My husband has multiple lesions on his liver
Comments
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Thank you!AnneCan said:Hello Melody
Welcome to this board. I am sorry you need to be here, but it is a good place. I haven't had experience with TACE but others who are more knowledgeable will chime in.
Thank you!0 -
Hello Mel:
Welcome to the board.
There is a member whose sign in name is tabur (I think his name is Al). Anyway, his wife Pam just had the TACE procedure a few months ago. If you go to the search box, put in the word TACE, scroll down and you will see his postings. Or, you could put in his sign in name and see what comes up. She had one lobe of the liver done and a short time later the other lobe. If you send him a personal message hopefully he will see it and communicate with you about the procedure and how his wife is doing. Go to your CSN home sign in page and in the middle you will see the communications part, and you can send him an e-mail/personal message.
The other beads procedure I heard about and a few have had is Theraspheres/Sir-Spheres. This, also, is the injection of beads but I think they are radioactive beads.
Best of luck and come back with any questions you may have. I'm sure others will be on to respond.
Take care - Tina0 -
Very Helpfulgeotina said:Hello Mel:
Welcome to the board.
There is a member whose sign in name is tabur (I think his name is Al). Anyway, his wife Pam just had the TACE procedure a few months ago. If you go to the search box, put in the word TACE, scroll down and you will see his postings. Or, you could put in his sign in name and see what comes up. She had one lobe of the liver done and a short time later the other lobe. If you send him a personal message hopefully he will see it and communicate with you about the procedure and how his wife is doing. Go to your CSN home sign in page and in the middle you will see the communications part, and you can send him an e-mail/personal message.
The other beads procedure I heard about and a few have had is Theraspheres/Sir-Spheres. This, also, is the injection of beads but I think they are radioactive beads.
Best of luck and come back with any questions you may have. I'm sure others will be on to respond.
Take care - Tina
Thanks, Tina! I will definately try to get in touch with him.0 -
Melody
Melody,
So sorry that your young husband is dealing with this disease. I don't have any information on TACE but wanted to welcome you to the board. I know others who have more information will write.
Aloha,
Kathleen0 -
MelodyKathleen808 said:Melody
Melody,
So sorry that your young husband is dealing with this disease. I don't have any information on TACE but wanted to welcome you to the board. I know others who have more information will write.
Aloha,
Kathleen
I am a 64 year old stage 4 patient .....I was diagnosed with colon cancer 6 years ago and have gone through mets to the liver twice....still surviving....
fist Melody just wanted to say Welcome to this forum. It breaks my heart to see patients as young as your husband with this disease. i cannot help you with these procedures....i have only done chemo and liver surgery to remove mets. Don't ever give up you guys and welcome and
here's a big hug for both
maggie0 -
Thank you Kathleen and MaggieKathleen808 said:Melody
Melody,
So sorry that your young husband is dealing with this disease. I don't have any information on TACE but wanted to welcome you to the board. I know others who have more information will write.
Aloha,
Kathleen
Thank you both for the encouragement! God bless!0 -
welcome
to the best place nobody wants to be. I am so sorry to hear of your young husband is dealing with this beast, it just SUCKS! At least his youth will be on his side in the fight! I don't have any experience with TACE, I had microwave ablation done to a lesion in my liver 4 1/2 years into my fight. I am sure somebody will come on to help, just wanted to welcome you and tell you I am so sorry to hear you guys are fighting this beast. I am so glad to see you are researching your husband's options and being proactive; you have to be your own best advocate to be sure you are getting the best possible care. Stay strong!
mary0 -
Welcome
Welcome to the board. I'm sorry that you husband has not responded to treatment. Not sure what either of those procedures are but there are a lot of people on this board that has gone through most of what is offered out there. Good luck and keep us posted. Hope whatever treatment he decides it works for him.
Kim0 -
I just joined yesterday. I
I just joined yesterday. I just wish I had found it elier. The best thing you can do is research every thing. If you find something you think doesn't apply read it anyways. The more you educate yourself the better you can advacate for the patient. Best of luck and Google government websites and Med journals for some good info on procedures and outcomes.0 -
Get a second opinionAnneCan said:Beautiful photo!
