Camul On top
Comments
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Continue to BEEpositive
Sorry your lakehouse is gone!! Glad noone was hurt...yeah things we thought were sooo important prior to cancer seem so secondary now..LIFE and family is very important...DONT SWEAT THE SMALL STUFF ANYMORE ..I DONT ONLY CONTROL WHAT YOU CAN CONTROL! THERE IS ALWAYS SOMEONE IS WORST SITUATION THAN WE ARE..I WILL CONTINE TO COUNT MY BLESSINGS! CONTINUED BLESSINGS AND PRAYERS TO ALL!!
BEEPOSITIVE!!
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Do you have an aid to shower ?
That was one of last weeks topics again! Lol. i leave on my robe, hold the counter, get into the claw foot tub, covered of course. My son stands there in case I would fall to stop me. Then I sit on my chair he goes out I undress and sit down shower. I have a hook for the towel and clothes. Dry off get dressed then call him and he helps Me out, not ideal, but not yet ready for an aide, it's one of my last
an do's.
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Right!
That's exactly how I had to shower for weeks after the brain thing. But the tech stayed the whole time and kept giving me instructions like I was 4 years old. Now, first you use the soap, etc. Did I soap HER?!?!?! I wanted to but you need the staff on your side and I was already getting a reputation. Afterwards, my Onc told me the reputation spread throughout and he laughed about his miracle patient stirring things up.
But I did a little thing to ease the annoyance. I left everything on the floor and the wet floor of the shower. So mean was I. Definite karma damage
Have a giggle day love
Sherry
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They working?
Hope they do the job. Do they? It's always a toss-up. Purpose of meds or side affects of meds. I will never forget the grin on my neurosurgeon's face when he offered a med for the side affects of the one I had a bad reaction to and I refused to take a med for a med. He was positively joyous as was I because I was thrilled I could make that choice.
By the way, matzoh is a great colon cleanser!
Wishing you the rose garden even though I can't promise it.
Shalom Sensei
Sherry
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I was just thinking of
I never promised you a rose garden, along with the sunshine.... it was sunny and beautiful today. So.... Yesterday I was talking to an old friend who lives in So Cal near Temecula and another call pops in???? I didn't know the number. Last night I took my pain meds (which make me feel like I am invincible for about an hour, (my kids know when it kicks in as I think I can do anything).
It was an old high school friend. She just got in town for a conference and leaves tomorrow, staying 2 miles from me. Sat. night they had a surprise party in San Bernardino for my bff, I wasn't invited and was hurt and asked why last night? Said they knew I couldn't travel and would trY! I said I would have own with my daughter-in-law.... the invincible pain meds speaking. Lol
I met her for a lovely 1/2 hour visit. My son and his wife took me to the hotel, we had a 45 min gap before her spea hard, we both told concierge needed the coffee shop. He seats me in the restaurant her in coffee shop. Knew that wasn't me asking for restaurant as my son walks no in and told the concierge coffee shop! So we wasted 15 minutes b4 I texted to see how late she would be , thinking her last session may have run over!
She had just told me how bad she felt about the party, when my son heard it he and wife just cracked up and he said mom was that after you took your pain meds last night that you thought you could have traveled? We were all laughing, this is as he is helping lift my legs into the car, and she says how would you have flown? He said that's the Dilauded speaking.
Her sister passed (we grew up directly across the street from each other in Ontario, California so our families all knew each other) from cancer that had spread to bones, also on high doses of opiates. She was cracking up. Said she and her 2 sisters made a lot of 3 hour drives to do something her sister wanted to do, and she would be too sore or asleep when they got there so they would just hang and spend the weekend.
It is s not really funny but I am laying here and honestly, I take the pain meds and then I online shop, see amazing meals on tv or movies, so find great recipes, sometimes it is looking up travel specials.... the good thing is that I don't have my ATM card within reach.. lol.
Boys just laugh , they say they know when meds kick in cause when the pain goes down, my invincible brain believes I can do it all!
Gotta laugh and keep up my sense of humor. And yes Tufi, I am not as down as I was. I am sure it is a combo, the increase in pain meds an the low dose of steroids( even thou I hate to admit it could be the steroids!)
Have a great knight Tufi, Jean and everyone else!
Carol
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Whoopee!
Listen to you! It's like a real life ain't it? Oh joy! This makes me feel so good. See? I can even turn this around to be about me. It reminded of when I went to my son 's wedding last labor day. I have no family here, but they all said they would come here first to get me. I said no, I can fly myself and I got the airport people to wait on me hand and foot no extra charge. When I arrived, it was like the queen of england had come! Such love and warmies and care, I didn't have to do a thing for myself! They all said the wedding was everyone's excuse to fly across the country and be with me. and one of them was my bff since I was 12 and hadn't seen in person in10 years.
Isn't this wonderful stuff to have these things happen? You are so fortunate to have your family. These episodes, big and small, are so renewing and go a long way to feeling like a normal person. I commend you for this very personal conversation. I don't think you realize how uplifting it is to me and, I am sure, everyone else in your fan club here.
