Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm

uterine endrometrial cancer
I am new to this. I just found this website. 5:30 am here in va. Tried to log on to chat rooms. Can't view them. I just get a blank page that tells me to click a button if not directed in 10 secs. I cant even view a button. Dont know why.
Just another thing to make my day.
Can't sleep, I go the the gyn oncology today.Not looking forward to it. Don't know what stage of whats going on. Have to have a hysterectomy, dont know when.
Pretty much freaking out at this point. Cant seem to get any answers.
jami

starlight22960 said:

uterine endrometrial cancer
I am new to this. I just found this website. 5:30 am here in va. Tried to log on to chat rooms. Can't view them. I just get a blank page that tells me to click a button if not directed in 10 secs. I cant even view a button. Dont know why.
Just another thing to make my day.
Can't sleep, I go the the gyn oncology today.Not looking forward to it. Don't know what stage of whats going on. Have to have a hysterectomy, dont know when.
Pretty much freaking out at this point. Cant seem to get any answers.
jami

Roll Call for April 2010!
Hello everyone!! I'm back! I just got message from CSN inviting me about getting together in Philadelphia which is why I'm back. I've been gone for a while to a busy world.

It's good to see your faces again ---old ones and new ones.

Brenda Boaz as Reddie:
Stage III-c Uterus cancer, total hysterectomy 5/24/09; had 1 round of chemo; within 1 week of chemo I had colon infection and started antibiotics then few weeks later had abscess drainage within 1 month of IV antibiotics. After that I had CT scan and no sign of cancer cells. I had doctor's follow up with pap smear and blood works for CA 125 on January, 2010. They said, my CA-125 is 15 which is good news. Now I'm waiting for the second follow up to see if it's the same results.

Have a nice spring! Reddie

aprillorey said:

my name is April i'm 29 and
my name is April i'm 29 and live in Iowa.

on March 22nd 2010 i was told i had the 1st stages of Uterine cancer

April 16th 2010 i had a full Hysterectomy in may of 2010 my tumor was very very big

so in may of 2010 i will undergo 5 rounds of Radiation treatment so thats my next step. im married and our dream of having a birth child is now over we do have baby angels who all died due to misscarriage sadly.

Hi April
You're not the only one who did't have children. I myself never had children. Andy and I met each other before I had Uterus cancer and now it's over but we never give up cuz we are planning to adopt children. I am very blessed that Andy stayed with me through recovery and looks forward to a new beginning.

Have you thought about having adoptions?

cheers,
Reddie

aprillorey said:

Yes we have we looked in to it as we always wanted birth but we also wanted to adopt, how ever due to being on SSI ( goverment funds ) and my husband working a very low incom job my being over weight and the cancer and other things like being far in debt they told us that the chanchs of us adopting is slim to none we been praying for the adoption laws to change . money is tight we could raise a child but cant aford the fees and other stuff and alot of the laws are crazy

we did try to foster care a few years back but it didnt go so well the home study worker clamed because we had not been married but a few years and due to husbands loaw income job that they turn us down.



well i pray for you and andy to be blessed

im blessed with my husband we married in 2004 but got together at the end of 2002 hes a wonderful man whos been by my side every step of the way

thanks for the message hun

Hi my name is Sue and I live
Hi my name is Sue and I live in Scotland.
I was diagnosed with stage 1c grade 3 uterine carsinoma (or MMMT as it is sometimes called). I had radical hysterectomy followed by carbo/taxel chemotherapy, followed by radiotherapy. I finished my treatments last October, and I am now a NED!!
Unfortunately it's hard to be as happy as I should be at the news that I am clear of cancer, because of the after effects of the treatments - extreme fatigue, and severe joint and muscle pain. I used to be such an active person, doing lots of diy around the house and garden, and long distance hiking with my daughter, but now I find that any sort of exercise makes my pain worse.However I am not giving in to it, and I am walking every day, and doing what I can around the house.
I was so pleased to discover this forum because I felt that I was alone in suffering these after effects, and my oncologist cannot explain it. Now I realise that there are lots of you out there with the same symptoms, and far worse. It is so very good to 'meet' you all.
I am 65 years old so have nothing to complain about compared with so many of you young ones - my heart goes out to you all.
Hugs to you all
Sue

cathyK said:

