Newly Diagnosed, Colon, Liver Lungs
Comments
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Chemo 6, Irinotecan replaces Oxilplatin
Well the nurse didn't know about Pam's allergic reaction to the Oxilplatin until she told her... The doc is starting her on Irinotecan today. Looks like we are moving from constepation to diarrhea. There was a bit of a delay getting started this morning and I was concerned that the cancer might get a pass while we wait for the scan. That didn't happen. Looks like the cold mitts are out for now. Does anyone have any advice about this new drug and what to expect for side effects? We are on the learning curve for this one.
Dam
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IrinotecanDanNH said:Chemo 6, Irinotecan replaces Oxilplatin
Well the nurse didn't know about Pam's allergic reaction to the Oxilplatin until she told her... The doc is starting her on Irinotecan today. Looks like we are moving from constepation to diarrhea. There was a bit of a delay getting started this morning and I was concerned that the cancer might get a pass while we wait for the scan. That didn't happen. Looks like the cold mitts are out for now. Does anyone have any advice about this new drug and what to expect for side effects? We are on the learning curve for this one.
Dam
Hi Dan,
My husband who was diagnosed with stage 4 with a liver MET was having liver issues on Oxiplatin and after 3 very difficult treatments he was changed to Irinotecan. He was able to tolerate Irinotecan very well and his liver issues somewhat stabilized. He did not have any issues with diarrhea while on this drug. We did have prescribed medication not too far should he need to use it but he only took it once. What we were told is that at the first sign of diarrhea take something for it so that you can stay ahead of it. For him, the only major side effect that he had was heartburn and taking Nexium helped him greatlly.
The Irinotecan did shrink his tumor and his last 3 chemo treatments have now been canceled and he is starting raditation this week. I hope that your wife will do as well on this chemo. Best Wishes!
Bernice
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My second week withDanNH said:Chemo 6, Irinotecan replaces Oxilplatin
Well the nurse didn't know about Pam's allergic reaction to the Oxilplatin until she told her... The doc is starting her on Irinotecan today. Looks like we are moving from constepation to diarrhea. There was a bit of a delay getting started this morning and I was concerned that the cancer might get a pass while we wait for the scan. That didn't happen. Looks like the cold mitts are out for now. Does anyone have any advice about this new drug and what to expect for side effects? We are on the learning curve for this one.
Dam
My second week with irenotecan and Bev not as bad as the first but still worse than FOLFOX regarding overall tolerability. They stopped Oxy for me with two weeks left in the course because of the nerve damage (which I still have). Otherwise I experienced minimal nausea on FOLFOX, what little I had didn't go away after quitting Oxy.
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Chemo 6 Pump Disconnect, Hand and foot Syndrome Bad!
This has been one of the worst we've had yet. Pam's energy is about sapped. She had all she could do to make it in and out of the infusion center. She has nausea, dizziness, weakness, and hand and foot sores. Her hands and feet are very painful. Cold packs give some relief temporarily. The Doc prescribed hydrocortisone cream, which helps. She has celecoxib for pain. The hand discomfort wakes her up. She got a bag of fluids at the infusion center and has been drinking water and green tea to flush the leucovorin out of her system. It is very discouraging and depressing. Any advice about getting through this? I know it's not forever but it makes chemo 7 a tough thing to face.
Dan0 -
How many grams IVC is she up
How many grams IVC is she up to?
I didn't have HFS. I credit IVC, 100% vitE oil mixed with burts bees lotion as the carrier for the vitE to penetrate deep into the skin and baths with epsom salt, baking soda and food grade aloe was really awesome (suppose to pull left over toxins out).
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Funny you should mention Vitamin C IV
She missed her last vitamin C IV because of the PET scan they cancelled on us. Very interesting you should point that out... She has the IV tomorrow afternoon, 50 grams. I told her about your post and She is doing aloe fresh cut off the leaf and vitamin E oil as we speak. Thanks so much for your response Snap Dragon!
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IVC only stays in your system
IVC only stays in your system for 72 hrs +/-. Maybe go twice a wk and bump it up to 60 grams.
My plastic surgeon told me about 100% vitE needing a good carrier lotion. I didn't know about it. My fish gut scar is very thin, barely noticeable. He said it might work for keeping my hands and feet in tip top shape during adjuvant chemo also. I took his advice.
To add: When I was on heavy chemo Folfox I found an aromatherapy inhaler on amazon that advertised use for chemo nausea and stomach upset. It has ginger, peppermint and orange. For me, it worked.
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AromatherapySnapDragon2 said:IVC only stays in your system
IVC only stays in your system for 72 hrs +/-. Maybe go twice a wk and bump it up to 60 grams.
My plastic surgeon told me about 100% vitE needing a good carrier lotion. I didn't know about it. My fish gut scar is very thin, barely noticeable. He said it might work for keeping my hands and feet in tip top shape during adjuvant chemo also. I took his advice.
