Let the games begin....

245

Comments

  • Molly110
    Molly110 Member Posts: 191 Member
    edited July 2020 #22
    CheeseQueen57 said:

    So far, so good

    I saw my oncologist yesterday. I've been on this therapy for two weeks and so far so good. Limited side effects and frankly I feel better than I have in years. All my labs were fine. I'll get more labs and a CT scan in August. Hoping for the best. My CA 125 was 13 so just reinforces that it is NOT a good indicator for me. So I'll continue with my marshmallow covered pill and mouth rinses and pray for effectiveness. 

    Congratulations on the good

    Congratulations on the good results, and how wonderful that you are feeling better than you have in years!

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #23
    So good to hear this Cheese!

    So good to hear this Cheese! Adding my positive hugs to your results.

    Love and Hugs,

    Cindi

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    edited July 2020 #24
    I'm so glad to hear your good

    I'm so glad to hear your good news! Please keep us updated on your progress.

    Love,

    Eldri

  • dgrdalton
    dgrdalton Member Posts: 161 Member
    #25
    So happy to hear the good

    So happy to hear the good news! Praying that you continue to feel good with minimal side effects.

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
    #26
    Infection

    So gals, I ended up with an infection through my nephrostomy tube but I think we caught it in time. Of course I'm in OCM so not the best place to be but oh well. Started experiencing fever, 103, oncologist told me to go to ER.  That was Tuesday night. Cultures are not back yet so we don't really know what organism. Had a couple rough nights But I packed my bags sufficiently with my drugs, etc. But it amazes me how the screw with your meds when your in the hospital. I'm trying to not let that happen. Even though the pharmacist was in to talk to me. Not in any incredible amount of pain. But this certainly knocks me off of my well especially established routine. **** happens I guess. Thoughts and prayers appreciated. 

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #27
    CheeseQueen57 said:

    Infection

    So gals, I ended up with an infection through my nephrostomy tube but I think we caught it in time. Of course I'm in OCM so not the best place to be but oh well. Started experiencing fever, 103, oncologist told me to go to ER.  That was Tuesday night. Cultures are not back yet so we don't really know what organism. Had a couple rough nights But I packed my bags sufficiently with my drugs, etc. But it amazes me how the screw with your meds when your in the hospital. I'm trying to not let that happen. Even though the pharmacist was in to talk to me. Not in any incredible amount of pain. But this certainly knocks me off of my well especially established routine. **** happens I guess. Thoughts and prayers appreciated. 

    Gosh darn, Cheese,

    Please substitute stronger language. I know life isn't fair, but this really isn't. Please  stay safe while your body responds to treatment And get home ASAP. 

  • LisaPizza
    LisaPizza Member Posts: 358 Member
    edited July 2020 #28
    Oh no! Glad you're on the

    Oh no! Glad you're on the mend, but geez. Take care.

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,486 Member
    edited July 2020 #29
    Prayers my friend!  Kick it

    Prayers my friend!  Kick it in the butt and I know you will TELL THEM if they try to screw with your meds.  It IS amazing.  SMH

  • BluebirdOne
    BluebirdOne Member Posts: 656 Member
    edited July 2020 #30
    Hang in there Cheese

    Not sure what OCM is, but whatever. I am thinking of you and hoping for a quick resolution. 

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
    #31
    Blood

    Now my red blood cell levels are droppin!  I'm thinking a bowel bleed. Great!

  • MAbound
    MAbound Member Posts: 1,168 Member
    #32
    OCM=Ocean City Memorial?

    Sending prayers that all will be ok, but geez, none of us want you in a hospital right now! 

  • SF73
    SF73 Member Posts: 317 Member
    edited July 2020 #33
    Wishing you all the best,

    Wishing you all the best, Cheese. Hope they will quickly solve the infection and the low red blood cell level issues. 

  • Donna Faye
    Donna Faye Member Posts: 427 Member
    #34
    You always teach us with your posts

    Cheese, first my best wishes for you to get better fast! But also, I looked for OCM and found it is the Oncology Care Model of the Affordable Care Act. Not sure I understand it yet, but thank you for putting it in the post because it sounds like we all need to know how it works.

    Again, sending best thoughts to a fellow warrior. df

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
    #35
    OCM

    Sorry gals!  OCM is an acronym for my beloved Ocean City, MD. 

  • MoeKay
    MoeKay Member Posts: 493 Member
    #36
    Afinitor Side Effects?

    Cheese, I'm so sorry to hear about the current issues you are experiencing.  I checked and see that both increased infections and low red blood cells are potential side effects of Afinitor.  https://www.oncolink.org/cancer-treatment/oncolink-rx/everolimus-afinitor-r.  I would be interested to hear what your oncologist thinks about this. 

    Good luck in getting things squared away quickly, and I hope and pray that you feel better soon!

     P.S. We've been going to OCM for more than 45 years, and were there right before Covid-19 shut everything down.

  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
    #37
    MoeKay said:

    Afinitor Side Effects?

    Cheese, I'm so sorry to hear about the current issues you are experiencing.  I checked and see that both increased infections and low red blood cells are potential side effects of Afinitor.  https://www.oncolink.org/cancer-treatment/oncolink-rx/everolimus-afinitor-r.  I would be interested to hear what your oncologist thinks about this. 

    Good luck in getting things squared away quickly, and I hope and pray that you feel better soon!

     P.S. We've been going to OCM for more than 45 years, and were there right before Covid-19 shut everything down.

    OCM

    Would love to meet up with you next time you are down (with proper social distancing!). Message me. 

  • Donna Faye
    Donna Faye Member Posts: 427 Member
    #38
    OCM

    Cheese, glad your OCM is a lovely place, but I am glad I learned about the other! Keep strong.

    df

  • dgrdalton
    dgrdalton Member Posts: 161 Member
    #39
    So sorry to hear this.

    So sorry to hear this. Sending hugs and prayers!

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #40
    Cheese,

    Cheese,

    So sorry you are having to deal with this! You are one strong lady! Thanks for sharing. Sending loads of hugs and prayers your way.

    Love and Hugs,

    Cindi

  • oldbeauty
    oldbeauty Member Posts: 378 Member
    edited July 2020 #41
    Hang in there, Cheese!

    So sorry you encountered this on your Shore holiday.  Hope you are back in situ and enjoying the sun and summer breezes.  Please be healed soon.  Best wishes, Oldbeauty

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