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Its been a long time
Its been a long time since I logged in. Just wanted to wish everyone a Merry Christmas and Happy New Year.
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Relaxing peaceful music from two ancient tradtions of Harp
Just to add a little distraction, I wanted to share a very beautiful piece of music by the 'Queen of Harp' Catrin Finch (Wales) and a world reknowned Kora (African harp/lute) player Seickou Keita (Senegal/Gambia). The collaboration is just stunning, beautiful, peaceful and delightful as the two play as one. I just can't…
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superfoods & tamoxifen??
Has anyone had any experience with using superfoods while on tamoxifen? Im particularly interested in one called Maca. I will check with my Dr about it in the morning but was hoping to hear from some who know first hand. Thanks
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Shout out to Vicki Sam
Thank you so much for keeping up the ornament exchange tradition.Claudia would be so happy that we are still doing this.Thanks again. Love and Prayers
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My oncologist called last night and now I am a little freaked out. . . . Tamoxifen could be the prob
Yesterday I posted about my eventful weekend that landed me in the ER on Saturday. Went in with wildly racing heart and high blood pressure, head throbbing, feeling light headed and in general just feeling plain lousy. I had informed my oncologist's office yesterday morning of the events so that she would be aware. Last…
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Had 2nd 2nd opinon today.
I liked him. He was so prepared. He had inches of charts and actually read thru it! That alone was impressive. He also was extremely respectful of my onco of 12 years, also impressive. His appriach is different. First off, I am not a candidate for trials. 1. There are so few adv cancer bc trials that I even fit into, none…
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Recovering from "ammonia"
Over Thanksgiving, I overdid, was very lax about hugging and holding hands, and am paying for it now. Developed a little virus: mild sore throat and runny nose. After a week, I began coughing and wanting to sleep all of the time and headed to my PCP. He did an xray and came back shaking his head. He said he thought some of…
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going on vacation
Some of you may remember that I had a thoractomy and that plum size mass removed from my lung past summer. I am still having pain problems from it. The surgeon says that the rib they cut and moving the cartilage, etc, is causing the rib to move around and poke me. He said it would be 6 months to a year before I am healed,…
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Solving the Treatment Resistance Riddle
I really enjoyed this article in this month's Cure magazine. It was especially relevant for someone with Stage 4 and I thought it explained well why one treatment works for awhile and then stops working. http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/2208
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Platinum-Based Treatment of Triple-Negative Breast Cancer
Larry Weisenthal, MD, PhD The last issue of The ASCO Post reports encouraging results with platinum-based treatment of triple-negative breast cancer (September 15, 2013). We predicted these findings 4 years ago in a presentation at the 2009 Breast Symposium.1 We compared the activity of a series of agents (platinum,…
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My Clinical oncologist SCARES ME!
My first female onco Scares me like hell! She is like Joyce Grenfell on amphetamines! She swans into the room (late) with weird clothes, full make-up and a huge smile. She adresses me like I am a primary school pupil, her eyes light up! Scared! Jxx
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New situation developed over the weekend
Haven't posted in awhile, been busy with work and family, but all of that came to a grinding halt this weekend. Last week I had EXTREME fatigue (the kind where my coat actually felt too heavy on my shoulders, couldn't walk in a store for more and 30 minutes without being exhausted). Then on Thursday evening my heart…
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Pink Bus-I was going to book it for this week but
I was supposed to have an appt with Sugeon this week but they postponed it...so in now in two weeks I have blood work-Oncologist & Mammo followed by surgeon visit. Just a follow up from last NOV surgery what ended up to be scar tissue from first BREAST surgery-Happy to say Denise
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My ornament & goodies came
The joy of sharing came. Every day I would look to see which one of my Pink Sisters would give me ornament. Our dearest Jean sent me a special Angel from Maryland. And then the goodies, yummy. My husband a true Floridian was so happy to see the Old Bay. It what use to cook his fish. Thanks for making the 2013 exchange a…
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I received my ornament
Thanks so much Jennytwist for my wonderful package. Not only did it have a beautiful handpainted ornament, but also candy, lip balm,and a holiday reed diffuser. You are very thoughtful and kind! Hope your holidays are happy and healthy. Gail (calvertcrafts)
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Survivor?
