Camul On top

tufi000
tufi000 Member Posts: 745 Member
in Breast Cancer #1

Sensei we are all here for you as you know but too lazy to scroll down or make you scroll down to communicate.

Always hoping for some comfort

Your loving Daigakusei

Sherry

 

 

 

 

 

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Comments

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #2
    Thinking of you

    and sending love. You're ever in my thoughts.

    xoxo

    Victoria 

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #3
    Ditto

    Thinking of you often.

    Suzanne

  • Apaugh
    Apaugh Member Posts: 850 Member
    #4
    ditto

    In my prayers for peace and comfort for you. 

    Hug

    Annie

  • camul
    camul Member Posts: 2,537
    #5
    I know all of you are and I only hope you know how much I

    All of you.  I am fighting this depression, lol....   I am trying to figure it out. Started seeing an LCSW.  She has been counselingwith hospice for close to 20 years or 15, she says with constantpain it is impossible not to have depression. I have so much pain from tailbone to neck, ribs and lungs killing me.  She seemed to get it but said she won't give me false hope,  it will most likely not get better.  I love the honesty.  With this much invasion they are surprised I am still Function.   That is the problem, i don't function. I sleep, wake

    up, take pan meds and go to sleep.  Walking and showering hurt like hell. I still do it but

    not without pain.

  • tufi000
    tufi000 Member Posts: 745 Member
    edited March 2017 #6
    Uhhh but...

    You just funtioned! Walking and showering, I have learned, is a real luxury to be able to do it. Unfortunately I have learned how different depression is from sad and the blues. There are no answers Sensei, only those who wish they had them.

    It is obvious it hasn't broken you. Very encouraging but enduring this is not the best part of the universe's structure. Though you continue to teach us all here, please alter your focus to taking care of yourself! (Well, I tried) A tiny giggle perhaps?

    Remember the rat pack unibrain network?? Sending out the call. And continue hopes for less/no pain time.

    Lovin' you Ninja (you are fighting now not teaching (Sensei)

    Sherry

     

  • Apaugh
    Apaugh Member Posts: 850 Member
    edited March 2017 #7
    You are a true warrior

     You have shown grace and compassion in a desperately painful time in your journey.  My heart aches for you to have some relief.  Continued prayers.

    Gentle hug,

    Annie

  • tufi000
    tufi000 Member Posts: 745 Member
    #8
    It's Spring!!!!

    Just sayin'.  Maybe Spring can bestow some comfort. Hope that your day is a good one.  Trying to just check in and keep you on top!!!!

    Sherry

  • lintx
    lintx Member Posts: 697
    edited March 2017 #9
    Sweet Carol

    Thinking of you each day. Praying for some comfort and loving your spirit. Hugs, Linda

  • peony
    peony Member Posts: 306 Member
    #10
    Let's keep her on top. She's

    Let's keep her on top. She's our hero.

  • Apaugh
    Apaugh Member Posts: 850 Member
    #11
    She is the tops!

    I hope your able to get outside today and feel the warm sun on your face. 

    Hugs,

    Annie

  • Teach76
    Teach76 Member Posts: 354 Member
    #12
    Thinking of you today

    Prayers for a beautiful Sunday for you - full of smiles and blessings!

    Kathy

  • aisling8
    aisling8 Member Posts: 1,627 Member
    edited March 2017 #13
    Bumping up

    Saying hello, thinking of you. 

    Just so you know, it's rained and rained and rained here in North County. When it stops raining it's chillier than usual, weeks and months in the sixties. So. Just saying you haven't missed much in the paradise department.

    xo

    Victoria 

  • tufi000
    tufi000 Member Posts: 745 Member
    edited March 2017 #14
    Keeping You On Top

    Thank you all of you for maintaining our wonderful Carol at the top here.

    Clearly this is the most importqnt thing in all of our hearts as we travel with you dear Sensei. You will never have to scroll down to see if you are still totally surrounded by our love and adoration

    I am getting a whole bunch of muddy footprints in here at the moment by quite a large animal, not Don. The raccoons continue to feed in this milder temperature and Don puts their food out of the rain as a shaggy raccoon is a cold raccoon and their under the shed home isn't heated.

