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last night with the old bag UPDATE1 post op infection UPDATE2 getting better feeling good UPDATE3 fever back immune response

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Of course I am not talking about my lovelly wife.

I am the first patient on the day surgery list today, need to be at the hospital 6.45am.

I am going to miss you old bag, its been so much fun.

Just when I'd forget you you would find a way to remind you are there and you care.

By bursting or sprining a little leak. Even last night out to dinner after swimming my 50 laps, well the glue almost made it. Lucky it was not a classy restaurant.

Will be away for a week or so. wish me luck for the triffeca.

1. bag off stoma reversal
2. Port out
3. colonoscopy

The colonoscopy is the one I am a little nervous about. But I will find out tomorrow.

The port out is just so fantastic, its never going to come back I pray.

See ya all in a week!!! I have told my friends I am doing an advanced toilet training seminar. They got the message I think.

Hope its a great week for us all.

hugs,

Pete

UPDATE
pooing ok been 20 in 12 hours but all good.had some porridge and then soup for lunch.
going well, thanks for kind thoughts

my temp has climbed all day to 39 and just sits their
would site is redish and tender.
keeping fingers crossed. enjoyed ovelly dinner of pumkin soup with chicken and mashed potatoes and carrots. and a sponge. given up on diet and just trying fed body to aide recovery.
UPDATE2
dressing changed, big oz blood and gunk. not smelling bad so maybe clear.
UPDATE4
feeling best yet but temp is still yoyo

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Pete you are funny! Good luck with your trifecta! I just know you will do great! I will be looking for you in about a week to see how everything went. The potty training may take a while so don't be impatient. lol

Love and hugs, Gail

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I'll try to keep the walking post up!.
Hugs!

smokeyjoe
Posts: 1428
Joined: Feb 2011

Lots of luck and hugs this week, I'm sure you will do well!!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hug,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi pepe,
thanks and goodluck withwalking post, had yesterday off 39 temp all
feeling a bit human.
hugs,
pete

michiel923
Posts: 1
Joined: May 2011

Potty training girls is generally considered easier than potty training boys, but that doesn't mean it's a piece of cake Thanks for sharing the informative post.
Regards,
Jack

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

thanks gail for the kind word
love pete

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Good Luck, and I know you will be very quick to potty train again. It's like riding a bike, ya just sit down and go. muhahahahha

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi jjaj133

been in a little pain wound site, the 30 loo visits required to make a normal stool
is intereging. thanks for the kind wishes,
hug pete

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Pete,

Hoping and praying all goes well for you with the reversal surgery/bag takedown. It will be a process to get your body used to working the right way again, I hear, but I know you will tackle it well. What a great milestone!
Let us know how it goes, of course.

Cheers,
Lisa

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

the high temps are a bummer, i think they will settle soon.
love pete

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

The very best of luck, Pete:)

Hopefully, this will be a memory when all is said and done.

-Craig

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Like Sundance says, hopefully it will be a bad memory forgotten soon.........buzz

Lilmiss82's picture
Lilmiss82
Posts: 257
Joined: Dec 2009

Well the title of your post that is. I really thought at first you were referring to your significant other. HA HA !! Sending you my best and a speedy recovery:)

Scambuster's picture
Scambuster
Posts: 973
Joined: Nov 2009

Great news Pete,

Now please follow up with more good news and wishing you a speedy recovery.

Scam

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi craig
i am calling in my quota now, 2 days high temps, is enough
hugs,
pete

Annabelle41415's picture
Annabelle41415
Posts: 6373
Joined: Feb 2009

Just want to wish you the best of luck on your surgery and your other procedures. Take time to heal yourself and come back when you are able and let us know how you are feeling. Best to you.

Kim

Annabelle41415's picture
Annabelle41415
Posts: 6373
Joined: Feb 2009

Just want to wish you the best of luck on your surgery and your other procedures. Take time to heal yourself and come back when you are able and let us know how you are feeling. Best to you.