Can we do a ROLL CALL with everyone posting their name,
hello all
I am new here, got diagnosed with cervical cancer and was due to have a D and C, the week after this I could not get a hold of the doctor, so got worried and had a second opinion, this time it was worse, the specialist said I had uterine cancer and had to have a total hysterectomy june 15. after the operation was told I have endometrial cancer stage 4 b, and he added that this was the worst he had seen in a while, and survival rate is only 1 to 2 years with chemo. I dont like this diagnosis of course and this has shocked me as I have been a very healthy person.
after my first chemo treatment july 13th 14th I am feeling healthy with very few side effects. the worst was the white blood cell shot, got very tired and very sore.
I have been looking for anyone with similar diagnosis who has a success story, and have found none. I am worried about what is coming up. I am on a 21 day chemo schedule, was told over and over again to cut my waist length hair and finally did. it is still intact. wondering if I am just lucky with no side effects or it will get worse after each chemo?
any help out there?

Checking in
Hi Cathy - are you still visiting this site? Just curious where you are in treatment these days. I am one of the few other stage 4's here and, like you, I've found it very hard to find survivors to network with. Would love to hear from you. What histologic type is your cancer by the way?

I can be reached at paigeldonnelly@gmail.com

Roll Call
My name is Michaelynn and I am 59 years old and live in Indiana. Was diagnosed with UPSC in february of 2010. I am stage 1A grade 3C. I was spotting since 2008 and they kept doing ultrasounds saying it was a fibroid. I have had 3 vaginal cuff radiation treatments and am going for my 3rd chemo treatment on July 14th. Anyone else stage 1A grade 3?

Roll call, newcomer, Christine
I see I am responding a year later than the initial roll call. I am posting my profile information and hope to be a long-time participant.
About Christine W (California, LA area)

Gender
female
Age 55

How and when did you learn about your cancer?
After serous fluid leaking for two months I had D&C surgical procedure/biopsy and received cancer diagnosis Jan 2010. February hysterectomy/lymphadenectomy revealed papillary serous and clear cell adenocarcinoma with metastasis to one lymph node. UPSC.

What types of treatment(s) have occurred?
Surgical removal of cancer, total hysterectomy. Currently in chemo with carboplatin and Taxol (treatment 6 and last next week). Will be starting pelvic radiation and vaginal cuff brachytherapy within the next two months.

Comments:
I have tolerated chemo well and take off 4 days for treatment and rest and then back to work and my excercise program. The Neulasta keeps my WBC count up after every treatment. I am iron deficient and my hemglobin has been low since my surgery last February. So I am taking Slow Fe and eat prunes or fruit to avoid constipation.

I will be seeing a Radiation Oncologist for a second opinion in 2 weeks since my first consultation recommended 3D pelvic radiation. I want the IMRT. I hope the second opinion will confirm that I am a good candidate for IMRT. I will be getting vaginal cuff brachytherapy no matter what.

pjk said:

Gloria -
I was just diagnosed this month with Grade III uterine cancer. Surgery just was scheduled for June 29. Lots of worries here too. Lots of faith also! We were pretty shocked all last week, but it has settled in more. Now we are ready for the fight. Give yourself a little time. You will settle into the battle too.

It is hard when you have people like your parents who depend on you. When you feel ready, start reaching out to everyone in your sphere to help you with them. If you can be specific in their needs to the helpers, it works better. I have two elderly parents and three children in my home. My husband is good but he cannot do it all. We need people from the outside to help us too! My pastor says it actually is good for the helpers too.

My daughter, Angela
My daughter Angela, had cancer surgery July 8th, 2010 on her 38th birthday. She is married with three small children. She is out in California and will be treated at U.C. Davis Medical center. We all live in Texas. There is no family out there that is able to help. We will be flying back and forth. Her cancer is undifferentiated/endometriod 3c cancer. She is still iln the hospitall, but my be released today. Her wonderful mother-in-law, Mary, is two doors down in the same hospital with ovarian cancer IV and is not doing well. This is really hard on Angela. I really need to hear from somebody that has the same condition and doing well. Angela will start very aggressive treatment in two weeks. Linda

Christine W said:

Roll call, newcomer, Christine
I see I am responding a year later than the initial roll call. I am posting my profile information and hope to be a long-time participant.
About Christine W (California, LA area)

Gender
female
Age 55

How and when did you learn about your cancer?
After serous fluid leaking for two months I had D&C surgical procedure/biopsy and received cancer diagnosis Jan 2010. February hysterectomy/lymphadenectomy revealed papillary serous and clear cell adenocarcinoma with metastasis to one lymph node. UPSC.

