Roll Call Anyone?

Tethys41
Tethys41 Member Posts: 1,382 Member
edited March 2019 in Ovarian Cancer #1

Hi All,

We don't have much activity on this board these days, and it appears that over half of the members who do post are visitors from the uterine board.

Who do we have here, who received an ovarian cancer diagnosis?

I was diagnosed 2009 stage 3c, very aggressive.  Suboptimal debulking.  NED since 2010.

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Comments

  • longdistance_caregiver
    longdistance_caregiver Member Posts: 5
    #2
    I'm here on behalf of someone

    I'm here on behalf of someone with recurrent Ovarian, although she's had a complete historectomy first turm around and the cancer has now spread to other organs (liver, colon stomach lining,  and lung). This board is very relevant to me. I'm not sure what other active and relevant board there are out there. 

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #3
    longdistance_caregiver said:

    I'm here on behalf of someone

    I'm here on behalf of someone with recurrent Ovarian, although she's had a complete historectomy first turm around and the cancer has now spread to other organs (liver, colon stomach lining,  and lung). This board is very relevant to me. I'm not sure what other active and relevant board there are out there. 

    Hi Longdistance

    The person you are supporting is lucky to have you.  Sorry she is struggling.

    Your area may have a Gilda's Club or other cancer support group for patients, families and friends.  There is an ovarian cancer support group online called Inspire.  Facebook also has a couple of ovarian cancer support pages.  

    Good luck to you both. 

  • Chuck Z
    Chuck Z Member Posts: 22
    #4
    Roll Call

    My wife is BRACA-2 posititive. She was first diagnosed in April of 2012 with PPC. Then they changed it to Ovarian. And now they are saying it started in the Fallopian Tubes. Then in 2014. She was diagnosed with TNBC in the right breast. In January of 2018, she had a reoccurrence of both the Ovarian and the TNBC(left breast) at the same time. Buy September she was NED again and taking the PARP inhibitor ZEJULA. Two months later her blood counts crashed, and she was taken off of the ZEJULA. One month later her CBC's were still low. They ran more blood tests, and did a bone marrow biopsy. When the results came back. They said that because of all the platin and Cytoxan chemo treatments. It has caused her to get  MDS/ AML. So now she is being treated for this one at Stanford University. She has gone to war twice with the ovarian and breast cancers, and came out on top. But we've already been told that she will not beat this one.

  • Hearty Pioneer
    Hearty Pioneer Member Posts: 158
    #5
    Roll call

    i am Ovarian Cancer survivor 2012, celebrating my 7th year. 

  • Palor
    Palor Member Posts: 21
    #6
    Hi, Tethys41,

    Hi, Tethys41,

    I DX with OC stage 3 early 2018, currently under herbal maintenance. Your post (old and new) and everyone's discussion helped me a lot in this board.

    Thanks!

    Palor

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #7
    Chuck Z said:

    Roll Call

    My wife is BRACA-2 posititive. She was first diagnosed in April of 2012 with PPC. Then they changed it to Ovarian. And now they are saying it started in the Fallopian Tubes. Then in 2014. She was diagnosed with TNBC in the right breast. In January of 2018, she had a reoccurrence of both the Ovarian and the TNBC(left breast) at the same time. Buy September she was NED again and taking the PARP inhibitor ZEJULA. Two months later her blood counts crashed, and she was taken off of the ZEJULA. One month later her CBC's were still low. They ran more blood tests, and did a bone marrow biopsy. When the results came back. They said that because of all the platin and Cytoxan chemo treatments. It has caused her to get  MDS/ AML. So now she is being treated for this one at Stanford University. She has gone to war twice with the ovarian and breast cancers, and came out on top. But we've already been told that she will not beat this one.

    I'm so sorry

    Chuck,

    I'm so sorry about your wife's current condition.  

    I hope you both find peace.

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    edited March 2019 #8
    Hola

    I know there are more than three of us.  But thanks for sharing, Palor and Hearty Pioneer.  

  • azgrandma
    azgrandma Member Posts: 609 Member
    #9
    Still Here

    I am still here it has been over 9 years and doing well

  • azgrandma
    azgrandma Member Posts: 609 Member
    #10
    Chuck Z said:

    Roll Call

    My wife is BRACA-2 posititive. She was first diagnosed in April of 2012 with PPC. Then they changed it to Ovarian. And now they are saying it started in the Fallopian Tubes. Then in 2014. She was diagnosed with TNBC in the right breast. In January of 2018, she had a reoccurrence of both the Ovarian and the TNBC(left breast) at the same time. Buy September she was NED again and taking the PARP inhibitor ZEJULA. Two months later her blood counts crashed, and she was taken off of the ZEJULA. One month later her CBC's were still low. They ran more blood tests, and did a bone marrow biopsy. When the results came back. They said that because of all the platin and Cytoxan chemo treatments. It has caused her to get  MDS/ AML. So now she is being treated for this one at Stanford University. She has gone to war twice with the ovarian and breast cancers, and came out on top. But we've already been told that she will not beat this one.

