You OK, Sweetblood?
Comments
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Well, Dennisdennis318 said:Hey Jim
my throat is still tight especially at night, so i drink a little, but get leary of laying down for bed, i can breath threw threw it , but is sores and feels tighter, if i drink water it get some phlem up, and we all seem to be happy. the weight lost is not going well, .send clam chowder...lol, i amd eatiing my 3 meals a day and drinking ennsure 2-3 times a day, I'm getting paprnoid to lay down. I'm glad to see sweetblood back on, how are you doing? well...Dennis, P.S anyone have suggestions open my throat to swallow better, I'm sure this is cartiledge and and buildup fromw the other associated problems, my breathing get harder and feels like it wants to deposit phlem, and nothing is there, any suggestions, toss them my way pleaseeeeeeeeeeeee
I almost feel guilty at how well I'm doing, and my heart goes out to you and all the others who are going through this. I've put weight back on to the point that I don't want to gain another pound. I've been lifting weights and have built back my upper body strength. I can swallow just like BC (Before Cancer) and my saliva is back virtually 100 percent. The only downsides are the Cisplatin numbness in my fingertips and the fatigue that I'm still prone to late in the day. But hey, I'm alive.
As for the phlegm, I used to sleep with my head and shoulders elevated -- basically, I used a bunch of pillows. I got used to that and still use them, even though I don't need them anymore. I don't know if that will help you, but it's worth a shot.
Hang in there.
--Jim in Delaware0 -
Hey Sweetssweetblood22 said:hey guys
thank you for thinking of me. i just got my internet back this week and i wish i had good news,but i am sitting here reeling over the last couple days. yesterday the sh*t hit the fan with a financial situation i have, and today the doctors office called me to say that they wished they had better news for me but my mamogram has come back with an area that they are concerned about and i need an ultra sound. i am so nauseas and scared right now. i am in bed balling. i have been thinking of you all. esp, steve, mick, mike , mary and those in treatment. i was going to try to catch up on threads, but i don't have it in me right now. i am so scared right now. i don't even want to get out of bed today. please pray that this is not breast cancer, i am so sick right now. i am going to try to nap.
thanks for thinking of me, missed you guys and your support. i really need that right now.
So sorry to hear you have this frightening situation. We are all punting for you that it's nothing serious. Keep in touch and please keep fighting.
Scam0 -
dennis318dennis318 said:Hey Jim
my throat is still tight especially at night, so i drink a little, but get leary of laying down for bed, i can breath threw threw it , but is sores and feels tighter, if i drink water it get some phlem up, and we all seem to be happy. the weight lost is not going well, .send clam chowder...lol, i amd eatiing my 3 meals a day and drinking ennsure 2-3 times a day, I'm getting paprnoid to lay down. I'm glad to see sweetblood back on, how are you doing? well...Dennis, P.S anyone have suggestions open my throat to swallow better, I'm sure this is cartiledge and and buildup fromw the other associated problems, my breathing get harder and feels like it wants to deposit phlem, and nothing is there, any suggestions, toss them my way pleaseeeeeeeeeeeee
I'm sorry to hear you are struggling... not a Dr.. but I will tell you what helped my husband... Water...Water...Water... he also took musinex every 4 hrs. (large pill...but it desolves in water quickly) make sure you have enough humidity in the room you sleep in, prop your head up, use saline spray in your nose...
As for your jaw... My husband could barely open his mouth... I massaged and massaged his jaw joint and we worked it open and closed on a regular routine... it is much better now.0 -
Hey Yourselfsweetblood22 said:hey guys
thank you for thinking of me. i just got my internet back this week and i wish i had good news,but i am sitting here reeling over the last couple days. yesterday the sh*t hit the fan with a financial situation i have, and today the doctors office called me to say that they wished they had better news for me but my mamogram has come back with an area that they are concerned about and i need an ultra sound. i am so nauseas and scared right now. i am in bed balling. i have been thinking of you all. esp, steve, mick, mike , mary and those in treatment. i was going to try to catch up on threads, but i don't have it in me right now. i am so scared right now. i don't even want to get out of bed today. please pray that this is not breast cancer, i am so sick right now. i am going to try to nap.
thanks for thinking of me, missed you guys and your support. i really need that right now.