Kim

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i will remember the advice and take time to heal.
hugs,
pete

AncientTiger's picture
AncientTiger
Posts: 130
Joined: Mar 2011

To spend your last night with that darned bag.... I remember MINE... the seal broke about 3 o'clock in the morning, but walking into the bathroom to clean myself up I had a smile on my face, mumbling to myself, "I don't matter b%$$#h, you're going away in a matter of hours anyways"

It's gonna hurt Pete, but it's WELL worth it, in my opinion at least :D

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dammit you were right, its hurt like hell off and on.
its well worth it.
my arse ispretty numb i never realised before.
hugs,
pete

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Good luck on your trifecta!! Just have patience with your body.
I'm sure everything will be great, we'll be thinking about you.
Winter Marie

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i will try to be patient with my body.
hugs,
pete

daBeachBum's picture
daBeachBum
Posts: 164
Joined: Apr 2011

Pete,

That is great news! I hope that everything goes smoothly for you and that your recovery is quick and easy!

Ray

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

well i appreicate the kind thoughts, if the temp settles in may still have a reasonable recovery.
hugs,
pete

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Re:
"last night with the old bag"

I saw your title and immediately thought;
Damn, I didn't even suspect you were seeing my sister-in-law!

Hope everything goes to plan!!

Best wishes,

John

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i know we got to have plans.
the bodies always throw a spanner in the works. i appreciate the sentiment. ellie is smuggling in my tea to hospital as well as my juice. what chance does the infection have? none i say.
hugs,
pete

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

Pete,
I can't wait for you to get back here with stories of your successful trifecta :)
Janine

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i could not stay away the week. they have wireless in the hospital.
fighting post infection. the worst is the lovelly nurses come and a say your really HOT.
then they rip the covers off me and walkout.
its just so disappointing. a boy is aloud to dream ain't he.
i khow they are managing my body temp, but a have seriously feeling frozen and even had the shakes and could not warm up.
hugs
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi everyone.

So far so good. Touch wood(tapping my head)

The net on my phone is great. I stayed away from you guys as long as i could about a day.
Been drifting in and out of sleep.

Been resting. Messaging. Had some visitors and calls.

Just got my first morphine injection. No pain now. But its not been to bad at all.
Early days but no big reopen just all done through stoma hole.

Been patched up with collagen.

My port is gone. So is the bag.

The best news is the coloscopy was clear.

The nurses here all remembered me from october 2010. Been absolutely spoilt.
Saint vincents in sydney seems to me to be staffed by angels.
And mostly sexy angels at that.

Bp preop 120/82 postop 90/49 now its climbed over the arvo
to 112/72. Interesting watching my body comeback to life.

Just had my first hit morphine and am about to try to walk.
Ancienttiger you are right about the pain ouch!

Still no breeze in here. Waiting for a good breeze before i can go sailing.

Dinner smelt lovelly but i could not touch. Waiting for the wind to really pickup.
Need a weather change downunder.

Yipee and thankyou god.

Thanks for the kind thoughts.
Hugs
pete

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pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

thanks gracie

darren gold wonder surgeon popped in to admire his handy work.
Probably no food for 2 to 3 days. No point rush goto let intestine heal.
peristalsis has to happen in its own time after intestine nerve damage settles down . our bodies ar marvellous.

No appetite either but the food smells good. This saint vincent hospital has great food. It bugs me that everytime i stay i cannot eat. The joys of colorectal cancer.
Ha ha ha

lots of friends big surgery, not to many this time around, glad i can post and read.

took 30 hours for bp to stablise and for pulse to go from 45 to 85.

thanks for the kind wishes.
Hugs
pete

janie1
Posts: 753
Joined: Apr 2011

Very excited for you. The body really is amazing how it heals. Take it easy.

BettyJoM's picture
BettyJoM
Posts: 86
Joined: May 2011

I kept reading, and reading all the way down, trying to see what your colonoscopy result was. Its wonderful news.
Your posts are funny. Morphine is good stuff. Pete, hang in there, you'll be back in the water before you know it
Hugs, Betty Jo

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

guess what i have been having salt water baths everyday morning and night for at least a week.

tomorrow is two weeks after discharge.

hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

guess what i have been having salt water baths everyday morning and night for at least a week.

tomorrow is two weeks after discharge. thanks for caring.

hugs,
pete

AnneCan
Posts: 3692
Joined: Oct 2009

I am sorry for the high temperature. I hope you feel better soon. Behave yourself around those nurses!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

thanks anne,

my wifes good old school friend run the nurse training here, alot the nurses here have been trained by therese. i am getting the best care here at saint vincents. my high temp broke about 5 hours ago, its its just 37.2.

now i have pooing misadventures. i am whereing a very sexy green nappy now.

