Ketogenic Diet - Clinical Trial Thoughts????????

58HarleySportsterman said:

Update on my treatments

Beautious3358: I just got off the phone with my radiation oncologist's nurse. I was calling him as a follow up to an appointment I had with him a month ago. At that time we discussed Moffitt's prognosis regarding my case, in which he disagreed. He feels that I am too young and healthy to just go home and die, and that he wants to try to keep me as comfortable as possible  and extend my life as much as medicine may be capable of doing. His recommendation is to step out of the box and give me lower doses of daily radiation, five days a week, twice a day for a three week period, then rest for a week to see how my body reacts to being reradiated in these areas. I had previously received forty doses in some of the same areas back in Feb-Apr 2017. Interestingly, many rad onc's don't like to or do reradiation, and even Moffitt was hesitant to go there based upon the locations of my tumors. As for my local rad onc, of the 26,000 plus patients he has treated over the last thirty-eight years of his practice, I'm apparently only the third patient that he has agreed to reradiate himself. We aren't talking "postage stamping" of small targets, as is sometimes done to clean up areas that were missed. We're talking LARGE radiation fields of areas that have already been radiated before. Vey dangerous!

 

The reason I was doing a follow up call today is because my treatments haven't started yet, even though I was fitted with a new mask four weeks ago. I was told then that the mapping for my treatment should be completed in a week to ten days. Again, that was almost a month ago! So you can bet I'm getting nervous waiting to receive word of when my reradiation treatments will begin. In addition to needing to have an answer for my medical oncologist tomorrow when he ask during my appointment. Depending on the outcome of my post reradiation treatment, my medical oncologist is considering attempting some lower dosage chemotherapy treatment to also possibly extend my life somewhat, and that time still be quality life. Thank God my local doctors aren't so quick to write me off as a deadman walking as Moffitt seems to be. Nobody is trying to promise me a cure here, as my cancer has been deemed as being "incurable" by the doctors. Rather, they are just trying to extend my life as much as they possibly can.                                                                                                                                                                           

58harley you are an inspiration to us all. You embody the saying we have on here NEGU (Never Ever Give Up). You didn't stop looking for help and hope and you found it. As you say no cure but who knows they may end up maintaining your cancer on hold but at least a very good chance of extended days and you can't put a price on that it is invaluable. I pray your days are long and your quality of life is A1-God Bless

Absolutely great for helping cancer die off in your body ! It also gives you many any anti cancer nutrients your body and immune system need to continue normal function and kill cancer cells. Like when we were much younger.

Also Important to get your blood level for Vitamin D checked. (edited by CSN staff)

Beautious3358 said:

We just left the radiation

We just left the radiation oncologists office and he said the outward visible part of the mass has all but disappeared after only 16 treatments. He is not a supporter of the Keto diet, but my husband is doing it anyway. We both feel based on common sense scientific research that it is helping. I wouldn’t suggest at an early stage (he is only at stage 1 no lymph nodes involved)to just use Keto to attempt to cure but in addition to standard treatment it could possibly even allow for a shorter course of radiation which due to the side effects sure wouldn’t be a bad thing. You mention Moffit, we are located in SWFL and almost made the decision to go to Moffit for a second opinion, but obtained a second opinion locally. Please keep me updated on your journey! 

Beautious3358: I just got off the phone with my radiation oncologist's nurse. I was calling him as a follow up to an appointment I had with him a month ago. At that time we discussed Moffitt's prognosis regarding my case, in which he disagreed. He feels that I am too young and healthy to just go home and die, and that he wants to try to keep me as comfortable as possible  and extend my life as much as medicine may be capable of doing. His recommendation is to step out of the box and give me lower doses of daily radiation, five days a week, twice a day for a three week period, then rest for a week to see how my body reacts to being reradiated in these areas. I had previously received forty doses in some of the same areas back in Feb-Apr 2017. Interestingly, many rad onc's don't like to or do reradiation, and even Moffitt was hesitant to go there based upon the locations of my tumors. As for my local rad onc, of the 26,000 plus patients he has treated over the last thirty-eight years of his practice, I'm apparently only the third patient that he has agreed to reradiate himself. We aren't talking "postage stamping" of small targets, as is sometimes done to clean up areas that were missed. We're talking LARGE radiation fields of areas that have already been radiated before. Vey dangerous!

