Roll Call, January 2009
Comments
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Better late than...............well, okay, wayyyy late
Sorry for not checking in more often. Jkinobay here, doing great, about 18 months post treatments and doing great. Still live/work/fish in Bahia de Kino (Kinobay) Mexico but Docs are in Tucson, Az. Have 18 mo. PET coming up 4/14. "Changitos".......Spanish for crossed fingers.
Sad to report that one of our brief members from early 2008, MOM674, passed away in Dec. 08. She fought it hard and had a tough run but suffers no more.
Promise to check in more often. Take care and God Bless to all.
JK0 -
Roll Call...jkinobay said:Better late than...............well, okay, wayyyy late
Sorry for not checking in more often. Jkinobay here, doing great, about 18 months post treatments and doing great. Still live/work/fish in Bahia de Kino (Kinobay) Mexico but Docs are in Tucson, Az. Have 18 mo. PET coming up 4/14. "Changitos".......Spanish for crossed fingers.
Sad to report that one of our brief members from early 2008, MOM674, passed away in Dec. 08. She fought it hard and had a tough run but suffers no more.
Promise to check in more often. Take care and God Bless to all.
JK
Hi there from Northern Virginia, another Esthesioneuroblastoma survivor. I was diagnosed in Oct 08 and had surgery in Nov 08 with follow-up radiation in March 09. Hoping for clean scans in June and will welcome the July roll call.
Cheers & Blessings,
Patti0 -
Hi PattiPBailey said:Roll Call...
Hi there from Northern Virginia, another Esthesioneuroblastoma survivor. I was diagnosed in Oct 08 and had surgery in Nov 08 with follow-up radiation in March 09. Hoping for clean scans in June and will welcome the July roll call.
Cheers & Blessings,
Patti
Saw you are on line and posted. I just came back from my check up, 5 months after my last radiation, and Dr is pleased with the results, no sign of new disease forming and I am healing nicely. Still some annoying side effects... but Im sure they will eventually go away. or atleast I hope the do
Hang in there!!
Sirena0 -
Good News!SIRENAF42 said:Hi Patti
Saw you are on line and posted. I just came back from my check up, 5 months after my last radiation, and Dr is pleased with the results, no sign of new disease forming and I am healing nicely. Still some annoying side effects... but Im sure they will eventually go away. or atleast I hope the do
Hang in there!!
Sirena
Sirena,
Who could ask for more, what a great report! I am doing really well after radiation, I seem to still be healing but no complaints from my little corner of the world. Sorry about the side effects,let's hope they go away soon. I still have no sense of smell but I still have hope that one day it will return. Wishing you well..when do you go back for another check up? I have a post-radiation visit on the 1st then MRI in June. You hang in there too!
Cheers,
Patti0 -
Too early for Roll Call, I knowHAWVET said:Summary of responses
Thank you for those who have responded so far.
TR2 - I do hope your Dad is doing well. Before you know it, radiation treatment will be over. Here’s wishing that the treatment is successful.
Victor53 - Am glad you are doing well now. I remember when you first came on and I was reading your threads. I do not know if it is too personal, but what do you do in Costa Rica?
Hunpot - I do hope that inner feeling of losing that special someone has become more tolerable. Thank you for staying on the board and offering your assistance and knowledge to those of us who have under gone this dreaded disease. Take care.
Slickwilly - It is not too surprising that many of us share the same experiences. I have my teeth cleaned at least three times a year. I asked my dentist to do his best to save my teeth as best as possible. They decay more frequently. I have a couple of teeth that were patched (filled in) twice. He got me on a prescription fluoride toothpaste and I rinse nightly with ACT. I agree, there are a lot of good individuals here. There isn’t anything better than the first hand experiences from those in this forum.
Ljoy - Am glad your 2008 scan showed up cancer free. It was about three years after my treatment that I was given the green light. I had a slight chuckle on your freezing in Minnesota and here I am in a T-shirt, both in and out of the house.
Sassyque - I remember the weather in Pennsylvania having been stationed with the military in a place called Oakdale in Pittsburgh. For a while, the Steelers had been my team. I too am rooting for them since I had placed a small futures bet for them to win the superbowl. I had wanted Philadelphia to have beaten Arizona and it would have been an all Pennsylvania Superbowl. I also had a small bet on them and I would have had a guaranteed winner.
Train-Nut - Thank you for responding. The Sooners almost did it this year at the Orange bowl. May be next year.
TO THE REST: Please respond. No comments are necessary. I do wish you are all well.
