Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm

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Comments

  • susafina
    susafina Member Posts: 131

    Endometrial cancer/DES
    Rachel Kass

    Diagnosed with DES and endometrial cancer on August 28, 1991. Status post radical Hysterosalpingoopherctomy and removal of lymph nodes as Stage IIB Endometrial cancer with DES Cancer, adenomyosis, fibroid tumors and polycystic ovarian disease on September 30, 1991. I was in Ovarian failure at the time of surgery and placed on HRT until this year when my GP decided that I had been on hormones long enough. I *still* have hot flashes without the HRT. I was 35 years old when diagnosed. I live in Minnesota.

    Hope it is not too late to join roll call
    Hi Everyone,
    I have learned so much allready from all of you and received so much support fromm all of you that I figured it is about time I introduce myself. My name is SUE and I just celebrated my 54th birthday. I was diagnosed in November of 2009. I had surgery that month and was staged as Grade 1 cell at stage IIIC. I just completed full pelvic radiation with a Cisplatnim chaser followed by four cycles of Carb/Taxol. I remain with peripheral neuropathies of my hands and feet (not fun). I had my first post treatment CT which I reported to all of you and I am dancing with NED.
    Now I want to focus on feeling better and get healthy!! I really appreciate all of your suggestions and am learning so much from all of you. If I had to be in this club I count myself lucky to have met incredible, sweet and caring members!
    SUE

    PS I hate being bald!!
  • susafina
    susafina Member Posts: 131

    Endometrial cancer/DES
    Rachel Kass

    Diagnosed with DES and endometrial cancer on August 28, 1991. Status post radical Hysterosalpingoopherctomy and removal of lymph nodes as Stage IIB Endometrial cancer with DES Cancer, adenomyosis, fibroid tumors and polycystic ovarian disease on September 30, 1991. I was in Ovarian failure at the time of surgery and placed on HRT until this year when my GP decided that I had been on hormones long enough. I *still* have hot flashes without the HRT. I was 35 years old when diagnosed. I live in Minnesota.

    Hope it is not too late to join roll call
    Hi Everyone,
    I have learned so much allready from all of you and received so much support fromm all of you that I figured it is about time I introduce myself. My name is SUE and I just celebrated my 54th birthday. I was diagnosed in November of 2009. I had surgery that month and was staged as Grade 1 cell at stage IIIC. I just completed full pelvic radiation with a Cisplatnim chaser followed by four cycles of Carb/Taxol. I remain with peripheral neuropathies of my hands and feet (not fun). I had my first post treatment CT which I reported to all of you and I am dancing with NED.
    Now I want to focus on feeling better and get healthy!! I really appreciate all of your suggestions and am learning so much from all of you. If I had to be in this club I count myself lucky to have met incredible, sweet and caring members!
    SUE

    PS I hate being bald!!
  • susafina
    susafina Member Posts: 131

    Endometrial cancer/DES
    Rachel Kass

    Diagnosed with DES and endometrial cancer on August 28, 1991. Status post radical Hysterosalpingoopherctomy and removal of lymph nodes as Stage IIB Endometrial cancer with DES Cancer, adenomyosis, fibroid tumors and polycystic ovarian disease on September 30, 1991. I was in Ovarian failure at the time of surgery and placed on HRT until this year when my GP decided that I had been on hormones long enough. I *still* have hot flashes without the HRT. I was 35 years old when diagnosed. I live in Minnesota.

