Roll Call, January 2009

fishingirl

Not sure if I am doing this
Not sure if I am doing this right. But if this is roll call, I'm assuming you want the names and type of cancer they have?

My name is Fishingirl (Cindy)and I finished my last radiation treatment 30 days ago. I was diagosed with squamous cell carcinoma. And I too wish everyone on here the very best health!

pattyanny

Undiagnosed Primary, Head &
Undiagnosed Primary, Head & Neck, Diagnosed 7/2009, New York
Finished TX -Radiation & Chemo (cysplatin) on 10/16/2009, awaiting PET Scan 1/2009.

MLC53

2 1/2 Years post treatments
Hi everyone,
I'm 2 1/2 years post treatments. I am still learning how to adapt to my "new normal" and am doing well so far. I hope all of you other survivors are too.
My sincere condolences to those who didn't make it...my thoughts and prayers are with them and their families and loved ones. May God bless them and keep them.

Landranger25

MLC53 said:

2 1/2 Years post treatments
Hi everyone,
I'm 2 1/2 years post treatments. I am still learning how to adapt to my "new normal" and am doing well so far. I hope all of you other survivors are too.
My sincere condolences to those who didn't make it...my thoughts and prayers are with them and their families and loved ones. May God bless them and keep them.

MIke in Michigan
Hi everyone, diagnosed June 2009 with SCC base of tongue. 6 weeks out of rad & chemo now and feeling super good. Eating pretty much whatever I want, been back to work for a month, ice hockey with my 10 year old daughter couple times a week. 1st PET scan coming up in next couple weeks. Just saw surgeon yesterday, he's very happy with what he see's and says keep it up. Thank-you all for your comments and encouragement, you are a very special group.

Mike

victor53

Landranger25 said:

MIke in Michigan
Hi everyone, diagnosed June 2009 with SCC base of tongue. 6 weeks out of rad & chemo now and feeling super good. Eating pretty much whatever I want, been back to work for a month, ice hockey with my 10 year old daughter couple times a week. 1st PET scan coming up in next couple weeks. Just saw surgeon yesterday, he's very happy with what he see's and says keep it up. Thank-you all for your comments and encouragement, you are a very special group.

Mike

1 year and 1 month ouy
So far so good i actually feel great ,quitting smoking and losing my sweet taste buds sure help.
Only problem is when i let my mind wander into the reacurrance zone because of some little twinge or
feeling thats different in the neck/mouth area.

Hondo

Hi Everyone

Hondo from Louisiana, Cancer type NPC started in 2002.

Still here and doing well, PET scan on Dec 7 so keep me in Prayer.

Glenna M

Hondo said:

Hi Everyone

Hondo from Louisiana, Cancer type NPC started in 2002.

Still here and doing well, PET scan on Dec 7 so keep me in Prayer.

Not on roll call
I am not on the roll call as I have just finished my treatments in September. I was treated for squamous cell carcinoma of the larynx and then treated for nsclc adenocarcinoma in my left lung. Needless to say it was a long summer.

I have my first CT scan sometime in December, I don't know the date yet as the hospital doesn't make appointments that far in advance. Hopefully I will get good news before Christmas.

I live in New Hampshire and I'm freezing my butt off right now :-)

Hondo I will definitely keep you in my prayers.

Good luck and continued improvement to everyone on this site.

Glenna

Skiffin16

Alive and Kicking
I am here as well, and hope to be for many more years.

Diagnosed and treated for SCC stage III right tonsil (HPV derived).

I found out I had throat cancer January 2, 2009. I went through the nine weeks of chemo (Cisplaten, Taxotere, and 5FU), then seven week of concurrent chemo/radiation (Carboplaten, Amifostine injections every day and 35 radiation exposures), finished all of that mid June 2009.

First PET and CT's were clean and I'm in the regular scan/lab stages at present every few months.

God Bless all who have endured, and continue to do so....
John

SASH

Skiffin16 said:

Alive and Kicking
I am here as well, and hope to be for many more years.

Diagnosed and treated for SCC stage III right tonsil (HPV derived).

I found out I had throat cancer January 2, 2009. I went through the nine weeks of chemo (Cisplaten, Taxotere, and 5FU), then seven week of concurrent chemo/radiation (Carboplaten, Amifostine injections every day and 35 radiation exposures), finished all of that mid June 2009.

First PET and CT's were clean and I'm in the regular scan/lab stages at present every few months.

God Bless all who have endured, and continue to do so....
John

Kicking and screaming
I'm still here

jestawoman

New to Roll Call from Salem, Oregon NPC
I would like to add my 42 year old brother, Troy to roll call if I may. He was first diagnosed in early 2006 with Nasopharyngeal Carcinoma with mets to the base of his skull. He has been through the gamut of different treatments, hospitalizations, surgeries, including radical left neck dissection, feeding tubes, chemo lines, several malignant lymph nodes removed, thyroid problems, kidney problems, ureteral strictures... At this time, as I understand it, he is stage 4 recurrent NPC. He has had 17 of 37 reirradiation treatments with Tomotherapy while continuing weekly chemo treatments with Erbitux, which he has been on for almost 6 months.
God Bless everyone here, past and present.

SmithMama2

here in Atlanta, Georgia
My husband Kevin was diagnosed with stage 4a base of tongue squamous cell carcinoma in June 09. He had neck disscetion surgery, oral surgery, peg tube placement, and an exploratory biopsy before his treatment began in August 09. He had one chemo round of cisplatin, but then he started to lose hearing, so they switched him to carboplatin and taxol for 5 more rounds over a 7 week time frame. Simultaneously he had 35 daily radiation treatments. He finished treatment in October 09. In December 09 eight weeks after his last treatment, he had a clean PET/CT scans, and they have classified him in remission! Hooray!!!