Hate to hear times are scary right now. When is the ultrasound? Like so many others here, hoping the ultrasound results are promising, not like the mammogram.
Love your picture - that is one comfortable looking pup.
Rest and get your strength up. You can catch up on the threads later. You know we're pulling for you - let us know.
- Pam0 -
GOOD NEWS !!!!!!!!!!!!!!!!!!!wifeforlife said:dennis318
I'm sorry to hear you are struggling... not a Dr.. but I will tell you what helped my husband... Water...Water...Water... he also took musinex every 4 hrs. (large pill...but it desolves in water quickly) make sure you have enough humidity in the room you sleep in, prop your head up, use saline spray in your nose...
As for your jaw... My husband could barely open his mouth... I massaged and massaged his jaw joint and we worked it open and closed on a regular routine... it is much better now.
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.
I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.
The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.
So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.
thanks all,
d0 -
Time for another happy dance ;-)sweetblood22 said:GOOD NEWS !!!!!!!!!!!!!!!!!!!
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.
I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.
The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.
So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.
thanks all,
d
I have been so worried about you and Mike lately and am so relieved to hear your GREAT news!!!
I can only imagine the joy you must have felt when they told you everything was fine. It makes my day every time I read good new like yours.
Stay strong and keep us updated, we have all missed you lately.
My best to you always,
Glenna0 -
Great New's!Glenna M said:Time for another happy dance ;-)
I have been so worried about you and Mike lately and am so relieved to hear your GREAT news!!!
I can only imagine the joy you must have felt when they told you everything was fine. It makes my day every time I read good new like yours.
Stay strong and keep us updated, we have all missed you lately.
My best to you always,
Glenna
Sweetblood! I am new to the board's. However, I just wanted to say how happy I am for you!
Congratulation's!0 -
great newssweetblood22 said:GOOD NEWS !!!!!!!!!!!!!!!!!!!
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.
I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.
The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.
So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.
thanks all,
d
That was great news Sweetblood! Was it a cyst? I had been thinking of you.
Mary0 -
thanks guys. i texted myMaryRC said:great news
That was great news Sweetblood! Was it a cyst? I had been thinking of you.
Mary
thanks guys. i texted my best friend saying, "how do you spell relief?" n-o-r-m-al-b-o-o-b
lol. no, no cyst. i am blessed with lumpy breast tissue. good times.0 -
Oh, what wonderful newssweetblood22 said:thanks guys. i texted my
thanks guys. i texted my best friend saying, "how do you spell relief?" n-o-r-m-al-b-o-o-b
lol. no, no cyst. i am blessed with lumpy breast tissue. good times.
I'm so glad to hear that. What a load off your mind!
And thanks for the chuckle -- n-o-r-m-a-l-b-o-o-b. That's marvelous.
--Jim in Delaware0 -
That is Wonderfulsweetblood22 said:GOOD NEWS !!!!!!!!!!!!!!!!!!!
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.
I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.
The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.
So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.
thanks all,
d
What wonderful news. I am happy for you!
Kathy0 -
Hi Sweetsweetblood22 said:thanks guys. i texted my
thanks guys. i texted my best friend saying, "how do you spell relief?" n-o-r-m-al-b-o-o-b
lol. no, no cyst. i am blessed with lumpy breast tissue. good times.
That is good news; I am happy for you and glad to see you are not depressed anymore.
Also thank you so much for calling my friend daddy Mike, what a fighter he is to be going through so many problems all at the same time and still having a positive attitude
May God continue to be with you.0 -
Whoo hoo!sweetblood22 said:GOOD NEWS !!!!!!!!!!!!!!!!!!!
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.
I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.
The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.
So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.
thanks all,
d
Great news Sweetblood!
I am so glad all is well with you boobs! Glad to have you back with us! I missed you! Happy dance again! Hooray! Love Patty0 -
good for you!!pattyanny said:Whoo hoo!
Great news Sweetblood!