Beautiful photo!
There are tons of non surgical options. Find a good interventional radiologist and see what they can offer. I just had stereo tactic radio surgery on my liver. That was following two previous resections, 2 RFAs, and a bland embolization. So if your only getting two options find some new doctors.0 -
Hi Melody, sorry to hearLori-S said:Hi Melody
Welcome to the board! I'm sorry to hear that LaMont is having so much trouble. Sounds like you have been throgh the mill. I don't have liver experience (that sounds funny) but I did want to give you guys a big HUG with the welcome.
Hi Melody, sorry to hear about your husband. What a beautiful couple you guys make. Don't have an answer to your question, just hoping and praying the best for LaMont.0 -
Hello Melody
Hi Melody and welcome to the board. I am also a Stage IV colon cancer patient with mets to the liver. Both lobes, and many spots. I was diagonosed in Dec. 08 and still fighting this horrible disease. I am currently doing a clinical trial with Xeloda and maybe or maybe not a drug called perifosine.
I too was told about the two procedures you mentioned. I saw doctors at the Moffitt Cancer Center in Tampa. I opted for the clinical trial first as I too got very frightened on putting more trauma on my liver. I am having a CAT scan next week and we'll go from there. I am not expecting it to be good news as my CEA number which had gone down to 2 is now up to 10.
I can't comment on what to do, and I will probably be facing that decision too. I will watch anxiously to see what you guys decide to do. What a horror. I thought I was young at 48, but I guess not.
Try to stay strong and please, please leave a post and let us know what happens. I will keep you and your husband in my prayers-------------Anna0 -
Hi Melody
I have no experince with the situation you describe, but want to say you have come to a good place with lots of folks anxious to share what they know and offer emotional support.
Please stay in touch and let us know how things are going for you both.
Marie who loves kitties0 -
Thinking of you
Melody you and LaMont will be in my prayers. I am sorry for all you have to go through. Have no experience personally with TACE, just have read about it.
Please keep us posted when you can. Hugs, Joyce0 -
God Bless
Melody I am so sorry to hear that your husband has been running into walls. With that said what can you do? Fight like Hell and never ever give up. As others have said there is always options out there. I am not sure if you and your husband are religious people but I will say a pray for him. Doctors are only that doctors they work with the information that they can see and from stats of people that come before us. Only God can truly heal you and I ask The Lord to put his hands upon your husband and begin his healing process. I am 38 and was diagnosed with stage 4 this past March. I have been through Hell in the last 9 months with colon surgery, Liver surgery and so far 9 rounds of chemo with only 3 more to go. The biggest thing that has helped me is been my walk with the Lord. I hope one day this terrible disease will be a thing of the past but until that day we must always fight and never give up.0 -
Melody and LaMont
Sorry I didn't see this sooner but I don't get to the board as often as I'd like. I too welcome you but sure wish you didn't have to be here.
Thank you Tina for sending her my way.
I replied to your PM concerning Pam's experience with the TACE treatments. She has had 3 since June and the result has been no growth of the tumors in her liver. She has two large and diffuse tumors in the right lobe and it took 3 treatments to hit it all. The doc will only treat so much at a time so as not to jepordize liver function.
In Pam's case, TACE is being used to buy time for a clinical trial starting in Jan or Feb. However, first she needs more tests in January, PET/CT/MRI.
One thing I forgot to mention in my PM to you is her CEA level. Just before her first TACE treatment it was just over 100, last week it was 28. Hey, we take whatever good news we can get
I wish you two all the best and please keep us posted.
Al0 -
Hi M&M (Mel and Mont)
I have not had the same treatments you mentioned but I did have many liver mets that initially made me inoperable (I'm stage IV colon cancer, still in treatment for the past 6+ years but my liver has been clear since Dec 05). I went on Avastin and that shrunk the mets so they were operable, then I did HAI (pump therapy) where they place a hockey puck sized pump under you skin and a catheter delivers chemo to the liver after the surgery. I got that and systemic chemo and it did the trick. For the past few years I've been dealing with lung mets and the past 2-3 years they have been minor.
I hope you get that second opinion and all. I went to Sloan K in the city.
Best of luck
gotta run...
-phil0
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