    Hope it is not too late to join roll call
    Hi Everyone,
    I have learned so much allready from all of you and received so much support fromm all of you that I figured it is about time I introduce myself. My name is SUE and I just celebrated my 54th birthday. I was diagnosed in November of 2009. I had surgery that month and was staged as Grade 1 cell at stage IIIC. I just completed full pelvic radiation with a Cisplatnim chaser followed by four cycles of Carb/Taxol. I remain with peripheral neuropathies of my hands and feet (not fun). I had my first post treatment CT which I reported to all of you and I am dancing with NED.
    Now I want to focus on feeling better and get healthy!! I really appreciate all of your suggestions and am learning so much from all of you. If I had to be in this club I count myself lucky to have met incredible, sweet and caring members!
    SUE

    PS I hate being bald!!
  • susafina
    susafina Member Posts: 131

    Endometrial cancer/DES
    Rachel Kass

    Diagnosed with DES and endometrial cancer on August 28, 1991. Status post radical Hysterosalpingoopherctomy and removal of lymph nodes as Stage IIB Endometrial cancer with DES Cancer, adenomyosis, fibroid tumors and polycystic ovarian disease on September 30, 1991. I was in Ovarian failure at the time of surgery and placed on HRT until this year when my GP decided that I had been on hormones long enough. I *still* have hot flashes without the HRT. I was 35 years old when diagnosed. I live in Minnesota.

    Hope it is not too late to join roll call
    Hi Everyone,
    I have learned so much allready from all of you and received so much support fromm all of you that I figured it is about time I introduce myself. My name is SUE and I just celebrated my 54th birthday. I was diagnosed in November of 2009. I had surgery that month and was staged as Grade 1 cell at stage IIIC. I just completed full pelvic radiation with a Cisplatnim chaser followed by four cycles of Carb/Taxol. I remain with peripheral neuropathies of my hands and feet (not fun). I had my first post treatment CT which I reported to all of you and I am dancing with NED.
    Now I want to focus on feeling better and get healthy!! I really appreciate all of your suggestions and am learning so much from all of you. If I had to be in this club I count myself lucky to have met incredible, sweet and caring members!
    SUE

    PS I hate being bald!!
  • susafina
    susafina Member Posts: 131
    susafina said:

    Hope it is not too late to join roll call
    Hi Everyone,
    I have learned so much allready from all of you and received so much support fromm all of you that I figured it is about time I introduce myself. My name is SUE and I just celebrated my 54th birthday. I was diagnosed in November of 2009. I had surgery that month and was staged as Grade 1 cell at stage IIIC. I just completed full pelvic radiation with a Cisplatnim chaser followed by four cycles of Carb/Taxol. I remain with peripheral neuropathies of my hands and feet (not fun). I had my first post treatment CT which I reported to all of you and I am dancing with NED.
    Now I want to focus on feeling better and get healthy!! I really appreciate all of your suggestions and am learning so much from all of you. If I had to be in this club I count myself lucky to have met incredible, sweet and caring members!
    SUE

    PS I hate being bald!!

    Roll call
    Yikes my computer froze so I didn't think I posted. I guess it posted 6 times to be exact! Sorry all
  • bea-mil
    bea-mil Member Posts: 108
    My story
    In 2001 after regular pop smear test, but LEEP and D&C have not confirmed that then. I had to wait 9 years and run more tests (pop smears, Ultrasounds, colposcopies, biopsies, MRI's etc. for my cancer to be confirmed in March 2010. The bleading between the periods that I had all the time was taken as a symptom of my uterine fibroids. Other symptoms -changes in bowel pattern - were misdiagnosed with irritable bowel syndrom.
    My cancer was staged as 1B and upstage by another pathologist (oncology clinic) to 3A grade 1/2. The cancer had spread to the outer lining of the uterus, but not to other organs.

    I had total hysterectomy March 23rd, 2010(including the uterus, fallopian tubes, ovaries and cervix). No lymph nodes were taken. My surgery was performed by my gynecologist (not oncologist). My radiation therapy sessions were scheduled for July 12th 2010. I had my simulation planning session, got my little tattoos, and have decided to stop the conventional treatments at this point.
    My treatment now: healthy diet, exercise, meditation, change of way of thinking, plus alternative approach (reiki, Gerson's, Budwig's therapies and more).

