You OK, Sweetblood?

dennis318 said:

Hey Jim
my throat is still tight especially at night, so i drink a little, but get leary of laying down for bed, i can breath threw threw it , but is sores and feels tighter, if i drink water it get some phlem up, and we all seem to be happy. the weight lost is not going well, .send clam chowder...lol, i amd eatiing my 3 meals a day and drinking ennsure 2-3 times a day, I'm getting paprnoid to lay down. I'm glad to see sweetblood back on, how are you doing? well...Dennis, P.S anyone have suggestions open my throat to swallow better, I'm sure this is cartiledge and and buildup fromw the other associated problems, my breathing get harder and feels like it wants to deposit phlem, and nothing is there, any suggestions, toss them my way pleaseeeeeeeeeeeee

dennis318
I'm sorry to hear you are struggling... not a Dr.. but I will tell you what helped my husband... Water...Water...Water... he also took musinex every 4 hrs. (large pill...but it desolves in water quickly) make sure you have enough humidity in the room you sleep in, prop your head up, use saline spray in your nose...
As for your jaw... My husband could barely open his mouth... I massaged and massaged his jaw joint and we worked it open and closed on a regular routine... it is much better now.

wifeforlife said:

dennis318
I'm sorry to hear you are struggling... not a Dr.. but I will tell you what helped my husband... Water...Water...Water... he also took musinex every 4 hrs. (large pill...but it desolves in water quickly) make sure you have enough humidity in the room you sleep in, prop your head up, use saline spray in your nose...
As for your jaw... My husband could barely open his mouth... I massaged and massaged his jaw joint and we worked it open and closed on a regular routine... it is much better now.

GOOD NEWS !!!!!!!!!!!!!!!!!!!
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.

I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.

The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.

So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.

thanks all,

d

Glenna M said:

Time for another happy dance ;-)
I have been so worried about you and Mike lately and am so relieved to hear your GREAT news!!!

I can only imagine the joy you must have felt when they told you everything was fine. It makes my day every time I read good new like yours.

Stay strong and keep us updated, we have all missed you lately.

My best to you always,
Glenna

Great New's!
Sweetblood! I am new to the board's. However, I just wanted to say how happy I am for you!
Congratulation's!

MaryRC said:

great news
That was great news Sweetblood! Was it a cyst? I had been thinking of you.
Mary

thanks guys. i texted my
thanks guys. i texted my best friend saying, "how do you spell relief?" n-o-r-m-al-b-o-o-b


lol. no, no cyst. i am blessed with lumpy breast tissue. good times.

delnative said:

Oh, what wonderful news
I'm so glad to hear that. What a load off your mind!
And thanks for the chuckle -- n-o-r-m-a-l-b-o-o-b. That's marvelous.

--Jim in Delaware

Sweetblood
Good to hear, girl. Keep moving forward.

Believe

kcass

sweetblood22 said:

GOOD NEWS !!!!!!!!!!!!!!!!!!!
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.

I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.

The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.

So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.

thanks all,

d

That is Wonderful
What wonderful news. I am happy for you!


Kathy

sweetblood22 said:

GOOD NEWS !!!!!!!!!!!!!!!!!!!
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.

I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.

The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.

So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.

thanks all,

d

Whoo hoo!
Great news Sweetblood!
I am so glad all is well with you boobs! Glad to have you back with us! I missed you! Happy dance again! Hooray! Love Patty

dennis318 said:

Hey Jim
my throat is still tight especially at night, so i drink a little, but get leary of laying down for bed, i can breath threw threw it , but is sores and feels tighter, if i drink water it get some phlem up, and we all seem to be happy. the weight lost is not going well, .send clam chowder...lol, i amd eatiing my 3 meals a day and drinking ennsure 2-3 times a day, I'm getting paprnoid to lay down. I'm glad to see sweetblood back on, how are you doing? well...Dennis, P.S anyone have suggestions open my throat to swallow better, I'm sure this is cartiledge and and buildup fromw the other associated problems, my breathing get harder and feels like it wants to deposit phlem, and nothing is there, any suggestions, toss them my way pleaseeeeeeeeeeeee

