Reoccurence update

13

Comments

  • Megan M
    Megan M Member Posts: 3,000
    DianeBC said:

    Sending you lots of luck and
    Sending you lots of luck and positive thoughts for your Cat scan on Monday!

    Please keep updating us Meena, as, we all are thinking of you and praying for you!


    Hugs, Diane

    How was your trip Meena?
    How was your trip Meena? Hoping and praying for you!
  • carkris
    carkris Member Posts: 4,553 Member
    Megan M said:

    How was your trip Meena?
    How was your trip Meena? Hoping and praying for you!

    same here :)

    same here :)
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    Yvette39 said:

    Meena
    I have been dealing with lymphedema for the past 8 months in my left arm. I go to Cooper Cancer Center in Akron to a lymphedema PT. I just filed for disability on several issues including lymphedema due to job performance. I'm struggling to do my job when I have swelling in my left arm. There are days when I have so much swelling I can't make a fist or bend my fingers. I wish you luck and hope everything works out for you.

    I join the others in asking
    I join the others in asking how are you doing?


    Hugs, Jan
  • Angie2U
    Angie2U Member Posts: 2,991
    meena1 said:

    Thank you guys! I know that
    Thank you guys! I know that i do not have to tell you how much I love all of you. I feel better this morning, so I will hang out in the house since it is so hot out. Thank you for the info on lymphedema. Heading to the beach tomorrow, cant wait.

    Hoping you had a really
    Hoping you had a really great time! Update here when you can.


    Hugs, Angie
  • Alexis F
    Alexis F Member Posts: 3,598
    sea60 said:

    Praying you are having a wonderful time at the shore
    and that your arm is doing much better.

    Thank you for sharing the good new on your improvement.

    Just know you are in my thoughts and prayers,
    Sylvia

    Also praying you had a
    Also praying you had a wonderful time! Good luck Monday!
  • Megan M
    Megan M Member Posts: 3,000

    I join the others in asking
    I join the others in asking how are you doing?


    Hugs, Jan

    Meena, was your trip fun? I
    Meena, was your trip fun? I hope it made you to feel better!


    Hugs, Megan
  • JohnP1
    JohnP1 Member Posts: 3
    Some Info
    Hi meena1,

    My heart and prayers go out to you. I would like to give you some information that you may find useful. I would suggest that you read Dr. T. Colins Campbell "The China Test" It is really good. There are also videos on YouTube by him and if you prefer to watch the videos rather than read, you will see what it is all about. Here is a link to one of the videos: http://www.youtube.com/watch?v=HvA55xj8iMI . From there you could watch his other videos. They are free by the way. Let me know if you have any questions.
    Regards,
    John
  • MNLynn
    MNLynn Member Posts: 224
    Meena, I too have been
    Meena, I too have been dealing with lymphedema in my right arm - am seeing a physical therapist for that. If you're just starting to notice the lymphedema, I'm assuming it's still in the "mild" stage. My pt wrapped my arm for the first week in all these bandages - looked like I had a broken arm (got lots of sympathy)! Since then, I've been doing massage on that arm and wearing a compression sleeve. I usually forget I even have the sleeve on - unless it's hot and then it kind of bothers me - and it sounds like it's probably still hot where you are. It sounds like, if they can catch the lymphedema in the early stages, you can hopefully deal with it and keep it from getting worse.

    I am so glad to hear that things sound like they are getting better for you - wish the chemo wasn't so rough for you, though.

    We'll be waiting to hear from you after your CT scan - praying that it will confirm the good news.

    Sending many thoughts & prayers your way . . .

    ♥ Lynn ♥
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    MNLynn said:

    Meena, I too have been
    Meena, I too have been dealing with lymphedema in my right arm - am seeing a physical therapist for that. If you're just starting to notice the lymphedema, I'm assuming it's still in the "mild" stage. My pt wrapped my arm for the first week in all these bandages - looked like I had a broken arm (got lots of sympathy)! Since then, I've been doing massage on that arm and wearing a compression sleeve. I usually forget I even have the sleeve on - unless it's hot and then it kind of bothers me - and it sounds like it's probably still hot where you are. It sounds like, if they can catch the lymphedema in the early stages, you can hopefully deal with it and keep it from getting worse.

    I am so glad to hear that things sound like they are getting better for you - wish the chemo wasn't so rough for you, though.

