Found New Help for Saliva

Drivingdaisy
Drivingdaisy Member Posts: 263
in Head and Neck Cancer #1

Hello All,

My new fantastic Dentist who is very knowledged in new treatments and cancer, had me try a product that has come out and for me, it is fantastic!  It is called "NeutraSal", a supersaturated Calicum Phosphate Rinse.  Within 2 days I experienced a better result in helping my dry mouth.  The best I have tried.  You are to use it anywhere from 2-10 times a day.  Since he only gave me 6 little packets to try, I used only 2 the first day.  Felt some relief.  Than I hoarded it and used 1 Pack (adding a tad bit more water) for the next 5.  I was sold.  Can't wait to try more once I get my new prescription delivery. Wow.  Unfortunately you do need a Drs prescription but check it out on line for info on getting it reduced, like your initial free and the next 10 free.  You mix it with an oz of water and swish.  It is so easy to carry, purse or pocket.  Please check it out.  Best I have found and have tried them all.  Check with your Denist first since he can set you up on line.  Let me know if you try it, what you think.  Also, I was put on Gabapentin for nerve pain.  I had one very small stubborn spot on the side of my younger (not even the cancer side, go figure). Was having some bad reactions to the Gabapentin.  Talked with my Dentist if he could give me a shot for the burning, throbbing pain.  He did a very light laser treatment.  Already feeling some relief.  He will do a tad more.  I can eat more without the painful discomfort, burning.   Will ask about a few areas towards the back of the tongue and get them zapped if possible.  Should make moving forward eating less painful.   YEAH !!

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Comments

  • SylMarie
    SylMarie Member Posts: 91 Member
    #2
    Thank you for the recommendation!

    I am writing down all the recommendations so I can have it all lined up when I start rads later this month or early September. Will ask about NeutraSal! 

    If you don't mind my asking, what sort of reaction did you have to Gabapentin? I was told that I would be started on Gabapentin almost right after the rads started.

    Did your dentist laser areas that were sore in your mouth as a result of the rads?  Sorry for all the questions. I'm a newbie.  :)

  • swopoe
    swopoe Member Posts: 492
    #3
    We have a lot of neutra sal

    We have a lot of neutra sal packets left over if anyone wants some. Just send me a message and I can send them out to you!

  • RottiesMom
    RottiesMom Member Posts: 167
    edited August 2016 #4
    SylMarie

    I went on gabapetin the 10th day of treatment and just weaned off now.  I didn't have any reaction to it.  

    Joanne

  • Barbaraek
    Barbaraek Member Posts: 626
    #5
    swopoe said:

    We have a lot of neutra sal

    We have a lot of neutra sal packets left over if anyone wants some. Just send me a message and I can send them out to you!

    Sent you a private Message, Swopoe.

    We're willing to try anything to help with the xerostomia.

    Barbara

  • SylMarie
    SylMarie Member Posts: 91 Member
    edited August 2016 #6
    RottiesMom said:

    SylMarie

    I went on gabapetin the 10th day of treatment and just weaned off now.  I didn't have any reaction to it.  

    Joanne

    Joanne, did the Gabapentin

    Joanne, did the Gabapentin help you? I was told by the rad. onc. that if started soon into treatment and then liquid Oxy was gradually added when the pain started, most patients were able to continue to swallow pretty well and didn't end up needing a PEG, even if they were getting rads 5 days a week and once-weekly chemo. Was that your experience, or is the doc being overly-optimistic?  :)

  • Nancy24
    Nancy24 Member Posts: 72 Member
    #7
    SylMarie said:

    Joanne, did the Gabapentin

    Joanne, did the Gabapentin help you? I was told by the rad. onc. that if started soon into treatment and then liquid Oxy was gradually added when the pain started, most patients were able to continue to swallow pretty well and didn't end up needing a PEG, even if they were getting rads 5 days a week and once-weekly chemo. Was that your experience, or is the doc being overly-optimistic?  :)

    Gabapentin working for my husband

    My husband is in week 6 of his 7 week proton therapy and weekly cisplatin. He started on Gabapentin around week 2 and ramped up to 3 pills 3 times a day. He has had no pain and has not needed any Oxycodone. 

  • socalif
    socalif Member Posts: 3
    #8
    swopoe said:

    We have a lot of neutra sal

    We have a lot of neutra sal packets left over if anyone wants some. Just send me a message and I can send them out to you!

    left overs

    if you have some left over great, i would love to try, if not, did you have to get a prescription?  from Oncologist or Dentist?

  • Hondo
    Hondo Member Posts: 6,636 Member
    #9
    NeutraSal

     

    Looks like a good product except for the price but it is worth it if it can do what all they claim it can do. Thanks for the info

     

    Tim

     

  • socalif
    socalif Member Posts: 3
    edited August 2016 #10
    Neutrasal

    So is this only shipped direct from the mfg? A few pharmacies I went to said they dont carry it nor can they order it.

