colonostomy, currently has a colonostomy bag on his side for body waste. I would like to connect with patients in similar circumstances specificaly I would like to hear from survivors who underwent further surgery so they can elimiante body waste the normal way, thank…
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Question for you baggers.
Where is your location and why? Pro/con Going to see the bag nurse Thursday and getting surgery (permanent) the 15th. Just want to make sure I select right as possible. I consider myself fairly active & hope to still kayak, cycle, fishing ect. Ive heard of some "below waistline" how low is this? Groin area, upper leg?…
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sub-total colonostomy
In February 2010, my 21 y/o son underwent a "sub-total" colonostomy, currently has a colonostomy bag on his side for body waste. I would like to connect with patients in similar circumstances specificaly I would like to hear from survivors who underwent further surgery so they can elimiante body waste the normal way, thank…
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sub-total colonostomy
In February 2010, my 21 y/o son underwent a "sub-total" colonostomy, currently has a colonostomy bag on his side for body waste. I would like to connect with patients in similar circumstances specificaly I would like to hear from survivors who underwent further surgery so they can elimiante body waste the normal way, thank…
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Whats with this " ppeeac" none-sense at the end of each posting this morning?
How come this hasn't been blocked?
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Christmas in September?
Hi folks, I wasn't a member last year when the Christmas Card list was done, but have heard it mentioned a number of times and have gone back to read the posts about it. In Memory of Donna, who was one who did it last year, I am offering to do it this year. We have had a number of members who have passed and many new…
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Paranoia..
This sucks for me and I’m sure that some of you are going through the same thing. It’s this crazy paranoia. I had my iliostomy reversal a while ago and now find myself studying my poop. Is it big enough? What’s that strange color thing in it? Is it long enough. Then if I cough I’m wandering if it’s cancer . If my head…