I am so glad all is well with you boobs! Glad to have you back with us! I missed you! Happy dance again! Hooray! Love Patty
Glad to read some good news about you!! Keep up the good work. I also hate slow internet. Especially on this site. I cannot read the threads fast enough some days.0 -
swallowingdennis318 said:Hey Jim
my throat is still tight especially at night, so i drink a little, but get leary of laying down for bed, i can breath threw threw it , but is sores and feels tighter, if i drink water it get some phlem up, and we all seem to be happy. the weight lost is not going well, .send clam chowder...lol, i amd eatiing my 3 meals a day and drinking ennsure 2-3 times a day, I'm getting paprnoid to lay down. I'm glad to see sweetblood back on, how are you doing? well...Dennis, P.S anyone have suggestions open my throat to swallow better, I'm sure this is cartiledge and and buildup fromw the other associated problems, my breathing get harder and feels like it wants to deposit phlem, and nothing is there, any suggestions, toss them my way pleaseeeeeeeeeeeee
Hi,you dont know mw as im new here
My dear wife had an oesophogectomy two years ago +gastric pull up. She didnt have Rad because unfortunately she has Fanconis Anemia, which excludes her from Chemo too. Since then we have had recurrence in Lung and hypopharynx.
Anyway,
For about a year after surgery, she dialted herself with a dialator called a 44 French size Maloney.
It looks like a ruber snake! and she put it down her own throat. She received this form Univ of Michigan Prof. Mark Orringer who performed the surgery. Whenever she felt swallowing difficulties and "tightening up", she did self dialations.
Ijm not sure what uve had, or wheather your throat is in a position for this, so this might be toally irrelevant, but im posting this anyway.
FEEL BETTER soon
Clearblue0 -
GOOD FOR YOU !!!!sweetblood22 said:GOOD NEWS !!!!!!!!!!!!!!!!!!!
Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.
I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.
The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.
So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.
thanks all,
d
Release and feed the velcroed dog!
Clear B.0 -
hey kidsClearblue said:swallowing
Hi,you dont know mw as im new here
My dear wife had an oesophogectomy two years ago +gastric pull up. She didnt have Rad because unfortunately she has Fanconis Anemia, which excludes her from Chemo too. Since then we have had recurrence in Lung and hypopharynx.
Anyway,
For about a year after surgery, she dialted herself with a dialator called a 44 French size Maloney.
It looks like a ruber snake! and she put it down her own throat. She received this form Univ of Michigan Prof. Mark Orringer who performed the surgery. Whenever she felt swallowing difficulties and "tightening up", she did self dialations.
Ijm not sure what uve had, or wheather your throat is in a position for this, so this might be toally irrelevant, but im posting this anyway.
FEEL BETTER soon
Clearblue
thanks for the latest round of well wishes.
I really missed this site when I had no internet service. Everyone here is so nice.
Clearblue, I want to make it clear that the dog velcros himself TO ME. Not the other way around. I got Noah (aka Nizzy) after my first dog, Kiaya died. I had her for 15 years. It was so hard to put her down. I don't think anything else hurt my heart as much as that. I was dogless for a mere three, maybe four days? My step mom was negotiating in the wings when she knew Kiaya was not going to make it. She knew I needed a dog, as I had also just left my ex husband that had cheated on me after 15 years of marriage. It was a hard time.
I loved Kiaya, she was my baby, as I have never had any kids. I found out my step mom was getting me another dog by accident. She was doing it on the DL. I fessed up to her that I knew. I remember when she said that she had a two year old Hairless Chinese Crested lined up for me. He was an ex show dog. They had several dogs, and they no longer showed him, and he was crated most of the time. That made me sad. But I remember being scared about a new dog. I remember saying to my step mom, "But what if I don't love him?". When ever he is on me sleeping, or gazing up at my face, head on my chest as happy as a clam, (which is 24/7 now) my step mom laughs and says, "But what if I don't love him?" She swears that we are a perfect fit. He is the best present I have ever gotten.
