pet scan update

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meena1
meena1 Member Posts: 1,003
edited March 2014 in Breast Cancer #1
I went to my doctor for my results and they were not good. My tumors are growing in my liver and abdomen so the chemotherapy is not working except to make me sicker (if there is such a word!!), I have been given info on a trial which looks promising, i have all the paper work and I am going to sign them asap. Unfortunately, we had a snowstorm so there may be a delay on getting everything together. A friend of mine had just told me about this new drug that is supposed to be very promising and this is the drug that the trial is for! Since my oncologist is the researcher on this drug, it is pretty certain that I will be chosen. In the mean time, since my tumors are growing, they are pressing on my back and causing back pain and stomach pain, so i am not here often. Just wanted to let you know
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  • cavediver
    cavediver Member Posts: 607
    #2
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    So sorry to hear this....
    So sorry to hear this.... don't know what to say, but that you are in my prayers daily. I hope the trial works and you get relief from the pain soon. Lots of hugs being sent to you
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    #3
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    Meena, I am sorry to hear
    Meena, I am sorry to hear that the current chemo is not working for you but very excited to read about the "new" trial. I am sending positive vibes for your acceptance in the trial and for the promising results you so deserve. I know it's very hard but try to stay positive. I will be thinking of you and hoping for a positive outcome. Take care and sending gentle (((hugs))) to you. Update us as you feel able.
  • pattimc
    pattimc Member Posts: 431
    #4
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    Meena
    Think about you often and so glad you checked in. Sorry about your results...just hits me in my gut when I hear this kind of news. I hope the trial will help you and that you get relief from the pain.

    Blessings to you my sister in pink,



    Patti
  • Boppy_of_6
    Boppy_of_6 Member Posts: 1,138
    #5
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    MyTurnNow said:

    Meena, I am sorry to hear
    Meena, I am sorry to hear that the current chemo is not working for you but very excited to read about the "new" trial. I am sending positive vibes for your acceptance in the trial and for the promising results you so deserve. I know it's very hard but try to stay positive. I will be thinking of you and hoping for a positive outcome. Take care and sending gentle (((hugs))) to you. Update us as you feel able.

    Prayers
    I am so sorry to hear this. I am sending prayers your way for the trial to be a really good thing for you. God Bless
    (((Hugs))) Janice
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #6
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    Oh Meena, that sucks. I
    Oh Meena, that sucks. I hate, hate, hate cancer. The new drug sounds so hopeful though, so don't give up. Please know that I am thinking about you and praying hard for you.
  • sparkle1
    sparkle1 Member Posts: 242
    #7
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    So sorry for your pain. You
    So sorry for your pain. You are in my prayers. Keep fighting!!
  • aisling8
    aisling8 Member Posts: 1,627 Member
    #8
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    sparkle1 said:

    So sorry for your pain. You
    So sorry for your pain. You are in my prayers. Keep fighting!!

    I'm praying
    that the trial will be your miracle.

    xoxo
    Victoria
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #9
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    Oh Meena, I'm so sorry, but
    Oh Meena, I'm so sorry, but thank you for letting us know. I'm praying that you get accepted into the trial and that the new drug works! (As an IBC sister, I'd love to know the name of the drug.)

    Hugs,

    Linda
  • aysemari
    aysemari Member Posts: 1,596 Member
    #10
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    More tears
    on my end. Meena, I am really hoping this trial will work on your tumors.
    It sounds very painful. Please take very good care of yourself now more
    than ever and hold on to that amazing and beautiful fighting spirit of yours.

    Come when you can but know you will be GREATLY missed.

    Lotsa Love,
    Ayse
  • jamiegww
    jamiegww Member Posts: 384
    #11
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    meena
    I hope the new drug kicks that cancer's a$$! I'm praying for you and hoping the pain will ease up.

