What can you drink?

allackey
allackey Member Posts: 19
edited March 2014 in Colorectal Cancer #1
After treatment with Oxaliplatin my wife can't drink anything cold for several days. Not even room temp. What can be done to help get in the liquids?
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Comments

  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #2
    Nice and s l o w
    I would drink things very s l o w l y.
    That seemed to help from what I remember. It was over 5 years ago so I sort of forgot but I didn't die of thirst!
  • Patteee
    Patteee Member Posts: 945
    #3
    I couldn't either- actually
    I couldn't either- actually everything had to go in the microwave first. Warm water!
  • coloCan
    coloCan Member Posts: 1,944 Member
    #4
    Drinking
    I also drink slowly and I try to have liquid flow down the middle of my mouth/tongue, to avoid the sides and especially the backend of my mouth/jawbone. Mostly at room temperature-forget about cold liquid. I get extreme bad feelings when liquid hits inner jaw aND WHEN FOOD IS CHEWED, FIRST FEW BITES REALLY GEt to me in jaw area but I kept chewing, it lessens as I eat and I get some food into me.I Rely alot upon nutrition drinks-Ensure plus, CVS version, etc.
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #5
    Tea
    I love sweet tea/ iced and hot. I found that after just a day or so, I could drink room temp tea. Hot tea was always okay. I had to let my O.J. sit out and get to room temp, but that was spring and summer. Room temps this time of year isn't that warm. :o) Loads and loads of bottled water!
  • Nana b
    Nana b Member Posts: 3,030 Member
    #6
    dianetavegia said:

    Tea
    I love sweet tea/ iced and hot. I found that after just a day or so, I could drink room temp tea. Hot tea was always okay. I had to let my O.J. sit out and get to room temp, but that was spring and summer. Room temps this time of year isn't that warm. :o) Loads and loads of bottled water!

    Miracle Mouth Wash
    Lemonaid worked for me, how about of cup of tea. Chamomille? I love Chic'filet (sp?)lemonaide and now they have nutrasweet, better then sugar! No ice.

    Gargling with the mircle mouthwash that I got form my ONC helped. It numbs the area.
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #7
    Nana b said:

    Miracle Mouth Wash
    Lemonaid worked for me, how about of cup of tea. Chamomille? I love Chic'filet (sp?)lemonaide and now they have nutrasweet, better then sugar! No ice.

    Gargling with the mircle mouthwash that I got form my ONC helped. It numbs the area.

    yep
    good ole lemonade i remember those days and as everyone has said just drink things slow even water.hang in there and fight fight fight.....Godbless......johnnybegood
  • KathiM
    KathiM Member Posts: 8,028 Member
    #8
    Room temp stuff...or, cold thru a straw....
    from an insulated glass (I could not touch anything cold...lol!).

    Hang in there, it's normal....I even thawed ice cream, just for the taste...hummmm, maybe that's why I like non dairy creamer so much now...lol!

    Hugs, Kathi
  • KathiM
    KathiM Member Posts: 8,028 Member
    #9
    coloCan said:

    Drinking
    I also drink slowly and I try to have liquid flow down the middle of my mouth/tongue, to avoid the sides and especially the backend of my mouth/jawbone. Mostly at room temperature-forget about cold liquid. I get extreme bad feelings when liquid hits inner jaw aND WHEN FOOD IS CHEWED, FIRST FEW BITES REALLY GEt to me in jaw area but I kept chewing, it lessens as I eat and I get some food into me.I Rely alot upon nutrition drinks-Ensure plus, CVS version, etc.

    Also normal...called 'first bite syndrome'.....
    Ah, I remember it well....almost made me give up eating altogether....good for you that you plow thru!!!

    I, too, drank ALOT of ensure....tried the boost, but it didn't taste good. Also drank Propel...it tastes wierd anyway, so the taste change didn't bother me...

