Roll Call, January 2009
Here are the folks who had head and neck cancers:
NAME, STATE
Bany, New York (Dad –TR2- had cancer)
Bughunter Tennessee
Christmas California
Cwctcher, Virginia
Devildog, Michigan
Garyr New Mexico
Geezer Florida
Hawvet Hawaii
Jagged, Washington
Jkinobay Mexico (treated in Arizona)
Jodyman, Texas
Ljoy Texas/Minnesota
Lolojldunn Montana
Lorileona Wisconsin (husband had cancer)
Marymoo, Alabama
Marywiz15 Colorado
Paula002, Montrieal
Pie123 (no state listed)
Slickwilly Michigan
Sash Florida
Sassyque Pennsylvania
TereB Texas
Tom55, Michigan
Train-nut Oklahoma
Victor 53 Rhode Island
Wboaz Oregon
I would like to offer my condolences to Hunpot from Massachusetts. Her mom passed away on August 18, 2008 from squamous cell carcinoma-top voice box.
There were a total of twenty six of us who answered the call. We are from 20 states and one from Canada. Jkinobay lives and works in Mexico, but was treated in Arizona. Congratulations to TereB who first had the cancer in 1987 and here it is, 22 years later.
Victor53 is from Costa Rica, but moved to Rhode Island for treatment. He was still being treatment when we started this roll call.
Marymoo had surgery on August 21, 2008.
Jodyman had started radiation and chemo treatment for squamous cell carcinoma at the base of the tongue. This followed treatment for lung cancer in 2005.
Hope they are all well. Please provide an update when answering the call. My wish is that you will all respond and we are all here as we start year 2009. The next roll call will be in July of this year. If anyone else wants to be included, please provide the type of cancer, the year and your home state.
Aloha
Hawvet
Comments
-
victor53
still in rhode island i did 6 weeks of chemo once a week Erbitux,placlitaxol,carboplatin
then a 7 weeks of radiation mon-fri with a double on fri. plus/ chemo cisplatin everyday
on weeks 1,4 and 7 finished october
then radical neck disection for thanksgiving.
doing great now.
Going back to costa rica in april for a couple months till rainy season starts. Then i have to leave my truck on other side of river and have a couple miles up a mountain on horseback.
Im feeling strong enuff for life on horseback again but its a bit much for my wife and 2-1/2 year old son. So i will come back here and sit out the rainy season from july to december.
A big thank you to everyone who has answered a post here or asked a question they have all helped me so much.0 -
thank you
hawvet thank you for including me in your roll call. I just melted to see my name.
I first joined this site to thank soccerfreaks because my mom always talked highly of him, his name was the one she always would tell me to find for her so he could answer or help her with questions.
Once i joined i began to just learn about the cancer she had to see if thier was something she/we/dctrs had done wrong as all i could think of is why did she have to die. I just wanted to learn more and more incase god forbid something ever happens like this to someone i know or close by maybe i can be of help.
Once on here i learned there are many people out there with this terrible disease and that alot go through many experiences like i once did so this is now a routine of mine to come on here and gives words of advise or wisdom to others and i hope to make each persons terrible ordeal somewhat easier with my past experiences.
I wish everyone on here the best of health and luck with their ongoing fight . my thoughts and prayers go out to everyone on a daily basis that has to endure such a struggle and fight everyday.
GOD BLESS
tracy0 -
Slickwilly here
HAWVET. I believe I found your roll call shortly after finding this sight. I finished my initial CHOP+Rituxin and 25 rounds of radiation on Dec 24, 2003. I suffered through all the major side effects of treatment along with years of tests and many false masses. Even today I was at the dentist fixing damaged teeth. One of the best parts of my survival was finding this site and the many caring individials on it. All special in their own way and each having something to offer. Just take the time to read and learn! I hope everyone realizes how special you are. For many its not easy to come on here and open your soul. To talk about past pain and emotional issues and sometimes fight back the depression that comes with it, just to help another human being. I wish everyone the best and I'll see you in July for the next roll call. Slickwilly, Michigan0 -
Roll Call
Hi Johnny.Was glad to see you again.I'm still here in Pa. freezing and rooting for the Pittsburgh Steelers.Sure hope they win the Super Bowl.Nothing has returned and I'm still praying for all of us.Keep the faith and God bless you and yours.Have a very happy ,healthy New Year....Betsy0 -
Summary of responsestrain-nut said:Good Health
Doing well in Oklahoma. Best of health to all.
