Back from St. Louis with NED in tow!

Aortus
Aortus Member Posts: 967
edited March 2014 in Breast Cancer #1
The last couple of weeks have been intense for Moopy and me. Two weeks ago today (May 19) we were in St. Louis with our oncologist there. A pleasant, upbeat meeting - except while rereading Moopy's PET scan from December, she saw a possible "hot spot" in one of the intramammary lymph nodes. This, in turn, affected plans for Moopy's radiation therapy. Instead of starting on May 20, our radiation onc in Springfield decided to put the rads on hold until he consulted with a radiation onc at Barnes-Jewish in St. Louis. We couldn't see Dr. Taylor at Barnes-Jewish until June 2, so we just had to wait.

So for two weeks we have been twiddling our thumbs waiting to drive up to St. Louis for a PET scan on June 1 and a meeting with the radiation onc on June 2. I have to say that Moopy has been very brave throughout. I've done my best to stay brave with her. But it sure hasn't been easy treading water like this.

Now for the good news. Dr. Taylor at Barnes-Jewish will be doing Moopy's radiation treatments up in St. Louis, using a combination of hyperthermia and radiation. The area to be radiated is heated to 104 degrees for an hour or so - and then zapped. Dr. Taylor has been using this technique for a long time now, including clinical trials, with great benefits. She is also just an amazingly learned and kind physician, who took all the time we needed to understand what is going on. She was also confident that she could get the insurance to cover this. Yet another wonderful person God has placed in our path.

As we drove back down to Springfield, we had no secure starting date, nor any word on how the PET scan turned out. Moopy snoozed on and off (thanks to Xanax) while I drove and prayed the phone wouldn't go off in the car. About an hour after we got home, the cell phone rang and it was the nurse at Barnes-Jewish with the PET results. No lymph nodes, no nothing. NED is now a member of our family! Moopy's radiation simulation is on Wednesday, June 10. That is also the day we move into our two-month executive rental out in the 'burbs, with our three doggies. All in all, things have turned out 110% for the best.

I hope this all makes sense. No doubt it would be more coherent if Moopy wrote it herself, but for right now she is physically and emotionally drained. However, she wants to thank you all for all of the support you have given her on the board and via personal message. She feels very bad that she hasn't been there for you and asks me to send you all her love and her gratitude. You are all always in our prayers.

She should be back at full steam in a couple of days - right around the time that her big sister (the fabled Shopping Woman) arrives. And I want to thank you all too, personally, for absolutely everything.

Joe
«13

Comments

  • EveningStar2
    EveningStar2 Member Posts: 491 Member
    Great News!
    That is good news to hear! So you are both going to be able to stay in St. Louis?

    Maureen
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    Awesome, AWESOME, Awesome!!!
    Aortus - THANKS, so very much, for this post! YAY for NED & Moopy23! (Hey - that rhymes: NED & Moopy23...)

    Very good news, all around. Hugs to Moopster. You, too, Joe. :-)

    Kind regards, Susan
  • bfbear
    bfbear Member Posts: 380

    Awesome, AWESOME, Awesome!!!
    Aortus - THANKS, so very much, for this post! YAY for NED & Moopy23! (Hey - that rhymes: NED & Moopy23...)

    Very good news, all around. Hugs to Moopster. You, too, Joe. :-)

    Kind regards, Susan

    Hip hip HOORAY - A poem????
    Hooray...WOOHOO...Yippee
    The Doctors said, "NED."
    Now Moopy is happy,
    Aortus is sappy,
    And we're all as glad as can be!!!!!!



    That's my attempt at silly poetry for today.
    I love you guys!!!
    I'm so happy for your great news.

    Much love,
    Debi
  • Aortus
    Aortus Member Posts: 967

    Great News!
    That is good news to hear! So you are both going to be able to stay in St. Louis?

    Maureen

    Of course!
    I couldn't hardly let my Moopster spend two months up there by herself. Fortunately, my summer school course is mainly a distance-learning class and all I have to do is drive down to Springfield, give an exam, and come back. That's a lot of driving, but I'll do it all with a smile on my face. So she'll have me and the three pups to keep her company all summer long.
  • phoenixrising
    phoenixrising Member Posts: 1,508
    I don't know how this news
    I don't know how this news could get any better except if she had never had cancer in the first place. The hot spot turned out not being hot, you got the doc you wanted and it looks like your insurance is going to cover it. I am sincerely elated for you. That is just fabulous and welcome back, we've all missed you two.
    hugs
    jan

    image
  • phoenixrising
    phoenixrising Member Posts: 1,508
    bfbear said:

    Hip hip HOORAY - A poem????
    Hooray...WOOHOO...Yippee
    The Doctors said, "NED."
    Now Moopy is happy,
    Aortus is sappy,
    And we're all as glad as can be!!!!!!



    That's my attempt at silly poetry for today.
    I love you guys!!!
    I'm so happy for your great news.