    Hugs, Kathi
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    #10
    KathiM said:

    Room temp stuff...or, cold thru a straw....
    from an insulated glass (I could not touch anything cold...lol!).

    Hang in there, it's normal....I even thawed ice cream, just for the taste...hummmm, maybe that's why I like non dairy creamer so much now...lol!

    Hugs, Kathi

    Warm everything
    I warm everthing that first week after chemo (Oxy with 5 FU?. By the second weeks it's not so bad and sometimes I can even have things simi cold and be okay. BUT I cant touch anything cold. OMG it stings!! I get cold easy. A hot bath seems to help and I have a electric throw that Me and my DOG fight over for when were watching TV.



    Life is funny sometimes
    Brooks
  • tiny one
    tiny one Member Posts: 465 Member
    #11
    drinks
    For me lemonade usually tasted good. I also liked tea, coke. Seems like room temp drinks I could handle. Coffee, hot chocolate, hot tea, maybe those will work for her. Watermelon always tasted good while I was going thru chemo.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #12
    tiny one said:

    drinks
    For me lemonade usually tasted good. I also liked tea, coke. Seems like room temp drinks I could handle. Coffee, hot chocolate, hot tea, maybe those will work for her. Watermelon always tasted good while I was going thru chemo.

    Coffee........and all other warm or room temp pallatible drinks
    Sunkist Orange Drink, Ocean Spray Crangrape, Hot chocolate, Warm Dr Pepper with lemon, Hot Tea, Makers Mark, Very Old Barton...OOPS...Kiddin...

    Out of all of them the Sunkist Orange in the 2 liter bottle was the best at room temp...
  • claud1951
    claud1951 Member Posts: 424 Member
    #13
    What ever she can drink, try
    What ever she can drink, try drinking with a straw.
    Also, when she eats and if silver ware bothers her, eat with plastic utensils.

    Hope this helps..

    Keep moving forward!
    Claudia
  • esined
    esined Member Posts: 22
    #14
    On the way out the door to

    On the way out the door to infusion, I would set out V8 fusion for my husband so it would be at room temp when he gets home. That way he got some vegetables since he doesn't like to eat for the next few days. He also uses a straw to get the liquid to the back of his mouth. Recently he has had a taste for margarita mixer and is drinking it at room temp.
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #15
    Same issue
    Between the temperature factor and the nausea it is a challenge.

    I drink a lot of herbal tea and green tea. Also blue Gatorade (can't seem to get any of the others down). Warm apple cider. And I drink Isagenix shakes to get protein and other nutrients in - I mix in a banana with it usually.

    First cycle I drank Tahitian Treat soda. This time I can't do it. I tried orange soda, but sweet things just aren't going well this time around. (And normally I eat very healthy and do not drink soda - but on chemo you get down whatever you can.)

    I haven't tried it yet, but my dietician also suggested hot chocolate.

    Also remember that "soft" liquids count too. Hot cereal counts as liquids - Cream of Rice, Cream of Wheat. Soups.

    I normally drink a LOT of water. But I just can't choke down warm water.
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #16
    Buzzard said:

    Coffee........and all other warm or room temp pallatible drinks
    Sunkist Orange Drink, Ocean Spray Crangrape, Hot chocolate, Warm Dr Pepper with lemon, Hot Tea, Makers Mark, Very Old Barton...OOPS...Kiddin...

    Out of all of them the Sunkist Orange in the 2 liter bottle was the best at room temp...

    oh!!!sunkist orange
    drink thanks buzzard i totally forgot that one[chemo brain]yes that was a good one at room temp.Godbless...johnnybegood
  • daydreamer110761
    daydreamer110761 Member Posts: 487 Member
    #17
    Kathryn_in_MN said:

    Same issue
    Between the temperature factor and the nausea it is a challenge.

    I drink a lot of herbal tea and green tea. Also blue Gatorade (can't seem to get any of the others down). Warm apple cider. And I drink Isagenix shakes to get protein and other nutrients in - I mix in a banana with it usually.