Thank you for those who have responded so far.
TR2 - I do hope your Dad is doing well. Before you know it, radiation treatment will be over. Here’s wishing that the treatment is successful.
Victor53 - Am glad you are doing well now. I remember when you first came on and I was reading your threads. I do not know if it is too personal, but what do you do in Costa Rica?
Hunpot - I do hope that inner feeling of losing that special someone has become more tolerable. Thank you for staying on the board and offering your assistance and knowledge to those of us who have under gone this dreaded disease. Take care.
Slickwilly - It is not too surprising that many of us share the same experiences. I have my teeth cleaned at least three times a year. I asked my dentist to do his best to save my teeth as best as possible. They decay more frequently. I have a couple of teeth that were patched (filled in) twice. He got me on a prescription fluoride toothpaste and I rinse nightly with ACT. I agree, there are a lot of good individuals here. There isn’t anything better than the first hand experiences from those in this forum.
Ljoy - Am glad your 2008 scan showed up cancer free. It was about three years after my treatment that I was given the green light. I had a slight chuckle on your freezing in Minnesota and here I am in a T-shirt, both in and out of the house.
Sassyque - I remember the weather in Pennsylvania having been stationed with the military in a place called Oakdale in Pittsburgh. For a while, the Steelers had been my team. I too am rooting for them since I had placed a small futures bet for them to win the superbowl. I had wanted Philadelphia to have beaten Arizona and it would have been an all Pennsylvania Superbowl. I also had a small bet on them and I would have had a guaranteed winner.
Train-Nut - Thank you for responding. The Sooners almost did it this year at the Orange bowl. May be next year.
TO THE REST: Please respond. No comments are necessary. I do wish you are all well.
Aloha,
Johnny0 -
Raises HandHAWVET said:Summary of responses
Thank you for those who have responded so far.
TR2 - I do hope your Dad is doing well. Before you know it, radiation treatment will be over. Here’s wishing that the treatment is successful.
Victor53 - Am glad you are doing well now. I remember when you first came on and I was reading your threads. I do not know if it is too personal, but what do you do in Costa Rica?
Hunpot - I do hope that inner feeling of losing that special someone has become more tolerable. Thank you for staying on the board and offering your assistance and knowledge to those of us who have under gone this dreaded disease. Take care.
Slickwilly - It is not too surprising that many of us share the same experiences. I have my teeth cleaned at least three times a year. I asked my dentist to do his best to save my teeth as best as possible. They decay more frequently. I have a couple of teeth that were patched (filled in) twice. He got me on a prescription fluoride toothpaste and I rinse nightly with ACT. I agree, there are a lot of good individuals here. There isn’t anything better than the first hand experiences from those in this forum.
Ljoy - Am glad your 2008 scan showed up cancer free. It was about three years after my treatment that I was given the green light. I had a slight chuckle on your freezing in Minnesota and here I am in a T-shirt, both in and out of the house.
Sassyque - I remember the weather in Pennsylvania having been stationed with the military in a place called Oakdale in Pittsburgh. For a while, the Steelers had been my team. I too am rooting for them since I had placed a small futures bet for them to win the superbowl. I had wanted Philadelphia to have beaten Arizona and it would have been an all Pennsylvania Superbowl. I also had a small bet on them and I would have had a guaranteed winner.
Train-Nut - Thank you for responding. The Sooners almost did it this year at the Orange bowl. May be next year.
TO THE REST: Please respond. No comments are necessary. I do wish you are all well.
Aloha,
Johnny
Still here and going strong.0 -
hawvet no i dont mind atHAWVET said:Summary of responses
Thank you for those who have responded so far.
TR2 - I do hope your Dad is doing well. Before you know it, radiation treatment will be over. Here’s wishing that the treatment is successful.