I have only posted once but have watched all the post through out my treatment. I had my last radiation treatment last week and I am very relieved. Went through Chemo as well but ended up allergic to it so only had 3 out of 4 of my infusions. Anyway, this is my question: Since I have finished all my treatments, am I…
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another Arimidex vs. Tamoxifen question...
When I had chemo in 2009 I went into menopause on the way home from my first Taxol cocktail. After chemo, I took tamoxifen for a year - waiting the one year since your last period time. I started on Arimidex and took it for almost a year until my Dr switched me to the other A - Aromasin. During the time I was on the A's I…
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Strange Hair Growth
Hi. I know on other posts we have discussed hair growing back different color or different texture but Id like to ask if anyone has had any experience with hair simply not growing back in a certain spot or maybe growing in shorter than the rest. After completing chemo for my IDC my hair started to grow back almost right…
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ornament came today
I received the most adorable ornament today.Who ever sent it thank you so very much.I absolutely love it.I couldn't get it on my tree fast enough.Its my fourth year doing this.I will always cherish each oneThank you and Merry Christmas.
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Happy Belated Birthday greetings to Sue Relays - December 13th
Hoping you had the most wonderful Birthday ever! Vicki Sam
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Got my ornaments + today!!!!
Thanks so very much 'calvertcrafts' - my pink sisiter sent me several lovely handmade ornaments - chocolate - warm slippers - a notepad & pen holder ... my son just had his first child, a son and he came early (2 weeks!) - we had been to his home in Denver to help out so I may have been late in getting my wonderful gifts -…
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After treatments
Ladies I am having issues three years down the line and want to make sure you all are aware of these. If any one gets jaw ache or sensitive teeth please get it checked out. I have gone down the line of dentists (we have very good ones) but only now diagnosed with jaw bone disease. This was probably caused if not worsened…
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UPDATE: INVASIVE LOBULAR CANCER & 'DID YOU OPT OUT OF RADIATION?'
To everyone who was so kind to respond to me previous posts, I thought I would update all of you. I saw my surgeon yesterday for a post op checkup. Surgery was last week, and the pathology came back with clear borders and no lymph node involvement! I can't tell you how happy we are. Now, they will do the oncatype testing…
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SIROD, how are you doing?
So cold here-I can't imagine Maine! Even though highs are in 50's, it is humid and cloudy and feels awful. Supposed to clear up this afternoon. Hope you are snuggled in near a fire and doing better! Hugs and prayers coming your way.
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Got my ornament today!
I was so excited when the mailman left a box at my front door. It is a lovely angel ornament and she is wearing a pink winter scarf. Thank you MollyZ she will have a special place on my tree. Hugs, Georgia
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loss of eyebrows, eyelashes and other hair...
Please shed some light on the loss of eyebrows and eyelashes during chemo treatments. I'm on day 16 after my first chemo infusion and know any day now, it's time for my wigs. Just wondering what your experiences has been with the loss of other hair. Does it all come out at the same time? Should I expect the loss of my…
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OT - When do you put your tree up?
Hi Pink Sisters & Brothers, My grandson, Ryan and I put ours up the Sunday before Thanksgiving. It is a 4 foot tree that we put on a table in front of the window. As we were decorating it, I left a space in front for my new ornament that I am looking for to receving, and Ryan wanted to fill the space with something now. He…
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Gorgeous Slovenian Lace!
I finally went to the mail box a little while ago (it's been so brutally cold, days in the minus or single digits F ; nights down to -19F for the last week+ and our mail goes in one of those big groups of locked boxes down the road, I've only done what I had to do outside and not checked the mail). To my great surprise,…
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*****LAST CALL -- ORNAMENT EXCHANGE*** mariam_11_09 you are on my List!!!
Hello Lovely Ladies, and Robert! I thought I would issue a Last Call for those that missed my original email regarding our traditional ornament exchange - :) I will keep this post opened until Thursday ... Please let me know. Thank you! Vicki Sam
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MRI - CAT SCAN - BONE SCAN do you need to have these
I am a bit concerned as I have completed my whole treatment, Chemo and radiation, and have never had an MRI, CAT SCAN, or BONE SCAN. Does this seem odd? MJ