The reason I was doing a follow up call today is because my treatments haven't started yet, even though I was fitted with a new mask four weeks ago. I was told then that the mapping for my treatment should be completed in a week to ten days. Again, that was almost a month ago! So you can bet I'm getting nervous waiting to receive word of when my reradiation treatments will begin. In addition to needing to have an answer for my medical oncologist tomorrow when he ask during my appointment. Depending on the outcome of my post reradiation treatment, my medical oncologist is considering attempting some lower dosage chemotherapy treatment to also possibly extend my life somewhat, and that time still be quality life. Thank God my local doctors aren't so quick to write me off as a deadman walking as Moffitt seems to be. Nobody is trying to promise me a cure here, as my cancer has been deemed as being "incurable" by the doctors. Rather, they are just trying to extend my life as much as they possibly can.                                                                                                                                                                           

Updating my Ketogenic Diet and reradiation treatment program for my persistant SCC of the neck and throat as requested by Beautious3358:

I began radiation treatments twice a day, five days a week at the Robert Boissoneault Oncology Institute on June 3RD, 2019. This is the institute founded by my radiation oncologist, Dr. Norman Anderson. He is considered the best rad onc in the area. Unlike most rad oncs, he is a strong believer in treating the patient twice a day with radiation, rather than once, which seems to have many positive effects on the patient verses the traditional once a day dosing. Today's doses put me on the threshold of the halfway point in the first round of my treatments before taking a week off to see how I have done. We continue to follow the Ketogenic Diet Plan deligently, in which Dr. Anderson is a huge advocate of in fighting different types of cancer, like mine. When none of us were truly expecting to see huge results this early on in this journey, the results to date have been astounding, even to the doctor. Now when I want to be jumping up on the rooftops and yelling the good news, I'm having to reel myself in and remain optimistically hopeful, as I don't want to be let down in the end. But I will say this much, between the two programs in my cancer "management" that I am currently on, (Keto + Radiation) based upon the quickness and scope of the signs we are seeing, we may very well be looking beyond simply controlling this aweful cancer that has taken over my life. It is late and time for bed, so I will expand upon this subject more on Friday. Thanks to those following my story and asking for updates. Ketogenics can help in some cases!

Continuation of this post:

The much awaited radiation treatments I'm currently receiving, almost did not come to fruition for me when I arrived for my very first trearment on 6/3/19. Might I note that this day was a milestone birthday for my wife, and this was how we were spending it, at the rad onc's office getting radiated rather than at Disney! First of all, I have to have my head slightly elevated when on the radiation table because I cannot be laid flat or I will aspirate and choke to death if they don't unclamp the mask and let me sit up to clear my airway. This in turn limits how high the table can be raised above the floor once the patient is in position. So we ran into serious trouble in the very first dose when the gun portion of the machine could not rotate down low enough to hit a portion of the large target area they are having to shoot. Instead, it hit the floor several degrees short of its mark on both sides of the neck. They could not raise me any higher from the floor because with my head elevated slightly, the gun was going to hit the mask as it passed over me while radiating its large traget. I was told the treatment could not be done and to go home and the doctor would be contacting me to discuss my options, which these treatments were supposed to have been my last option already. Suddenly as I was leaving the room, one of the techs (of the eight that were now in the room brainstorming) told me to, "Wait, don't go anywhere." Then she pointed to a tabletop leaning against the wall and asked the other techs, "What if we changed the tabletops to this longer one, do you think it would help?" They all stood there looking at it and discussing it until one of the senior looking techs said, "Lets try it." So they disassembled the table that was on the machine, and installed the other deck, then put the wedge assembly or my head in place before clampping my mask to it without me one the table. Then they ran the machine through each of the paces, as if it were treating me, all of the time carefully watch clearances so nothing hit anything. IT WORKED!!! But you could not have slid more than a single sheet of copy paper between the side of th gun and the floor!

So back on the table I went and the treatment began and all went fine. Thats how I've been treating ever ever since. I don't know what I would have done if I could not have been given these treatments to try and extend my life at the very least. I could not have a better radiation oncologist and treatment team than the Robert Boissoneault Oncology Institute. If things continue on the path were currently on, they just might cure me, or at least put my cancer into remission for a while!!! 

Ruben and Jude said:

YES YES YES

Once Ruben was diagnosed with "C", my daughter sent me a link to the ketogenic diet and I found a book (Canton) which was a good guide. Not only did we start the diet, but we both lost an amazing amount of weight in a matter of 1-2 weeks, as well as now Ruben's cholesterol level is down from 260 to 200 (over a 4 month period), without any pharmacuticals!

I have also discovered "C" grows in an acidic environment, so you should also focus on foods that produce alkaline. Here's the link: http://rense.com/1.mpicons/acidalka.htm Also, you can buy alkaline water, albeit expensive!

Here's a link to cancer fighting foods: http://www.cancure.org/cancer_fighting_foods.htm

It's too bad this is not well known information or pushed as much as the pharmacuticals are.

Hello Ruben and Jude,

Thank you for sharing this information.  One thing you may want to verify.  Is Lentils Acidic or Alkaline?  In your report it shows on both on different sections. I'm new to the cancer world so I'm just starting to think about what foods to keep and what foods to purge.  Keep up the advocacy ..love it.q