  • Drivingdaisy
    Drivingdaisy Member Posts: 263
    #11
    swopoe said:

    We have a lot of neutra sal

    We have a lot of neutra sal packets left over if anyone wants some. Just send me a message and I can send them out to you!

    Neural Sal

    Hi, if you still have them I would love to buy them.  As of right now, the product is on back order due to popularity  I guess.   I love this stuff, 1st thing that REALLY worked for me.  On rations and almost out.  Let me know if still available and will send off my address.  Thank you so much !  Lisa

  • Drivingdaisy
    Drivingdaisy Member Posts: 263
    #12
    SylMarie Gabapentin & Lazer

    Hi,  I did not take Gabapentin during treatment.  My mouth reacted so bad by Week 2 they had to put me on Liquid Oxy and eventually small dosage of Morphine.  I started taking it by the 3rd month of Recovery ( I am almost at the end of Month 4) for nerve pain in back of tongue and along right  of the tongue.  Just quit due to developing Restless Leg Sydrome  and patches of hair loss.  These aren't usually side effects of Gabapentin but than again, I have always been a bit abi-normal.  My Dentist did the laser to help a patch on the right side of my tongue that constantly burned and was worse when eating.  It is much better since he did it. It is too bad I had not met him prior to treatment.  He said he could have helped me a lot with the horrible mouth sores.  Just glad I found him now.  He did a fellowship summer at John Hopkins in the Cancer H&N Dept.  He is so much more current and knowledged than my old Dentist.  Hope this answers your questions.  If you have more, please feel free to ask. Good Luck, hugs, Lisa

  • swopoe
    swopoe Member Posts: 492
    #13
    Hi all, I am sorry but I don

    Hi all, I am sorry but I don't have my neutra sal left. It has already been all claimed.

  • Nancy24
    Nancy24 Member Posts: 72 Member
    #14
    swopoe said:

    Hi all, I am sorry but I don

    Hi all, I am sorry but I don't have my neutra sal left. It has already been all claimed.

    Source of your NeutraSal

    Did you get your packets from your dentist or from a pharmacy?  Trying to determine availability. 

    Nancy

  • Drivingdaisy
    Drivingdaisy Member Posts: 263
    edited August 2016 #15
    Nancy 24

    My Dentist who had me try this was told on-back order, my Mail order Pharmacy said same thing, Walgreens said same thing.  Guess we should all contact the Company and tell them to get their butt in gear and get this stuff out.  Check with your Dentist he can set you up or give you a Prescription.  Now it's just a waiting game.  I am so bummed.  Lisa

  • MJG1
    MJG1 Member Posts: 137 Member
    #16
    swopoe said:

    We have a lot of neutra sal

    We have a lot of neutra sal packets left over if anyone wants some. Just send me a message and I can send them out to you!

    neutra sal packets=swopoe

    I would love some Neutra sal packets if you still have some to spare!  Please PM me and I'll send you my home address and we will pay you for shipping and whatever you feel you need to the packets.  Thank you!!

  • Nancy24
    Nancy24 Member Posts: 72 Member
    #17
    Drivingdaisy said:

    Nancy 24

    My Dentist who had me try this was told on-back order, my Mail order Pharmacy said same thing, Walgreens said same thing.  Guess we should all contact the Company and tell them to get their butt in gear and get this stuff out.  Check with your Dentist he can set you up or give you a Prescription.  Now it's just a waiting game.  I am so bummed.  Lisa

    Thanks Lisa

    My husband is also bummed...

  • swopoe
    swopoe Member Posts: 492
    #18
    My husband got neutra sal

    My husband got neutra sal from the radiation doc. The nurse filled out a form and the company sent some to us for free. We also got some leftover from a former H&N patient that the radiation doctor had treated. We met the former patient in the office one day, and he sent us a box through the mail.

  • robswife87
    robswife87 Member Posts: 209
    #19
    Hoping it helps

    for hubby. He is 3 years out and needs to have a drink with him at all times. I printed the form from their website and he has his 4 month check ups tomorrow. I will let all the old timers here know if it works for those who suffer the long term effects 

    Sandy

  • robswife87
    robswife87 Member Posts: 209
    #20
    Way to expensive

    I just checked our insurance and it does not cover the Neutrasal. it would cost over $5000 for a 90 day supply. Did some research and it appears Caphosol is equal to it and insurance covers that one. Will let you know how it goes?

  • Drivingdaisy
    Drivingdaisy Member Posts: 263
    #21
    Caphosol

    Sandy,  Please keep me posted on this different swish.  I really loved the Neutralsal I got to try and my Insurance did cover it but if I can't get it, I will try anything.  Hope it works great, can't wait to hear.  Lisa

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