swallowing
Hi,you dont know mw as im new here
My dear wife had an oesophogectomy two years ago +gastric pull up. She didnt have Rad because unfortunately she has Fanconis Anemia, which excludes her from Chemo too. Since then we have had recurrence in Lung and hypopharynx.
Anyway,
For about a year after surgery, she dialted herself with a dialator called a 44 French size Maloney.
It looks like a ruber snake! and she put it down her own throat. She received this form Univ of Michigan Prof. Mark Orringer who performed the surgery. Whenever she felt swallowing difficulties and "tightening up", she did self dialations.
Ijm not sure what uve had, or wheather your throat is in a position for this, so this might be toally irrelevant, but im posting this anyway.
FEEL BETTER soon
Clearblue

Clearblue said:

swallowing
Hi,you dont know mw as im new here
My dear wife had an oesophogectomy two years ago +gastric pull up. She didnt have Rad because unfortunately she has Fanconis Anemia, which excludes her from Chemo too. Since then we have had recurrence in Lung and hypopharynx.
Anyway,
For about a year after surgery, she dialted herself with a dialator called a 44 French size Maloney.
It looks like a ruber snake! and she put it down her own throat. She received this form Univ of Michigan Prof. Mark Orringer who performed the surgery. Whenever she felt swallowing difficulties and "tightening up", she did self dialations.
Ijm not sure what uve had, or wheather your throat is in a position for this, so this might be toally irrelevant, but im posting this anyway.
FEEL BETTER soon
Clearblue

hey kids
thanks for the latest round of well wishes. I really missed this site when I had no internet service. Everyone here is so nice.

Clearblue, I want to make it clear that the dog velcros himself TO ME. Not the other way around. I got Noah (aka Nizzy) after my first dog, Kiaya died. I had her for 15 years. It was so hard to put her down. I don't think anything else hurt my heart as much as that. I was dogless for a mere three, maybe four days? My step mom was negotiating in the wings when she knew Kiaya was not going to make it. She knew I needed a dog, as I had also just left my ex husband that had cheated on me after 15 years of marriage. It was a hard time.

I loved Kiaya, she was my baby, as I have never had any kids. I found out my step mom was getting me another dog by accident. She was doing it on the DL. I fessed up to her that I knew. I remember when she said that she had a two year old Hairless Chinese Crested lined up for me. He was an ex show dog. They had several dogs, and they no longer showed him, and he was crated most of the time. That made me sad. But I remember being scared about a new dog. I remember saying to my step mom, "But what if I don't love him?". When ever he is on me sleeping, or gazing up at my face, head on my chest as happy as a clam, (which is 24/7 now) my step mom laughs and says, "But what if I don't love him?" She swears that we are a perfect fit. He is the best present I have ever gotten.

When I was working, I worked at least 48 hours a week, and Nizzy went to "nanna and pop-pop's" for doggie day care everyday. (my poor parents have no grandkids. they have almost resigned themselves to the fact that their only grandkids are furry ones. or in my case, not-so-furry ones!) They have two cresteds, a rottie, and now a huge english mastiff. It used to bother me when I worked sometimes, because he would want to go up to my parents sometimes and not want to come down with me, he spent so much time with them, and the other two cresteds. LOL. Forget that now. I can hardly leave him for two seconds. He has become really over protective of me too. Sometimes he won't let anyone near me! Nut. I swear that my dog knew something was wrong with me before I did. Once I had surgery and was not working, that was it. He was stuck to me like glue. I called him my other tumor. He was on me like a growth. LOL.

Now he does not want to go to my parents. He hates the mastiff becuase he is a big slobbering brut that tortures poor Nizzy. He also knows that if he is going up there, that more than likely, mommy is going out with out him, and he does not like that.

Clearblue, your wife sounds like a seriously strong woman. I cannot imagine trying to dialate myself. I thank you for telling me about it though. I gag and carryon just brushing my teeth. I wish I could do something like that as it is almost 5 grand for every dilatation and I have had three. I have to be put on a ventilator and it got pretty hairy. They really do not want to do it again, it has become too risky.

I hope your wife does well with the next round of erbitux.