    Tests this week for something new were good. WHEW! I thought of you through this whole mess and it gave me what I needed to make it. There you go Sensei, always there.

    Be comfortable PLEASE let that happen.

    Sherry

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    edited March 2017 #15
    Yes, we're all still here with you

    and keeping you in our thoughts and prayers.

    Suzanne

  • GreeneyedGirl
    GreeneyedGirl Member Posts: 1,077
    #16
    Thinking of you ~♡

    Peace in your heart and mind, rest for your body~♡

  • Apaugh
    Apaugh Member Posts: 850 Member
    #17
    Thinking of you and your family

    I hope you got some laughter in today.  It is so good on the soul.

  • tufi000
    tufi000 Member Posts: 745 Member
    #18
    Sad, but....

    Sad, but I thought you would want to know. Joe (Soccerfreaks) started chemo today after 10 yrs. Colon mets to liver. Has 10-20 months. I am heartbroken.

    I didn't want to bring you down but he was from our good old days and thought I should tell you.

    Please don't hurt tonight Sensaei

    Sherry

  • camul
    camul Member Posts: 2,537
    edited March 2017 #19
    You guys are the best. My niece bought a beautiful home in south

    Carlsbad up by the rec Center my sister is there again this weekend for her baby's 2nd birthday.  She has been down there probably 6 times already since the first of the year and she Has seen a lot of rain, same as northern ca, and my son was in San Diego Tuesday for a concert, it was clear but chilly.  They were there two weeks prior but the concert was postponed.  

    It got to 78 here one day last week.  I slept and was so disappointed when I woke up and realized I missed it. 

    The hospice Doctor and nurse were here today. I am going to try a lower dose of steroids and an anti depressant to see if that takes away some of the bone pain without the massive swelling.  She is hoping it will help with the head pressure, cramping and all the side effects from the pain meds.  I agreed to a lower dose, last one was 16 mg for months and got the Lymphodema in my legs, this is 1 mg  2 max. Said I was on too high of a dose of a short term steroid but it was long term,  hopefully this will be better. I refused bumping up to 250 - 300 mg of the Fentanyl patches, 200 is hard and now it is better at 48hr changes, 72 hrs was worn off and the withdrawyls would start.  She said a lot of this is from all of the radiation, however, the radiation has really kept me here longer and it helped with the pain. So....  every choice has consequence/ or with cancer, side effects,  I just have to learn how to deal with the chronic pains n and get the pain to a level where I can function.  I am so done with sleeping more than anything, and learn a healthy way to deal with the grieving, took about 15+ years for the anger to set in and it is another learning curve...  Vegas time (if I could sit long enough to get there).

    Hugs you all, 

    you inspire me and have to tell you how much it

    means to see you all care.

    Love Carol

     

  • tufi000
    tufi000 Member Posts: 745 Member
    edited March 2017 #20
    SENSEI!

    NOW YOU are starting to get the anger thing??!?!?!?!?! Have you forgotten when the rest of us got that and you healed us????? Are we having a pity party next?  Remember those? They were hysterical.

    Funny about Carlsbad. My sister in law moved from Northern New Jersey after 50 yrs to be with her progeny in SoCal. Didn't like peeps there near LA so moved to Florida. That lasted 2 months, so sold THAT place and got a sweet place in Carlsbad a few nonths ago. It is only 20 min from her daughter and son lives right there.

    Uh...Sensei, maybe we all should have our own chatroom huh?

    Hope the new progam works. Lovin' ya

    Sherry

  • Teach76
    Teach76 Member Posts: 354 Member
    edited March 2017 #21
    Hi, Carol

    Hi, Carol!  It was nice to read your advice on the hair loss/gain issue in another thread.  I don't know about the rest of you (I'm in southeast PA) -  with all this talk of 78 degrees, SoCal, and concerts, I am ready for water ice!!!!!!!  Who's got the bus?

    Hoping your hours awake are full of laughter!

    Peace and prayers,

    Kathy

     

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