ROLL CALL 2015 (ENROLLMENT, CHECKING-IN, STATUS UPDATE) CLOSED 8-15-15

Stage 3 or 4 (depending on the MD) BOT SCC HPV 16+

TORS to BOT and Left neck dissection with one out of 22 lymph nodes + Sept. 2013

33rounds of radiation ending in Dec 2013

2 PEG tubes (never used for food, but had to irrigate anyway)

8 front teeth filled so far and 2 cataract surgeries 1 year following treament and now shingles

Got rid of the HPV virus with AHCC 

Whooping it up in Montana now and eating peach, chocolate, and hucklberry pie and ice cream.  Also kayaking, swimming and dancing to work the calories off. 

Loving life and all its ups and downs. 

PJ

Duggie88 said:

Checking In

 

Jeff from Bernville PA.

Diagnosed with base of tongue cancer October of 2009. At the Hospital at the University of Pennsylvania I had a full neck dissection a week before Christmas removing part of my tongue, epiglottis, lymph nodes, and uvula. Radiation February 16, 2010 through March 30, 2010. January 2015 I was told I was cured but my wife reminded me and the Doc only of cancer.

I have often said it was the hardest thing I ever had to endure in my life but if I can do it anybody can do it. I now live happily ever after spending the kid’s inheritance.

Stage IV SCC of Tonsil with bilateral mets to lymph nodes / 2010 / St. Louis, Missouri.

This thread was always one of my favorites - great way to see how old friends are doing - Thanks Matt and Skiff!  And RIP HAWVET

Positive thoughts and Good Mojo to everyone!

Greg

Kent Cass said:

Still here

Kent Cass

Quad Cities, Illinois

DX: 11/2008  Stage-3 NPC

Treatment 2/09-4/09 Concurrent Cisplatin and 5-FU, carrying 2 bags&pumps twice for 96 hours weeks 1 and 4. 6800 rads in a total of 20 places/session, though missed weeks 5 and 6 (was in the hospital for 4 nights). 31 full rad sessions, and the last 4 in only 5 places.

Over $11K in Dental bills since tx, with 2 root canals and 3 new Crowns, and tops of 10 teeth keep getting rebuilt

Returned to work a month after the last rad, and still working as an Inspector at a progressive metalworking factory.

Believe

 

Good seein you bud..., long time..

John

Skiffin16 said:

Family

You are family....

So glad that you're still part of the gang.. Sure miss the fishin stories with your man..

John

Still here.  DX with Base of Tongue stage 4 in March 2012.  Chemo and Rads, no feeding tube.  Kansas.  I agree this site got me thru the treatments, along with God and my wife Diane.  Not sure what we would have done without it. 

Diagnosed Jan 7 2013. SCC front left of tongue. Partial glossectomy plus modified neck dissection (27 lymph nodes removed) showed one node infected. 

6 weeks of radio plus 3 x Cisplatins. NED as from April 9 2013.

Ticking along ok as at 15 July 15. 

CPC

Joined: August 2010

January 2010, swollen lymph node was a concern after not responding to two rounds of antibiotics.
Diagnosed SCC unknown primary HPV+ T0,N2b, with lymph node envolvement
Completed treatments 4/30/2010 M.D. Anderson : 35 rads, 7 once weekly doses of CisplatinGiven the all clear May 2013, which was a surprise. Doing great, dry mouth at night...some minor swallowing issues.Best to all,Chuck

Avisemi (real name is Majose) caregiver. My husband Dmitri was diagnosed with nasopharyngeal squamous cell carcinoma stage 3 or 4 depending on doc on Sept 2014. 

We live in Washington, DC. 

Finished treatment in Feb this year. First post treatment scans were NED. Next ones are next month. 

Pone of the favorite tips I learned here: "if Jeff can do it, Dmitri can do it" 

robswife87 said:

Update

Caregiver for husband Rob

Howell, MI

Joined 4/2013

Tonsil Cancer Stage IV A SCC, HPV+, Lymph Node involvement

No surgery, just radiation and chemo

July 6, 2015 NED and doing great

5 years post-treatment for inoperable late stage hypopharyngeal and base of tongue with lymph node involvement.

Jim has developed dysautonomia likely as a result of his treatment.

Mikemetz said:

Mike checking in

Decatur. GA.  6+ years NED, but still dealing with the after effects from rads.  But, it sure beats the alternative!

 

Mike

 

Diag Feb-2010 T4,N2c or T3N2.  Stage 4 SCC Right Tonsil & BOT HPV + Multiple lymph nodes on primary side in neck and shoulder. No metastasis to other side and still NED;-)

33 Rads, 2 out 3 Chemo, (Cisplatin). Completed May 2010

Have the Usual side effects, chemo killed my hearing and tinitus as well. Could not recieve 3rd dose of chemo. Dry mouth, nothing even remotely spicey etc etc.

All good and happy to be here, adapting along like we all have to do. Did treatment at Stanford and have no regrets making the regular long 430 mile trek.

At the five year mark starting experiencing more severe radiation side effects. Hypoglosal nerve on primary side starting to die. Developed a slight speech slur and partial loss of tongue coordination as well and difficulty swallowing (more than usual). Actually choked on lunch at work and thank GOD was successfully heimliched to safety. 5 Weeks later my ribs are just now getting better. Learning to adapt more and chewing and chewing my food even more. Very scarry experiene. 

All in all, still feel real good, working full time plus and appreciate everyone here on this board. I do not post much but i read often and appreciate the regualar posters. Some of the posters here are just here 24-7 and offer their undivided support to everyone regardless of their plight. I just want to say thank you to all of you for all of your support. Hopefully we can all continue to help each other. Have not seen poster Love for lacross around and wondeer if he is still ok.

Thanks again to all

josh r. said:

Roll Call

josh r.

scc stage iv throat 1991

joined csn 2010

"Jimmy V's"; "Never, never,never, never give up!" When I returned to teaching on January 4, 1992 I put his quote above my classroom door so when leaving the room it was imposssible to miss. I'd like to think that being there for the last sixteen years of my teaching career it gave someone hope as much for them as it did for me.

 

Caregiver to my mom. Diagnosed in oct of 2010, stage 3 tonsil and later tongue twice, neck dissection on both sides and radiation. 3 recurrances with last surgery on 3/1/12. NED for 3 years and 5 months which Ii thank God for.  THIS SITE AND ALL OF U HELPED ME  AND MY MOM GET THROUGH THIS. GOD BLESS U ALL.