Any old timers still around?

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  • very worried husband
    very worried husband Member Posts: 88
    #42
    So Nice!

    So nice to see all of you old timer. My wife was diagnosed with 3B in January,2 011. You all helped us immensely. We had a scare in Aug,2013 with lung spots, which thank God disappeared. I am happy to say that my wife gave birth to a beautiful daughter last year in June. DD is 13 months old. 

    I have no words to thank you all for what you did for us.....

  • sharpy102
    sharpy102 Member Posts: 368 Member
    #43
    So good to see all you old

    So good to see all you old timers here!! I was wondering actually about the same thing the other day. I don't come here much, and there are soooo many new people here (unfortunately) yet, it always make me wonder if you guys are not around, or what has happened with you all since I've been up here. I used to lurk around here much more, especially back in 2009 when my Mom was going through the troubles of cancer, but then I sort of faded away here. I hope all of you are doing relatively well!!! I am definitely very happy to see you all here!!!! I wonder how you are all doing....and the big reason I tend to avoid this site as I'm afraid to find out who is gone. :( Back in 2009 people here became sort of my family and I greatly appreciated that...All the best, people!!! I miss you all and wish you all the very best!!!!

  • sharpy102
    sharpy102 Member Posts: 368 Member
    edited August 2016 #44
    wolfen said:

    Still Here

    Watching over all of you and wishing the best for everyone. It is a rough road for sure. Today would have been Johnnybegood's 52nd birthday.

    Luv,

    Wolfen

    little advice

    Hey Wolfen,

    Sorry to hear that you're so down but...listen, try to celebrate your loved one's birthday...don't grieve because your loved one is way better off than staying here suffering. I know, it's easier sad than done...but that's what I realized on my own. My Mom would've became 39 on the 26th of July and every year that day I buy a potted flower and take care of it for her. She has now 7 of them, since it's been odd 7 years that she is gone. But I know this is good for her this way. Think about that, and live your life in a way that will make your loved one smile, instead of feeling so guilty that they left you. I wish you strength!!!

  • jjaj133
    jjaj133 Member Posts: 867 Member
    #45
    still here but i may have the big c again

    Hi all, been a long time, so glad to see so many old friends. Ive been just fine for almost 5 years. a nodule discovered in 2014  has been stable, it starts our 1 cm and now it 3.2 cm. waiting for an appt. with the surgeon. the glitch is its going into the diaphragm. they called it a subdiaphramatic nodule. I call it a pain in the a---.so here i am again, but tickled to see you all.

  • ellend
    ellend Member Posts: 109 Member
    #46
    It is bittersweet to read this board

    It's great to see so many long time survivors. On the flip side, it is sad to hear of your friends from the board who have since passed on. Those of you who have survived this long give me hope for the future.

    Hugs,

    Ellen

  • aggie0053
    aggie0053 Member Posts: 110
    #47
    update

    sorry i haven't been on in awhile. my wife came down with pancreatic cancer last year. passed dec 21, mines still in tack, go every 4 months for test. i just have a hard time on this sorry

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    edited August 2016 #48
    aggie0053 said:

    update

    sorry i haven't been on in awhile. my wife came down with pancreatic cancer last year. passed dec 21, mines still in tack, go every 4 months for test. i just have a hard time on this sorry

    Oh, dear aggie!

    I am so very sorry to hear about your wife.  Damn this Cancer! It just won't let up, will it. 

    I am happy to hear that you are staying well, as far as your Cancer goes. 

    I wish I could take your pain away.  

    SUE

  • beaumontdave
    beaumontdave Member Posts: 1,289 Member
    #49
    jjaj133 said:

    still here but i may have the big c again

    Hi all, been a long time, so glad to see so many old friends. Ive been just fine for almost 5 years. a nodule discovered in 2014  has been stable, it starts our 1 cm and now it 3.2 cm. waiting for an appt. with the surgeon. the glitch is its going into the diaphragm. they called it a subdiaphramatic nodule. I call it a pain in the a---.so here i am again, but tickled to see you all.

    Mine was a 3.2cm met to the

    Mine was a 3.2cm met to the liver,merging with the diaphram. The hole they left allowed fluid up into the lung sac and forced 2 needle aspirations, but I'm clear for 2 years as of Labor Day. I hope it comes out well for you.................................Dave

  • fedester
    fedester Member Posts: 753 Member
    edited August 2016 #50
    Great to see alot of my friends

    Great to see alot of members that i can call family. We were in the fight and we cried and we laughed and we always showed respect and love for each other.

    yes we have lost alot of our family to the beast, but we have to go on for them and help the newbies. I owe alot to the members here and will never forget them.

    God bless all of you. Never, ever give up !!!

