Endometrial metastic to both lungs

So sorry to hear this! I hope the tumors are small and can be destroyed quickly with the chemo.

I can't comment on your xray question except to tell you I have never had a chest xray.  I did have a CT and PET scan after my D&C and cancer diagnosis.  Not sure if an Xray would be needed on top of the other scans.

It is amazing how we have this 6th sense and if we learn to listen to it, can save ourselves a lot of trouble. I'm so glad you asked for that xray!

Good luck with your treatments. I hope your body tolerates the chemo well with minimal side effects.

Love and Hugs,

Cindi

EZLiving66 said:

The first thing my

The first thing my gyno/oncologist did when I got my diagnosis of UPSC, Stage II, Grade 3 was to do a chest x-ray and full CT Scan.  I then had another chest x-ray after I was admitted to the hospital for esphogeal erosion to make sure the pain wasn't being caused by a blood clot in my lung.  My doctor said one of the first places my cancer spreads to is the lungs.

I'm sorry your doctor didn't check your lungs.  The more I read about misdiagnosis and inept doctors, the madder it makes me.  I'm hoping the chemo is effective on the lung tumors!

Love,

Eldri

While in the ER for fever and pain following a colonoscopy in 2014, I had a CT scan which noted that my uterus did not look normal. This led to a uterine biopsy which resulted in a diagnosis of UPSC and complete hysterectomy with pelvic wash, removal of lymph nodes, omenectomy, etc. My final stage was 1-A, Grade 3, for which I am grateful. I never did have bleeding or any other symptoms!

At that point another CT scan was done so that there could be a basis for comparison if anything shows up later. UPSC is a very sneaky cancer according to my oncologist, so he continues to monitor me (pelvic exam) every three months even though I still have had no symptoms and am presumably NED, no evidence of disease. My point is, I have not had any other follow up X-rays or other scans, and I won't unless there is a reason to, but I could request one at some point if I need to. It I is good you used your sixth sense and found the problem so it could be addressed (but better if there was nothing there, of course). We are our own best advocates, I think!

Martha

Joyce, I am so sorry to hear what you are going through but I do want to thank you for coming and telling us about what is happening. 

The only reason I was given a chest xray before surgery was because of my age (???) and have not received any other.  I have been told to let them know if I don't feel good or have problems breathing.  I suspect the 'problems breathing' is along the lines of what you are facing and can't help but wonder if having problems as too late since you said had to ask.  

Can you tell us why you pushed for the xray?  With no symptoms I think you make all of us think if it is something we should be doing.

Regardless, you are finding yourself having to deal with the here and now. I saw on the Expression page that you had brachy during your initial treatment and now having carbo/taxol.  Please let us know how you are doing - that is what really want to know.

debrajo said:

One of the first things the

One of the first things the dr.'s at M.D. Anderson did was a chest x-ray after I was diagnosed with UPSC.  They found three small nodes, but they did not light up on a scan, so they decided to "Watch".  I had the x-ray everytime I went in for a checkup after chemo and radiation.  After three years of no growth, they have decided it is body-junk and I only have x-ray once a year.  I was told that the first place UPSC usually comes back is, 1. vaginal cuff, followed by lung, pelvic area(usually with a positive pelvic wash), brain, bone, then liver.  This is from five years ago.  I hate to post what I was told since it WAS five years ago!  Things change!  Best, Debra(Jo)

my oncologist has been having me get chest xrays every 6 months post treatment that ended 5/2013.  recently she said she wanted to stop all together as it is unnecessary radiation.  I discussed with my gyno/oncologist and she feels that once a year should be done and said that is typically the guidelines so i will continue once a year.  My oncologist doesn't like chest xrays as there are a alot of false positives that then force a CT Scan of the chest to prove all is good and per both the oncologist and gyn/onocologist a chest CT Scan is a lot of radition.  either way i will continue with the chest xray now yearly with my pelvic and abdoman scans every 6 months. Note we were able to convince my ins to use an MRI for the 6 month scans as it has no radiatoin and does the same thing.  I was Stage 1A grade 3 not USPC/MMT.  hope this helps

so sorry that this has happened to you.  I have had several chest exrays, but they were before and after surgeries. All diagnosis was with D&C CT scan and one PET scan.  I now get a Ct scan almost every three months to check on how my tumors are progressing.  They do a chest and abdominal scan.  I have not had any matastisis to my lungs, but lots of other places.  I had no symptoms before diagnoses and the only "problem" that I have had since was 3 months ago when one of those nasty tumors intwined itself in my small instines and caused a blockage.  Back now to no symptoms.

Hugs and prayers, Lou Ann

labilodeau4, I'm sorry to hear about the spread of your disease. Have you had any genetic testing done? There are certain markers that respond to some of the immuenotherapy, so perhaps you can ask your doctor about that.

I can't imagine how you are feeling and trying to adjust to this. This is an older post that popped up since you posted, so some of the warriors will not respond. Please let us know your plan and if you have any questions. Hugs dear one.

So nice to see you post again after this post began! I pray that you continue to have good results from your treatment. It is encouraging for others facing this. Thank you.

I agree with Connie, Joyce THANK YOU for letting us know how you are doing. Hugs dear one.