Victor53 - Am glad you are doing well now. I remember when you first came on and I was reading your threads. I do not know if it is too personal, but what do you do in Costa Rica?
Hunpot - I do hope that inner feeling of losing that special someone has become more tolerable. Thank you for staying on the board and offering your assistance and knowledge to those of us who have under gone this dreaded disease. Take care.
Slickwilly - It is not too surprising that many of us share the same experiences. I have my teeth cleaned at least three times a year. I asked my dentist to do his best to save my teeth as best as possible. They decay more frequently. I have a couple of teeth that were patched (filled in) twice. He got me on a prescription fluoride toothpaste and I rinse nightly with ACT. I agree, there are a lot of good individuals here. There isn’t anything better than the first hand experiences from those in this forum.
Ljoy - Am glad your 2008 scan showed up cancer free. It was about three years after my treatment that I was given the green light. I had a slight chuckle on your freezing in Minnesota and here I am in a T-shirt, both in and out of the house.
Sassyque - I remember the weather in Pennsylvania having been stationed with the military in a place called Oakdale in Pittsburgh. For a while, the Steelers had been my team. I too am rooting for them since I had placed a small futures bet for them to win the superbowl. I had wanted Philadelphia to have beaten Arizona and it would have been an all Pennsylvania Superbowl. I also had a small bet on them and I would have had a guaranteed winner.
Train-Nut - Thank you for responding. The Sooners almost did it this year at the Orange bowl. May be next year.
TO THE REST: Please respond. No comments are necessary. I do wish you are all well.
Aloha,
Johnny
hawvet no i dont mind at all.
I did the self sufficiant farming stuff raised my own chickens and garden had many different fruit trees. My neighbors go to town once a month for rice, salt, cooking oil, and sugar some even did their own oil and sugar
I also sell real estate on the side without trying too.0 -
Roll Call
I am not on your rol list as I was just diagnoised the first of this year. I have tonsil cancer in stage one. It started as a lump in my neck and one thing lead to the other. I have not started treatment yet, we have met with a specialist that gave us the options. One was a surgery to remove and then radiation and chemo. The other was intense chemo followed by radiation and chemo. After weighing the options we are going with the later. I am trying to get as much information as I can so I am prepared. It looks like a long and tough journey but there is a light at the end. Oh, I live on the Oregon coast, its not heaven but I am sure it is close. Thanks for letting me join your ranks. I sure has a rough initiation.0 -
initiationTIM_WWJD said:Roll Call
I am not on your rol list as I was just diagnoised the first of this year. I have tonsil cancer in stage one. It started as a lump in my neck and one thing lead to the other. I have not started treatment yet, we have met with a specialist that gave us the options. One was a surgery to remove and then radiation and chemo. The other was intense chemo followed by radiation and chemo. After weighing the options we are going with the later. I am trying to get as much information as I can so I am prepared. It looks like a long and tough journey but there is a light at the end. Oh, I live on the Oregon coast, its not heaven but I am sure it is close. Thanks for letting me join your ranks. I sure has a rough initiation.
Welcome, and good luck.
I would have chosen differently, regardless of what anyone says: get rid of it, if you can.
But if your doctors are suggesting that route, then that is the way to go.
Congratulations on your survivorship. I agree with your implicit suggestion that it is a pretty crummy club to be part of, but you will find most of the members of this club to be caring at the very least, while also very much educated about the topic and willing to give you their views.
If you seek information, here, I would suggest a top-post, that is, making a post of your own in this area of the discussion board, one that repeats the history you provide here, along with your questions and concerns.
Take care,
Joe0 -
Welcomesoccerfreaks said:initiation
Welcome, and good luck.
I would have chosen differently, regardless of what anyone says: get rid of it, if you can.
But if your doctors are suggesting that route, then that is the way to go.
Congratulations on your survivorship. I agree with your implicit suggestion that it is a pretty crummy club to be part of, but you will find most of the members of this club to be caring at the very least, while also very much educated about the topic and willing to give you their views.
If you seek information, here, I would suggest a top-post, that is, making a post of your own in this area of the discussion board, one that repeats the history you provide here, along with your questions and concerns.