    We'll be waiting to hear from you after your CT scan - praying that it will confirm the good news.

    Sending many thoughts & prayers your way . . .

    ♥ Lynn ♥

    I'll be waiting as the
    I'll be waiting as the others here, to hear how your CT scan goes.

    Sending good vibes and prayers!


    Hugs, Diane
  • susie09
    susie09 Member Posts: 2,930
    JohnP1 said:

    Some Info
    Hi meena1,

    My heart and prayers go out to you. I would like to give you some information that you may find useful. I would suggest that you read Dr. T. Colins Campbell "The China Test" It is really good. There are also videos on YouTube by him and if you prefer to watch the videos rather than read, you will see what it is all about. Here is a link to one of the videos: http://www.youtube.com/watch?v=HvA55xj8iMI . From there you could watch his other videos. They are free by the way. Let me know if you have any questions.
    Regards,
    John

    Thanks for posting your
    Thanks for posting your update Meena! I always look for your posts when I come on, hoping for good news from you. Stay strong and keep fighting!
  • meena1
    meena1 Member Posts: 1,003
    MNLynn said:

    Meena, I too have been
    Meena, I too have been dealing with lymphedema in my right arm - am seeing a physical therapist for that. If you're just starting to notice the lymphedema, I'm assuming it's still in the "mild" stage. My pt wrapped my arm for the first week in all these bandages - looked like I had a broken arm (got lots of sympathy)! Since then, I've been doing massage on that arm and wearing a compression sleeve. I usually forget I even have the sleeve on - unless it's hot and then it kind of bothers me - and it sounds like it's probably still hot where you are. It sounds like, if they can catch the lymphedema in the early stages, you can hopefully deal with it and keep it from getting worse.

    I am so glad to hear that things sound like they are getting better for you - wish the chemo wasn't so rough for you, though.

    We'll be waiting to hear from you after your CT scan - praying that it will confirm the good news.

    Sending many thoughts & prayers your way . . .

    ♥ Lynn ♥

    Thank you, lynn for the info
    Thank you, lynn for the info on Lymphedema. I really kept hoping that I would not get lymphedema. The lymphedema specialist is on vacation is on vacation, he will be back next week. I am going to wait for him to get back since I know that this is a very good Physical Therapy group and I want to got there. It seems that everyone is on vacation, I know not to get sick in the summer!!
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    meena1 said:

    Thank you, lynn for the info
    Thank you, lynn for the info on Lymphedema. I really kept hoping that I would not get lymphedema. The lymphedema specialist is on vacation is on vacation, he will be back next week. I am going to wait for him to get back since I know that this is a very good Physical Therapy group and I want to got there. It seems that everyone is on vacation, I know not to get sick in the summer!!

    Wishing you good luck with
    Wishing you good luck with your meeting with the specialtist! I certainly hope he can help you with your lymphedema.

    And, saying lots of prayers for your CAT scan on Monday! We are with you sister!


    Sue :)
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    MyTurnNow said:

    Meena, it was good to see
    Meena, it was good to see your update. I'm thrilled that the chemo is doing its job...that's GREAT news!! Good luck, too, on getting the lymphedema under control. Have a wonderful, relaxing, stress-free time at the beach. We'll be here waiting to hear about your trip.

    Always praying for
    Always praying for you!


    Hugs, Jan
  • Noel
    Noel Member Posts: 3,095 Member
    Ritzy said:

    Wishing you good luck with
    Wishing you good luck with your meeting with the specialtist! I certainly hope he can help you with your lymphedema.

    And, saying lots of prayers for your CAT scan on Monday! We are with you sister!


    Sue :)

    Sending you prayers and
    Sending you prayers and positive thoughts for your scan today Meena.


    ♥ Noel
  • susie09
    susie09 Member Posts: 2,930
    MNLynn said:

    joining with the others here . . .
    to say how glad I am to hear that you have, hopefully, seen some improvement!

    I am also seeing a PT (who works with bc patients) for mild lymphedema . . . have instructions on what to do at home to keep the fluid from building up, and wear a compression sleeve during the day. I'm hoping that that will keep it under control.