    sorry

    sorry about yoru wife

  • Stoic Russian
    Stoic Russian Member Posts: 1
    edited March 2019 #11
    New member here

    i just became a member but I’ve been reading this board for a year.  I have stage IV ovarian, diagnoses a year ago.  Chemo and surgery and now I’m NED - today anyway.  I have a doctor who is a realist and never lets me think that I am cured lol.  But today I am NED. I get thru the days by realizing we are ‘terminal’ the day we are born.  When I saw the post for Roll Call I made an account.  I’m sure I’m not the only one who has been reading posts.  

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #12
    azgrandma said:

    Still Here

    I am still here it has been over 9 years and doing well

    Congratulations

    Congrats on 9 years, az.

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #13
    Stoic Russian said:

    New member here

    i just became a member but I’ve been reading this board for a year.  I have stage IV ovarian, diagnoses a year ago.  Chemo and surgery and now I’m NED - today anyway.  I have a doctor who is a realist and never lets me think that I am cured lol.  But today I am NED. I get thru the days by realizing we are ‘terminal’ the day we are born.  When I saw the post for Roll Call I made an account.  I’m sure I’m not the only one who has been reading posts.  

    Welcome

    Welcome Stoic,

    Thanks for coming here and sharing you story.  Hoping you stay NED

  • dolphinlova
    dolphinlova Member Posts: 6
    #14
    Roll Call

    Im here on behalf of my mom. She was diagnosed stage 3C in December 2017. Had the typical treatment and just got great news in Febuary. Still NED!

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #15
    dolphinlova said:

    Roll Call

    Im here on behalf of my mom. She was diagnosed stage 3C in December 2017. Had the typical treatment and just got great news in Febuary. Still NED!

    Woohoo!!!

    Congratulations

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #16
    Hello!

    Diagnosed in September 2010

    Stage 2b

    No evidence of disease since 2011

    Best wishes, everyone!

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,505 Member
    #17
    Hearty Pioneer said:

    Roll call

    i am Ovarian Cancer survivor 2012, celebrating my 7th year. 

    Hearty Pioneer!  I am so

    Hearty Pioneer!  I am so happy to see you!!!  I have been on all the gynecologic boards and it is so good to hear you are celebrating 7 years.   I am so happy for you.

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,505 Member
    #18
    azgrandma said:

    Still Here

    I am still here it has been over 9 years and doing well

    azgrandma, I remember you as

    azgrandma, I remember you as well and I am so happy to see you are celebrating over nine years.  The below the belt cancers have to look out for each other.

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,505 Member
    #19
    Chuck Z said:

    Roll Call

    My wife is BRACA-2 posititive. She was first diagnosed in April of 2012 with PPC. Then they changed it to Ovarian. And now they are saying it started in the Fallopian Tubes. Then in 2014. She was diagnosed with TNBC in the right breast. In January of 2018, she had a reoccurrence of both the Ovarian and the TNBC(left breast) at the same time. Buy September she was NED again and taking the PARP inhibitor ZEJULA. Two months later her blood counts crashed, and she was taken off of the ZEJULA. One month later her CBC's were still low. They ran more blood tests, and did a bone marrow biopsy. When the results came back. They said that because of all the platin and Cytoxan chemo treatments. It has caused her to get  MDS/ AML. So now she is being treated for this one at Stanford University. She has gone to war twice with the ovarian and breast cancers, and came out on top. But we've already been told that she will not beat this one.

    Chuck, I am so sorry to hear

    Chuck, I am so sorry to hear what your wife and you have been going through.  No one fights alone, and she is certainly lucky to have someone who loves her at her side.  My prayers are for you and your wife.  

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #20
    lovesanimals said:

    Hello!

    Diagnosed in September 2010

    Stage 2b

    No evidence of disease since 2011

    Best wishes, everyone!

    Good to see you

    Good to see you, lovesanimals.

    So glad to hear you are still doing well. 

  • Julie's Sister
    Julie's Sister Member Posts: 18 Member
    #21
    Hello

    I was my sister's caretaker along with her husband as she fought ovc.  Unfortunately after 14 months she passed away from ovc at the age of 46.  I am determined to help spread awareness and also offer support where I can.  I also want to learn as much about this disease as I can for the other women in my family.  That is why I am here.  Thanks to all of you for all your insight and wisdom.

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