To add: When I was on heavy chemo Folfox I found an aromatherapy inhaler on amazon that advertised use for chemo nausea and stomach upset. It has ginger, peppermint and orange. For me, it worked.
That's a great idea! On it!
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CT Scan Results, Close of Chapter 1
Pam had her CT scan today and for some reason I was more anxious than I was waiting for the PET Scan that never happened. The oncologist called a few hours later while we were at our chiropractor's office getting muscle tested on Black Cumin Seed oil, which by the way, was rock solid! We will continue with that one.
The Doc said that the scan results showed a remarkable shrinkage of the tumors in her liver and lungs, with some of the lung tumors disappearing. There remains a thickening in her colon but no tumors. We were thrilled at this news. While we lack the contexts that so many of you who have more experience in this area have, from the oncologists tone it sounds very promising.
Pam is going to continue on Folfiri. It beat her up pretty badly and the Leucovorin is really hitting her hard in hand and foot syndrome. The doc may have to cut back on it or pause treatments until her hands and feet clear up a bit.
Thank-you all for helping us through this journey so far. I will start a new thread for chemo 7 and beyond.
Dan
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Congratulations,Dan and Pam,DanNH said:CT Scan Results, Close of Chapter 1
Pam had her CT scan today and for some reason I was more anxious than I was waiting for the PET Scan that never happened. The oncologist called a few hours later while we were at our chiropractor's office getting muscle tested on Black Cumin Seed oil, which by the way, was rock solid! We will continue with that one.
The Doc said that the scan results showed a remarkable shrinkage of the tumors in her liver and lungs, with some of the lung tumors disappearing. There remains a thickening in her colon but no tumors. We were thrilled at this news. While we lack the contexts that so many of you who have more experience in this area have, from the oncologists tone it sounds very promising.
Pam is going to continue on Folfiri. It beat her up pretty badly and the Leucovorin is really hitting her hard in hand and foot syndrome. The doc may have to cut back on it or pause treatments until her hands and feet clear up a bit.
Thank-you all for helping us through this journey so far. I will start a new thread for chemo 7 and beyond.
Dan
you got great news which is very encouraging! It seems that your combination of traditional and holistic medicine is fruitful. Good luck,
Suzy
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congrats
I am so happy for you and pam dan great news enjoy it
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Amazing Ch 1...Go Pam!!!DanNH said:CT Scan Results, Close of Chapter 1
Pam had her CT scan today and for some reason I was more anxious than I was waiting for the PET Scan that never happened. The oncologist called a few hours later while we were at our chiropractor's office getting muscle tested on Black Cumin Seed oil, which by the way, was rock solid! We will continue with that one.
The Doc said that the scan results showed a remarkable shrinkage of the tumors in her liver and lungs, with some of the lung tumors disappearing. There remains a thickening in her colon but no tumors. We were thrilled at this news. While we lack the contexts that so many of you who have more experience in this area have, from the oncologists tone it sounds very promising.
Pam is going to continue on Folfiri. It beat her up pretty badly and the Leucovorin is really hitting her hard in hand and foot syndrome. The doc may have to cut back on it or pause treatments until her hands and feet clear up a bit.
Thank-you all for helping us through this journey so far. I will start a new thread for chemo 7 and beyond.
Dan
Amazing Ch 1...Go Pam!!!
Is the thickening of the colon inflammation? If so, hammer it more.
Immune system high, inflammation low to none.
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The Oncologist said it wasSnapDragon2 said:Amazing Ch 1...Go Pam!!!
Amazing Ch 1...Go Pam!!!
Is the thickening of the colon inflammation? If so, hammer it more.
Immune system high, inflammation low to none.
The Oncologist said it was part of the cancer but has always described it as "thickening" and never as a tumor. Two x-rays to check for blockages and there was never a tumor as such. Maybe I can work up the courage to look at the scans now...
Dan
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Thanks Jason. We need someworriedson714 said:congrats
I am so happy for you and pam dan great news enjoy it
Thanks Jason. We need some good news about your Dad now!
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hoping toDanNH said:Thanks Jason. We need some
Thanks Jason. We need some good news about your Dad now!
Hoping we get some next week then we both can celebrate together my friend
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We actually saw Dr. Jeffreypamness said:Didn't see this earlier
Given we have some of the best hospitals in the world here in Boston, Ihope you went to Mass General for your second opinion. I was diagnosed in 2007 and am writing this today,
We actually saw Dr. Jeffrey Clark at Mass General for a second opinion before we had our first chemo. Like you say, we are lucky to have so many great hospitals close by. I hope to be able to post a message like yours about my wife Pam 14 years from now too! Your results are wonderful and I am so happy for you!
Dan
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I hope you all are having a
I hope you all are having a good day.
Question: What is the schedule for your wife's HBOT? Times per week and length of time in the chamber?
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