Any old timers still around?

just4Brooks
just4Brooks Member Posts: 980 Member
in Colorectal Cancer #1

Good morning fellow Cancer peeps, most of you don't know me but my name is Brooks (username Just4Brooks) and I was  diagnosed in 2009. I was A very active member back in the day and knew almost everybody on CSN. I thought I'd log on and see who's if any of us old timers are still around. So please stop in and say hello, and give a short update on how things are going. 

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Comments

  • abrub
    abrub Member Posts: 2,174 Member
    #2
    Still doing great

    Still here, still healthy, still happy.  Life is good.  9 yrs post-dx.

    Alice

  • Jaylo969
    Jaylo969 Member Posts: 824 Member
    #3
    Checkin' in

    Hey Brooks!  I am not here very often anymore but I am still very involved locally with Rumpshakers, ACS, TOUCH, and Hope Lodge. So glad I checked in tonight and saw your post.

    I am going on 7 yrs. diagnosis. Have lots of permanent side effects ( neuropathy, chemo brain, strictures, etc. ) but I am still kicking. I recently took an early social security as I finally realized that going back to work was really not an option.

    I read your other post re: "Neuropathy" and I am sorry to hear that it is causing you such grief. I have learned to adapt somewhat after multiple falls and accidents. Opiates don't even touch the pain that I have but believe it or not Meloxicam ( Mobic ) does. It is awfully harsh on the stomach but sometimes it is worth it to get a little relief from the foot/leg/hand/arm pain :) Good to see you and Alice both. I miss Y'all. Maybe we should think about coming back more often....

    -Pat aka jaylo ....Yikes, My profile picture is gone!

     

  • mukamom
    mukamom Member Posts: 402
    #4
    Still here

    too.  Robert, DH, dx in 12/08 IV.  Still in active treatment.  Taking Lonsurf at the moment.  Pretty rough on him. Fatigue, nausea, vomiting. Nothing like FOLFOX or FOLFRI.  He has the neuropathy, too, 18 months out from Folfox.  Getting ready for SIRT procedure on his liver tumors later this month.  

    Best to all

    Angela

  • ron50
    ron50 Member Posts: 1,723 Member
    #5
    Still around

       !8 years and five months post stage 3c crc, Cheers Ron.

  • danker
    danker Member Posts: 1,276 Member
    #6
    old timer

    based on age, I am an old-timer!!! LOL  I was dxed in 2009 and with treatment became NED in 2010.  Been NED ever since. Lucky me! Today is my birthday. just turned 84!!!

  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    #7
    Still here after 11 years!

    Diagnosed Stage 4 in May 2005.  Sigmoid resection.  Xeloda/oxy/avastin.  NED by 12/2005.  Lung resetion due to recurrence in 4/2009.  NED since.  I don't come here much more as treatments may have changed and I don't know so many people.

     

    Good luck all!

    Betsy

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #8
    Am I an old timer? :D

    If so, I'm around, just not commenting as often.

    Dx'ed stage 4 in 2009, I'm glad to be able to say that through sheer luck I'm still NED, going on 5 years.

  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #9
    Still here

    Dx Feb 2004. Still undergoing treatment for lung mets but doing well overall. I recently bought my third kayak. While I've lost a good chunk of my lung capacity it doesn't really affect my kayaking. 

    I'm not on this site often but it was helpful for a time. 
    Unfortunately we've lost many of the old timers...

     

  • impactzone
    impactzone Member Posts: 555 Member
    #10
    Still here doing well. Dx

    Still here doing well. Dx almost 10 years ago  ( august 2006) stage 4.

  • minibull
    minibull Member Posts: 56 Member
    #11
    Aloha Brooks

    i sometimes wonder how you're doing.  I remember you were the first to reach out to me when I got diagnosed in Sept. 2009.  I was so scared and your friendship and advice were really appreciated.  I've been doing really well except for neuropathy in my feet and a little in my hands but I consider that to be a small price to pay for my life. It's been so depressing for me to see that a lot of the people I "grew up" with are now gone so I rarely post although I read the posts fairly often.  My onc told me that if I have 1 more good CEA reading, he was going to cut me loose. What a happy day that will be! I don't think about cancer so often these days but pray that it never returns. It was nice seeing you again.  Take care and keep in touch.