    I believe that everything has its purpose and even the worst thing (like cancer) can lead to something good. In my case to my surprise this terrible illness gave me calm and peace and understanding towards others than I’ve ever had. I feel that I’m totally new person. I will do everything (natural way) to get better and live long my new life; I believe that God gave us everything on this earth to stay healthy and happy. We just have to learn how to benefit from that.
  • Ksfarmgal
    Ksfarmgal Member Posts: 4

    my daughter, Angela
    My daughter Angela, had cancer surgery July 8th, 2010 on her 38th birthday. She is married with three small children. She is out in California and will be treated at U.C. Davis Medical center. We all live in Texas. There is no family out there that is able to help. We will be flying back and forth. Her cancer is undifferentiated/endometriod 3c cancer. She is still iln the hospitall, but my be released today. Her wonderful mother-in-law, Mary, is two doors down in the same hospital with ovarian cancer IV and is not doing well. This is really hard on Angela. I really need to hear from somebody that has the same condition and doing well. Angela will start very aggressive treatment in two weeks. Linda

    I have 3c endometrial cancer
    I was diagnosed in January of 2010. I had the total hysterectomy, the 6 weeks of chemo and the 5 weeks of abdominal radiation. My last Chemo was 5/18/10 and my last radiation was the 2nd week of July. I was able to work full time through it all-only off for treatments. I had a tougher time with the radiation but still worked. I have had 4 days now of feeling really well. I am back to swimming,walking (not running yet) and eating pretty normally. I have enough hair to feel OK without a hat and I have eyelashes and eyebrows! I won't say it was not hard and the prognosis is not great but i am learning to live 1 day at a time and not put off those things I thought I would do someday-today is the day!
  • Wriggit
    Wriggit Member Posts: 1
    susafina said:

    Roll call
    Yikes my computer froze so I didn't think I posted. I guess it posted 6 times to be exact! Sorry all

    What is happening cancerwise in my world....
    Where do I start? I have the BRCA1 gene, as does my mother. I had breast cancer in 1999, and had a bilateral mastectomy with latismus dorsii reconstruction, followed by chemo for 6 months. I have been cancer free since then.

    My mother started her personal cancer journey in 1978 with bowel cancer (resection only); breast cancer in 1991 (lumpectomy, radiotherapy and treatment with Tamoxifen for 5 year); bladder cancer in 2007 (Surgery, BCG vaccinations- this has recurred every 6 months or so); Uterine cancer 2009 (MMMT- treated with hysterectomy and pelvic radiation.She also has had laser surgery for precancerous cells on the cervix, and surgery for a squamous cell carcinoma on her arm.


    Last Monday August 9th 2010, she was told she had a secondary MMMT in pelvis which is squeezing her ureter and causing a backup of urine in the kidney. She was told there was nothing they could do for her MMMT, but they could manage the pain. ANd that was it! She was flattened, devastated.... But, we got a second opinion. She will now start a Taxol-Carboplatin chemothepy regimen today. At least she has some treatment and hope, because the news given by her very insensitive (and former) oncologist crushed the life out of her. That will buy us time while I get further information on other treatments such as HIFU and Cyberknife, plus the SPDT treatment in China. Has anyone else investigated these?

    On another tack, my oldest brother was diagnosed in 2007 also, with bowel cancer. He had a resection and chemotherapy. It has since metasisized 3 times to the liver. The first 2 times he was treated with laser ablation, but that hasn't worked as it has grown back again, and this time it brought a friend with it. He will have a resection shortly, and hopefully that will be that. The issue (above all that) is that he is autistic, so it is all very confronting for him, but also for Mum who bears the brunt of his rantings, anger and fear. Not good.

    And then there has been Mum's father who died of bowel cancer, Mum's sister that died of breast cancer, and her daughter with ovarian cancer- still alive and doing very well.


    Me? I am currently caring for and overseeing the care of my mother and brother. I have moved from Melbourne (Australia) to Perth (also Australia) to be here to support them, plus my father who has Parkinson's and Alzheimers. It is a complex household.... Plus, I have my two teenage daughters with me as well. Another variety of complexity there....

