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Husband NED after 82 rounds of chemo

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Dear Friends,
As many of you know, Dick has been fighting cc for the past 3 years. He was stage 3c when diagnosed in January 2009. He has had 2 surgeries and 82 rounds of chemo. He was NED from June 2010 till a scan in January 2011 showed cancer back in his lungs. For the past year he has been on Folfori + Avastin. In November 2011 he thought the chemo every other week was going to kill him. He switched to chemo every 3 weeks. He started to feel so much better. After Christmas he started eating a special diet called "4 hour body". He wanted to lose some extra weight so he would feel better. The diet is similar to "anticancer" but includes more meat and fish. I bring the diet up because last week he had all number on his labs as normal. (His CEA has never been a marker). He is also working out a lot when he is not on chemo.
Yesterday he had a PET scan. We were both very, very nervous about it. Although he felt good we both know better than to get our hopes up. We picked up the results of the scan and it showed "No evidence of disease" - NED. We were both totally surprised. We know that bits of cancer still lurk and Dick will continue with chemo every three weeks. He will talk to the onc next week and let him know that he does not want to go off chemo right now. He hates feeling so sick on chemo but he does not want the cancer growing again. We feel like we are getting a break and we so appreciate it.
We know that many of you and your loved ones are suffering so much. We always remember our CSN friends in our prayers.
I wanted to share the good and very unexpected news.

Aloha,
Kathleen

myangelkiss
Posts: 2
Joined: Feb 2012

I am so happy for your family!!! I wish you all the best! My husband does the same treatments every other week. This is a scary thing to have to live through but it is great to hear such good news.

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

I love it when nice things happen to nice people,Ron.

buckeye2
Posts: 428
Joined: Jul 2011

We could use some good news on this Board. Congratulations!!!! Thanks for sharing. Lisa

Lovekitties's picture
Lovekitties
Posts: 3360
Joined: Jan 2010

Thank you so very much for sharing Dick's good news.

Praying that his new NED status continues for a very very long time.

Hugs to you and yours,

Marie who loves kitties

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

a huge fight,Hope the best in the future.
Again congratulations to both ,God bless you.

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

NED - what a wonderful thing to hear! :-) We're so very happy for your both.

Hugs,

Rick and Cynthia

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Praise the heavens!....I'm so happy for you and Dick!

Hugs to you both, Gail

Minnesotagirl
Posts: 141
Joined: Sep 2011

Hi Dick and Kathleen,

What great news...I can't imagine the stress the two of you have been under during this time! Keep believing in the cure~

I was diagnosed Stage 3 Rectal Cancer in 2010...NED now but would be interested in this 4 hour body plan that you speak about. Would you share it with me?

I will continue to pray for both of you along with all the members on this Colorectal site! Thank you for your courage to share with others and your determination to win the battle.

"Always be in a state of expectancy, and see that you leave room for God to come in as He likes"
Blessings to you both ~
Minnesotagirl

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

you and dick deserve a break, big hugs

lauragb
Posts: 370
Joined: Aug 2011

Congratulations! It's fabulous to read some good news. Yay for NED!

Continued healing light to you.
Laura

geotina's picture
geotina
Posts: 2122
Joined: Oct 2009

Absolutely wonderful news. Give Dick our best.

Hugs - Tina and George

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Oh Kathleen i'm so happy for you and Dick . it's a awesome feeling to know that your love is NED . my husband Jorge is NED as well and his port is coming out at the end of March.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

That is such wonderful news. Thank you for posting it. Woot Woot!!
Winter Marie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hey Kathleen..... wonderful news.... I love NED. It's a much deserved break as I well know. Enjoy this "vacation" as I call it. Hugs to you and Dick!!

Jennie

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

this makes me very happy and hopeful.your husband has been a very strong man and his story gives me hope that maybe someday i may reach NED again.give Dick a big hug for me as we have been on this journey together except Dick has been thru more than i have....Godbless.....johnnybegood

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

very good news! Enjoy each and every moment/day/year!!!!

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

that just makes my heart go whoopeeeeeeee

oh my darlings I have goosebumps

good work.....

hugs

mags

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

Hau'oli...
That's GREAT news!
-p

Joy1216's picture
Joy1216
Posts: 293
Joined: Mar 2006

Your news is absolutely fantastic!
Joy

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i appreciate what ned means now, more than before.
thanks for sharing the news.

hugs,
pete

tootsie1's picture
tootsie1
Posts: 5064
Joined: Feb 2008

I don't know the Hawaiian expression for "awesome!" but pretend I just said that, okay?

*hugs*
Gail

sasjourney
Posts: 395
Joined: Jul 2010

Kathleen and Dick,

I am so happy to hear this wonderful news. I think about you all the time and have wondered how Dick was doing. I pray that he remains NED forever and ever.

Hugs to you both,
Sara

Fight for my love
Posts: 1530
Joined: Jun 2009

Great to see your post,Kathleen.I feel so thrilled to read this great news!I admire both of you for your persistence and efforts.Wish you the best.Take care.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

This is such fabulous news!

mom_2_3
Posts: 965
Joined: Nov 2008

Kathleen,

I have been thinking of you both and hoping and praying that Dick was doing well. This is fantastic news and I am so happy for you and your children.

Aloha!
Amy

donnare
Posts: 266
Joined: Jun 2009

So happy for you and your family!

alexinlv's picture
alexinlv
Posts: 194
Joined: Jul 2010

Yay for your news, Kathleen! That is great news! He is quite a fighter! You are very strong too! Xo

Annabelle41415's picture
Annabelle41415
Posts: 6692
Joined: Feb 2009

So glad to hear such wonderful news. Hope he continues to grow in strength and do well. You are always thought of as he has been through so much while still going surfing. Shoot he has more stamina than my grandkids sometimes the way he is so active. Give hugs to him from me.

Kim

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

and Dick and all your family. I'm so very glad to know you all are getting a bit of a break and that Dick is holding stable and feeling better. When I saw 82 rounds of chemo, I was stunned. It has been a long road, and I am blessed to have you as fellow travelers on this difficult path.

All the best, Leslie

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Dear Friends,
You are the best. When we are struggling you are here. When we have questions, you are here. When we have good news, you are here to celebrate with us.

We have been enjoying our good news but feeling the loss of our dear Lisa so deeply. Oh what a wonderful woman and friend. I know she was a great mommy and wife too. I have prayed for her family all day and had "special conversations" with her too (Lisa, I bet you can see those beautiful mountains too now. See the ocean I have been talking about?) I miss her.

Aloha,
Kathleen

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