Husband NED after 82 rounds of chemo

Kathleen808
Kathleen808 Member Posts: 2,342 Member
Dear Friends,
As many of you know, **** has been fighting cc for the past 3 years. He was stage 3c when diagnosed in January 2009. He has had 2 surgeries and 82 rounds of chemo. He was NED from June 2010 till a scan in January 2011 showed cancer back in his lungs. For the past year he has been on Folfori + Avastin. In November 2011 he thought the chemo every other week was going to kill him. He switched to chemo every 3 weeks. He started to feel so much better. After Christmas he started eating a special diet called "4 hour body". He wanted to lose some extra weight so he would feel better. The diet is similar to "anticancer" but includes more meat and fish. I bring the diet up because last week he had all number on his labs as normal. (His CEA has never been a marker). He is also working out a lot when he is not on chemo.
Yesterday he had a PET scan. We were both very, very nervous about it. Although he felt good we both know better than to get our hopes up. We picked up the results of the scan and it showed "No evidence of disease" - NED. We were both totally surprised. We know that bits of cancer still lurk and **** will continue with chemo every three weeks. He will talk to the onc next week and let him know that he does not want to go off chemo right now. He hates feeling so sick on chemo but he does not want the cancer growing again. We feel like we are getting a break and we so appreciate it.
We know that many of you and your loved ones are suffering so much. We always remember our CSN friends in our prayers.
I wanted to share the good and very unexpected news.

Aloha,
Kathleen
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Comments

  • myangelkiss
    myangelkiss Member Posts: 2
    I am so happy for your
    I am so happy for your family!!! I wish you all the best! My husband does the same treatments every other week. This is a scary thing to have to live through but it is great to hear such good news.
  • ron50
    ron50 Member Posts: 1,723 Member
    (((((((((((**** and Kathleen))))))))))
    I love it when nice things happen to nice people,Ron.
  • buckeye2
    buckeye2 Member Posts: 428 Member
    We could use some good news
    We could use some good news on this Board. Congratulations!!!! Thanks for sharing. Lisa
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Dear Kathleen
    Thank you so very much for sharing ****'s good news.

    Praying that his new NED status continues for a very very long time.

    Hugs to you and yours,

    Marie who loves kitties
  • pepebcn
    pepebcn Member Posts: 6,331 Member

    Dear Kathleen
    Thank you so very much for sharing ****'s good news.

    Praying that his new NED status continues for a very very long time.

    Hugs to you and yours,

    Marie who loves kitties

    **** and Kathleen what a wonderful news you deserve after such
    a huge fight,Hope the best in the future.
    Again congratulations to both ,God bless you.
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    NED - what a wonderful thing

    NED - what a wonderful thing to hear! :-) We're so very happy for your both.

    Hugs,

    Rick and Cynthia
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Praise the heavens!....I'm
    Praise the heavens!....I'm so happy for you and ****!

    Hugs to you both, Gail
  • Minnesotagirl
    Minnesotagirl Member Posts: 141
    Would you share the 4 hour body plan
    Hi **** and Kathleen,

    What great news...I can't imagine the stress the two of you have been under during this time! Keep believing in the cure~

    I was diagnosed Stage 3 Rectal Cancer in 2010...NED now but would be interested in this 4 hour body plan that you speak about. Would you share it with me?

    I will continue to pray for both of you along with all the members on this Colorectal site! Thank you for your courage to share with others and your determination to win the battle.

    "Always be in a state of expectancy, and see that you leave room for God to come in as He likes"
    Blessings to you both ~
    Minnesotagirl
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    you and **** deserve a break, big hugs
  • lauragb
    lauragb Member Posts: 370 Member
    Congratulations! It's
    Congratulations! It's fabulous to read some good news. Yay for NED!

    Continued healing light to you.
    Laura
  • geotina
    geotina Member Posts: 2,111 Member
    Kathleen:
    Absolutely wonderful news. Give **** our best.

    Hugs - Tina and George
  • tina dasilva
    tina dasilva Member Posts: 641
    very happy
    Oh Kathleen i'm so happy for you and **** . it's a awesome feeling to know that your love is NED . my husband Jorge is NED as well and his port is coming out at the end of March.
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Kathleen
    That is such wonderful news. Thank you for posting it. Woot Woot!!
    Winter Marie
  • idlehunters
    idlehunters Member Posts: 1,787 Member

    Kathleen
    That is such wonderful news. Thank you for posting it. Woot Woot!!
    Winter Marie

    YAY ****!!!!!
    Hey Kathleen..... wonderful news.... I love NED. It's a much deserved break as I well know. Enjoy this "vacation" as I call it. Hugs to you and ****!!

    Jennie
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member

    YAY ****!!!!!
    Hey Kathleen..... wonderful news.... I love NED. It's a much deserved break as I well know. Enjoy this "vacation" as I call it. Hugs to you and ****!!

    Jennie

    Kathleen and ****
    this makes me very happy and hopeful.your husband has been a very strong man and his story gives me hope that maybe someday i may reach NED again.give **** a big hug for me as we have been on this journey together except **** has been thru more than i have....Godbless.....johnnybegood
  • tommycat
    tommycat Member Posts: 790 Member
    very good news! Enjoy each
    very good news! Enjoy each and every moment/day/year!!!!
  • maglets
    maglets Member Posts: 2,576 Member
    tommycat said:

    very good news! Enjoy each
    very good news! Enjoy each and every moment/day/year!!!!

    **** and kath
    that just makes my heart go whoopeeeeeeee

    oh my darlings I have goosebumps

    good work.....

    hugs

    mags
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Hau'oli
    Hau'oli...
    That's GREAT news!
    -p
  • Joy1216
    Joy1216 Member Posts: 290 Member
    Absolutely Fantastic
    Your news is absolutely fantastic!
    Joy
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    ned is great, you should celebrate
    i appreciate what ned means now, more than before.
    thanks for sharing the news.

    hugs,
    pete