    I have used my profile information and pieced it together- so this may sound disjointed as you read it. Apologies.....
  • Chris43
    Chris43 Member Posts: 2
    Wriggit said:

    What is happening cancerwise in my world....
    Where do I start? I have the BRCA1 gene, as does my mother. I had breast cancer in 1999, and had a bilateral mastectomy with latismus dorsii reconstruction, followed by chemo for 6 months. I have been cancer free since then.

    My mother started her personal cancer journey in 1978 with bowel cancer (resection only); breast cancer in 1991 (lumpectomy, radiotherapy and treatment with Tamoxifen for 5 year); bladder cancer in 2007 (Surgery, BCG vaccinations- this has recurred every 6 months or so); Uterine cancer 2009 (MMMT- treated with hysterectomy and pelvic radiation.She also has had laser surgery for precancerous cells on the cervix, and surgery for a squamous cell carcinoma on her arm.


    Last Monday August 9th 2010, she was told she had a secondary MMMT in pelvis which is squeezing her ureter and causing a backup of urine in the kidney. She was told there was nothing they could do for her MMMT, but they could manage the pain. ANd that was it! She was flattened, devastated.... But, we got a second opinion. She will now start a Taxol-Carboplatin chemothepy regimen today. At least she has some treatment and hope, because the news given by her very insensitive (and former) oncologist crushed the life out of her. That will buy us time while I get further information on other treatments such as HIFU and Cyberknife, plus the SPDT treatment in China. Has anyone else investigated these?

    On another tack, my oldest brother was diagnosed in 2007 also, with bowel cancer. He had a resection and chemotherapy. It has since metasisized 3 times to the liver. The first 2 times he was treated with laser ablation, but that hasn't worked as it has grown back again, and this time it brought a friend with it. He will have a resection shortly, and hopefully that will be that. The issue (above all that) is that he is autistic, so it is all very confronting for him, but also for Mum who bears the brunt of his rantings, anger and fear. Not good.

    And then there has been Mum's father who died of bowel cancer, Mum's sister that died of breast cancer, and her daughter with ovarian cancer- still alive and doing very well.


    Me? I am currently caring for and overseeing the care of my mother and brother. I have moved from Melbourne (Australia) to Perth (also Australia) to be here to support them, plus my father who has Parkinson's and Alzheimers. It is a complex household.... Plus, I have my two teenage daughters with me as well. Another variety of complexity there....

    I have used my profile information and pieced it together- so this may sound disjointed as you read it. Apologies.....

    Stage IV
    My name is Christine and I have currently chemotherapy for stage IV uterine cancer.
    ( Taxol and Carboplatin )
    I had external rad. Nov./ Dec.2010.
    My age is 42 years.
    I have recurr.brest cancer too.
  • upsofloating
    upsofloating Member Posts: 466
    Chris43 said:

    Stage IV
    My name is Christine and I have currently chemotherapy for stage IV uterine cancer.
    ( Taxol and Carboplatin )
    I had external rad. Nov./ Dec.2010.
    My age is 42 years.
    I have recurr.brest cancer too.

    Christine, I am sorry you
    Christine, I am sorry you have to be here. I also have had breast cancer orig @ age 41, then recurrence @48. Three years ago @56, diagnosed with UPSC, Stage IV. I was treated with tamoxifen for nearly 7 yrs which may be implicated in my uterine cancer. Do you have anti-hormone treatment?
    This is a great resource board to bring all your questions and concerns to, as we try to help each other as much as possible.
    Welcome,
    --Annie
  • upsofloating
    upsofloating Member Posts: 466
    Chris43 said:

    Stage IV
    My name is Christine and I have currently chemotherapy for stage IV uterine cancer.
    ( Taxol and Carboplatin )
    I had external rad. Nov./ Dec.2010.
    My age is 42 years.
    I have recurr.brest cancer too.