    HUGS!!!
    Jamie
  • Cindy Bear
    Cindy Bear Member Posts: 569
    #12
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    Hi Meena
    I am sorry to hear this latest and not greatest Meena. Please hang in there and try not to be too discouraged. I hope and pray that you can get into the clinical trial ASAP. It sounds quite promising. We'll be rooting for you and everyone will understand if you aren't able to update often.
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #13
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    Oh Meena... I am sorry the
    Oh Meena... I am sorry the chemo is not working and to hear that you are in pain. I will pray the clinical trial comes through and starts to shrink those terrible tumors that causing you so much pain. We love you and are with you holding your hand.
    BL
  • SusanEliz
    SusanEliz Member Posts: 50
    #14
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    Dear Meena
    I am so sorry you are going through this pain, it doesn't sound at all easy. I hope your doctor is able to get you into the trial you mentioned as soon as possible; some of them have proven to have amazing results. I'm glad that a friend of yours mentioned the same one- somehow that feels like it was meant to be.

    We are all praying that you have an easy time of it and that you get some good news soon. When I first joined this board last summer there was the most beautiful picture of you and some family members walking on the beach. I thought you looked so healthy and happy! I pray that you get on the right combo of drugs and are back in that place by summer 2011.

    Hugs and prayers,

    Susan
  • racergirl
    racergirl Member Posts: 50
    #15
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    So sorry to hear this. Have
    So sorry to hear this. Have faith that the trail will work and soon you will be feeling relief. (((HUGS)))
  • cindycflynn
    cindycflynn Member Posts: 1,132 Member
    #16
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    Oh Meena
    I'm so sorry to hear that your results weren't good, but glad to hear that there's some real hope on the horizon.

    Please hold on to that hope and feel us hold you in comforting arms. Even if you can't check in to talk to us while you get your much-needed rest, know that we are thinking of you and praying for you to win this fight.

    Hugs,
    Cindy
  • carkris
    carkris Member Posts: 4,553 Member
    #17
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    cindycflynn said:

    Oh Meena
    I'm so sorry to hear that your results weren't good, but glad to hear that there's some real hope on the horizon.

    Please hold on to that hope and feel us hold you in comforting arms. Even if you can't check in to talk to us while you get your much-needed rest, know that we are thinking of you and praying for you to win this fight.

    Hugs,
    Cindy

    meena i am sorry you are
    meena i am sorry you are feeling lousy and your Pet was not showing the result you and we all wanted. i am glad your doc has plan B. and i am glad you have that onc too. Love and hugs.
  • creampuff91344
    creampuff91344 Member Posts: 988
    #18
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    carkris said:

    meena i am sorry you are
    meena i am sorry you are feeling lousy and your Pet was not showing the result you and we all wanted. i am glad your doc has plan B. and i am glad you have that onc too. Love and hugs.

    Meena,please know that we
    Meena,please know that we are all here to support you and all of those who are going through recurrence, and generally just don't feel good. My heart breaks every time I see another post that says the first round of chemo/rads wasn't enough to hold the beast at bay, and our fellow survivors' strengths are again being tested. You have a load of strength inside, and I feel that this is what will get you through. Meena, know that you are held up by all who read your posts, and that we are staying strong for you and all of the other sisters who are still fighting for their life. My strongest prayers and thoughts are coming to you right now. Hugs, Judy
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #19
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    creampuff91344 said:

    Meena,please know that we
    Meena,please know that we are all here to support you and all of those who are going through recurrence, and generally just don't feel good. My heart breaks every time I see another post that says the first round of chemo/rads wasn't enough to hold the beast at bay, and our fellow survivors' strengths are again being tested. You have a load of strength inside, and I feel that this is what will get you through. Meena, know that you are held up by all who read your posts, and that we are staying strong for you and all of the other sisters who are still fighting for their life. My strongest prayers and thoughts are coming to you right now. Hugs, Judy

    :(
    Meena, I am so sorry to read this. I had, as all of the other sisters in pink, been praying for you to post good news.

    I pray that this new trial will bring you the help that you need.




    Praying for you Meena,


    Sue :)
  • natly15
    natly15 Member Posts: 1,941
    #20
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    Meena I'm short on words,
    Meena I'm short on words, just know that I'm praying for you.
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #21
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    natly15 said:

    Meena I'm short on words,
    Meena I'm short on words, just know that I'm praying for you.

    Oh Meena,
    I'm so sorry. I
    Oh Meena,
    I'm so sorry. I thought the tumors had shown improvement. I'm so sorry that you're also in pain and I will pray extra hard for you tonight.
    Keep fighting, as I know you will, and know that I'm here for you.
    God Bless,
    Wanda

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