When I was working, I worked at least 48 hours a week, and Nizzy went to "nanna and pop-pop's" for doggie day care everyday. (my poor parents have no grandkids. they have almost resigned themselves to the fact that their only grandkids are furry ones. or in my case, not-so-furry ones!) They have two cresteds, a rottie, and now a huge english mastiff. It used to bother me when I worked sometimes, because he would want to go up to my parents sometimes and not want to come down with me, he spent so much time with them, and the other two cresteds. LOL. Forget that now. I can hardly leave him for two seconds. He has become really over protective of me too. Sometimes he won't let anyone near me! Nut. I swear that my dog knew something was wrong with me before I did. Once I had surgery and was not working, that was it. He was stuck to me like glue. I called him my other tumor. He was on me like a growth. LOL.
Now he does not want to go to my parents. He hates the mastiff becuase he is a big slobbering brut that tortures poor Nizzy. He also knows that if he is going up there, that more than likely, mommy is going out with out him, and he does not like that.
Clearblue, your wife sounds like a seriously strong woman. I cannot imagine trying to dialate myself. I thank you for telling me about it though. I gag and carryon just brushing my teeth. I wish I could do something like that as it is almost 5 grand for every dilatation and I have had three. I have to be put on a ventilator and it got pretty hairy. They really do not want to do it again, it has become too risky.
I hope your wife does well with the next round of erbitux.0 -
She's Back...MISSED YOUsweetblood22 said:hey guys
thank you for thinking of me. i just got my internet back this week and i wish i had good news,but i am sitting here reeling over the last couple days. yesterday the sh*t hit the fan with a financial situation i have, and today the doctors office called me to say that they wished they had better news for me but my mamogram has come back with an area that they are concerned about and i need an ultra sound. i am so nauseas and scared right now. i am in bed balling. i have been thinking of you all. esp, steve, mick, mike , mary and those in treatment. i was going to try to catch up on threads, but i don't have it in me right now. i am so scared right now. i don't even want to get out of bed today. please pray that this is not breast cancer, i am so sick right now. i am going to try to nap.
thanks for thinking of me, missed you guys and your support. i really need that right now.
I lost touch and now I know why? I too have just returned from an adventure, My Boss gave me a week off for a vacation finally, and came to find out i need to return for throat surgery totally wasn't expected, I bit the bullet, I was lucky I guess and they had appointment cancel Wednesday, SO MUCH FOR MY VACATION! My throat of 7 weeks of radiation and chemo, isn't healing well, i was diagnosed wrong, and the doctor put in a implant for a paraylis of the vocal chords, he cut into the tumor, which he missed over 2 months of tests, biopsys etc..then they had to remove the implant, and start into the radiation. so my new oncologist went in an cleaned up rotten radiation and resent in another segment to be looked at too see if the cancer still exists???, I came home yesterday, now, with a throat trach, something i would never thought i would see in my life, he said 10 days of wear to help heal the area and strengthen my vocals, whats left, i sat, and laid in a hopsital, not able to speak, people calling couldn't talk, and learning how to clean this tube i have now, with a cap that i can out maybe a few sentences, i thought of you, i so wanted to talk to everyone here, my computer took a dump and shorted out while i was up there, I pray my test will come back ok, but something tells me...Please keep mew in your prayers, as i will you sweetblood. i have regained some of my eating, i dropped to 139 from 202, and the last days started to eat more, and drink ensure. I will know my next Tuesday what the outcome will be, and where we will be heading to, DOES ANYONE KNOW OR HAD, ANY PROCEDURE WHERE THE ONE SIDE OF THE LARYNX WORKS, AND THE OTHER IS DEAD, AND GOT SOME VOICE BACK, I AM NOT LIVING WITH THIS TRACH, THEY SAID IT WAS COMING BACK OUT NEXT TUESDAY, PLEASE PRAY OR THINK OF ME, SWEETBLOOD AND EVERYONE THAT HAS TAKEN A BEATING WITH THIS, I AM LOSING HOPE, AND CLOSE TO THE END OF WHAT WE WILL DO, DOCTOR ALSO MENTION A COMPLETE VOCAL BOX REMOVAL, SORRY, CAN'T SEE THIS HAPPENING EITHER, I found the whole operation a pain, the doctor looks like i hope this may work, Take Care..May god lend his hand to us, for strength, my walk with this is getting weary...DENNIS0
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