I AM SO PISSED OFF VENTING!!!!!!!!
Comments
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up and down
I know how you feell. But I've been going up and down for several years. In 2008 I went from a 10 to a 80, so back on chemo for a year and a half, in Feb. I was a 5 so I was taken off, but in July I was a 36, so back I go, I was an 11 in Oct. so we went 5 weeks between and it jumped back up to a 25 in Dec. So I've had 2 chemos since then and one more next Thursday. I get discouraged, but I am determined to get this under my control. I will get my latest CA-125 back on the 6th, and if it has not gone down I will be extremely disappointed. I finally decided to do the diet (Beating Cancer Through Nutrition). I figure that it will at least make be feel better and lessen the reaction.
Keep your head up, a 10 is a good score. It's still in the normal range. Don't let your Oncologist jump to chemo if it is in that low in the normal range. My sister, who has never had cancer, has a CA-125 of 11.
I started out with 6,571 and I'm at a 25 ( last count)
Don't lose hope. If you want to talk please contact me at boobuski@tampabay.rr.com
Barbara
It is normal for it to jump up and down. It is when it starts making big jumps that they worry.0 -
I get pissed too
Believe me... I think we all get pissed at times. We have to get it out of our system. Paula I think your CA125 is okay. My doctor wouldn't be upset at all with that. Now he would be upset if it doubled. I went for 17 years and my CA125 was 8,10,12,15 and I was okay. I have a friend that has never had cancer and her CA125 is 37. I can't get over that one.
I will pray for your CA125 to go down.
And praying for 2011 to be a good year for all of us.
Linda0 -
Hello
10 is well within the limits...My CA-125 is 35 normally and I don't have OVCA......You are doing ok.....Yes, pissed makes perfect sense....This disease pisses me off on a daily basis. And the stupid vague doctors responses piss me off more.... You go girl....you can get 4 more years!!!!0 -
Paula,
I'm sure your onc is
Paula,
I'm sure your onc is just being cautious. My oncologist told me that as long as I was within normal ranges she wouldn't worry (below 20 something) and I shouldn't worry. (No idea what our gyn/onc's opinion is, but the last time I saw Dr. I, he told me no more surgery?).
At any rate, please know that although I haven't called you recently, you are always in my thoughts, prayers and in my heart. I will never forget the phone call I got from you while I was in the hospital, someone with a heart as big as yours is due for a wonderful new year! Good luck on those nursing exams, you will be a PHENOMENAL nurse!
Hugs Honey!
Leesa0 -
My oncologist's nurse told me CA125 number not a static numberleesag said:Paula,
I'm sure your onc is
Paula,
I'm sure your onc is just being cautious. My oncologist told me that as long as I was within normal ranges she wouldn't worry (below 20 something) and I shouldn't worry. (No idea what our gyn/onc's opinion is, but the last time I saw Dr. I, he told me no more surgery?).
At any rate, please know that although I haven't called you recently, you are always in my thoughts, prayers and in my heart. I will never forget the phone call I got from you while I was in the hospital, someone with a heart as big as yours is due for a wonderful new year! Good luck on those nursing exams, you will be a PHENOMENAL nurse!
Hugs Honey!
Leesa
Friends,
Just this week my oncologist's nurse told me that flucutation of a couple of points for the CA125 is nothing-say from 5 to 7, which is just what happened to me. I panicked because I am only out of chemo for uterine cancer 2 months. She said 7 is considered to be the same as 5. She said they could test CA125 twice in one day and get two different numbers. She told me this is cause for no concern.
Hope this helps.
Cindy0 -
35 is normalhopeful girl 1 said:My oncologist's nurse told me CA125 number not a static number
Friends,
Just this week my oncologist's nurse told me that flucutation of a couple of points for the CA125 is nothing-say from 5 to 7, which is just what happened to me. I panicked because I am only out of chemo for uterine cancer 2 months. She said 7 is considered to be the same as 5. She said they could test CA125 twice in one day and get two different numbers. She told me this is cause for no concern.
Hope this helps.
Cindy
i was told 35 is normal anything above is needed to be watched0 -
Isn't it ironic that before
Isn't it ironic that before ovarian cancer invaded our bodies (and our lives) we all wanted to be a 10.....now we all pray: Lord, please make me a FIVE. PLEASE! It's enough to drive a girl crazy.
Praying that your next number is a single digit.
Carlene0
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