    Laureen

     

  • swimmer22
    swimmer22 Member Posts: 60
    #12
    Here and doing well

    Just had scans and labs last week and I am in year 5 since end of all treatments and still happy to report No Evidence of Disease- from an initial Stage IV diagonisis with rectal cancer and three lung mets.  Best of luck and prayers to everyone currently in this fight. Wishing all the best.

  • traci43
    traci43 Member Posts: 773 Member
    #13
    still here

     /Diagnosed in 2007, and in remission 2 years now.  Going strong and hoping to stay clear for many moons now.  Traci

  • impactzone
    impactzone Member Posts: 555 Member
    edited June 2016 #14
    minibull said:

    Aloha Brooks

    i sometimes wonder how you're doing.  I remember you were the first to reach out to me when I got diagnosed in Sept. 2009.  I was so scared and your friendship and advice were really appreciated.  I've been doing really well except for neuropathy in my feet and a little in my hands but I consider that to be a small price to pay for my life. It's been so depressing for me to see that a lot of the people I "grew up" with are now gone so I rarely post although I read the posts fairly often.  My onc told me that if I have 1 more good CEA reading, he was going to cut me loose. What a happy day that will be! I don't think about cancer so often these days but pray that it never returns. It was nice seeing you again.  Take care and keep in touch.

    Laureen

     

    Very glad I was of some help.

    Very glad I was of some help. Congratulations and all my best

    Chip

  • Joy1216
    Joy1216 Member Posts: 290 Member
    edited June 2016 #15
    Been around 10 years

    I was diagnosed with stage I colon cancer in March of 2006. I had a resection to remove the tumor in my cecum. No further treatment since then, but I have had six colonoscopies. I don't check in here very often as it breaks my heart to lose members of this board. I have been NED since surgery 10 years ago. I am doing well although I still have colon issues occasionally. Cancer messes with your mind and definitely changed my attitude toward life in general. Last fall my husband and I moved to Florida without knowing a soul, but we felt that God was leading us here. Moving halfway across the country was not anything I would have even considered before cancer but we did it and couldn't be happier.

  • maglets
    maglets Member Posts: 2,576 Member
    #16
    Brooks

    Still here and still kickin......on my fourth go round with the beast......after three bouts of colorectal I developed breast cancer last Dec.  Lovely to see some "old" friends on this thread.....thanks Brooks

    maggie

  • Trapbear
    Trapbear Member Posts: 108 Member
    edited June 2016 #17
    I'm still here. Will soon be

    I'm still here. Will soon be two years since my sweet husband passed. I still check in to see how everyone is doing.

    Bill 

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #18
    Trapbear said:

    I'm still here. Will soon be

    I'm still here. Will soon be two years since my sweet husband passed. I still check in to see how everyone is doing.

    Bill 

    So good to see your name here

    I've thought of you, over the past few years. 

    SUE

  • Helen321
    Helen321 Member Posts: 1,460 Member
    #19
    I'm more of a newbie 2012 but

    I'm more of a newbie 2012 but glad to see you still here from 2009.  I came on when a lot of people from your group were saying goodbye and that was ROUGH!  I miss them, they were fantastic people.  It's good to see all of you who did make it through.  Hope eternal.

  • beaumontdave
    beaumontdave Member Posts: 1,289 Member
    edited June 2016 #20
    I've had the stuff since Sep.

    I've had the stuff since Sep. '07, but didn't sign in until 2013. Even then, I've seen enough come and go to know this place is great support and a heartbreak. Such is life, giving with one hand and taking with the other.........................Dave

  • marbleotis
    marbleotis Member Posts: 720 Member
    edited June 2016 #21
    5 Years in Jan 2017

    Well I guess that counts as an old-timer.  Was stage 3b signet cell. 

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