Found New Help for Saliva

swopoe

robswife87 said:

Way to expensive

I just checked our insurance and it does not cover the Neutrasal. it would cost over $5000 for a 90 day supply. Did some research and it appears Caphosol is equal to it and insurance covers that one. Will let you know how it goes?

$5000 dollars??? That is nuts

$5000 dollars??? That is nuts!!!

Nancy24

robswife87 said:

Way to expensive

I just checked our insurance and it does not cover the Neutrasal. it would cost over $5000 for a 90 day supply. Did some research and it appears Caphosol is equal to it and insurance covers that one. Will let you know how it goes?

Cost of NeutraSal

Oncologist sent rx to Transition Pharmacy in Pennsylvania (no idea why he sent it there as I'm currently I'm Sam diego). They called to tell me it's on back order and the cost is $25 for a box of 30 packets. 

RottiesMom

SylMarie said:

Joanne, did the Gabapentin

Joanne, did the Gabapentin help you? I was told by the rad. onc. that if started soon into treatment and then liquid Oxy was gradually added when the pain started, most patients were able to continue to swallow pretty well and didn't end up needing a PEG, even if they were getting rads 5 days a week and once-weekly chemo. Was that your experience, or is the doc being overly-optimistic?  

Sorry

Sorry didn't respond sooner!  I guess it did help as I didn't need the liquid pain meds until the 5th week.  I have a peg tube and didn't need it until this past week.  I ended treatment on Aug 16.  I was on a liquid diet, but swallowing it.  This past week has been rough...the mucus was so bad it was making me nauseous and had a lot of difficulty swallowing...ended up dehydrated on Friday and getting iv fluids.  At that point I decided I needed to use the peg and have since.  But like I said, more so because of mucous than pain!!!  I am swallowing water, just using tube for feeding. 

socalif

RottiesMom said:

Sorry

Sorry didn't respond sooner!  I guess it did help as I didn't need the liquid pain meds until the 5th week.  I have a peg tube and didn't need it until this past week.  I ended treatment on Aug 16.  I was on a liquid diet, but swallowing it.  This past week has been rough...the mucus was so bad it was making me nauseous and had a lot of difficulty swallowing...ended up dehydrated on Friday and getting iv fluids.  At that point I decided I needed to use the peg and have since.  But like I said, more so because of mucous than pain!!!  I am swallowing water, just using tube for feeding. 

question to you

were you ona 5-1/2, 6 7, or 8 week radiaiton? and was it coupled with anything else or just radiation?

asking just because I had 2 surgeries, no chemo, and on only 27 (or 28) radiation treatments, and dont have a feeding tube, and one wasnt recommended.

swallowing is difficult now on the 16th rad., and from the sounds of it, it might be almost impossible towards the end, although I am hoping for the best.

and i heard putting a tube in during rad is real difficult.

RottiesMom

socalif said:

question to you

were you ona 5-1/2, 6 7, or 8 week radiaiton? and was it coupled with anything else or just radiation?

asking just because I had 2 surgeries, no chemo, and on only 27 (or 28) radiation treatments, and dont have a feeding tube, and one wasnt recommended.

swallowing is difficult now on the 16th rad., and from the sounds of it, it might be almost impossible towards the end, although I am hoping for the best.

and i heard putting a tube in during rad is real difficult.

Was this question for me?

If so sorry I missed it.  I had no surgery, 7 weeks (35 rads), and 3 cycles of cisplatin 3 weeks apart the same time.  A feeding  tube was recommended for me because I was 109 lbs and couldn't afford to lose weight.  I was able to swallow the whole time...it was the mucus in my throat causing me to gag and throw up.  I didn't use the tube until a few days after treatment ended and started drinking my meals again this past Monday (so I relied on it for about 10 days).  I did lose about 7 lbs.  

Bunnymom

Laser treatment?

can you discuss more about the laser treatment for pain? Was this on your tongue? Also tried Gabapentin. Terrible for me. You have to taper off very slowly. 

rojored

swopoe said:

We have a lot of neutra sal

We have a lot of neutra sal packets left over if anyone wants some. Just send me a message and I can send them out to you!

Left over Nutra Sal

Good  morning, just joined this group and getting ready to start everything next week. Would love to have your left overs if still available. If not, where might I buy some. Glad to send you a check for them plus postage also.

 

John Owen

8008 Island Drive

Port Richey, Florida 34668

Drivingdaisy

Bunnymom.Answers to your questions on LASER Treatment for TONGUE

Bunnymom:    I will try and Answer Your Questions Best I can !!

1:  I tried the Gabapentin for tongue nerve/pain.  First week hair started to thin.  Second week I developed Restless Leg Syndrome ( Usually Gabapentin will help this condition I reacted opposite.......I'm Weird).  Third week developed patches of missing hair and a color change.  Saw My Pain Specialist and he said go ahead and stop it. Now what to do for the Nerve Pain on the tongue?

2:   Talked with My New Dentist ( up to date on ALL NEW Procedures, H&N Cancer, & Mouth Guards Wired/ with Recording Chip for SLEEP APPNEA ,  My Husband is a Pilot and the FAA has even approved it, so much easier to wear and travel with).   He told Me he could help the Nerve Pain on My Tongue ( actually all over the mouth).  He numbed My mouth and used a very tiny Laser and did a gentle treatment to start with.  Took about 5 days to heal, not too painful at all.  The pain was almost gone so I went back in and he finished the treatment with the Laser. Took about 6 days to heal and took Motrin for th pain. Also during both procedures I just drank shakes and super soft food to help it heal faster.  Pain Gone, YEA !!!!!!   Hope this helps.  Hugs, Lisa