    Hope to hear good news from you again after your CT scan on Aug 2 -

    Keeping you in my thoughts & prayers,

    ♥ Lynn ♥

    Does everyone see a PT for
    Does everyone see a PT for lymphedema? I don't have it, but, I guess I still could. Could I? Thanks!
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    Sorry to hear chemo has been
    Sorry to hear chemo has been rough for you, but so glad to hear the cocktail is working. I am sure physical therapy will help with your lymphodema.

    I know you and your hubby will have a great time of it on your get away! Where are you off to now? Do tell.

    Best of luck to you. Keep us posted on how your doing. Bear hugs to you dear Meena.
    BL
  • mjfromtx
    mjfromtx Member Posts: 49
    Noel said:

    Sending you prayers and
    Sending you prayers and positive thoughts for your scan today Meena.


    ♥ Noel

    lymphedema and mets
    Sounds like we have some stuff in common Meena! I have had lymphedema in left arm for 19 months now. One word of advice: WEAR YOUR COMPRESSION SLEEVES and Gloves if you get them. They really really work. I have only had to be 'packed' once (where they put you in a soft splint to bring down the fluids in the arm/hands). You do not want the fluid to 'get hard' if your arm feels lumpy or some hard spots get right back to your PT for massage therapy so they can work those out. Mine is well controlled now for the past 13 months but I wear those sleeves 12 hours a day every day. I sometimes give myself a break on a weekend day but it is important to wear them. They don't look or feel like they are doing anything but if you don't wear them your arm can swell quickly and harder to get the fluid back down.

    I have just been dxed stage four mets to rt lung and three lymph nodes...all small ones largest is 1cm. Going to MD Anderson to get 2nd opinion tomorrow. Will be gone a week. GL and God Bless! Hang tough compared to mets lymphedema is not so bad!!! MJ
  • jackiejhm
    jackiejhm Member Posts: 169
    meena1 said:

    Thank you, lynn for the info
    Thank you, lynn for the info on Lymphedema. I really kept hoping that I would not get lymphedema. The lymphedema specialist is on vacation is on vacation, he will be back next week. I am going to wait for him to get back since I know that this is a very good Physical Therapy group and I want to got there. It seems that everyone is on vacation, I know not to get sick in the summer!!

    My PT
    I am so sorry that you are seeing signs of lymphedema, Meena. Summer is tough. I have been seeing a PT for a couple of months- he is w-o-n-d-e-r-f-u-l. It did take a bit to get in to see him, but, worth the wait. I am sure you will have a great deal of relief with it. Hang in there, please. xoxo Jackie
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    mjfromtx said:

    lymphedema and mets
    Sounds like we have some stuff in common Meena! I have had lymphedema in left arm for 19 months now. One word of advice: WEAR YOUR COMPRESSION SLEEVES and Gloves if you get them. They really really work. I have only had to be 'packed' once (where they put you in a soft splint to bring down the fluids in the arm/hands). You do not want the fluid to 'get hard' if your arm feels lumpy or some hard spots get right back to your PT for massage therapy so they can work those out. Mine is well controlled now for the past 13 months but I wear those sleeves 12 hours a day every day. I sometimes give myself a break on a weekend day but it is important to wear them. They don't look or feel like they are doing anything but if you don't wear them your arm can swell quickly and harder to get the fluid back down.

    I have just been dxed stage four mets to rt lung and three lymph nodes...all small ones largest is 1cm. Going to MD Anderson to get 2nd opinion tomorrow. Will be gone a week. GL and God Bless! Hang tough compared to mets lymphedema is not so bad!!! MJ

    I am so sorry mfromtx that
    I am so sorry mfromtx that you have a recurrence.

    Sending prayers to you too!

    Hugs, Diane
  • carkris
    carkris Member Posts: 4,553 Member
    jackiejhm said:

    My PT
    I am so sorry that you are seeing signs of lymphedema, Meena. Summer is tough. I have been seeing a PT for a couple of months- he is w-o-n-d-e-r-f-u-l. It did take a bit to get in to see him, but, worth the wait. I am sure you will have a great deal of relief with it. Hang in there, please. xoxo Jackie

    I saw a therapist for rehab
    I saw a therapist for rehab as I was weak and debilitated after chemo. I had complicating factors that made me weak, and I needed strength and stamina rebuilding. She specializes in lymphedema and keeps track of my arms too. I am having lots of tightness in my chest which could be fluid there or tightening from radiation, so I do exersised for that too.