Any old timers still around?

So nice to see all of you old timer. My wife was diagnosed with 3B in January,2 011. You all helped us immensely. We had a scare in Aug,2013 with lung spots, which thank God disappeared. I am happy to say that my wife gave birth to a beautiful daughter last year in June. DD is 13 months old. 

I have no words to thank you all for what you did for us.....

wolfen said:

Still Here

Watching over all of you and wishing the best for everyone. It is a rough road for sure. Today would have been Johnnybegood's 52nd birthday.

Luv,

Wolfen

Hey Wolfen,

Sorry to hear that you're so down but...listen, try to celebrate your loved one's birthday...don't grieve because your loved one is way better off than staying here suffering. I know, it's easier sad than done...but that's what I realized on my own. My Mom would've became 39 on the 26th of July and every year that day I buy a potted flower and take care of it for her. She has now 7 of them, since it's been odd 7 years that she is gone. But I know this is good for her this way. Think about that, and live your life in a way that will make your loved one smile, instead of feeling so guilty that they left you. I wish you strength!!!

It's great to see so many long time survivors. On the flip side, it is sad to hear of your friends from the board who have since passed on. Those of you who have survived this long give me hope for the future.

Hugs,

Ellen

aggie0053 said:

update

sorry i haven't been on in awhile. my wife came down with pancreatic cancer last year. passed dec 21, mines still in tack, go every 4 months for test. i just have a hard time on this sorry

I am so very sorry to hear about your wife.  Damn this Cancer! It just won't let up, will it. 

I am happy to hear that you are staying well, as far as your Cancer goes. 

I wish I could take your pain away.  

SUE

Great to see alot of members that i can call family. We were in the fight and we cried and we laughed and we always showed respect and love for each other.

yes we have lost alot of our family to the beast, but we have to go on for them and help the newbies. I owe alot to the members here and will never forget them.

God bless all of you. Never, ever give up !!!

Today must be the day for reunions! I'd been posting updates on my facebook pages as my cancer status is "strange" right now, and got really curious about how many stage IV's are still surviving past five years. 

My curiosity stems from realizing all of the stage IV people that I was friends with from here, and became friends with on facebook, have all passed away. It's so good to see there are so many still surviving outside of my little circle, and even thriving! Including all the other stages that have come so far for so long! I'm lucky I'm friends with Brooks on FB, so we get to keep in touch. Any of you that are on facebook, please friend me! I love being able to share stories and aspects of our lives that we wouldn't really be able to otherwise.

Lisa (Scouty), I'm so extremely happy to see you're still on here! I have to say that you're a big part of the reason why I'm doing as well as I am. Emily, too! Keeping your stories close to my heart kept me strong during all those times i had to say, "No, but thank you" to the doctors who pressured me relentlessly to continue chemo. I haven't touched a drop since 2008 even though I've had four recurrences.

I see a lot of familiar names and faces of others who gave me encouragement and the detrimental advice the doctors were clueless about. It's making me realize it may be important for me to stay on these boards to encourage and give support to others who are like I was; scared, confused, and desperate to find the strength they need to do what they need to do to survive. I'm sure there's a lot of people who need the support of going against the standards of care, like I did. If it wasn't for people like Lisa and Emily, I really don't know if I would've had the courage to keep saying no.

Nice to see you, Brooks!

I forgot to add my name so you guys can friend me. lol! Krista D'Ambroso

A newbie once again, as a new tumor rears its ugly head, and I must face surgery and at least IP chemo in the very near future.  At least I had a 9 year break.

Alice

beaumontdave said:

Mine was a 3.2cm met to the

Mine was a 3.2cm met to the liver,merging with the diaphram. The hole they left allowed fluid up into the lung sac and forced 2 needle aspirations, but I'm clear for 2 years as of Labor Day. I hope it comes out well for you.................................Dave

Thanks, for letting me know Dave, Ive had a liver resect twice before, but the diaphragm is new. A bit nervous about that. My surgery is scheduled for the 21st of this month. Be glad when its over!!! May I ask is your breathing capacity has changed at all?  Thanks Judy

funshine said:

still kicking

I was diagnosed 2010 with stage IV, never NED, just been fighting it hard. I never joined until now. Most recently I was on immune therapy it actually attacked my thyroid now my cea is as high as ever and have more spots in my lungs. BUt hey I made it 6 years. Im extremely tired but i keep going. I think I will refuse more chemo. they sent me for a new dna test to see what mutations I have in my blood to tell them which treatment would work the best.Thing is I have tried all the chemos left. Im tired of being a guinea pig. they dont know the answers just act like they do. I was told I would only live 2 years. so I guess i did better than they thought. The rest of the time I have I refuse to be sick and live like the living dead. So we will see how it goes.

each different for individuals, when your spirit and body have had enough. 

I wish you well, and may the previous treatments keep you alive for many years. 

SUE