    Much love,
    Debi

    Love your poetry Deb :)

    Love your poetry Deb :)
  • Jeanne D
    Jeanne D Member Posts: 1,867

    I don't know how this news
    I don't know how this news could get any better except if she had never had cancer in the first place. The hot spot turned out not being hot, you got the doc you wanted and it looks like your insurance is going to cover it. I am sincerely elated for you. That is just fabulous and welcome back, we've all missed you two.
    hugs
    jan

    image

    Joe and Moopy
    So glad that you are home and with such wonderful news! I have been praying for you every night! And my prayers were answered. And, I am so glad that you all can be together. That will make it so much easier on all of you, not just Moopy! So, let Moopy sleep and relax, and, treat her like the special, wonderful woman that she is. Ok Joe? Hey Joe..you are a pretty good hubby too! And, I don't say that to every man. lol Welcome home! Love, Jeanne
    image
  • cats_toy
    cats_toy Member Posts: 1,462 Member
    mystery solved...
    Aortus,
    So glad it all turned out OK, and so sorry that you both had to go through so much before you could get the good news. Tell Moopy we missed her smiling face, but this news is great for all of us.

    You both should get lots of rest now (she for shopping, you for paying for it!)Photobucket

    Thanks for letting us know!

    =^..^=
  • rjjj
    rjjj Member Posts: 1,822 Member
    cats_toy said:

    mystery solved...
    Aortus,
    So glad it all turned out OK, and so sorry that you both had to go through so much before you could get the good news. Tell Moopy we missed her smiling face, but this news is great for all of us.

    You both should get lots of rest now (she for shopping, you for paying for it!)Photobucket

    Thanks for letting us know!

    =^..^=

    luv ya
    Photobucket i am doin the happy dance!! i love you!! jackie
  • mmontero38
    mmontero38 Member Posts: 1,510
    What great news Joe. I am
    What great news Joe. I am so happy for Moopy, I know she has been extremely worried. Please send her my love and tell her to post soon. Love you both, Lili
  • dyaneb123
    dyaneb123 Member Posts: 950
    Jeanne D said:

    Joe and Moopy
    So glad that you are home and with such wonderful news! I have been praying for you every night! And my prayers were answered. And, I am so glad that you all can be together. That will make it so much easier on all of you, not just Moopy! So, let Moopy sleep and relax, and, treat her like the special, wonderful woman that she is. Ok Joe? Hey Joe..you are a pretty good hubby too! And, I don't say that to every man. lol Welcome home! Love, Jeanne
    image

    yay! That is sooooo great
    yay! That is sooooo great former fellow Tennessee girl! Ya'll keep us posted on this radiation treatment now, hear?(just a little TN.speak humor)
    Dee
  • Kristin N
    Kristin N Member Posts: 1,968 Member

    What great news Joe. I am
    What great news Joe. I am so happy for Moopy, I know she has been extremely worried. Please send her my love and tell her to post soon. Love you both, Lili

    Welcome back!
    And, what good news! We have all been concerned about Moopy and it is so good to hear some good news about her. Thank you for posting this Joe! Take care of each other! Ok, now for MY HAPPY DANCE

    image
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    rjjj said:

    luv ya
    Photobucket i am doin the happy dance!! i love you!! jackie

    GO, JACKIE!
    You're another really creative poster!

    :-)

    Kind regards, Susan
  • Kylez
    Kylez Member Posts: 3,761 Member
    Very good news! Welcome
    Very good news! Welcome back!
  • lynn1950
    lynn1950 Member Posts: 2,570
    A smile on my face
    I am so glad for you, Moopy. Waiting and not knowing is the hardest thing. NED is a good family member to have. Love, Lynn
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    That is the best
    kind of news! I'm just so pleased!! Now it is retail therapy time!
  • RE
    RE Member Posts: 4,591 Member
    Good news indeed!
    I am so extremely happy to hear the word NED and Moopy all in the same sentence, how truly wonderful. I am also pleased to hear that you two have a wonderful doctor who is both caring and knowledgeable, a great combination. It is nice to know you will be with Moopy during treatment, it will make her time there easier for sure. When Moopy wakes up give her a hug for me!

    Now for my happy dance.....image

    HUGS

    RE
  • jnl
    jnl Member Posts: 3,869 Member

    That is the best
    kind of news! I'm just so pleased!! Now it is retail therapy time!

    Welcome home Moopy. I hope
    Welcome home Moopy. I hope you are feeling better and that your treatments go well for you. I don't know what NED is. Can someone tell me what NED is? Sorry
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    jnl said:

    Welcome home Moopy. I hope
    Welcome home Moopy. I hope you are feeling better and that your treatments go well for you. I don't know what NED is. Can someone tell me what NED is? Sorry

    NED means

    No Evidence of Disease-which is some of the best news we can hope for as bc survivors!!
  • djteach
    djteach Member Posts: 273
    Hi Moopy and Aortus, I am
    Hi Moopy and Aortus,
    I am elated that the news was good!!!!!!!!!!! I am so doing my happy chair dance with the hot, pink, feather boa!!!!!!! I don't think there has ever been a time that you and Moopy were not here to give support. I'm so happy for you two. "Celebrate good times, come on"!
    Note: if you sing the above song, it looks like the penguin is dancing to the music!

    With love and gentle hugs,
    Donna