Aloha,
Johnny
But, I just had to tell you that I just had my 18mo. PET/CT scan and it was "clean as a whistle". Feeling better all the time, especially with great news like that.
Stay well..................JK0 -
greatjkinobay said:Too early for Roll Call, I know
But, I just had to tell you that I just had my 18mo. PET/CT scan and it was "clean as a whistle". Feeling better all the time, especially with great news like that.
Stay well..................JK
had my 1st pet scan 5 months after treatment 2 weeks ago i get results tommorow0 -
right side where giant lemon sized lymphnode and tonsil into base of tongue tumor were shows totaly clean.
A little concern but they say is most likely nothing showed a mild uptake on left side mandible and a tiny spot on thyroid.
They say thats what pet scan showed but they dont see anything thing on the cat scan.
They say very unlikely spread to left side and thyroid spots are common. I feel great except for some nuerapothy on left hand and bottom of feet which seems to be getting better. My salvia is pretty good. Sweet taste buds are still messed up which is sort of a good thing.
So they say another cat scan in 3 months and another pet in 6 months. Im heading back to the jungle in costa rica in August for a month or so. Then up here in rhode island for rainy season till xmas, they back to jungle for january thru june.
You were living in mexico right? still?
Thanks for checking on me Victor Brown0 -
CONGRATULATIONS ON THE GREAT RESULTSvictor53 said:right side where giant lemon sized lymphnode and tonsil into base of tongue tumor were shows totaly clean.
A little concern but they say is most likely nothing showed a mild uptake on left side mandible and a tiny spot on thyroid.
They say thats what pet scan showed but they dont see anything thing on the cat scan.
They say very unlikely spread to left side and thyroid spots are common. I feel great except for some nuerapothy on left hand and bottom of feet which seems to be getting better. My salvia is pretty good. Sweet taste buds are still messed up which is sort of a good thing.
So they say another cat scan in 3 months and another pet in 6 months. Im heading back to the jungle in costa rica in August for a month or so. Then up here in rhode island for rainy season till xmas, they back to jungle for january thru june.
You were living in mexico right? still?
Thanks for checking on me Victor Brown
Yeah, I had my share of scary false positives. I think they are common.
Yes, still living/working in Mexico up north about 200 miles south of Tucson, Az. No Swine Flu here yet but practicing the basic precautions.
Take care and way to knock it out of the park. JK0 -
Present
I'm still here. I've been busy with a new job lately and my last follow-up was good so all is good here.
I did have a "spot" show up on my right lung after my last scan of my liver so there is a little tenseness there but we will do another scan in a couple of months and I expect it to remain the same (no change). If so I will then relax and be able to fully move on with my life.
Wayne0 -
Don't wait to move on with your life.wboaz said:Present
I'm still here. I've been busy with a new job lately and my last follow-up was good so all is good here.
I did have a "spot" show up on my right lung after my last scan of my liver so there is a little tenseness there but we will do another scan in a couple of months and I expect it to remain the same (no change). If so I will then relax and be able to fully move on with my life.
Wayne
Congratulations on the new job. I am sure that helps keep you going and your mind from drifting off to the wrong places. We all go through it. But, do the best you can to move on...........don't wait.
I'll be praying for your successfully clear scan in a couple of months.
JK0 -
Follow upwboaz said:Present
I'm still here. I've been busy with a new job lately and my last follow-up was good so all is good here.
I did have a "spot" show up on my right lung after my last scan of my liver so there is a little tenseness there but we will do another scan in a couple of months and I expect it to remain the same (no change). If so I will then relax and be able to fully move on with my life.
Wayne
WBOAZ,
What ended up being the results of your "spot" in the lung? I seem to worry about something like that every time I cough! I go back and forth from feeling confident that I beat the monster to overly worrying about recurrance! I still say the psychological number this thing does to you is the worst part about it! Once they cure you, they need to figure out a medical way to wipe it from your brain!
Base of tongue. Chemo/Radiation finished 11/15/2008. Two lymph nodes removed prior to treatments. Clean PET/CT as of July 2009. Clean physical exams to date.
Thx0 -
Hello Bany! Not sure if youbany said:i hope everyone is doing
i hope everyone is doing well too.
TR2 (my dad)
Ottawa, Canada
ssc maxillary sinus, radical surgery june 2008
cancer returned december 2008
waiting for radiation treatments to begin
Hello Bany! Not sure if you still use this website anymore, but I saw you are from Ottawa, Canada! I'm from Canada too! Could you let me know if you are still here?
Fishingirl (Cindy)0
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