    Christine, I am sorry you
    Christine, I am sorry you have to be here. I also have had breast cancer orig @ age 41, then recurrence @48. Three years ago @56, diagnosed with UPSC, Stage IV. I was treated with tamoxifen for nearly 7 yrs which may be implicated in my uterine cancer. Did you have anti-hormone treatment?
    This is a great resource board to bring all your questions and concerns to, as we try to help each other as much as possible.
    Welcome,
    --Annie
  • HellieC
    HellieC Member Posts: 524 Member

    Christine, I am sorry you
    Christine, I am sorry you have to be here. I also have had breast cancer orig @ age 41, then recurrence @48. Three years ago @56, diagnosed with UPSC, Stage IV. I was treated with tamoxifen for nearly 7 yrs which may be implicated in my uterine cancer. Did you have anti-hormone treatment?
    This is a great resource board to bring all your questions and concerns to, as we try to help each other as much as possible.
    Welcome,
    --Annie

    Helen - England, United Kingdom
    Brief (!) diagnosis history:
    Sept 2001: D&C for abnormal bleeding - diagnosed as hyperplasia with atypia(? cancer)
    Oct 2001: TAH/BSO - no cancer found - declared cured - no further treatment required!
    Dec 2007: abnormal bleeding - scanned, biopsied and diagnosed as vaginal vault recurrence (adenocarcinoma, Grade 1) - original hysterectomy sample re evaluated - still no cancer found.
    Jan 2008: 6.5 weeks radiotherapy (total dose 60 Gy) to pelvis
    July 2008: declared NED and stayed clear for 2.5 years until
    July 2010: abnormal bleeding - scanned and found second recurrence at vaginal vault and wrapped around sigmoid colon
    August 2010: Resection and sigmoid colectomy. All visible cancer removed. Biopsies taken from bladder and peritoneum during surgery showed adenocarcinoma microscopic metastases (Grade 2).
    Sept 2010 - present: receiving taxol/carboplatin, 6 cycles, one cycle every three weeks.

    What a great idea to have a thread where we can all summarise our situation! I have just had my 5th taxol/carboplatin cycle - one more to go! I am fighting a second recurrence of adenocarcinoma diagnosed in July 2010. I had surgery in August 2010, to remove visible tumour growing in vaginal vault, pouch of douglas and wrapped around sigmoid colon. Have a colostomy as a result but I'm getting used to it gradually!
    Wishing you all well
    Helen
  • Domina
    Domina Member Posts: 62
    HellieC said:

    Helen - England, United Kingdom
    Brief (!) diagnosis history:
    Sept 2001: D&C for abnormal bleeding - diagnosed as hyperplasia with atypia(? cancer)
    Oct 2001: TAH/BSO - no cancer found - declared cured - no further treatment required!
    Dec 2007: abnormal bleeding - scanned, biopsied and diagnosed as vaginal vault recurrence (adenocarcinoma, Grade 1) - original hysterectomy sample re evaluated - still no cancer found.
    Jan 2008: 6.5 weeks radiotherapy (total dose 60 Gy) to pelvis
    July 2008: declared NED and stayed clear for 2.5 years until
    July 2010: abnormal bleeding - scanned and found second recurrence at vaginal vault and wrapped around sigmoid colon
    August 2010: Resection and sigmoid colectomy. All visible cancer removed. Biopsies taken from bladder and peritoneum during surgery showed adenocarcinoma microscopic metastases (Grade 2).
    Sept 2010 - present: receiving taxol/carboplatin, 6 cycles, one cycle every three weeks.

    What a great idea to have a thread where we can all summarise our situation! I have just had my 5th taxol/carboplatin cycle - one more to go! I am fighting a second recurrence of adenocarcinoma diagnosed in July 2010. I had surgery in August 2010, to remove visible tumour growing in vaginal vault, pouch of douglas and wrapped around sigmoid colon. Have a colostomy as a result but I'm getting used to it gradually!
    Wishing you all well
    Helen

    Can we have a roll call advising of names & diagnosis?
    54 yrs. old
    Endometrioid Adenocarcinoma Grade 2

    How and when did you learn about your cancer?