We credit his recuperation to the excellent care he received from Emory Winship Cancer Institute from a wonderful team of doctors: Dr. Beitler (radiation oncology), Dr. Saba (medical oncology), and Dr. Wadsworth (ENT surgeon).

Karen, proud wife of a SURVIVOR!!!

Kent Cass

pattyanny said:

Undiagnosed Primary, Head &
Undiagnosed Primary, Head & Neck, Diagnosed 7/2009, New York
Finished TX -Radiation & Chemo (cysplatin) on 10/16/2009, awaiting PET Scan 1/2009.

Roll Call
Undiagnosed Primary, Nasopharyngeal/NPC, Diagnosed 12/2008, because of two left-side neck tumors found in 11/2008, and biopsy analysis. 34 rads- 20 places/session, and two 4-days of 24/7 chemo pumps of 6880 mgs cisplatin and 125 mgs of flouracil, each of weeks #1 and #4. Week #6 spent in hospital (for 4 days), due to 101+ fever, and other symptoms. Last rad in the first week of April. Tumors eliminated with treatment- not surgery. Second PetScan, post-treatment, showed possible problem below the tongue, but Otolaryngologist not too concerned about. University of Iowa connected. Port and feeding tube installed in January of 2009, and still have both. Next/3rd PetScan due to happen in early-2010. Still alive, and LIFE IS GOOD.
kcass

bany

SmithMama2 said:

here in Atlanta, Georgia
My husband Kevin was diagnosed with stage 4a base of tongue squamous cell carcinoma in June 09. He had neck disscetion surgery, oral surgery, peg tube placement, and an exploratory biopsy before his treatment began in August 09. He had one chemo round of cisplatin, but then he started to lose hearing, so they switched him to carboplatin and taxol for 5 more rounds over a 7 week time frame. Simultaneously he had 35 daily radiation treatments. He finished treatment in October 09. In December 09 eight weeks after his last treatment, he had a clean PET/CT scans, and they have classified him in remission! Hooray!!!

We credit his recuperation to the excellent care he received from Emory Winship Cancer Institute from a wonderful team of doctors: Dr. Beitler (radiation oncology), Dr. Saba (medical oncology), and Dr. Wadsworth (ENT surgeon).

Karen, proud wife of a SURVIVOR!!!

my Dad didn't make it
Hello everyone, and hi Cindy, another person from Canada! I'm sorry I haven't checked back here for months. Dad's last few months were very difficult. He died Nov. 2, 2009.He tried hard to beat this, I admire his strength so much.

I want to thank all the members of this forum, for sharing your stories, problems and solutions. I found a wealth of information here that eased my dad's pain, helped him eat and gave him hope to fight as hard as he did. He always appreciated every different idea I brought to him from the threads I'd read here. So much of it helped him through his radiation and chemo treatments.

It is a difficult thing to share, yet the members here keep coming back to try to help others like my dad. I'm finding it too hard to share what he went through and frankly it would be discouraging to many.

when I can, I hope you don't mind if I continue to be a part of this forum and maybe help others who are going through this and maybe someone might benefit from what helped dad and what didn't.

Congratulations on all the good news and I wish the best of luck to all of you who are still surviving.

Elaine

Nidociv

Roll Call
Hello all, please add me to your next roll call.
Diagnosed May,08 SCC Left BOT
3 rounds of Taxotere, Cisplatin & 5FU
followed by 35 rad treatments with weekly Carboplatin
Finished Tx Oct.27,08
Have had lots of difficulty trying to eat by mouth again and am only starting to eat a little now after a year. Still depend on my PEG daily but really working hard so I get it out.
All my scans have been clean and I plan on staying that way..
Happy Holidays to all and Take Care
Randy, 54 yrs young in Ohio

Hondo

bany said:

my Dad didn't make it
Hello everyone, and hi Cindy, another person from Canada! I'm sorry I haven't checked back here for months. Dad's last few months were very difficult. He died Nov. 2, 2009.He tried hard to beat this, I admire his strength so much.

I want to thank all the members of this forum, for sharing your stories, problems and solutions. I found a wealth of information here that eased my dad's pain, helped him eat and gave him hope to fight as hard as he did. He always appreciated every different idea I brought to him from the threads I'd read here. So much of it helped him through his radiation and chemo treatments.

It is a difficult thing to share, yet the members here keep coming back to try to help others like my dad. I'm finding it too hard to share what he went through and frankly it would be discouraging to many.

when I can, I hope you don't mind if I continue to be a part of this forum and maybe help others who are going through this and maybe someone might benefit from what helped dad and what didn't.

Congratulations on all the good news and I wish the best of luck to all of you who are still surviving.

Elaine

Hi Elaine
You will always be welcome here, CSN is not just a place for people with cancer it is a place for people who have loved once with cancer too. I am so sorry to hear about your Father death; but know this he is not in anymore pain. I am 54 and have 3 children and 4 grandchildren; I was an oil field working in the Gulf of Mexico and was a workaholic. It was the cancer that slowed me down to where I realized what I was missing, and that was my Family, somehow cancer makes you grow closer to your love ones. As a Father I wanted to make sure all my children knew how much I loved them, it was then that I realized how much God the Father loved all of his children and died to prove it. Take care and let us know how you are doing, I will keep you in my prayers.