What types of treatment(s) have occurred?
Surgical removal of cancer, total hysterectomy. Currently in chemo with carboplatin and Taxol (treatment 6 and last next week). Will be starting pelvic radiation and vaginal cuff brachytherapy within the next two months.

Comments:
I have tolerated chemo well and take off 4 days for treatment and rest and then back to work and my excercise program. The Neulasta keeps my WBC count up after every treatment. I am iron deficient and my hemglobin has been low since my surgery last February. So I am taking Slow Fe and eat prunes or fruit to avoid constipation.

I will be seeing a Radiation Oncologist for a second opinion in 2 weeks since my first consultation recommended 3D pelvic radiation. I want the IMRT. I hope the second opinion will confirm that I am a good candidate for IMRT. I will be getting vaginal cuff brachytherapy no matter what.

Roll call
Great idea, Christine using the profile information:

About Suzanne (Woodland, CA), Age 63


How and when did you learn about your cancer?
Routine well woman exams (mammogram and Pap smear) prompted further testing. I was diagnosed with both breast and endometrial cancers in late April 2010.


What types of treatment(s) have occurred?
On May 11, 2010, I had a lumpectomy and sentinal node biopsy for the breast cancer. Stage I,Grade 2 estrogen positive, progesterone negative, Her2 negative invasive ductal carcinoma, Oncotype DX = 31.

On July 1, I had DaVinci robotic assisted hysterectomy. Amazing recovery, that's all I can say. Most of my friends who have previously had hysterectomies aren't speaking to me! Cancer was Stage 1a, Grade 1. No adjuvant treatments recommended. Whew.

I began chemotherapy (Taxotere and Cytoxin) for the breast cancer July 23, 4 sessions 3 weeks apart. Will then do radiation for 6 weeks, then aromatase therapy.


What have been the most important things that have helped you through your survivorship?
Being able to communicate with people who understand. If you haven't been through or going through this process, you just don't understand!


What have you learned from your experiences that you would like to share?
To "let go and let God"


Are there positive experiences you would like to share?
Positive and surprising support from many many friends.


What else would you like to tell us?
I'm bothered by why there appears to be so little awareness of gynecologic cancers amongst the general population. Plenty of awareness of breast cancer for which I am not criticizing since I have it, too, but don't see much hype about what symptoms to look for, getting regular exams and why. I got regular exams and both cancers were detected on them, but I had no symptoms of either (postmenopausal bleeding or paplpable breast lump)

I'm also bothered by the number of individuals (and their surgeons)who go into surgery expecting early stage, non-aggressive cancer and get at "surprise".

RachelKass said:

Endometrial cancer/DES
Rachel Kass

Diagnosed with DES and endometrial cancer on August 28, 1991. Status post radical Hysterosalpingoopherctomy and removal of lymph nodes as Stage IIB Endometrial cancer with DES Cancer, adenomyosis, fibroid tumors and polycystic ovarian disease on September 30, 1991. I was in Ovarian failure at the time of surgery and placed on HRT until this year when my GP decided that I had been on hormones long enough. I *still* have hot flashes without the HRT. I was 35 years old when diagnosed. I live in Minnesota.

Hope it is not too late to join roll call
Hi Everyone,
I have learned so much allready from all of you and received so much support fromm all of you that I figured it is about time I introduce myself. My name is SUE and I just celebrated my 54th birthday. I was diagnosed in November of 2009. I had surgery that month and was staged as Grade 1 cell at stage IIIC. I just completed full pelvic radiation with a Cisplatnim chaser followed by four cycles of Carb/Taxol. I remain with peripheral neuropathies of my hands and feet (not fun). I had my first post treatment CT which I reported to all of you and I am dancing with NED.
Now I want to focus on feeling better and get healthy!! I really appreciate all of your suggestions and am learning so much from all of you. If I had to be in this club I count myself lucky to have met incredible, sweet and caring members!
SUE

PS I hate being bald!!