    Symptoms: Vaginal bleeding/Ovarian pain 10/23/10.

    Status: 2 years post menopause.

    Tests: Transvaginal Ultrasound showing thick endometrial lining 9mm plus Uterine mass.
    Diagnosed: Endometrial Cancer Grade 2 on 12/21/10 via D & C with Hysterscope.

    Scheduled for complete hysterectomy on 1/12/11, including uterus, fallopian tubes, ovaries, cervix & lymph nodes. Possible appendix removal & biopsy of bladder & rectum.

    Then I will learn staging & prognosis.
  • firstsister
    firstsister Member Posts: 13
    Hi all you wonderful ladies. I'm responding to linda's request for a roll call. I first joined cancer survivors network in Sept. 2009 because my brother has lumbar/sacral plexopathy, a long term result of radiation he had about 15 years ago for anal cancer. I was looking for help for him.

    Now I have Stage 3-C UPSC diagnosed Sept. 2010 after complete hysterectomy. Have had three cycles of carboplatin/taxol and start 5 weeks of radiation probably next week followed by more chemo. So far so good. CA 125 at 14.8 down from 92.6 before chemo. Blood numbers good. Nervous about radiation and especially long term effects of it.

    I'm 72 and live in central Florida.

    What a comfort, source of information and inspiration you all are. Happy New Year and a better 2011.
  • antigone_42
    antigone_42 Member Posts: 8

    i am also diagnosed with endometrial cancer, stage 1
    Yerba, i hope that you are well after your megace treatments. I had a d&c on 1/15/10 and started megace also... i was hopeful about this treatment but i am having some strange side effects and wonder if you experienced any of this when you started this drug.
    my throat feels like there is something deep down in it, although my breathing does not seem to be effected. last nite after taking the 40mg (iam also taking 80mg per day) and my tongue and top of my mouth began to be hot and tingly! Obviously i am concerned about my throat closing up... did you expereince any of these side effects? I spoke with my dr today and he stated this is very unusual and does not sound like an allergic reaction but cant explain it either. He gave me permission to not take the drug and see if my symptoms disappear and then start again on less mgs per day.
    hope this gets to you and finds you well after this treatment. itoo do not want to have to undergo a hysterectomy at this stage of cancer if there is a more conservative and effective treatment. thanks for your help

    Roll call
    My name is Christy and I was diagnosed with endometrial cancer around Thanksgiving 2010, my doctor called the cells pre-cancerous, not sure if that is the same as Stage 1A or not. I am currently about 40 days into a 90-day Megace hormone therapy (40mg, 3x/day), at the end of which I will have a D&C so they can do another pathology on my uterine lining. I chose this path because my husband and I were hoping to have children and the gyn onc indicated this as a method that might allow us a chance to do that before I have to have a hysterectomy.

    Cindcurran - I have had relatively few side effects so far on the Megace treatment, a few light headaches, but nothing like those you are mentioning. This week I have had some light spotting, but when I called and spoke with my doctor, he indicated that this still sometimes happens on the therapy and that it requires the full 90 days to do it's work. I am still hopeful that it will work to successful results.
  • RGK
    RGK Member Posts: 20

    Hi all you wonderful ladies. I'm responding to linda's request for a roll call. I first joined cancer survivors network in Sept. 2009 because my brother has lumbar/sacral plexopathy, a long term result of radiation he had about 15 years ago for anal cancer. I was looking for help for him.

    Now I have Stage 3-C UPSC diagnosed Sept. 2010 after complete hysterectomy. Have had three cycles of carboplatin/taxol and start 5 weeks of radiation probably next week followed by more chemo. So far so good. CA 125 at 14.8 down from 92.6 before chemo. Blood numbers good. Nervous about radiation and especially long term effects of it.

    I'm 72 and live in central Florida.

    What a comfort, source of information and inspiration you all are. Happy New Year and a better 2011.