Bursting with love abnd carin and wanting another good day for you
Sherry
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Carol
I am so thrilled to see your post. It gives us all strength to keep hanging in there and it shows us that it is not the stage of the cancer, it is the strength and bravery of the person. And that you are. Though it may not be your intention, I think you are showing other's that you take ea. day as it comes and you fight and you get the best out of that day that you can. You remind me of my favorite Aunt that fought so hard and inspired so many along her journey. I appriciate the time you take to just say hey to us. I am looking forward to hearing more.
Hug so gentle
Annie
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Have to keep you on top
Camul, keeping you on top seems not to be a hard job because we are always here waiting on a fulfillment of joy of words from you. Even with your problems you make people smile and laugh and what that does to a person is make their days wonderful also. Hope you continue you laughter, makes you and all of us closer together.
HUGS0 -
Kon'nichiwa Ninja!
The rhythm of the universe is on the good side. Not to sound like an old hippie, which I am sorta, ever notice that stuff comes in cycles so it feels like when crap happens, it is a plateful all at once. Then it slowly turns to where all the good stuff is happening at the same time. Well, we are in a good part of this cycle and if it is person-based, I am sending the good to you. Have a great day.
Sherry
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Love you Carol!camul said:I was just thinking of
I never promised you a rose garden, along with the sunshine.... it was sunny and beautiful today. So.... Yesterday I was talking to an old friend who lives in So Cal near Temecula and another call pops in???? I didn't know the number. Last night I took my pain meds (which make me feel like I am invincible for about an hour, (my kids know when it kicks in as I think I can do anything).
It was an old high school friend. She just got in town for a conference and leaves tomorrow, staying 2 miles from me. Sat. night they had a surprise party in San Bernardino for my bff, I wasn't invited and was hurt and asked why last night? Said they knew I couldn't travel and would trY! I said I would have own with my daughter-in-law.... the invincible pain meds speaking. Lol
I met her for a lovely 1/2 hour visit. My son and his wife took me to the hotel, we had a 45 min gap before her spea hard, we both told concierge needed the coffee shop. He seats me in the restaurant her in coffee shop. Knew that wasn't me asking for restaurant as my son walks no in and told the concierge coffee shop! So we wasted 15 minutes b4 I texted to see how late she would be , thinking her last session may have run over!
She had just told me how bad she felt about the party, when my son heard it he and wife just cracked up and he said mom was that after you took your pain meds last night that you thought you could have traveled? We were all laughing, this is as he is helping lift my legs into the car, and she says how would you have flown? He said that's the Dilauded speaking.
Her sister passed (we grew up directly across the street from each other in Ontario, California so our families all knew each other) from cancer that had spread to bones, also on high doses of opiates. She was cracking up. Said she and her 2 sisters made a lot of 3 hour drives to do something her sister wanted to do, and she would be too sore or asleep when they got there so they would just hang and spend the weekend.
It is s not really funny but I am laying here and honestly, I take the pain meds and then I online shop, see amazing meals on tv or movies, so find great recipes, sometimes it is looking up travel specials.... the good thing is that I don't have my ATM card within reach.. lol.
Boys just laugh , they say they know when meds kick in cause when the pain goes down, my invincible brain believes I can do it all!
Gotta laugh and keep up my sense of humor. And yes Tufi, I am not as down as I was. I am sure it is a combo, the increase in pain meds an the low dose of steroids( even thou I hate to admit it could be the steroids!)
Have a great knight Tufi, Jean and everyone else!
Carol
Keep fighting, my friend.
xoxo,
Jean
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Upped the patch again yesterday.
Woke up feeling awful this am. The s/e even low dose of the steroids is kicking in, I am craving sweets. I should have taken some dilauded today to help with the pain. I thought increasing the Fentanyl would kick in but it is 24 hrs and the pain would at least let up a little with the dilauded. Kind of scares me to take it. My boys said the pain dr Saadi if it didn't do it it would be ok to take the dilauded for the pain, yet it still s ares me. I kind of worry about overdosing. They keep saying the dose isn't that high... so I am laying here (all day, in and out of sleep, sore as can be)even though the nurse says just fake one at a time????? This is in adittion to the Valium for the leg cramps, thyroid meds, antibiotics etc. like 14 -16 pills a day.
I would never have been a drug addict, I hate not being in control yet the only time I don't have horrible pain is when I am sleeping or eating sweets again with the steroids!
So, I am going to take one and go to bed.
Thanks everyone and good night!0 -
Ninja forever
Think this
toll house chocolate chip cookies, fudge cake, cannolis ( my fav), brownies all ways, butter cookies, cinnamon swirly things with apples and nuts inside and...
I better get some donuts or something immediately! nothing in the house
Love, we know enough that we know what we don't know, but we are all here with you and trying to soak up that pain and discomfort. Remember the rat pack? Maybe we can get that world-wide brain going and take on what we can to relieve you. Never wanted to be a rat more than now.
Just remember what a wise person told me. Do not be a martyr to your pain! Take whatever will work and forget about ramifications from a previous life. Get it done however you cam. love
sleeeeeep, sleeeeeep. wake up to sunshine
Sherry
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