surgeon came in, redressed dressing, lots on blood, maybe 40mls. its out now.

drip off in 2 hours.

feeling much better.
hugs,
pete

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Jeez, I feel quesy over the lots of blood statement, but then, I've always been a wimp, I can look at my own no problem, but someone elses? I tend to faint. When my daughter got her ears pierced many moons ago, I feinted, yep in the mall, what a woman!!
So I'm hoping not so much blood out for you (if that's a good thing that is)and I'm happy that your temperature has broke, as that had me a bit worried.
Go to sleep,(you don't want me singing the "hush little baby song", to get you to go to sleep, trust me, I only use it as a threat to my children and now grandchildren) rest that body of yours.
Winter Marie

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Hi Pete, I am so glad you are feeling better. What an ordeal. Hang in there, each day you are closer to feeling great.
Prayers are still coming your way.
Hugs, Judy

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Pete,

Sorry for the temp- hope and pray that gets under control very soon and that you will be well enough to be discharged soon. Hang in there!

Hugs,
Lisa

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

thanks for the prayers
pete

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

I'm praying for you, dear.

*hugs*
Gail

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i think he listens to you. i am much better.
god bless you,
pete

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Pete,
I'm glad that things are going better. Keeping you in my prayers.

Aloha,
Kathleen

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i appreciate your prayers.
today i got the drip off, lastest temp 36.6

but temp is up and down like a yoyo

changed the dressing and got alot of fluid, i mean heaps.

feeling a bit better, the pooping is a bit painful the wound site is stil painful

will just endure

hugs,
pete

AncientTiger's picture
AncientTiger
Posts: 130
Joined: Mar 2011

It takes time... expect the surgery site to be sore for many weeks, and it'll be at least a week before anything really solid is produced. And don't be too surprised if there isn't some serious pain when that happens and even some blood.

I still have a small tear in the rectal lining that causes pain and bleeds a little and my take-down surgery was last November... so just don't be too surprised.

I STILL firmly believe it was and is worth it. It's SOOOOO nice to be able to flop around in bed at night and not worry about busting a seal, or having to check to see if baby needs burping or emptying. For those that have one permanently, y'all have my utmost respect :(

And, isn't morphine just about the most amazing substance in the world Pete? I can definitely understand how some folks get addicted to the stuff... LOL

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi ancientiger

thanks for the detailed response about what may lie ahead.

just been on 2 panadols each 6 hours since. wound pain better tonight.

rolling around in the with just one bag, the wife is enough fun. no more explosions. and i have had my share.

did you get offer hernia repair ?
have you been warned about not over doing anything stomach, like lifting etc.

hugs,
pete

AncientTiger's picture
AncientTiger
Posts: 130
Joined: Mar 2011

Got my hernia operation done on January 18th and it turned into a bit more than we bargained for. There was a LOT of scar tissue left over from the initial surgery in March of last year (where the surgeon removed the cancerous portion of the colon, and my intestines were inflammed and swelled about 3 to 4x normal size).

A small part of the intestine had ruptured through the herniated are of my abdominal wall as well and become necrotic, so he had to snip it off and sew a little there. And to top it all off he ended up having to put in a mesh support for bringing the two sides of the hernia together. It's STILL sore, and I have to be a little careful in lifting or it get's REALLY sore.

Be forewarned Pete, the hernia surgery can be a BEAR. At least in MY case, it hurt me more and longer than the colon resection last year, but I'm glad I had it done. It's not going to hurt forever, and there was more going on than just a hole in my gut lining. Plus it got a lot of scar tissue out of there that probably should have been gotten out.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dear ancienttiger,

thankyou thankyou thankyou,

i had my head in the sand on this one, ignorance is bliss.

or i should say now ignorance was bliss.

the explanations here give me the surgical context
http://www.journalofmas.com/article.asp?issn=0972-9941;year=2006;volume=2;issue=3;spage=151;epage=154;aulast=Klinge

glad i am having a pre emptive hernia repair.

i still have the utmost faith in my surgeon darren gold and the pre emptive hernia repair.

time will tell
and time heals all wounds.

i will see!

yes the pain and issues so far seem worse than resection, strange.
and so unexpected.

maybe the scar tissue is really good based on the article, have a read if your interested.

i have a biologically active pig mesh, yes now i really feel like the guinea pig,i am part pig.

ha ha
hugs,
pete

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