    Thought I'd add myself to
    Thought I'd add myself to this list:

    I was diagnosed with Stage IIIc, grade 1-2 endometrial adenocarcinoma in May 2008; went through 6 rounds of carboplatin/docetaxol, 26 external radiation treatments, and 1 brachytherapy, finishing in 12/08. Clean exams and PET/CTs until last week, with suspected recurrence in mediastinal and hilar lymph nodes (in chest).

    I'm 51 years old, and live in Minneapolis, treated at the University of Minnesota.

    Very grateful for the knowledge and support on this list!

    Reg
  • zarkapopovic
    zarkapopovic Member Posts: 30
    yerba said:

    Thank you, Linda - sending you good wishes
    Linda,

    Thanks for welcoming newbies here.

    I go by "yerba" (I love plants.)
    Diagnosed with endometrioid endometrial cancer, on biopsy, 1/23/09.
    I'm taking 80 mg Megace/day and in the process of looking for any alternatives to hysterectomy (if anyone knows of any cases of good outcomes w/o hysterectomy.)
    I live in Northern California and am going to see a gynecological oncologist near Stanford University April 10.

    **
    Linda, I see you offer a lot of support and information on here for others, and hope that all your generosity comes back to you a thousand fold in support, and healing through your treatments. Best wishes.

    yerba

    Calling Yerba
    Where do you live in Northern California and may I ask who your gyn onc is? Thanks in advance!

    Zarka
  • zarkapopovic
    zarkapopovic Member Posts: 30
    yerba said:

    Thank you, Linda - sending you good wishes
    Linda,

    Thanks for welcoming newbies here.

    I go by "yerba" (I love plants.)
    Diagnosed with endometrioid endometrial cancer, on biopsy, 1/23/09.
    I'm taking 80 mg Megace/day and in the process of looking for any alternatives to hysterectomy (if anyone knows of any cases of good outcomes w/o hysterectomy.)
    I live in Northern California and am going to see a gynecological oncologist near Stanford University April 10.

    **
    Linda, I see you offer a lot of support and information on here for others, and hope that all your generosity comes back to you a thousand fold in support, and healing through your treatments. Best wishes.

    yerba

    Calling Yerba
    Where do you live in Northern California and may I ask who your gyn onc is? Thanks in advance!

    Zarka
  • zarkapopovic
    zarkapopovic Member Posts: 30
    kathybd said:

    Roll call from San Jose,CA
    Hello My name is Kathy, 57 with endometrial adenocarcinoma Stage 1, Grad 2-3. Had the DaVinci surgery last Mon at ElCamino Hspital in Mountain View. My Doc is reccomending taxol/carbo..for 3 cycles as a precaution. Am scared and nervous about side effects and having to work as an LVN during treatment in an Internist office. Scared about being exposed to something while being immunosuppressed and nervous about wearing a wig. This is a small office and my boss is not very supportive. Not sure where I will have my treatment. Either at Stanford or near the hospital I had surgery. Have my followup appointment next Mon. To make life more complicated, last year my husband was diagnosed with Stage 4 colon cancer..adenocarcinoma also. Did very well with chemo and surgery, but had return of cancer in his liver and new spots in his lung I have found this site extremely helpful and supportive, with some extremely educated, caring women. Thank you all for being there for us struggling.

    Who is your gyn onc?
    Would you mind letting me know who your doc is?

    Thanks in advance,

    Zarka
  • zarkapopovic
    zarkapopovic Member Posts: 30
    ROLL CALL
    I live in Northern CA near Chico. I am being treated at the Palo Alto Medical Foundation in Mtn. View CA for endometrial adenocarcinoma stage IVB, grade I. Am trying to get into a clinical trial. I had surgery in November of 2010 and have not had any chemo or radiation yet due to an open wound that needed to close (it is closed).

    There is another worldwide listserve that has been helpful to me that you may be interested in learning about called eyes on the prize. If you search the internet you will find them.

    Hope to hear from everyone,

    Zarka