  • ron50
    ron50 Member Posts: 1,723 Member
    edited August 2016 #51
    Good to see you Bruce

       I hope survival is being kind to you , my best wishes go with you, Ron.

  • kristasplace
    kristasplace Member Posts: 957 Member
    #52
    Holy wow!

    Today must be the day for reunions! I'd been posting updates on my facebook pages as my cancer status is "strange" right now, and got really curious about how many stage IV's are still surviving past five years. 

    My curiosity stems from realizing all of the stage IV people that I was friends with from here, and became friends with on facebook, have all passed away. It's so good to see there are so many still surviving outside of my little circle, and even thriving! Including all the other stages that have come so far for so long! I'm lucky I'm friends with Brooks on FB, so we get to keep in touch. Any of you that are on facebook, please friend me! I love being able to share stories and aspects of our lives that we wouldn't really be able to otherwise.

    Lisa (Scouty), I'm so extremely happy to see you're still on here! I have to say that you're a big part of the reason why I'm doing as well as I am. Emily, too! Keeping your stories close to my heart kept me strong during all those times i had to say, "No, but thank you" to the doctors who pressured me relentlessly to continue chemo. I haven't touched a drop since 2008 even though I've had four recurrences.

    I see a lot of familiar names and faces of others who gave me encouragement and the detrimental advice the doctors were clueless about. It's making me realize it may be important for me to stay on these boards to encourage and give support to others who are like I was; scared, confused, and desperate to find the strength they need to do what they need to do to survive. I'm sure there's a lot of people who need the support of going against the standards of care, like I did. If it wasn't for people like Lisa and Emily, I really don't know if I would've had the courage to keep saying no.

    Nice to see you, Brooks!

    I forgot to add my name so you guys can friend me. lol! Krista D'Ambroso <3

  • pamness
    pamness Member Posts: 524 Member
    #53
    8 years post diagnosis

    Hi All:  I'm not on often anymore either.  I am 8+ years Ned after a diagnosis of 3a, and grateful every day that I was so lucky.  I have had very few long term effects from the folfox but recently had surgery to deal with some abdominal surgery to deal with some post surgical/radiation adhesions 

    all my best to everyone.

  • abrub
    abrub Member Posts: 2,174 Member
    #54
    And this old-timer is back in the swamp.

    A newbie once again, as a new tumor rears its ugly head, and I must face surgery and at least IP chemo in the very near future.  At least I had a 9 year break.

    Alice

  • TxKayaker
    TxKayaker Member Posts: 176
    #55
    Yes still vertical at the

    Yes still vertical at the moment .....

  • jjaj133
    jjaj133 Member Posts: 867 Member
    #56
    beaumontdave said:

    Mine was a 3.2cm met to the

    Mine was a 3.2cm met to the liver,merging with the diaphram. The hole they left allowed fluid up into the lung sac and forced 2 needle aspirations, but I'm clear for 2 years as of Labor Day. I hope it comes out well for you.................................Dave

    mets to liver

    Thanks, for letting me know Dave, Ive had a liver resect twice before, but the diaphragm is new. A bit nervous about that. My surgery is scheduled for the 21st of this month. Be glad when its over!!! May I ask is your breathing capacity has changed at all?  Thanks Judy

     

  • funshine
    funshine Member Posts: 26
    edited September 2016 #57
    still kicking

    I was diagnosed 2010 with stage IV, never NED, just been fighting it hard. I never joined until now. Most recently I was on immune therapy it actually attacked my thyroid now my cea is as high as ever and have more spots in my lungs. BUt hey I made it 6 years. Im extremely tired but i keep going. I think I will refuse more chemo. they sent me for a new dna test to see what mutations I have in my blood to tell them which treatment would work the best.Thing is I have tried all the chemos left. Im tired of being a guinea pig. they dont know the answers just act like they do. I was told I would only live 2 years. so I guess i did better than they thought. The rest of the time I have I refuse to be sick and live like the living dead. So we will see how it goes.

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #58
    funshine said:

    still kicking

    I was diagnosed 2010 with stage IV, never NED, just been fighting it hard. I never joined until now. Most recently I was on immune therapy it actually attacked my thyroid now my cea is as high as ever and have more spots in my lungs. BUt hey I made it 6 years. Im extremely tired but i keep going. I think I will refuse more chemo. they sent me for a new dna test to see what mutations I have in my blood to tell them which treatment would work the best.Thing is I have tried all the chemos left. Im tired of being a guinea pig. they dont know the answers just act like they do. I was told I would only live 2 years. so I guess i did better than they thought. The rest of the time I have I refuse to be sick and live like the living dead. So we will see how it goes.

    There must come a time

    each different for individuals, when your spirit and body have had enough. 

    I wish you well, and may the previous treatments keep you alive for many years. 

    SUE

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