Newly diagnosed with a recurrent Endometrioid Adenocarcinoma

I had a port. It’s not a major surgery to put it in. I think there are a couple of different models, but mine was just a small hard round thing right under the skin on my chest about 5” below my collar bone. It was not too bothersome and I was very happy to have it for the chemo. I had to have weekly blood tests during chemo and they said the port could be used for that but I only did that once, for a blood test it was much simpler and quicker to just have my arm poked like usual. I also was preloaded with steroids. Early morning on treatment days i had to take a lot of steroid pills. I have never had high blood pressure, so I can’t comment on that. My blood pressure stayed normal but for the last two treatments I was allowed to cut way down on the steroids. They might talk to you about your neutrophils, that’s the part of your blood that helps fight infections. I had to have Neulasta for that, so if you have questions about that I can share my experience. Hang in there, it’s doable.

Kathy,

So glad to see you check in. Good luck with the surgery. I am so happy to hear from our long term members. Such an inspiration!

xxoo

Denise

Kathy,

You have given me such hope, same diagnosis (2020) and same stage and grade as you, 3A grade 2. I have a hernia now as well.

I was diagnosed a tad later than you at age 70 but looking forward to more years, too. NED so far.

My best to you and your future surgery.

((Hugs))

I just wanted to come lend my "best of luck" to you, and thank all the women who jumped forward to reassure you about getting a port. Sending love and luck!

Spring flowers are coming on. They sure cheered me up last year---although not quite as early. At this time last year, I was just dealing with appointments and the idea that I had uterine cancer. I didn't have a formal diagnosis until late February, but I can't help but marvel at how far I've come--and how much I've learned, and how much more relaxed I am--than I was last year at this time. I could not get "out of my head" to save my life last year. I had to learn a few techniques. I'm better now, and have many women here to thank for that.

Love to all--

Deb2

HFTG,

My gynocolgical oncologist, since pathology report, has focused on my Stage IIIA endometrial adenocarcinoma and extensive LVSI as high risk for reoccurence. He is very skilled and kind but not the most positive cheerleader. I appreciate his knowkedge and honesty.

I turn to certain friends and family and time but mostly the ladies on this site for my encouragement and inspiration. There are so many women here with high risk potential that are doing well and I am doing well. We move forward. Recently I received a " So Far, so Good!" comment from my Doc. That was nice!

Seek your encouragement from right resources. I found my chemo infusion staff so comforting each treatment. I was a part of a group of survivors and I felt kinship there. I hope you have the same experience. Treat yourself kindly, rest and eat well.

((Hugs))

Try not to be overwhelmed with worry. Drs usually err on the side of caution, some just don’t have much tact. The chemo nurses will monitor you closely and watch for any kind of reaction. It may seem like a big dose of steroids but it’s only a temporary thing, if they see any problems with it the Dr will cut back on it. Your first treatment is kind of “let’s see how she does”, so they watch you real close. I hope your infusion place is warm and caring, most are. When the Dr gives you those grim sounding percentages focus on the survival numbers and put yourself in that group in your mind. I had such a rare cancer(clear cell) that not much is known about it except that it can be aggressive. But I put myself at the top of the survivor group and didn’t think much more about it. Now I’m 3 years out and still good. I have to add, prepare yourself for loosing your hair, that part was stressful for me.

HFTG,

So glad I could help! I wasn’t warned about the flushing & freaked out a little!

You’ll feel this in the future…..During treatment you want to be here often! You have a million questions & need support, and most of all, HOPE!! That’s what we’re here for! After treatment, a lot of us don’t come back as regularly. It’s a little hard because it’s a stark reminder of what we went through ourselves. But we come back to help new sisters, knowing how vitally important it was that someone was there for us.

Most of the other boards on CSN are very, very quiet. We are sooooo lucky here! I’m completely grateful every day for the lovely ladies on this board who were willing to experience some of that discomfort to be here to help me. I’m trying to do the same. 😘

❤️, Alicia