    First cycle I drank Tahitian Treat soda. This time I can't do it. I tried orange soda, but sweet things just aren't going well this time around. (And normally I eat very healthy and do not drink soda - but on chemo you get down whatever you can.)

    I haven't tried it yet, but my dietician also suggested hot chocolate.

    Also remember that "soft" liquids count too. Hot cereal counts as liquids - Cream of Rice, Cream of Wheat. Soups.

    I normally drink a LOT of water. But I just can't choke down warm water.

    warm apple cider
    believe it or not - buzzard was the one with the sunkist orange soda, and it's the best at room temp - but there were also days where room temp was bad. I drank hot tea and apple cider - and they have it instant in the coffee/tea isle in the store! coffee was a complete turn off to me, even the smell while on chemo for the most part - but I did get hooked on dunkin donuts vanilla coffee (pricey and its a shame, but I still love it now).
  • mikejones_53
    mikejones_53 Member Posts: 33
    #18
    OceanSpray room temp pink
    OceanSpray room temp pink grapefruit juice, lemonade, boost or ensure or whichever protein shake tastes good to you, hot tea & coffee. These are what works for me at the present. I've had 9 (10 Wed) Folfox 5-FU treatments out of 12 and can't hardly wait until this is over and I get put on more of a maintenance chemo and some of these side effects subside
  • P_I_T_A
    P_I_T_A Member Posts: 133
    #19
    Drinks
    Week on treatment: Warm water alot of the time. If the sugar is not an issue and need something with some flavor, then Caprisun drink packs work (great at room temp and you drink it through a straw), hot tea and coffee.

    Off week: Could drink iced drinks, but have to ease into it. First few days always slowly through a straw, small amount, and leave it in your mouth a little while before swallowing. Towards the end of the off week I could drink cool drinks straight out of the glass.

    -DJ
  • Janet3
    Janet3 Member Posts: 59
    #20
    Warm Drinks
    After my mom's first round of modified Folfox 6 (which includes Oxaliplatin) she couldn't touch or drink anything cold. She said as soon as she sipped the cold liquid her tongue instantly felt mushy and it hurt. So I came on the board and was told warm drinks but nothing warm tasted good to her. Then Lisa42 (if I recall correctly) suggested Ensure warmed up with cinnamon. This was a great suggestion because my mom really needed the protein and vitamins that Ensure has but she didn't like it. She loves cinnamon. So I thought if I warmed the vanilla Ensure and 'doctored' it up with some cinnamon and whipped cream, it might work. Well, it worked wonders. She loved it. Even now, she's on round 8 this week, she still has days where she's not hungry and nothing tastes good. On those days the warm Ensure with cinnamon saves the day. Well, at the very least, it makes me feel better that she's getting some nutrition. It makes her feel better because she can tolerate it and it tastes good.
    Janet
  • velo8162
    velo8162 Member Posts: 15
    #21
    Janet3 said:

    Warm Drinks
    After my mom's first round of modified Folfox 6 (which includes Oxaliplatin) she couldn't touch or drink anything cold. She said as soon as she sipped the cold liquid her tongue instantly felt mushy and it hurt. So I came on the board and was told warm drinks but nothing warm tasted good to her. Then Lisa42 (if I recall correctly) suggested Ensure warmed up with cinnamon. This was a great suggestion because my mom really needed the protein and vitamins that Ensure has but she didn't like it. She loves cinnamon. So I thought if I warmed the vanilla Ensure and 'doctored' it up with some cinnamon and whipped cream, it might work. Well, it worked wonders. She loved it. Even now, she's on round 8 this week, she still has days where she's not hungry and nothing tastes good. On those days the warm Ensure with cinnamon saves the day. Well, at the very least, it makes me feel better that she's getting some nutrition. It makes her feel better because she can tolerate it and it tastes good.
    Janet

    I drank hot tea and hot
    I drank hot tea and hot chlocolate.

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