Take care,
Joe
TIM_WWJD
Welcome. It will be great to have you on the roll call. This roll call will appear on January and July. That way, we can keep track of those H&N folks on this forum.
As Joe (Soccerfreaks) recommended, you may want to create a separate thread and people may post a reply, It will also help others seeking information on a specific type of H&N cancer. I wish you the very best.
Aloha,
Johnny0 -
Head & Neck Cancer
Hello, For your Role Call my name is Craig Griffin. I was diagnosed with Mass Squamus Carninoma (tongue base) in March, 2008. I live in Indiana.0 -
welcome!Craig_Griffin said:Head & Neck Cancer
Hello, For your Role Call my name is Craig Griffin. I was diagnosed with Mass Squamus Carninoma (tongue base) in March, 2008. I live in Indiana.
Welcome Craig! It is a crummy club to be part of, to be sure, but since you are a member, you will find that there are no finer, more caring people in the world.
Please explore the discussion boards, which you have obviously found, as there is much information in here that is well-reasoned and based on experience. And if you are of the kind that like more immediate contact, there is also a chat room here, where, for the most part, the people are open-minded, kind-hearted and caring, and also well-versed in various aspects of the cancer experience.
You can read of people's experiences, some times, in their personal pages and in their blogs and expression areas, and you can add your own if you choose to do so.
Again, welcome, and best wishes for your good health.
Take care,
Joe0 -
Welcome Craigsoccerfreaks said:welcome!
Welcome Craig! It is a crummy club to be part of, to be sure, but since you are a member, you will find that there are no finer, more caring people in the world.
Please explore the discussion boards, which you have obviously found, as there is much information in here that is well-reasoned and based on experience. And if you are of the kind that like more immediate contact, there is also a chat room here, where, for the most part, the people are open-minded, kind-hearted and caring, and also well-versed in various aspects of the cancer experience.
You can read of people's experiences, some times, in their personal pages and in their blogs and expression areas, and you can add your own if you choose to do so.
Again, welcome, and best wishes for your good health.
Take care,
Joe
Will be glad to include you in the roll call line up. Hope you are recovering well after your treatment.
I do not know if Soccerfreaks was referring to this line up as being that club, but it was not intended to be one. I believe he intended to mean that we are part of a forum and that not belonging is preferable.
I just thought I would have a listing of names so that if someone drops out, we would still remember the person. With our illnesses, we never know what could happen. This roll call idea may not be working out. Many has not responded. I hope they do.
Aloha,
Johnny0 -
From Phoenix, orig. IndianaCraig_Griffin said:Head & Neck Cancer
Hello, For your Role Call my name is Craig Griffin. I was diagnosed with Mass Squamus Carninoma (tongue base) in March, 2008. I live in Indiana.
Craig, I'm so sorry to hear what you are fighting -- what a fight!
My daughter's name was Griffin & lived in Evansville. I have a lot of relatives
around Anderson, IN. Right now my sons wife has terminal brain & bone cancer, his son was diagnosed 2 weeks ago with mestastasized Ewing Sarcoma, and his daughter had 3 tumors removed from her abdomine & radiation. He lost his job & got evicted from their house, and the van is on it's last leg. So I guess the saying is true 'walk in another mans shoes'.
I DO sincerely pray that you keep fighting. I was a caregiver for 35 yrs. in hospitals in IN & AZ and believe me, Ive SEEN some unbelieveable recoveries. Would love to hear from you.0 -
Sirena, your presence notedSIRENAF42 said:Roll Call
4 month survivor of Esthesionueroblastoma of the Ethmoid Sinus and Nasopharnyx.
Sirena Finch - San Antonio Texas
Sirena, thank you for responding. Please respond again in July when roll call is posted. Your user name would suffice instead of posting your real name. I do hope you have responded well to your recent treatment. Aloha, Johnny0 -
Happy New Year! I made it
Happy New Year! I made it to another birthday with the biggest smile on my face. I just had my 56th birthday. Being a cancer survivor puts a different perspective on things. While other ladies at work dread adding on another year, I was the happiest person that day - to be able to celebrate being alive and adding another year to my resume. Can you believe that someone said that they wish they could be like me???0
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